scholarly journals Childhood disability in Turkana, Kenya: Understanding how carers cope in a complex humanitarian setting

2016 ◽  
Vol 5 (1) ◽  
Author(s):  
Maria Zuurmond ◽  
Velma Nyapera ◽  
Victoria Mwenda ◽  
James Kisia ◽  
Hilary Rono ◽  
...  

Background: Although the consequences of disability are magnified in humanitarian contexts, research into the difficulties of caring for children with a disability in such settings has received limited attention.Methods: Based on in-depth interviews with 31 families, key informants and focus group discussions in Turkana, Kenya, this article explores the lives of families caring for children with a range of impairments (hearing, vision, physical and intellectual) in a complex humanitarian context characterised by drought, flooding, armed conflict, poverty and historical marginalisation.Results: The challenging environmental and social conditions of Turkana magnified not only the impact of impairment on children, but also the burden of caregiving. The remoteness of Turkana, along with the paucity and fragmentation of health, rehabilitation and social services, posed major challenges and created opportunity costs for families. Disability-related stigma isolated mothers of children with disabilities, especially, increasing their burden of care and further limiting their access to services and humanitarian programmes. In a context where social systems are already stressed, the combination of these factors compounded the vulnerabilities faced by children with disabilities and their families.Conclusion: The needs of children with disabilities and their carers in Turkana are not being met by either community social support systems or humanitarian aid programmes. There is an urgent need to mainstream disability into Turkana services and programmes.

Author(s):  
Dadun Dadun ◽  
Ruth Peters ◽  
Wim van Brakel ◽  
Joske Bunders ◽  
Irwanto Irwanto ◽  
...  

The consequences of leprosy go beyond the physical, social and psychological, as leprosy can drive persons affected and their families into poverty, stigmatization and disability. This paper describes the impact of a socio-economic development (SED) intervention that uses a twin-track approach (two micro-credit models) to reduce leprosy-related stigma in Cirebon District, Indonesia. A randomized-controlled mixed-methods study design was used to test the effectiveness of the SED intervention. Three scales were used to measure stigma and participation restrictions among 30 SED clients and 57 controls, 20 in-depth interviews with SED clients and seven Focus Group Discussions (FGDs) with key persons were held and 65 profiles of the clients were written up and analysed. The qualitative data shows the socio-economic status of 44 out of 65 SED clients (67%) improved. The median family income increased by 25%, more clients reported higher self-esteem, better interaction with neighbours and less stigma than before, although disclosure concerns remained an issue. The scales indicate a positive effect of the intervention on reducing stigma (e.g., Stigma Assessment and Reduction of Impact (SARI) stigma scale mean difference total score of pre and post assessment for SED clients versus the control group was 8.5 versus 5.6). A twin track socio-economic intervention, if embedded and integrated, can increase participation, and be constructive in reducing leprosy-related stigma.


Author(s):  
Keitseope Nthomang

Empirical studies on the impact of micro level intervention strategies on poverty among poor women in Botswana are lacking, yet women are a valuable asset for the economy of the country. Continued marginalization and disempowerment of women has become a serious problem which merit urgent attention. This article investigates the potential of the Grow Model in transforming the lives of 14 women who belong to the Kgopolano GROW Group in Molepolole, Botswana. Data was collected in May 2014 using primarily in-depth interviews and focus group discussions. The analysis utilized both content and thematic approaches. The results showed how the Grow Model has inspired women to empower themselves and self-transform into productive and prosperous lives. The results affirm the strength of the GROW model in promoting empowerment for social change in marginalized contexts. Key policy recommendations recognizes the limitations of the GROW model and build on its strengths.


2020 ◽  
pp. 002087281988498
Author(s):  
Barbara Kail ◽  
Manoj Pardasani ◽  
Robert Chazin

This article describes the impact on social services of an innovative model of family care in Moshi, Tanzania, aimed at orphaned children and youth who are affected by HIV/AIDS and their caregivers. We explore three questions: Is social capital created during the provision of social work services? If so, what aspects of the model are responsible for it? How does this social capital influence the participants’ educational/occupational aspirations and vision of the future? This qualitative study is based on a case analysis of eight adolescents and their caregivers. Data were collected from in-depth interviews. The unique aspects of a family-oriented, holistic, social service model focused on empowerment and future orientation-generated bridging, bonding, and linking social capital. Youth with more social capital appeared to have clearer visions of their future path. Implications for community-based social work practice serving marginalized and impoverished groups are presented.


2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S628-S628
Author(s):  
Ynesse Abdul-Malak ◽  
Madonna Harrington Meyer

Abstract Across the US, millions of grandparents are providing vital care for their grandchildren with disabilities when their adult children are in need of assistance and public programs do not provide needed supports. Research suggests the impact on grandparent physical health is mixed. This paper draws on in-depth interviews with 50 grandparents to explore how caring for grandchildren with disabilities shapes their physical wellbeing. We use life course perspective to assess the choices grandparents make from available resources and options at different stages of their lives and the effects on their health. We find in addition to providing routine care, helping with feeding, bathing, and dressing, some grandparents provide constant supervision and medically intense care, such as tending to feeding tubes, catheters, and oxygen lines. Many grandparents said care work has improved, or at least helped sustain, their overall level of fitness, while other grandparents find that care work has adverse impacts. Often there is too much chasing, bending, and lifting for their aging bodies. This paper suggests that stronger social programs for children with disabilities and the grandparents who step in to help them would decrease the negative effects of care work on grandparent health.


2016 ◽  
Vol 3 (2) ◽  
pp. 39-53
Author(s):  
Keitseope Nthomang

Empirical studies on the impact of micro level intervention strategies on poverty among poor women in Botswana are lacking, yet women are a valuable asset for the economy of the country. Continued marginalization and disempowerment of women has become a serious problem which merit urgent attention. This article investigates the potential of the Grow Model in transforming the lives of 14 women who belong to the Kgopolano GROW Group in Molepolole, Botswana. Data was collected in May 2014 using primarily in-depth interviews and focus group discussions. The analysis utilized both content and thematic approaches. The results showed how the Grow Model has inspired women to empower themselves and self-transform into productive and prosperous lives. The results affirm the strength of the GROW model in promoting empowerment for social change in marginalized contexts. Key policy recommendations recognizes the limitations of the GROW model and build on its strengths.


BMJ Open ◽  
2021 ◽  
Vol 11 (7) ◽  
pp. e051410
Author(s):  
Kannamkottapilly Chandrasekharan Prajitha ◽  
Arya Rahul ◽  
Sujatha Chintha ◽  
Gopakumar Soumya ◽  
Meenu Maheswari Suresh ◽  
...  

ObjectiveTo understand the structures and strategies that helped Kerala in fighting the COVID-19 pandemic, the challenges faced by the state and how it was tackled.DesignQualitative descriptive study using focus group discussions and in-depth interviews.SettingState of Kerala, India.Participants29 participants: four focus group discussions and eight in-depth interviews. Participants were chosen purposively based on their involvement in decision-making and implementation of COVID-19 control activities, from the department of health and family welfare, police, revenue, local self-government and community-based organisations. Districts, panchayats (local bodies) and primary health centres (PHCs) were selected based on epidemiological features of the area like the intensity of disease transmission and preventive/containment activities carried out in that particular area to capture the wide range of activities undertaken in the state.ResultsThe study identified five major themes that can inform best practices viz social capital, robust public health system, participation and volunteerism, health system preparedness, and challenges. This study was a real-time exploration of the intricacies of COVID-19 management in a low/middle-income country and the model can serve as an example for other states and nations to emulate or adjust accordingly.ConclusionThe study shows the impact of synergy of these themes towards more effective solutions; however, further research is much needed in examining the relationship between these factors and their relevance in policy decisions.


2021 ◽  
Vol 2021 ◽  
pp. 1-17
Author(s):  
Gwarega Chibaya ◽  
Pragashnie Govender ◽  
Deshini Naidoo

The Namibian government ratified the UNCRPD and its optional protocol in 2007 raising expectations that such a convention would fundamentally improve the lives of persons with disabilities. However, persons with disabilities continue to experience inequalities and violation of dignity. This study explores the impact of the UNCRPD as reflected on the lives of persons with disabilities in Namibia. An exploratory qualitative study with the use of photovoice and in-depth interviews was conducted in Omusati and Khomas regions, Namibia. Persons with disabilities ( n = 31 ) were recruited via purposive sampling, of which n = 25 participants were engaged in three focus group discussions. Participants employed in the disability sector ( n = 6 ) were engaged in in-depth interviews. Data were thematically analysed. The study findings revealed the inadequacy of disability rights information dissemination and continued barriers to inclusivity of persons with disabilities. Stigma, discrimination, limited financial opportunities, weak political support, and limited accessibility to physical infrastructure caused barriers to inclusivity. However, opportunities to advance the UNCRPD were also identified. There is a need for the disability sector to build on identified institutional facilitators to advance disability rights through mobilisation of local resources, communities, and government to redress the challenges identified in Namibia.


2013 ◽  
Vol 2 (2) ◽  
pp. 69-74
Author(s):  
Aloysius Rukundo ◽  
Justine Magambo

Rukundo A. & Magambo J. (2013). Professional impotence: Impact of alcohol abuse on secondary schoolteachers in Uganda. International Journal of Alcohol and Drug Research, 2(2), 69-74. doi: 10.7895/ijadr.v2i2.104 (http://dx.doi.org/10.7895/ijadr.v2i2.104)Aims: We conducted this study to explore the impact of alcohol consumption on teachers’ jobs in Uganda. Specifically, we investigated the types of alcohol consumed by schoolteachers, reasons for alcohol abuse among teachers, justifications for mixing different types of drinks while drinking, and the effects of alcohol abuse on secondary schoolteachers. Design: Cross-sectional, descriptive.Participants: We involved 54 teachers (79.6% males and 20.4% females) in focus group discussions (FGDs) and four teachers (all male) in in-depth interviews.Measurement: Interviews were conducted to validate the data from FGDs as done by vanTartwijk, den Brok, Veldman and Wubbels (2008). Thematic analysis was employed to describe themes and emerging trends.Results: Data gathered from both in-depth interviews and FGDs show that teachers in Uganda drink a variety of “local” and “exotic” types of alcohol, for a variety of reasons. Results also indicate that during drinking sessions, teachers mix drinks for different reasons, but mainly to increase or decrease the potency of alcoholic drinks, depending on their types. All participants mentioned that over-consumption of alcohol negatively affects the teacher’s job and career in ways that include poor performance, neglect and loss of job.Conclusion: While teachers in Uganda drink many types of alcohol for apparently “good” reasons, those teachers who over-drink eventually fall into job inefficiency.


Author(s):  
Andi Pramesti Ningsih ◽  
Suriah Suriah ◽  
Muhammad Syafar ◽  
Masyitha Muis ◽  
Sukri Sukri ◽  
...  

ABSTRAKLatar Belakang. Pernikahan di usia dini  menimbulkan dampak negatif terhadap remaja baik dalam aspek fisik, psikologis dan biologis. Pernikahan di usia dini sangat erat kaitannya dengan tradisi yang ada di lingkungan masyarakat seperti perjodohan.Tujuan. Penelitian ini bertujuan untuk mengeksplorasi sosial budaya terkait pernikahan usia dini di Pulau Selayar.Metode. Penelitian ini menggunakan metode kualitatif dengan pendekatan fenomenologi deskriptif. Informan terdiri termasuk remaja, orang tua, penyedia kesehatan, dan kepala komunitas. Data dikumpulkan menggunakan wawancara mendalam dan diskusi kelompok terarah sesuai dengan tujuan penelitian. Data dianalisis dengan menggunakan analisis domain.Hasil. Tiga domain utama yang ditemukan dalam penelitian ini terkait pernikahan usia dini adalah: (1) perjodohan merupakan faktor yang mendukung terjadinya pernikahan di usia dini (2) dukungan sosial yang diberikan masyarakat terhadap pernikahan di usia dini karena adanya tradisi perjodohan yang berlaku dalam lingkungan masyarakat (3) pengetahuan yang dimiliki masyarakat dan remaja masih kurang mengenai dampak pernikahan usia dini.Kesimpulan. Sosial budaya yang ada di masyarakat dapat digunakan sebagai salah satu pendekatan untuk menurunkan angka pernikahan di usia dini. ABSTRACTBackground. Marriage at an early age has a negative impact on adolescents in physical, psychological, and biological aspects. Marriage at an early age is closely related to traditions in society such as arranged marriage.Objective. This study aimed to to explore the socio-culture related to early marriage on Selayar Island.Method. This study used a qualitative method with a descriptive phenomenology approach. Informants include youth, parents, health providers, and community heads. Data were collected using in-depth interviews and focus group discussions following the research objectives. Data were analyzed using domain analysis.Results. Three main domains found in this study related to early marriage are: (1) arranged marriage is a factor that supports early marriage (2) social support from the community supporting marriage at an early age because of the prevailing arranged marriage tradition in the society (3) the knowledge possessed by the community and adolescents is still lacking about the impact of early marriageConclusion: Social culture in the community can be an approach to reducing early marriage.


2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 242-242
Author(s):  
Madonna Harrington Meyer

Abstract How does marital status shape grandparent care work when grandchildren have disabilities? Based on 50 in-depth interviews with grandparents who provide various types of care for grandchildren with disabilities, we find that marital status shapes care work in three distinct ways: (1) Many who are married describe both grandparents working as a team to provide vital care; (2) Some who are married describe spouses, primarily grandfathers, who are either unable or unwilling to provide care; and (3) Many who are not married, primarily grandmothers, describe providing relatively high levels of care and support despite relatively low resources. While nearly all report a great deal of joy and satisfaction with their care work, those who are single, have greater care responsibilities, and fewer resources are more likely to report adverse social, emotional, physical, and financial impacts. More robust social policies could alleviate the impact of marital status on grandparent care work.


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