scholarly journals Description and Demo of the Best Practice Caregiving Database on 44 Research Proven Dementia Caregiving Programs

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 7-7
Author(s):  
David Bass ◽  
Alyssa Ciancibello ◽  
Rachel Schaffer ◽  
Sara Powers
Keyword(s):  
Family Caregiving ◽  
Best Practice ◽  
Service Organizations ◽  
Evidence Based ◽  
Major Advance ◽  
Dementia Caregiving ◽  
Online Resource ◽  
Service Portfolio ◽  
Research Findings ◽  
Evidence Based Programs

Abstract A major advance in family caregiving has been the development, testing, and community delivery of research-proven, evidence-based support programs for family or friend caregivers of persons living with dementia. This presentation showcases and demos Best Practice Caregiving (BPC), a new online resource with comprehensive profiles for 44 of the top evidence-based dementia caregiving programs that are ready for scaling in communities. For these 44 programs, BPC is a database that presents key research findings with links to all its published articles, comprehensive program descriptions including all implementation features, and survey data on program delivery experiences from 324 healthcare and community organizations that offered the program as a regular part of their service portfolio 2019. BPC enables professionals to make side-by-side comparisons of the 44 programs, with the goal of increasing implementations of these evidence-based programs by healthcare and community service organizations.

scholarly journals Experiences From Healthcare and Community Organizations Delivering Evidence-Based Dementia Caregiving Programs

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 8-8
Author(s):  
Rachel Schaffer ◽  
Alyssa Ciancibello ◽  
David Bass ◽  
Sara Powers
Keyword(s):  
Best Practice ◽  
Community Organizations ◽  
Evidence Based ◽  
Healthcare Organizations ◽  
Dementia Caregiving ◽  
Funding Sources ◽  
Perceived Impact ◽  
Strongly Agree ◽  
Evidence Based Programs ◽  
Successes And Challenges

Abstract Best Practice Caregiving surveyed 324 healthcare and community organizations that replicated one or more of the 44 evidence-based programs about delivery organization characteristics, delivery staff, caregivers and persons with dementia served, funding sources, delivery challenges, perceived impact, and satisfaction. 211 (65.1%) organizations completed surveys about 30 different evidence-based programs. The most common types of organizations that delivered programs were healthcare organizations (23.8%) and Area Agencies on Aging (23.8%). Results showed on average organizations delivered programs for 49 months and served 68 families/year. The most common program delivery challenges were marketing (69.8%) and engaging participants (66.3%). Organizations generally agreed that programs had positive impacts on caregivers (59.5% strongly agree) but were less positive about benefits for persons with dementia (25.1% strongly agree). Discussion provides insights into successes and challenges organizations face when adopting evidence-based dementia caregiving programs in their communities.

scholarly journals Outcome Priorities Among Evidence-Based Dementia Caregiving Programs: A Closer Look

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 8-8
Author(s):  
Sara Powers ◽  
Alyssa Ciancibello ◽  
Rachel Schaffer ◽  
David Bass ◽  
Morgan Minyo
Keyword(s):  
Best Practice ◽  
Service Use ◽  
Current Evidence ◽  
Evidence Based ◽  
Program Outcomes ◽  
Dementia Caregivers ◽  
Depressive Symptomology ◽  
Dementia Caregiving ◽  
Cognitive Behavioral Theory ◽  
Evidence Based Programs

Abstract Currently, the Best Practice Caregiving website provides information on 231 published studies from 44 dementia caregiving evidence-based programs that have demonstrated beneficial outcomes for dementia caregivers within health care and community-based settings. Across all programs, a total of 34 biopsychosocial outcomes were identified. Supported by the commonly used stress-related frameworks (e.g., Stress-Health Process, Cognitive Behavioral Theory) for which the programs were developed, the most frequently utilized program outcomes included: 1) Caregiver stress, strain, and/or burden (84.1%); 2) Caregiver depressive symptomology (79.5%); and 3) Caregiving efficacy, skills, and/or confidence (63.6%). The least common programmatic outcomes included: 1) Access to support information/Community service use (9.1%); 2) Unmet needs (6.8%); and 3) Respite/break from care (2.3%). The lesser utilized outcomes provide critical insight into current evidence-based programmatic priorities and ways in which professionals can seek to fill gaps in dementia caregiving interventions. Discussion will also focus on future directions of caregiver-related outcome assessments.

scholarly journals BEST PRACTICE CAREGIVING: DIFFERENCES AND GAPS AMONG DEMENTIA SUPPORT PROGRAMS FOR FAMILY & FRIEND CAREGIVERS

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S957-S957
Author(s):  
Julie H Rentsch ◽  
David Bass ◽  
Kathy Kelly ◽  
Katie Maslow ◽  
Alyssa Ciancibello ◽  
...  
Keyword(s):  
End Of Life Care ◽  
Best Practice ◽  
Service Organizations ◽  
Evidence Based ◽  
Dementia Caregivers ◽  
Social Service Organizations ◽  
Evidence Based Programs ◽  
Coping With Illness ◽  
Relationship Of ◽  
The Relationship

Abstract Family members and friends are the main providers of care for persons living with dementia. However, dementia caregivers are at greater risk than other caregivers of experiencing negative caregiving consequences. Despite the development of evidence-based programs to support dementia caregivers, few health or social service organizations offer any of these programs due, in part, to a lack of knowledge about their availability. Best Practice Caregiving is a newly launched website where professionals can get detailed information about these programs. Data collected to develop Best Practice Caregiving are analyzed for a sample of 42 evidence-based dementia caregiving programs to describe similarities and differences among programs including gaps in assistance available from these programs. Results show 64% of programs are delivered to caregivers only while the remaining are delivered to the caregiver and/or persons with dementia. Nearly half (43%) of the 42 programs are delivered in-person, 38% by phone, with 17% delivered all or in part online. Most programs are delivered by professionals (86%) followed by trained lay leaders (40%) and self-guided (12%). Most programs (95%) provide assistance with coping with illness/caregiving and the relationship of the dyad. Fewer than half of the programs assist caregivers with issues regarding finances (45%), end-of-life care (43%), and medical care (40%). Data from 233 delivery organizations show the most common challenge was getting caregivers to accept and complete the program (86%). Delivery sites reported more success with funding the program (mean=8.2 on a scale of 1-10) than with marketing and recruiting participants (mean=6.7).

scholarly journals Developing best practice guidelines for designing living environments for people with dementia and sight loss

2017 ◽  
Vol 38 (5) ◽  
pp. 900-925 ◽  
Author(s):  
ALISON BOWES ◽  
ALISON DAWSON ◽  
CORINNE GREASLEY-ADAMS ◽  
LOUISE MCCABE
Keyword(s):  
Iterative Process ◽  
Best Practice ◽  
Development Process ◽  
Evidence Base ◽  
Design Guidelines ◽  
Evidence Based ◽  
Best Practice Guidelines ◽  
People With Dementia ◽  
Sight Loss ◽  
Research Findings

ABSTRACTThe paper considers a process of developing evidence-based design guidelines to be used in environments where people with dementia and sight loss are living. The research involved a systematically conducted literature review and a series of consultations with people affected by dementia and/or sight loss who lived or worked in care homes or in domestic settings. Findings from the literature and the consultations were used in an iterative process to develop the guidelines. The process is outlined, providing examples from the guidelines about lighting and colour and contrast. In discussing the research findings and the development process, the authors consider implications of the work including the weakness of the evidence base, the challenges of improving this and the need for innovative approaches to understanding the complexities of design for people with dementia and sight loss. They highlight the emphasis in the literature on independence for people with sight loss and the focus on control of people with dementia, arguing that this falls short of a genuinely person-centred approach, which recognises the active participation of people with dementia and sight loss.

scholarly journals Analysis of Best Practice Caregiving: A New Online Database of Evidence-Based Dementia Caregiving Programs

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 7-7
Author(s):  
Sara Powers ◽  
Sandy Markwood
Keyword(s):  
Best Practice ◽  
Service Use ◽  
Skills Training ◽  
Evidence Based ◽  
Online Database ◽  
Healthcare Organizations ◽  
Depressive Symptomology ◽  
Dementia Caregiving ◽  
Improved Outcomes ◽  
Monitoring Service

Abstract Best Practice Caregiving (BPC) is a free online database providing comprehensive information on research and implementation characteristics for 44 evidence-based dementia caregiving programs. Programs eligible for BPC have research-tested positive outcomes for family/friend caregivers and demonstrated feasibility in community implementations. This symposium presents results from analyses of the BPC database that includes surveys of 44 program developers and 324 healthcare or community delivery-organizations, and content analysis of 231 published studies. Findings show the most common of 19 types of assistance provided by programs were: Supporting Caregiver/Individual-with-Dementia (IWD) Communication, Encouraging Positive Caregiver-IWD Activities, and Strengthening Coping (93.2%). Least common were: Getting a Dementia Diagnosis (29.5%) and Monitoring Service Benefits (20.5%). Methods of delivering the types of assistance were: information/referral (M=11.1), skills training (M=7.5), and direct provision of care (M=3.8). The most common types of organizations that delivered programs were healthcare organizations (23.8%) and Area Agencies on Aging (23.8%). The greatest delivery-challenges were program marketing (69.8%) and caregiver engagement (66.3%). Most organizations ‘strongly agreed’ that programs had positive impacts on caregivers (59.5%) but were less certain about IWD benefits (25.1% ‘strongly agreed’). Published research studies found the most improved caregiver outcomes were: 1) Strain and/or burden (84.1%), 2) Depressive symptomology (79.5%), and 3) Caregiving efficacy (63.6%). Least common improved outcomes were 1) Access to support information/Community service use (9.1%); 2) Unmet needs (6.8%); and 3) Respite/break from care (2.3%). Overall, results highlight strengths of evidence-based dementia caregiving programs, along with gaps and challenges to be addressed by existing and new developing programs.

scholarly journals Types of Assistances of Evidence-Based Dementia Caregiving Programs: Data Results and Future Directions

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 7-8
Author(s):  
Alyssa Ciancibello ◽  
David Bass ◽  
Rachel Schaffer ◽  
Sara Powers
Keyword(s):  
Factor Analysis ◽  
Best Practice ◽  
Skills Training ◽  
Evidence Based ◽  
Delivery Method ◽  
Dementia Diagnosis ◽  
Future Directions ◽  
Dementia Caregiving

Abstract A key feature displayed in Best Practice Caregiving are the types of assistances. Data on 54 areas of care were collected for all 44 programs. These were analyzed through factor analysis and grouped into 19 types of assistance. Types were analyzed by the number of assistances provided, delivery method, and recipient of assistance. On average, programs delivered 11.8 types of assistances, with the most common types being Supporting CG/Individual-with-Dementia (IWD) Communication, Encouraging Positive CG-IWD Activities, and Assisting with Coping (93.2%), with the least common being Getting a Dementia Diagnosis (29.5%) and Monitoring Benefits of Services (20.5%). Assistance was delivered most often through information/referral delivery (M=11.07, SD=5.41) than direct (M=3.77, SD=4.54) or skills training (M= 7.50, SD=4.54). Results of the data show the breadth and characteristics of assistances programs provide to support caregivers of persons with dementia, along with gaps in types of assistances and future directions for programs.

Implementation of Sexually Transmitted Infection Interventions

2016 ◽  
Vol 18 (2) ◽  
pp. 290-297 ◽  
Author(s):  
Melissa Tibbits ◽  
Mohammad Siahpush
Keyword(s):  
Best Practice ◽  
Intervention Development ◽  
After School Programs ◽  
After School ◽  
Evidence Based ◽  
Health Issues ◽  
Transmitted Infection ◽  
Sexually Transmitted ◽  
Evidence Based Programs ◽  
Multilevel Interventions

Although community-wide, multilevel interventions are widely regarded as the most effective method for addressing complex health issues such as sexually transmitted infections (STIs), there is a dearth of research about the implementation of interventions of this nature. The aim of this study was to determine the implementation of locally developed and evidence-based STI interventions across an urban community using the Institute of Medicine’s intervention spectrum as a framework, to highlight collaborations, and to identify barriers to the implementation of community-wide, multilevel interventions. Semistructured interviews were conducted ( N = 20) with staff from schools, after-school programs, community organizations, and clinics in a Midwestern metropolitan area. Results indicate that interventions were implemented at all levels of the Institute of Medicine’s intervention spectrum, although selective interventions that served a small number of youth were most common. Most interventions were locally developed or adapted from evidence-based programs. Despite reported collaboration between agencies, there was relatively little community-wide coordination of STI interventions due to factors such as community norms and competition for limited funding. These findings offer further insight into the gap between best practice recommendations and the implementation of community-wide, multilevel interventions. Implications for intervention development and implementation are discussed.

scholarly journals Exploring Well-Being Outcomes Among Persons Living with Dementia: Self-Reports Versus Caregiver Proxy Reports

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 747-747
Author(s):  
Morgan Minyo ◽  
Sara Powers ◽  
Alyssa Ciancibello ◽  
Rachel Schaffer ◽  
David Bass
Keyword(s):  
Best Practice ◽  
Well Being ◽  
Self Report ◽  
Depth Information ◽  
Dementia Caregiving ◽  
Proxy Reports ◽  
Negative Impacts ◽  
Using Data ◽  
Evidence Based Programs ◽  
Report Measure

Abstract A vast amount of research has focused on the development of dementia caregiving evidence-based programs (EBPs) in order to mitigate the well-known negative impacts of providing care for persons living with dementia (PLWD). In order to support efficacious results, many programs utilize a variety of both objective and subjective outcomes as typically reported by the caregiver or collected via medical history and clinical assessments. However, more recent research has attempted to understand the subjective illness experience of PLWD through self-report measures. Using data obtained from an online database (i.e., Best Practice Caregiving), that currently provides in-depth information on 44 dementia caregiving EBPs, the current study aimed to examine the number of EBPs that incorporated PLWD self-report measures on a variety of well-being outcomes. Results indicate that out of the 44 EBPs included for analysis: 1) Four out of 19 programs evaluating PLWD symptom severity/difficulty/distress used a PLWD self-report measure; 2) Eight out of 10 programs evaluating PLWD symptoms of depression used a PLWD self-report measure; 3) Five out of 10 programs evaluating PLWD quality of life/care utilized a PLWD self-report measure; and 4) One out of 9 programs evaluating ADL/IADL dependencies utilized a PLWD self-report measure. Discussion will focus on potential gaps and limitations of primarily using caregiver proxy reports to collect personal well-being outcomes for PLWD and ways in which researchers can integrate more self-report measures into intervention and programmatic evaluations.

Clustering Practitioners Within Service Organizations May Improve Implementation Outcomes for Evidence-Based Programs

2014 ◽  
Vol 222 (1) ◽  
pp. 30-36 ◽  
Author(s):  
Sihu K. Klest
Keyword(s):  
Management Training ◽  
Service Organizations ◽  
Parent Management Training ◽  
Successful Implementation ◽  
Evidence Based ◽  
Social Service Organizations ◽  
The Past ◽  
Implementation Outcomes ◽  
Evidence Based Programs ◽  
Parent Management

Data for the present study were collected from Parent Management Training Oregon model (PMTO) therapists (n = 83) employed in Norwegian social service organizations. Survey data were analyzed using partial correlation, MANCOVA, and contrast tests. There were statistically significant positive relationships between the number of PMTO therapists working in an agency and respondents reports of: (1) how many families they had treated with PMTO in the past 6 months, (2) PMTO being well integrated in their organization, and (3) how much time they have to practice PMTO in their current position. In addition, practitioners in organizations with more PMTO colleagues were significantly less likely to report that they would stop using the program. Finally, there was a marginally significant positive relationship between the number of PMTO therapists in an agency and practitioners’ reports that they received a sufficient number of PMTO cases. The size of the organization, the number of years therapists had worked with PMTO, and therapist perception of agency leadership were controlled for. Contrast tests suggested that the most prominent differences were between agencies with three PMTO therapists versus agencies with one or two practitioners. There were exceptions to this result; for example, individual practitioners with four or more therapists in their agencies had treated significantly more families with PMTO in the past six months than those with three or fewer therapists. There were large effect sizes for the MANCOVA, F(20, 249) = 10.38, p < .01, η p 2 = .39, as well as the univariate tests. Implementation outcomes were not improved for PMTO therapists if there were practitioners within their agencies working with an evidence-based program other than PMTO. Results suggest that clustering practitioners using the same program within an organization, in groups of three or more, could contribute to successful implementation outcomes for evidence-based programs.

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