scholarly journals LGBTQ Older Adult Recruitment in the Midst of a COVID-19 Lockdown: Reminiscences of a Post-Doctoral Fellow

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 587-587
Author(s):  
Robert Beringer
Keyword(s):  
Older Adult ◽  
Online Survey ◽  
Lessons Learned ◽  
Town Hall ◽  
Targeted Advertising ◽  
Telephone Interviews ◽  
Research Protocols ◽  
Qualitative Component ◽  
Hospice And Palliative Care ◽  
Facebook Advertising

Abstract Within days of obtaining ethics approval for a qualitative study “Optimizing LGBTQ Engagement with Hospice and Palliative Care in the Island Health Region” our local Covid-19 lockdown began. It took several months to have new Covid-19 research protocols (Zoom Town Hall meetings/Zoom or telephone interviews) approved. Being impatient, I teamed with another group of researchers to launch “Covid-19: Your Current Experiences and Planning for the Future,” an online survey with a large qualitative component where we planned to oversample LGBTQ respondents. In time both projects were approved, and here I reflect on recruitment lessons learned. These include my perceptions how Zoom Town Hall meetings and interviews differ from those I’ve conducted in-person, reflections on how to use social media (including targeted Facebook advertising) to recruit participants, and sadly, how to manage anti-LGBTQ sentiment that resulted from even the most targeted advertising.

Facebook Digital Traces for Survey Research: Assessing the Efficiency and Effectiveness of a Facebook Ad–Based Procedure for Recruiting Online Survey Respondents in Niche and Difficult-to-Reach Populations

2018 ◽  
Vol 38 (4) ◽  
pp. 462-476
Author(s):  
Laura Iannelli ◽  
Fabio Giglietto ◽  
Luca Rossi ◽  
Elisabetta Zurovac
Keyword(s):  
Online Survey ◽  
Computer Assisted ◽  
Previous Survey ◽  
Innovative Method ◽  
Entry Points ◽  
Efficiency And Effectiveness ◽  
Recent Developments ◽  
Proper Comparison ◽  
Facebook Advertising ◽  
Digital Footprints

Survey-based studies are increasingly experimenting with strategies that employ digital footprints left by users on social media as entry points for recruiting participants and complementary data sources. In this perspective, the Facebook advertising platform provides unique opportunities and challenges through its marketing tools that target advertisements based on users’ demographics, behaviors, and interests. This article presents a procedure that employed the most recent developments in Facebook marketing tools to evaluate the efficiency and effectiveness of an innovative method for recruiting niche and traditionally hard-to-reach respondents. Although the multiple innovations introduced in the method hinder a proper comparison with previous studies, the survey provides evidence concerning the efficacy of the procedure and offers scholars a set of implementations to design future comparable Facebook ad–based surveys. Challenges, opportunities, and results for effectiveness are discussed in light of a previous survey on Italian adults carried out with a panel-based computer-assisted web interviewing method.

Smartphone and Digital Home Assistant Use Among Older Adults: Understanding Adoption and Learning Preferences

2021 ◽  
Vol 65 (1) ◽  
pp. 742-746
Author(s):  
Maurita T. Harris ◽  
Kenneth A. Blocker ◽  
Wendy A. Rogers
Keyword(s):  
Older Adults ◽  
Older Adult ◽  
Online Survey ◽  
Learning Preferences ◽  
Digital Home ◽  
Use Patterns ◽  
Adult Participants ◽  
Smart Technologies

Smart technologies have increased dramatically within the last decade. Their availability has improved opportunities for productivity, health, and entertainment, and this is especially true for technologies that act as central hubs to link other devices and applications that expand their capabilities (e.g., smartphones and digital home assistants). Older adults may significantly benefit from integrating these devices into their lives to mitigate the various challenges they face with increasing age (e.g., cognitive, mobility changes). To understand the potential of these technologies for this population, we investigated use patterns, learning preferences, and other perceptions related to the adoption of these devices. Seventy older adult participants responded to an online survey regarding their use and preferences with smartphones and digital home assistants. The results informed our understanding of current adoption rates as well as provided key perspectives to inform their design for older adults.

ENACT Study: What has helped health and social care workers maintain their mental wellbeing during the COVID-19 pandemic? Adaptive coping, team resilience, help-seeking behaviour and work based supports

2022 ◽  
Author(s):  
Nicola Cogan ◽  
Chloe Kennedy ◽  
Zoe Beck ◽  
Lisa McInnes ◽  
Gillian ◽  
...  
Keyword(s):  
Mental Health ◽  
Help Seeking ◽  
Online Survey ◽  
Social Care ◽  
Lessons Learned ◽  
Mental Wellbeing ◽  
Adaptive Coping ◽  
Team Resilience ◽  
Care Workers ◽  
Health And Social Care

Rapid studies have highlighted the adverse mental health impact of COVID-19 on health and social care workers (HSCWs). Complementing this work, we report on the psychosocial factors that have helped HSCWs adapt to the adversities associated with COVID-19 and protect staff wellbeing in Scotland. The ENACT study collected data from HSCWs (n= 1364) in Scotland during the third national lockdown. Using a cross-sectional design, participants completed an online survey providing quantitative data and free responses. A multi-method approach to analysis was used. The majority of HSCWs were found to have low wellbeing scores, high levels of COVID-19 stress, worry, burnout and risk perception scores and almost half of HSCWs met the clinical cut off for acute stress. Adaptive coping strategies and increased perceived team resilience helped mitigate against the adverse impact that COVID-19 stressors have on HSCWs’ mental wellbeing. HSCWs were significantly more likely to seek informal support for dealing with personal or emotional problems. Barriers to formal help-seeking were identified including stigma and fears of consequence of disclosure. HSCWs most valued peer support, workplace supports, visible leadership and teamwork. Our findings illuminate the complexity of the effects of the COVID-19 pandemic on HSCWs’ wellbeing and will inform future intervention development to increase positive adaptation amongst staff. Addressing barriers to mental health help-seeking among HSCWs is essential. The implications emphasise the importance of lessons learned across health and social care contexts, planning and preparedness for future pandemics.

Social work in hospice and palliative care in Europe: Findings from an EAPC survey

2020 ◽  
Vol 18 (6) ◽  
pp. 662-669
Author(s):  
Karl W. Bitschnau ◽  
Pam Firth ◽  
Maria Wasner
Keyword(s):  
Palliative Care ◽  
Social Work ◽  
Online Survey ◽  
Task Force ◽  
Basic Data ◽  
Online Questionnaire ◽  
The Social ◽  
Significant Patterns ◽  
Hospice And Palliative Care ◽  
Further Development

AbstractObjectivesSocial work is considered to be a key player in Hospice and Palliative Care. To prove this claim, the Social Worker Task Force within the European Association for Palliative Care (EAPC) decided to carry out a survey. The aim of this survey was to generate basic data and thus to create a basis for further development of Palliative Care Social Work (PCSW) in Europe.MethodThe online survey consisted of two parts: in Part 1, the 57 collective members of the EAPC were asked to fill in an online questionnaire containing questions about basic data. In Part 2, individual Palliative Care Social Workers (SWs) from all over Europe were asked to fill in another questionnaire with a focus on the basic conditions concerning their jobs as well, as on their tasks and roles.ResultsThirty-two collective members of the EAPC completed the online questionnaire. SWs can be found in all of the Palliative Care settings, but there are considerable differences between the countries concerning the prevalence of SWs. Only five countries (20%) reported specialized qualification training in PCSW and just around half of the responding SWs had such a specialized training. The responding SWs (n = 360) were quite content with their working conditions. Tasks concerning patient and family and tasks concerning the interprofessional team were most prominent. There is a significant role overlap with other professions.Significance of resultsThe study reveals a very mixed picture of PCSW in Europe. This could be due to the high adaptability of social work, which is to be as flexible as possible to the needs of its clients. However, significant patterns, similarities, and differences emerge. The present study may, therefore, serve as a basis for further in-depth studies.

Barriers and enablers to women in fire and emergency leadership roles

2019 ◽  
Vol 34 (2) ◽  
pp. 78-93 ◽  
Author(s):  
Debra Parkinson ◽  
Alyssa Duncan ◽  
Frank Archer
Keyword(s):  
Role Models ◽  
Online Survey ◽  
Leadership Roles ◽  
Structured Interviews ◽  
Family Responsibilities ◽  
Content Type ◽  
Management Leadership ◽  
Senior Women ◽  
Qualitative Component ◽  
In Fire

Purpose The purpose of this paper is to understand what (if any) actual and perceived barriers exist for women to take on fire and emergency management leadership roles within the Department of Environment, Land, Water and Planning, Victoria, Australia. Design/methodology/approach An anonymous quantitative online survey was used to collect data about opinions and thoughts of staff. This informed the qualitative component of the research – in-depth, semi-structured interviews and a focus group. The combination of these techniques provides deeper insight into the nature of the barriers for women. Findings Respondents identified real barriers for women accessing leadership roles in fire and emergency. Reflecting the wider literature on barriers to women in executive roles, those identified related to sexism, career penalties not faced by men for family responsibilities, and assumptions of women helping other women’s careers. There were more men in senior roles, leaving senior women isolated and often overlooked. Women had fewer role models and sponsors than men and less developed networks, finding it harder to access training and deployments. The context was described by most as “a boys’ club”, where men were seen to dominate meetings and stereotype the abilities of women. Originality/value This paper analyses the barriers to women in fire and emergency leadership roles within a masculine workplace and is rare in including a qualitative aspect to the issue in the Australian context.

scholarly journals EXPERIENCE OF LGBT PATIENTS AND FAMILY WITH HOSPICE AND PALLIATIVE CARE

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S623-S624
Author(s):  
Gary L Stein ◽  
Cathy Berkman
Keyword(s):  
Palliative Care ◽  
Staff Training ◽  
Online Survey ◽  
Research Policy ◽  
Cross Sectional Study ◽  
Care Staff ◽  
Future Research ◽  
Policy And Practice ◽  
Cross Sectional ◽  
Hospice And Palliative Care

Abstract This study examines the degree to which hospice and palliative care staff observe or perceive inadequate, disrespectful, or abusive care to LGBT patients and family members. A cross-sectional study using an online survey completed by 865 providers, including social workers, physicians, nurses, and chaplains. Among respondents, 55% reported that LGB patients were more likely to experience discrimination at their institution than non-LGB patients; 24% observed discriminatory care; 65% reported that transgender patients were more likely than non-transgender patients to experience discrimination; 20% observed discrimination to transgender patients; 14% observed the spouse/partner of LGBT patients having their treatment decisions disregarded or minimized; and 13% observed the spouse/partner being treated disrespectfully. Findings reported also include: institutional non-discrimination policy, staff training, intake procedures, and comfort in assessing LGBT status. Implications for future research, policy, and practice will be presented.

scholarly journals Using Visual Timelines in Telephone Interviews: Reflections and Lessons Learned From the Star Family Study

2020 ◽  
Vol 19 ◽  
pp. 160940692091367
Author(s):  
Bethan Pell ◽  
Denitza Williams ◽  
Rhiannon Phillips ◽  
Julia Sanders ◽  
Adrian Edwards ◽  
...  
Keyword(s):  
Family Study ◽  
Lessons Learned ◽  
Visual Methods ◽  
Generation Process ◽  
Data Generation ◽  
Face To Face ◽  
Telephone Interviews ◽  
Autoimmune Rheumatic Disease ◽  
Rich Data ◽  
Disease Study

Visual timeline methods have been used as part of face-to-face qualitative interviewing with vulnerable populations to uncover the intricacies of lived experiences, but little is known about whether visual timelines can be effectively used in telephone interviews. In this article, we reflect on the process of using visual timelines in 16 telephone interviews with women as part of the “STarting a family when you have an Autoimmune Rheumatic disease” study (STAR Family Study). The visual timeline method was used to empower women to organize and share their narratives about the sensitive and complex topic of starting a family. We conducted a thematic analysis of the audio-recorded interview data, using researchers’ field notes and reflections to provide context for our understanding of the benefits of using timelines and to understand the process of using visual timelines during telephone interviews. Resource packs were sent to women before study participation; 11 of the 16 women completed a version of the timeline activity. Six themes were identified in the methodological data analysis: (1) use and adaptation of the timeline tool, (2) timeline exchange, (3) framing the interview: emphasizing that women are in control, (4) jumping straight in, (5) taking a lead, and (6) disclosing personal and sensitive experiences. The use of visual timelines facilitated interviewee control and elicited rich narratives of participants’ experiences in telephone interviews. Women created their visual timelines autonomously and retained ownership of their timeline data; these features of the data generation process need to be considered when using visual timelines in telephone rather than face-to-face interviews. Use of visual methods within telephone interviews is feasible, can generate rich data, and should be further explored in a wider range of settings.

scholarly journals INNOVATIVE STRATEGIES TO SUPPORT OLDER ADULTS AND THEIR FAMILIES IN HOSPICE AND PALLIATIVE CARE

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S199-S199
Author(s):  
George Demiris ◽  
Karen Hirschman
Keyword(s):  
Older Adults ◽  
Palliative Care ◽  
Hospice Care ◽  
Geographic Distance ◽  
Smart Phone ◽  
Evidence Base ◽  
Lessons Learned ◽  
Ethical Challenges ◽  
Rural Settings ◽  
Hospice And Palliative Care

Abstract In order to better support older adults with life-limiting illness and their families, many initiatives utilize information technology and other innovative platforms to increase access to supportive services and bridge geographic distance. Such technologies cover a broad range of systems ranging from smart phone applications to wearables and traditional telehealth platforms. There is a growing evidence base for such interventions but technical, clinical and ethical challenges remain when utilizing technology in the context of hospice and palliative care especially for older adults, including the concerns for caregiver burden, privacy, security, confidentiality, obtrusiveness and accessibility. In this symposium we provide an overview of innovative tools available for interventions in palliative and hospice care designed for patients and/or family caregivers in urban and rural settings. We provide lessons learned from three NIH funded studies testing different technology-based interventions in various settings including home hospice and outpatient palliative care. Discussion will follow focused on the clinical, ethical and practical challenges of innovation and the unique considerations for technology-mediated intervention design in a variety of palliative and hospice care settings. This symposium aims to provide: 1. an overview of existing technology-based interventions for older adults and their families in palliative care and hospice 2. evidence-based recommendations resulting from clinical trials in urban and rural settings for the design and implementation of innovative tools in hospice and palliative care 3. a discussion of challenges and opportunities for the use of technology to support older adults and their families

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