scholarly journals GRANDPARENTING CHILDREN WITH DISABILITIES AND ITS IMPACT ON GRANDPARENT HEALTH

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S628-S628
Author(s):  
Ynesse Abdul-Malak ◽  
Madonna Harrington Meyer

Abstract Across the US, millions of grandparents are providing vital care for their grandchildren with disabilities when their adult children are in need of assistance and public programs do not provide needed supports. Research suggests the impact on grandparent physical health is mixed. This paper draws on in-depth interviews with 50 grandparents to explore how caring for grandchildren with disabilities shapes their physical wellbeing. We use life course perspective to assess the choices grandparents make from available resources and options at different stages of their lives and the effects on their health. We find in addition to providing routine care, helping with feeding, bathing, and dressing, some grandparents provide constant supervision and medically intense care, such as tending to feeding tubes, catheters, and oxygen lines. Many grandparents said care work has improved, or at least helped sustain, their overall level of fitness, while other grandparents find that care work has adverse impacts. Often there is too much chasing, bending, and lifting for their aging bodies. This paper suggests that stronger social programs for children with disabilities and the grandparents who step in to help them would decrease the negative effects of care work on grandparent health.

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 242-242
Author(s):  
Madonna Harrington Meyer

Abstract How does marital status shape grandparent care work when grandchildren have disabilities? Based on 50 in-depth interviews with grandparents who provide various types of care for grandchildren with disabilities, we find that marital status shapes care work in three distinct ways: (1) Many who are married describe both grandparents working as a team to provide vital care; (2) Some who are married describe spouses, primarily grandfathers, who are either unable or unwilling to provide care; and (3) Many who are not married, primarily grandmothers, describe providing relatively high levels of care and support despite relatively low resources. While nearly all report a great deal of joy and satisfaction with their care work, those who are single, have greater care responsibilities, and fewer resources are more likely to report adverse social, emotional, physical, and financial impacts. More robust social policies could alleviate the impact of marital status on grandparent care work.


2021 ◽  
pp. 104973232110030
Author(s):  
Lise Dassieu ◽  
Angela Heino ◽  
Élise Develay ◽  
Jean-Luc Kaboré ◽  
M. Gabrielle Pagé ◽  
...  

The objective of this study was to understand the impact of the opioid overdose epidemic on the social lives of people suffering from chronic pain, focusing on interactions within their personal and professional circles. The study was based on 22 in-depth interviews with people living with chronic pain in Canada. Using thematic analysis, we documented three main impacts of the opioid overdose epidemic: (a) increased worries of people in pain and their families regarding the dangers of opioids; (b) prejudices, stigma, and discrimination faced during conversations about opioids; and (c) stigma management attempts, which include self-advocacy and concealment of opioid use. This study represents important knowledge advancement on how people manage stigma and communicate about chronic disease during everyday life interactions. By showing negative effects of the epidemic’s media coverage on the social experiences of people with chronic pain, we underscore needs for destigmatizing approaches in public communication regarding opioids.


2016 ◽  
Vol 5 (1) ◽  
Author(s):  
Maria Zuurmond ◽  
Velma Nyapera ◽  
Victoria Mwenda ◽  
James Kisia ◽  
Hilary Rono ◽  
...  

Background: Although the consequences of disability are magnified in humanitarian contexts, research into the difficulties of caring for children with a disability in such settings has received limited attention.Methods: Based on in-depth interviews with 31 families, key informants and focus group discussions in Turkana, Kenya, this article explores the lives of families caring for children with a range of impairments (hearing, vision, physical and intellectual) in a complex humanitarian context characterised by drought, flooding, armed conflict, poverty and historical marginalisation.Results: The challenging environmental and social conditions of Turkana magnified not only the impact of impairment on children, but also the burden of caregiving. The remoteness of Turkana, along with the paucity and fragmentation of health, rehabilitation and social services, posed major challenges and created opportunity costs for families. Disability-related stigma isolated mothers of children with disabilities, especially, increasing their burden of care and further limiting their access to services and humanitarian programmes. In a context where social systems are already stressed, the combination of these factors compounded the vulnerabilities faced by children with disabilities and their families.Conclusion: The needs of children with disabilities and their carers in Turkana are not being met by either community social support systems or humanitarian aid programmes. There is an urgent need to mainstream disability into Turkana services and programmes.


Author(s):  
Mohammed bin Nasser al-Maatiq Al-Shahrani

The study aimed at evaluating the school safety and security which is necessary to protect students with special needs in Saudi Arabia. The analytical descriptive approach was used  and study was divided into two main chapters: The first chapter deals with the conceptual framework by identifying the meaning of school security and safety, and identifying the special needs group. Then in the next chapter the researcher analyzed the current reality in Saudi society and diagnose it. The negative effects of not integrating special needs students in schools, and concluding with the most important recommendations and mechanisms to remedy these problems, and design a plan of action to implement the study and set a timetable for it. Results: Children with special needs face several problems, including psychological, educational or social, and the integration of this group into society in general and in schools is a complex issue. Integration is defined as providing opportunities for children with disabilities to become involved in the special education system as a means of emphasizing the principle of equality Opportunities in education and aims to integrate in general to meet the special educational needs of children with disabilities within the framework of the regular school and according to the methods and methods and methods of educational studies and supervised by the provision of a specialized educational system in addition to the cadres of education in the public school and many studies pointed to the impact Consolidation and support, including those rejected as a result of several positive and negative trends.


2020 ◽  
pp. 136346152094331
Author(s):  
Christopher J. Mehus ◽  
Elizabeth Wieling ◽  
Okot Thomas Oloya ◽  
Achan Laura ◽  
Verena Ertl

The Acholi people of northern Uganda experienced decades of conflict. Alcohol misuse is high among northern Ugandan men. This is common in displaced or post-war communities. Because parents are often the most significant and proximal influence in a child’s development, it is important to understand the relationships between parental behavioral health and parenting. The purpose of this ethnographic study was to understand the impact of alcohol misuse on fathering, from fathers’ perspectives. We collected qualitative data from several sources, including in-depth interviews with 19 fathers. Informants identified three ways in which a father can “overdrink”: drinking to drunkenness, spending too much money on alcohol, or spending too much time drinking alcohol. Fathers described the specific ways in which overdrinking impacted each of the three primary roles of a father, which were identified as providing, educating, and creating a stable home. Of the negative effects of overdrinking, a compromised ability to provide for basic needs was described as the most salient. The findings suggest that support for families in this region should include support for father’s substance misuse, as a father’s overdrinking is widely understood to be problematic for the entire family.


Author(s):  
Ross Brown ◽  
Ronald V Kalafsky ◽  
Suzanne Mawson ◽  
Lori Davies

Regional resilience is a topic of growing academic and policymaker interest. This article empirically examines this concept by scrutinising the impact of Brexit on Scottish small and medium-sized enterprises (SMEs). Given their crucial importance for the Scottish economy, SMEs are a good ‘unit of analysis’ and a powerful barometer for measuring regional resilience. The research adopted a novel mixed methods approach examining the Longitudinal Small Business Survey together with in-depth interviews with SMEs. It is clear from the survey analysis that certain types of SMEs (i.e. innovators and exporters) were disproportionately fearful of Brexit. This was firmly corroborated by the interview data which found these same firms to be the most detrimentally impacted, manifesting in reductions in employment, exports and innovation. In contrast, the majority of domestically focused, less innovative SMEs were much less concerned and less negatively affected. While a small minority managed to deploy adjustment mechanisms to mitigate these negative effects, overall many firms had major difficulties operationally and strategically coping with this uncertain and turbulent environment. The findings suggest proactive public policies will be needed to help mitigate the difficulties caused by Brexit for certain types of SMEs.


2021 ◽  
Author(s):  
David Nicholas ◽  
Eti Herman ◽  
David Sims ◽  
Anthony Watkinson ◽  
Blanca Rodríguez-Bravo ◽  
...  

<p>The study presents comparative qualitative findings from a longitudinal exploration of the impact of the pandemic on early career researchers (ECRs) from the sciences and social sciences. Using qualitative methodologies, it focuses on the increasing demands of remote teaching made on ECRs and the potentially negative effects these had on their research. The study also sheds light on ECRs’ country-specific teaching commitments and the extent to which these play a role in their assessment. Data comes from the first of three rounds of in-depth interviews, conducted with 177 ECRs from China, France, Malaysia, Poland, Russia, Spain, UK and US. The main findings, which are set against the published literature, were: a) over half ECRs teach and most of them are assessed on their teaching; b) there are significant differences between countries, with, for instance, French researchers hardly teaching and nearly all Polish researchers doing so; c) around a quarter of ECRs felt research was hindered during the pandemic because online teaching was increasingly demanding of their time; d) a preliminary analysis of ECRs’ gender-specific attitude to teaching in the pandemic-incurred new realities indicates that women experience more difficulties.</p>


Author(s):  
Nicholas Denny Dharmawan ◽  
Sidhi Wiguna Teh

The world is currently faced with an era of technological disruption in the 4.0 industrial revolution which is marked by the emergence of Big Data, Artificial Intelligence, industrial autonomization, IoT, and others. Those things bring benefits and problems that must be overcome. The impact of this innovation can be felt by all groups, not only adults, rich people, entrepreneurs, people expert in technology, teenagers, and even children today. Humans need to adapt and mitigate these changes in order to survive in this condition, one of which is through education. The world of education needs to shift the education system because currently the condition of education, especially schools, is still using learning methods like the 2.0 era so that is is not suitable in this 4.0 era. The education strategy to face the era of the industrial revolution 4.0 is to immediately increase the capabilities and skills of human resources, equipped with invisible abilities, such as personal skills, global thinking, digital literacy, critical thinking, problem solving, communication, collaboration and. Advancement of information technology-based education will answer the challenges of industry 4.0. Kebon Jeruk Bio-Tech Learning space is a place for learning that is more flexible and suitable for building student character and creativity. Room quality, configuration and facilities must be adapted to the us of technology that is currently increasing. There is also need of special guidance from the community in responding to the increasing popularity of technology  in this era of disruption, increase the closeness between general citizens in anticipating the negative effects of technology. Keywords:  dwell; education ; industrial revolution 4.0 ; learning space    AbstrakDunia saat ini tengah dihadapkan dengane era disrupsi teknologi revolusi industri 4.0 yang ditandai dengan munculnya Big Data, Aritificial Intelligence, otonomisasi industri, IoT, dan lain-lain. Hal tersebut membawa segala kemajuan dan masalah yang harus dilalui. Dampak kecanggihan ini dapat dirasakan semua kalangan, bukan hanya orang dewasa, orang kaya, pengusaha, orang-orang ahli bidang teknologi, remaja bahkan anak-anak saat ini. Manusia perlu beradaptasi dan mitigasi di tengah perubahan ini agar tetap dapat dwell di kondisi ini, salah satunya melalui pendidikan. Dunia pendidikan perlu menggeser sistem pendidikannya karena saat ini kondisi pendidikan khususnya sekolah masih menggunakan metode belajar seperti era 2.0 sehingga dirasa kurang sesuai di era 4.0 ini. Strategi pendidikan menghadapi era revolusi industri 4.0 adalah segera meningkatkan kemampuan dan keterampilan sumber daya manusia yang dilengkapi dengan kemampuan tak kasat mata, seperti keterampilan interpersonal, berpikir global, literasi digital, berpikir kritis, pemecahan masalah, kemampuan berkomunikasi, kolaborasi dan kreativitas. Kemajuan pendidikan berbasis teknologi informasi akan menjawab tantangan industri 4.0. Kebon Jeruk Bio-Tech Learning space merupakan tempat belajar yang dirancang dengan metode linkungan belajar yang ideal, ruang sebagai guru ke-3, neuroarsitektur, dan biofilik desain dimana menghasilkan ruangan  lebih fleksibel, kolaboratif dan sesuai untuk membangun karakter dan kreativitas para murid. Kualitas ruang, konfigurasi ruang, dan fasilitas juga disesuaikan dengan penggunaan teknologi yang akan semakin berkembang.  Perlu juga adanya bimbingan khusus dari masyarakat dalam menyikapi semakin maraknya teknologi di era disrupsi ini, meningkatkan kedekatan antar warga umum dalam mengantisipasi dampak buruk teknologi.


2020 ◽  
Vol 4 (3) ◽  
pp. 395-411
Author(s):  
Elizabeth M. Legerski ◽  
Laura C. Hand

The Bakken region of the US recently experienced an oil boom, resulting in population growth and social change, including increased family violence. Drawing on care work literature, we ask: how might rural resource development impact the care work associated with services for domestic violence survivors? Utilising thematic analysis techniques, we examine data from in-depth interviews conducted with 50 care workers. We find that oil booms: (1) create more demand for care work; (2) lead to a scarcity of care workers; and (3) impact care delivery and burnout among care workers. Findings illustrate the importance of considering care as human infrastructure.


2007 ◽  
Vol 28 (12) ◽  
pp. 1611-1638 ◽  
Author(s):  
Nadine F. Marks ◽  
Heyjung Jun ◽  
Jieun Song

Guided by a life course perspective, attachment theory, and gender theory, this study aims to examine the impact of death of a father, a mother, or both parents, as well as continuously living with one or both parents dead (in contrast to having two parents alive) on multiple dimensions of psychological well-being (depressive symptoms, happiness, self-esteem, mastery, and psychological wellness), alcohol abuse (binge drinking), and physical health (self-assessed health). Analyses of longitudinal data from 8,865 adults in the National Survey of Families and Households 1987-1993 reveal that a father's death leads to more negative effects for sons than daughters and a mother's death leads to more negative effects for daughters than sons. Problematic effects of parent loss are reflected more in men's physical health reports than women's. This study's results suggest that family researchers and practitioners working with aging families should not underestimate the impact of filial bereavement on adult well-being.


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