scholarly journals SOCIAL MEDIA RESOURCES FOR BILINGUAL CAREGIVERS OF STROKE SURVIVORS

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S888-S889
Author(s):  
Sandra Sanchez-Reilly ◽  
Laura M Reilly-Sanchez ◽  
Valeria Restrepo ◽  
Marcos I Restrepo ◽  
Jeanette Ross ◽  
...  

Abstract Background: Stroke survivors experience long-term disability also affecting informal caregivers (ICG). With current technology, social media might be the only way for ICG to gain training/access support. What resources are available for ICG of older adults who survived stroke (OASS)? Objective: To identify/analyze types of bilingual social media resources available to ICG of OASS Methods: Facebook data was bilingually collected (Spanish), including most popular groups and pages based on search engines containing terms such as stroke, CVA, caregiver. Similar numbers of groups (35 English vs. 52 Spanish) and pages (32 English vs. 34 Spanish) were analyzed. Data included pages and groups’ information, numbers-of-likes, type-of-organization and resources provided. Results: English-Facebook resources were more popular for pages and groups (3820/2010 vs. 190/7; p<0.001), Spanish resources were present, but with little activity among ICG. Majority of Spanish posts came from experts and English posts related to offering services or raising community awareness. Among both languages, pages provided resources related to social support (81%), improving caregiver skills (35%), advocacy (100%-English vs.56%-Spanish, p<0.001) and research news (84%-English vs.41%-Spanish, p<0.001). For English-ICG, more opportunities for live chats, messaging and inspirational messages were found (22-44% vs.3-9%, p<0.001). Conclusions: ICG of OASS could access Facebook resources to support multiple areas of caregiving including retrieving social support, gaining skills, learning new stroke-science findings and encountering live chats while getting inspired. Some resources are more available to English-ICG. Stroke-supporting organizations must consider using social media as crucial platforms to access bilingual resources and improve quality-of-life for ICG and OASS.

2020 ◽  
Vol 32 (7) ◽  
pp. 849-861
Author(s):  
Darina V. Petrovsky ◽  
Karen B. Hirschman ◽  
Miranda Varrasse McPhillips ◽  
Justine S. Sefcik ◽  
Alexandra L. Hanlon ◽  
...  

ABSTRACTObjectives:Daytime sleepiness is associated with multiple negative outcomes in older adults receiving long-term services and supports (LTSS) including reduced cognitive performance, need for greater assistance with activities of daily living and decreased social engagement. The purpose of this study was to identify predictors of change in subjective daytime sleepiness among older adults during their first 2 years of receiving LTSS.Design and Setting:Secondary analysis of data from a prospective longitudinal study of older adults who received LTSS in their homes, assisted living communities or nursing homes interviewed at baseline and every 3 months for 24 months.Participants:470 older adults (60 years and older) newly enrolled in LTSS (mean = 81, SD = 8.7; range 60–98; 71% women).Measurements:Subjective daytime sleepiness was assessed every 3 months through 2 years using the Epworth Sleepiness Scale. Multiple validated measures were used to capture health-related quality of life characteristics of enrollees and their environment, including symptom status (Symptom Bother Scale), cognition (Mini Mental Status Exam), physical function (Basic Activities of Daily Living), physical and mental general health, quality of life (Dementia Quality of Life, D-QoL), depressive symptoms (Geriatric Depression Scale) and social support (Medical Outcomes Survey-Social Support).Results:Longitudinal mixed effects modeling was used to examine the relationship between independent variables and continuous measure of daytime sleepiness. Increased feelings of belonging, subscale of the D-QoL (effect size = −0.006, 95% CI: −0.013 to −0.0001, p = 0.045) and higher number of depressive symptoms (effect size = −0.002, 95% CI: −0.004 to −0.001, p = 0.001) at baseline were associated with slower rates of increase in daytime sleepiness over time.Conclusions:Comprehensive baseline and longitudinal screening for changes in daytime sleepiness along with depression and perceived quality of life should be used to inform interventions aimed at reducing daytime sleepiness among older adults receiving LTSS.


2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 301-301
Author(s):  
Shelia Cotten

Abstract Though a digital divide still exists, older adults are increasingly using a range of information and communication technologies (ICTs) – smartphones, apps, tablets, and computers – to communicate and engage with social ties. This symposium focuses on modalities of interaction – whether online or offline – that older adults use to interact with social ties. The research projects detailed examine the frequency of different interaction modalities, as well as impacts of these interaction modalities on older adults’ perceptions of social support and quality of life. Kadylak and colleagues focus on social robots and how older adults may engage with this evolving technology to improve social engagement and aging in place. Kim and Fingerman investigate whether daily social media use is associated with same-day negative or positive mood in later life. Xie and colleagues examine older adults’ patterns of both online and offline social interaction during COVID-19, and how older adults perceive these interactions. Schuster and Cotten, using a national sample of individuals aged 65 and older, examine whether social media use may be related to a range of quality of life indicators. Each of these studies provides additional insights into the ways through which older adults interact and communicate with social ties, and potential impacts of the different ways through which they interact, which may provide insights into groups seeking to increase social engagement among older adults in general and during times when social isolation may be exacerbated due to societal stressors, such as pandemics.


2019 ◽  
Vol 33 (3) ◽  
pp. 260-266
Author(s):  
Kwanrutai Sampoon ◽  
Nuengruethai Posri ◽  
Boonsri Kittichotpanich

Purpose The purpose of this paper is to test the effectiveness of social dance exercise and social support program to improve quality of life (QOL) for older adults in Thailand. Design/methodology/approach A quasi-experimental pre-test and post-test research design was used. The participants were 102 older adults selected by systematic sampling technique. Participants were assigned using the matched-pair technique by age, physical fitness test by the Time up and Go test into intervention and control groups of 51 subjects each. Intervention was conducted for 12 weeks, three times weekly, to improve physical, psychosocial and spiritual domains leading to enhanced QOL as measured by the World Health Organization Quality of Life (WHOQOL–BREF–THAI) assessment parameter. Data on QOL were collected before and after a 12-week training period. Findings Most adults were between 70 and 79 years old (67 percent). After program completion, before and after mean QOL scores for the intervention group at 60.15 and 95.82, respectively, were statistically significant with p-value<0.05. Post-program QOL shown by the intervention group was significantly higher than the control group (p<0.05). Originality/value Application of social dance exercise and social support program is an alternative to traditional methods to improve QOL and maintain functional capacity for older adults.


Author(s):  
David H. Gustafson ◽  
Rachel Kornfield ◽  
Marie-Louise Mares ◽  
Darcie C. Johnston ◽  
Olivia J. Cody ◽  
...  

Abstract Background By 2030, the number of US adults age ≥65 will exceed 70 million. Their quality of life has been declared a national priority by the US government. Objective Assess effects of an eHealth intervention for older adults on quality of life, independence, and related outcomes. Design Multi-site, 2-arm (1:1), non-blinded randomized clinical trial. Recruitment November 2013 to May 2015; data collection through November 2016. Setting Three Wisconsin communities (urban, suburban, and rural). Participants Purposive community-based sample, 390 adults age ≥65 with health challenges. Exclusions: long-term care, inability to get out of bed/chair unassisted. Intervention Access (vs. no access) to interactive website (ElderTree) designed to improve quality of life, social connection, and independence. Measures Primary outcome: quality of life (PROMIS Global Health). Secondary: independence (Instrumental Activities of Daily Living); social support (MOS Social Support); depression (Patient Health Questionnaire-8); falls prevention (Falls Behavioral Scale). Moderation: healthcare use (Medical Services Utilization). Both groups completed all measures at baseline, 6, and 12 months. Results Three hundred ten participants (79%) completed the 12-month survey. There were no main effects of ElderTree over time. Moderation analyses indicated that among participants with high primary care use, ElderTree (vs. control) led to better trajectories for mental quality of life (OR=0.32, 95% CI 0.10–0.54, P=0.005), social support received (OR=0.17, 95% CI 0.05–0.29, P=0.007), social support provided (OR=0.29, 95% CI 0.13–0.45, P<0.001), and depression (OR= −0.20, 95% CI −0.39 to −0.01, P=0.034). Supplemental analyses suggested ElderTree may be more effective among people with multiple (vs. 0 or 1) chronic conditions. Limitations Once randomized, participants were not blind to the condition; self-reports may be subject to memory bias. Conclusion Interventions like ET may help improve quality of life and socio-emotional outcomes among older adults with more illness burden. Our next study focuses on this population. Trial Registration ClinicalTrials.gov; registration ID number: NCT02128789


2021 ◽  
pp. 089011712110129
Author(s):  
Erica G. Soltero ◽  
Stephanie L. Ayers ◽  
Marvyn A. Avalos ◽  
Armando Peña ◽  
Allison N. Williams ◽  
...  

Purpose: This study tested self-efficacy and social support for activity and dietary changes as mediators of changes in type 2 diabetes related outcomes following a lifestyle intervention among Latino youth. Setting and Intervention: Latino adolescents (14-16 years) with obesity (BMI% = 98.1 ± 1.4) were randomized to a 3-month intervention (n = 67) that fostered self-efficacy and social support through weekly, family-centered sessions or a comparison condition (n = 69). Measures: Primary outcomes included insulin sensitivity and weight specific quality of life. Mediators included self-efficacy, friend, and family social support for health behaviors. Data was collected at baseline, 3-months, 6-months, and 12-months. Analysis: Sequential path analysis was used to examine mediators as mechanisms by which the intervention influenced primary outcomes. Results: The intervention had a direct effect on family (β = 0.33, P < .01) and friend social support (β = 0.22, P < .001) immediately following the intervention (3-months). Increased family social support mediated the intervention’s effect on self-efficacy at 6-months (β = 0.09, P < .01). However, social support and self-efficacy did not mediate long-term changes in primary outcomes ( P > .05) at 12-months. Conclusions: Family social support may improve self-efficacy for health behaviors in high-risk Latino youth, highlighting the important role of family diabetes prevention. Fostering family social support is a critical intervention target and more research is needed to understand family-level factors that have the potential to lead to long-term metabolic and psychosocial outcome in vulnerable youth.


2020 ◽  
Vol 32 (S1) ◽  
pp. 15-16
Author(s):  
William E. Reichman ◽  
L. Bradford Perkins ◽  
Hilde Verbeek

This symposium will review the latest data on the influence of environmental design and its attributes on the cognitive and psychological wellbeing of older adults living with dementia. The presenters will cover the myriad ways in which the physical environment of care can adapt to the changing demands of older adults with sensory, motor and cognitive deficits and foster optimal functioning and quality of life. The role of emerging technologies will also be reviewed as they complement the contribution of the design of the physical environment to the wellbeing of older adults with cognitive impairment. Information will be offered through a review of the existing research literature as well as case studies that illustrate the impact of environmental modification on fostering wellbeing and minimizing the emergence of the behavioral and psychological symptoms of dementia. The presenters will represent and integrate sensibilities that have emerged from the fields of architecture, cognitive neuroscience and psychology.How the Principles of the Culture Change Movement Inform Environmental Design and the Application of Technology in the Care of Older Adults Living with DementiaWilliam E. ReichmanThe culture change movement informs a number of principles that have been applied to more contemporary design concepts for the congregate care of older adults living with dementia. This talk will review the core tenets of the Culture Change Movement as exemplified by the Greenhouse, Dementia Village and other innovative models of congregate long-term care. Specific reference will be made to how these tenets have been operationalized around the world into the design of programming and the creation of residential care environments that foster a better quality of life for older adults and an enhanced work environment for care providers. This talk will also include the emerging role of technologies that complement innovative design of the environment and which foster optimized social and recreational functioning of older adults living with dementia.A Better Life Through a Better Nursing Home DesignL. Bradford PerkinsOver the last 20 years there has been extensive experimentation related to the role of the environment in the housing, care and treatment of persons with Alzheimer’s and other age related dementias. Prior to that time the typical housing and care environment was a locked unit in a skilled nursing or other restrictive senior living facility. In 1991 the Presbyterian Association on Aging in Western Pennsylvania opened Woodside Place on its Oakmont campus. This small 36 bed facility was designed to incorporate the latest research and care experience with persons suffering from these issues. This one small project, as well as the long post occupancy research led by Carnegie Mellon University, clearly demonstrated that individuals with Alzheimer’s and related forms of dementia could lead a healthier, happier, higher quality of life in a more residential, less restrictive environment. Not everything in this pioneering project worked, and five generations of living and care models have followed that have refined the ideas first demonstrated by Woodside Place. Bradford Perkins, whose firm designed Woodside Place and over 100 other related projects, will discuss what was learned from Woodside Place as well as the five generations of projects (and post occupancy research) that followed.Innovative dementia care environments as alternatives for traditional nursing homes: evidence and experiences from the NetherlandsHilde VerbeekKey goals of the dementia care environment focus on increasing autonomy, supporting independence and trying to enable one’s own lifestyle for as long as possible. To meet these goals, innovative, small-scale and homelike care environments have been developed that have radically changed the physical, social and organizational aspects of long-term care in the Netherlands. This presentation discusses various Dutch models that have implemented small-scale and homelike care environments, including green care farms, dementia village and citizen initiatives. The models reflect a common care concept, focusing on residents’ remaining strengths, providing opportunity for choice and aiming to sustain a sense of self and control. A small number of residents (usually 6 to 8) live together in a homelike environment and nursing staff are part of the household. Residents are encouraged to participate in daily household activities, emphasizing normalization of daily life with person-centred care. The physical environment resembles an archetypal home. This talk presents the scientific evidence on the impact and effects of these small-scale, homelike models on residents, their family caregivers and staff. Furthermore, the presentation will highlight working approaches and how these initiatives have positively influenced routine care across the long-term care spectrum.


2015 ◽  
Vol 41 (12) ◽  
pp. 21-29 ◽  
Author(s):  
Pamela G. Bowen ◽  
Olivio J. Clay ◽  
Loretta T. Lee ◽  
Jason Vice ◽  
Fernando Ovalle ◽  
...  

2014 ◽  
Vol 3 (1) ◽  
pp. 101-106 ◽  
Author(s):  
Wojtek J. Chodzko-Zajko

For more than half a century fellows of the National Academy of Kinesiology have enthusiastically advocated for the promotion and adoption of physically active lifestyles as an affordable and effective means to prevent chronic diseases and conditions, and enhance independence and high quality of life for older adults. It is possible to discern distinct evolutionary stages when examining scholarship related to the role of physical activity in the promotion of healthy aging. Research into physical activity and aging began with critical early studies that established the underlying scientific evidence for a relationship between physical activity and healthy aging. More recent work has addressed such topics as building consumer demand, developing policies and legislation to support active aging, and understanding the complex interrelationships between physical activity and other lifestyle factors in the prevention and treatment of chronic diseases and conditions. It is increasingly apparent that strategies to promote active and successful aging must be integrated into an effective public policy. Kinesiologists and other health professionals, working in collaboration with colleagues from other disciplines, can help to reduce risk factors for chronic disease and improve quality of life for older adults by building awareness of the importance of physical activity and by assisting with the development and implementation of appropriate and effective interventions that reduce risk factors and improve quality of life.


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