scholarly journals Caregiving Between Spouse and Adult Child Caregivers of Older Adults with Cognitive Impairment

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 797-797
Author(s):  
Nicole Garcia ◽  
Anna Papazyan ◽  
Sarah Choi ◽  
Yeonsu Song

Abstract Prior studies of caregiving characteristics by type of caregivers are inconsistent, particularly those who are spouses and adult children. This study examined caregiving characteristics between spouses and adult children of cognitively impaired older adults. We analyzed phone-screening data from an ongoing trial of a dyadic sleep intervention program for persons with dementia and their caregivers. Data included spouse caregivers (n=52) and adult child caregivers (n=24). Nearly all participants (95%) lived with their care recipients (91% with dementia). Types of caregiving activities were measured by activities of daily living [ADLs] and instrumental ADLs [IADLs] with their levels of intensity (0 [total independent] to 3 [total dependent]). Care recipients’ sleep was measured by the Neuropsychiatric Inventory-Nighttime Behavioral Subscale (8 items). Analyses included Pearson correlations and t-tests. Adult child caregivers helped their care recipients at significantly higher levels as indicated by their measure of dependence in dressing (1.46±1.22 vs. 0.87±1.16, p=0.044), continence (1.22±1.38 vs. 0.54±1.04, p=0.021), laundry (2.87±0.46 vs. 2.13±1.24, p=0.007), and transportation (3.00±0.00 vs. 2.63±0.79, respectively; p=0.031) than spouse caregivers. Adult child caregivers also reported their care recipients having more difficulty falling asleep (56% vs. 19%, respectively; p=0.004) and having more numbers of sleep problems than spouse caregivers (3.54±2.08 vs. 2.48±1.51, respectively; p=0.014). The findings suggest that adult child caregivers may involve higher levels of caregiving responsibilities during daytime and nighttime, compared to spouse caregivers. Further research needs to explore complimentary ways to involve spouse and adult child caregivers in the care of this vulnerable population.

PLoS ONE ◽  
2021 ◽  
Vol 16 (6) ◽  
pp. e0252828
Author(s):  
Bernd Kowall ◽  
Anna-Therese Lehnich ◽  
Sara Schramm ◽  
Börge Schmidt ◽  
Raimund Erbel ◽  
...  

Introduction Poor sleep is a risk factor for adverse health events. For health prevention, it may be helpful to know whether poor sleep or sleep disorders in individuals are associated with sleep problems in their partners or children. Methods In the MultiGeneration Study (MGS, conducted from 2013 to 2016), 1237 partners (aged 27 to 90 years) and 1660 adult children (aged 18 to 66 years) of index persons were recruited. Index persons are participants of the Heinz Nixdorf Recall Study, a population-based cohort study in the Ruhr area (study start 1999–2001, 4841 participants aged 45–75 years). We used two analysis populations: one with 1181 index persons whose partners were in MGS, and one with 1083 index persons with at least one adult child in MGS. Sleep characteristics were assessed using questionnaires (including the Pittsburgh Sleep Quality Index). The exposure was the presence of a sleep characteristic of the index subject. Results Children showed the investigated sleep characteristics more often if these were also present in their parent (e.g., RR (relative risk) = 1.28 (95% CI: 1.06–1.55) for poor sleep quality). In partners, strong associations were observed for rising times and napping, but only weak associations for snoring, poor sleep quality and sleep disorders. Snoring of the bed partner is a risk factor for poor sleep (e.g., RR = 1.67 (0.91–3.07) for difficulties falling asleep). Conclusion Aggregation is observed for many sleep characteristics in people living in partnerships as well as in parents and their adult children.


2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S324-S324 ◽  
Author(s):  
Soohyoung r Lee

Abstract Even though the coresidence of older parents and their adult children is no longer a rare phenomenon in current society, a little is known about the benefit of living with adult children from older adults’ perspectives compared to the risk of this living situation. Previous research suggests that older adults’ psychological well-being is low when they live with their adult children, and this become more salient among single parents, such as widowed or divorced. The current paper utilizes the National Health Measurement Study with a sample of age 55 and over, and their SF-36 Mental Health Component score, and psychological well-being self-acceptance score was measured. Path analysis reveals while mental health and psychological well-being scores are lower among single older adults at the time of the survey (e.g., divorced, widowed) than non-single, coresidence of older adults and adult children completely mediates the negative relationship between being single and both mental health psychological well-being. A complete mediation effect of living with an adult child on older adults’ mental health and psychological well-being is consistent with both white and non-white minority older adults. This suggests that living with adult child benefits older adults’ mental health and psychological well-being. The current study seeks to stimulate ideas that might generate the next answer to community-based care in our current aging society.


Author(s):  
Mark D. Miller

Chapter 10 explores the role transition of the caregiver in interpersonal psychotherapy (IPT). This includes outlines of transitions to caregivers for adult child caregivers, spouse caregivers, siblings, and friends, which are illustrated using case vignettes.


2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S841-S841
Author(s):  
Rungnapha Khiewchaum

Abstract Background/Purpose: Young and adult children have experienced caring for people who have been diagnosed with dementia. Caregiving needs affect family members who become the primary caregivers in care transition from hospital to home. This study aims to synthesize primary qualitative research on the experiences of children caregivers of older adults with dementia. Method: This is a systematic review describing young and adult child caregivers’ experiences in caring for patient with dementia in home-based care. Data sources were published literature written in English from CINAHL, Scopus, PubMed, and PsychoINFO (published from January 1976 to October 2018). The thematic synthesis approach was also applied to generate theory generating meta-synthesis research (TGMS). and to describe the process of caring for demented patients by caregivers. Result: Eight primary studies reporting 388 potential studies were included. Four themes emerged: 1) well-being which included encouraging and destructive well-being; 2) role transition which included positive or negative role transformations; 3) caregiver needs which included medical and nursing information or knowledges and health care services/community services; and 4) the challenge of dementia which included symptoms of dementia which were impairing. Conclusion The findings of this meta-synthesis study support evidence of well-being among adult children in caring for people with dementia in transition phases. We present thematic synthesis that could be useful to professionals working with caregivers and patients with dementia. We suggest that research importance should shift towards the development and evaluation of care transitions intervention, especially professionals preparing support after diagnosis.


2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 174-174
Author(s):  
Adena Galinsky ◽  
Karen Fredriksen Goldsen ◽  
James Dahlhamer ◽  
Tina Norris

Abstract Sleep problems may increase the risk for, and result from, other health problems and negatively impact quality of life. Lesbian, gay, and bisexual older adults report more sleep problems compared to their straight counterparts when such problems are measured in the aggregate (e.g. “one or more of four specific sleep problems”). However, scant national research has examined if specific types of sleep problems vary by sexual orientation among older adults. Using 2015-2018 National Health Interview Survey (NHIS) data, we used logistic regression to separately model five sleep problems among women 50+ and men 50+ (lesbian/gay women: n=377, bisexual women: n=142, straight women: n=33,216; gay men: n=508, bisexual men: n=115, straight men: n=25,998) as functions of sexual orientation, controlling for age, race, education, and income. Sexual minority older adults were more likely than their straight counterparts to have taken sleep medication in the past week (women AOR=2.04, 95% CI:1.55, 2.67; men AOR=1.81, 95% CI:1.36, 2.40). The only other difference by sexual orientation found for men was bisexual older men’s greater likelihood, compared to straight men, of having difficulty falling asleep (AOR=2.02, 95% CI: 1.08, 3.79). Older women did not differ by sexual orientation in difficulty falling asleep, difficulty staying asleep, or waking up not feeling rested for four or more days in the past week, or meeting National Sleep Foundation recommendations for hours of sleep per night, whether lesbian/gay and bisexual women were examined together or disaggregated. Future research may examine why sleep quality only sometimes varies by sexual orientation.


2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 873-874
Author(s):  
Shantha Balaswamy ◽  
Rufus Singh

Abstract In India, the increasing emigration by adult children for job opportunity and socio-economic betterment has left vulnerable older adults (OA) to age in place. Almost ‘one of out of ten households in Tamil Nadu state has one or more (e) migrants’ (TN Migration Survey 2015), leaving behind OA who traditionally depend on family as a major source of support. There are few studies on impact of immigration of male adult on wife and children who are left behind, but hardly any research on OA who stay behind. This study aims to understand the social, emotional, economic, and health experiences of OA in one of the districts that has the highest rates of out migration. Data was collected using in-person interviews with 304 randomly selected OA whose adult child had migrated to another country. Nearly half of OA live alone (49.7%), have one or more chronic diseases (60%), require support for meeting their ADLs (90%), and half receive no financial support from adult child (50%) contrary to expectations of providing care for OA in this culture. Findings also reveal that persons over the age of 70 exhibit greater coping skills despite lower functional health, smaller social network, and less financial resources. A significant relationship exists between frequency of visits by adult child and reported levels of anxiety and depression. Implication discussions explore solutions at individual, community and policy levels to address vulnerabilities of the older population who are left behind in villages and towns of India due the globalization related mobility.


2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 1010-1010
Author(s):  
Aiping Lai ◽  
Julie Richardson ◽  
Lauren Griffith ◽  
Ayse Kuspinar ◽  
Jenna Smith-Turchyn

Abstract Purpose The purpose of this study was to assess whether there was an association between care-recipient relationship type and the QoL of older adults and their informal caregivers, and whether this association pertained to older adults’ cognitive function. Methods This was a secondary data analysis. Older adults (n=1230) and their informal caregivers (n=1871) were identified from participants in the National Health and Aging Trends Study (NHATS) Round 5 and the National Study of Caregiving (NSOC) II. A series of bivariate and multivariable regression models examined the associations among the care-recipient relationship type and QoL in older adults and their informal caregivers, adjusted for socio-demographic variables as well as cognitive functioning. Results Both older adults and caregivers’ QoL outcomes varied by the type of relationship. Recipients cared for by adult-child caregivers or multiple caregivers experienced higher functional limitation than those cared by spousal caregivers (β=.79, CI [.39, 1.19]; β=.50, CI [.17, .82], respectively). “Other” caregivers, such as siblings, friends, etc., had lower odds of experiencing negative emotional burden than spousal caregivers (OR=.26, CI [.13, .52]; OR=.53, CI [.35, .81], respectively). "Other" caregivers were also 51% less likely to experience social strain than spousal caregivers. Lower odds of experiencing negative emotional burdens were also found with multiple caregivers. The association between adult-child caregivers and social strain was explained by the recipients’ cognitive function. Conclusions Care-recipient relationship type impacts the QoL in both recipients and their informal caregivers. This association appears to be affected by care recipients' cognitive function level.


2019 ◽  
Vol 75 (10) ◽  
pp. 2230-2239 ◽  
Author(s):  
I-Fen Lin ◽  
Douglas A Wolf

Abstract Objectives Many older adults rely on their children’s support to sustain community residence. Although filial norms encourage adult children to help their parents, not every child provides parent care in times of need. The majority of prior studies have adopted an individualistic perspective to examine factors associated with individual children’s caregiving behavior. This study complements previous work by using the family systems perspective to understand how caregiving responsibilities are allocated among children in the family and how the pattern of care division evolves over time. Method Data came from seven rounds of the National Health and Aging Trends Study (2011–2017), in which community-dwelling respondents were asked about all of their children and which children provided them with care. Multilevel models were estimated to examine how caregiving responsibilities were distributed among children and how the children’s caregiving efforts responded to changes in their parents’ frailty. Results About three quarters of older adults reported receiving help from only one child, and the average of monthly care hours was about 50 at baseline. As parents’ frailty increased, the proportion of children providing parents rose and the allocation of parent-care hours became more equal. Discussion This study underscores the importance of using the family systems perspective to better understand adult children’s caregiving behavior. Although just one adult child providing care is the most common caregiving arrangement initially, adult children tend to work with their siblings to support parents’ aging in place as parents’ need for care increases.


2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 624-624
Author(s):  
Jinyu Liu

Abstract Using a mixed-methods approach, this study examines caregiver burden and depressive symptoms of Chinese American spouses and adult-children who provided care for their spouse or parents with dementia. Quantitative data were collected from a questionnaire-based survey in 124 Chinese caregivers in New York City and narrative data were gathered from in-depth interviews with 27 of these caregivers. The results of linear regression show that there was no difference in objective burden (caring tasks) between spousal and adult-child caregivers, but spousal caregivers reported significantly higher levels of subjective burden and depressive symptoms. Based on the structural equation modeling, it was found that subjective burden significantly mediated the association between being a spousal caregiver on depressive symptoms. The narrative data show that, compared to the adult-child caregivers, spousal caregivers were more likely to express their worries about the sequence of death (what will happen if they die earlier than their care receiver?).


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