Berlin Inventory of Caregiver Stress—Dementia (BICS-D)

2020 ◽  
Author(s):  
Anna Schlomann ◽  
Claudia Schacke ◽  
Bernhard Leipold ◽  
Susanne Zank
Keyword(s):  
Family Caregivers ◽  
Reliability And Validity ◽  
Sensitivity To Change ◽  
Factor Analyses ◽  
Differential Measurement ◽  
Dementia Caregiver ◽  
Stress Study ◽  
Severity Of Dementia ◽  
Design And Methods ◽  
Degrees Of Severity

Abstract Background and Objectives Dementia is becoming increasingly prevalent and family caregivers have been providing most of the care for persons with dementia. This caregiving is a mentally and physically demanding task. “The Berlin Inventory of Caregiver Stress—Dementia” (BICS-D) is a theory driven, multidimensional assessment which was developed as part of the Longitudinal Dementia Caregiver Stress Study (LEANDER). Research Design and Methods The inventory consists of 25 subscales with a total of 121 items. Analyses of the psychometric properties of the inventory were based on responses from 594 caregivers. Results Factor analyses confirm the multidimensionality of the inventory. The reliabilities of the subscales (Cronbach’s α) are between .72 and .95. Validity and sensitivity of the inventory were also confirmed. Differing patterns of burden could be demonstrated for different relatives (partners, children, and daughters-in-law) as well as for different degrees of severity of dementia. Discussion and Implications The scores derived for the instrument have support for reliability and validity, and sensitivity to change. It is suitable for the differential measurement of burden experienced by different subgroups of caregivers as well as for the evaluation of interventions. The different subscales of the battery can also be used separately, depending on the study’s objectives.

scholarly journals Dementia Caregiver Satisfaction and Utilization of a Telehealth App: Results From the FamTechCare Trial

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 149-149
Author(s):  
Kristine Williams ◽  
Clarissa Shaw ◽  
Yelena Perkhounkova ◽  
Maria Hein ◽  
Carissa Coleman
Keyword(s):  
Mixed Methods ◽  
Support Groups ◽  
Expert Panel ◽  
Video Recording ◽  
Ease Of Use ◽  
Attention Control ◽  
Caregiver Satisfaction ◽  
Dementia Caregiver ◽  
Severity Of Dementia ◽  
Person With Dementia

Abstract Technology can enhance support for families caring for persons with dementia but must be acceptable to be adopted. In the FamTechCare trial, caregivers used an app to videorecord care encounters that were reviewed by an expert panel who provided tailored feedback. The intervention reduced caregiver depression and improved caregiver competence. This mixed methods study reports caregiver satisfaction and utilization of the intervention and evaluation of the intervention by the expert panel. A convergent parallel mixed methods design was used to evaluate the satisfaction, usability, and feasibility of the intervention. Caregiver-person with dementia dyads were randomized to the FamTechCare video support or telephone attention control support groups. Caregivers completed a satisfaction survey at the completion of the 3-month trial. The number and duration of videos submitted and calls received by caregivers were used to evaluate utilization. Relationships between participant characteristics and satisfaction and utilization were evaluated. Feasibility and future directions for the intervention were assessed through interviews with the expert panel. The majority of caregivers in both groups reported benefits from participation. More FamTechCare caregivers found the interventionist support to be helpful (p=.001) and effective (p=.020) compared to attention control caregivers. FamTechCare caregivers of persons with more severe dementia were more likely to report that video recording intruded on their privacy (p=.050). Age, gender, education, dyad relationship, rural status, and type and severity of dementia were not associated with ratings of acceptability, ease of use, or intervention utilization. The expert panel rated FamTechCare as useful and identified adaptations to enhance feasibility.

scholarly journals Impact of Social Isolation on People with Dementia and Their Family Caregivers

2021 ◽  
pp. 1-11
Author(s):  
Lílian Viana dos Santos Azevedo ◽  
Ismael Luis Calandri ◽  
Andrea Slachevsky ◽  
Héctor Gastón Graviotto ◽  
Maria Carolina Santos Vieira ◽  
...  
Keyword(s):  
Family Caregivers ◽  
Social Isolation ◽  
Clinical Symptoms ◽  
Memory Function ◽  
South American ◽  
Severe Dementia ◽  
Dementia Caregivers ◽  
People With Dementia ◽  
Moderate Dementia ◽  
Severity Of Dementia

Background: People with dementia and their family caregivers may face a great burden through social isolation due to the COVID-19 pandemic, which can be manifested as various behavioral and clinical symptoms. Objective: To investigate the impacts of social isolation due to the COVID-19 pandemic on individuals with dementia and their family caregivers. Methods: Two semi-structured questionnaires were applied via telephone to family caregivers of people diagnosed with dementia in three cities in Argentina, Brazil, and Chile, in order to assess clinical and behavioral changes in people with dementia and in their caregivers. Results: In general, 321 interviews were conducted. A significant decline in memory function has been reported among 53.0%of people with dementia. In addition, 31.2%of individuals with dementia felt sadder and 37.4%had increased anxiety symptoms. These symptoms of anxiety were greater in individuals with mild to moderate dementia, while symptoms of agitation were greater in individuals with severe dementia. Moreover, compulsive-obsessive behavior, hallucinations, increased forgetfulness, altered appetite, and increased difficulty in activities of daily living were reported more frequently among individuals with moderate to severe dementia. Caregivers reported feeling more tired and overwhelmed during this period and these symptoms were also influenced by the severity of dementia. Conclusion: Social isolation during the COVID-19 pandemic triggered a series of negative behavioral repercussions, both for people with dementia and for their family caregivers in these three South American countries.

Preliminary Communication: 2: The Highlands Dependency Questionnaire (HDQ): An administered version for use with mothers of school children

1971 ◽  
Vol 1 (4) ◽  
pp. 343-347 ◽  
Author(s):  
Ian Berg ◽  
Ralph McGuire ◽  
Edward Whelan
Keyword(s):  
General Population ◽  
Secondary School ◽  
School Children ◽  
Reliability And Validity ◽  
Principal Component ◽  
The Other ◽  
Factor Analyses ◽  
Child Relationship ◽  
Preliminary Communication ◽  
Mother Child Relationship

SYNOPSISA questionnaire concerned with dependency, mainly in the mother–child relationship, and intended for use in child psychiatry, is described. It was administered to the mothers of 116 randomly selected junior and secondary school children in the general population, stratified into age, sex, social class, and school groupings. Two meaningful dimensions were revealed by principal component factor analyses: one concerned with reliance on mother and the other reflecting sociability. Reliability and validity were found to be satisfactory.

Capturing the Familiness of Family Businesses: Development of the Family Influence Familiness Scale (FIFS)

2017 ◽  
Vol 41 (5) ◽  
pp. 709-742 ◽  
Author(s):  
Hermann Frank ◽  
Alexander Kessler ◽  
Thomas Rusch ◽  
Julia Suess–Reyes ◽  
Daniela Weismeier–Sammer
Keyword(s):  
High Reliability ◽  
Family Members ◽  
Reliability And Validity ◽  
Family Influence ◽  
Factor Analyses ◽  
Confirmatory Factor Analyses ◽  
Proficiency Level ◽  
Confirmatory Factor ◽  
The Family ◽  
And Control

This article develops a familiness scale measuring the family influence on the business via decision premises that express familiness. In three studies, we examine familiness with qualitative and quantitative approaches based on new systems theory. Narrative interviews are employed to generate items. Exploratory and confirmatory factor analyses led to a multidimensional scale (Family Influence Familiness Scale [FIFS]) comprising six dimensions: (1) ownership, management, and control; (2) proficiency level of active family members; (3) sharing of information between active family members; (4) transgenerational orientation; (5) family–employee bond; and (6) family business identity. Results indicate high reliability and validity levels.

scholarly journals Validating the Revised Scale for Caregiving Self-Efficacy: A Cross-National Review

2018 ◽  
Vol 59 (4) ◽  
pp. e325-e342 ◽  
Author(s):  
Ann M Steffen ◽  
Dolores Gallagher-Thompson ◽  
Katherine M Arenella ◽  
Alma Au ◽  
Sheung-Tak Cheng ◽  
...  
Keyword(s):  
Family Caregivers ◽  
Self Efficacy ◽  
Discriminant Validity ◽  
Cognitive Theory ◽  
Reliability And Validity ◽  
Validity Data ◽  
Research And Practice ◽  
Validity Indices ◽  
English Translations ◽  
Cross National

AbstractBackground and ObjectivesThis article reviews an instrument used in cross-national research with dementia family caregivers—the Revised Scale for Caregiving Self-Efficacy (RSCSE). Although the RSCSE has been translated into multiple languages, few studies have examined scale performance across samples. We examine congruence of psychometric, reliability, and validity data to inform research and practice.MethodsWe conducted citation searches using Scopus, Google Scholar, Web of Science, and PsycINFO. Identified dementia caregiving studies cited the original RSCSE article and described results of English and/or non-English translations of the scale.ResultsPeer-reviewed published studies (N = 58) of dementia family caregivers included data for Arabic, Chinese, English, French, Italian, and Spanish translations of the RSCSE; the majority (72%) reported use of non-English translations. Studies utilizing confirmatory factor analytic approaches reported findings consistent with the original development study. Internal consistency, convergent/discriminant validity, and criterion validity indices were congruent across diverse cross-national caregiving samples assessed with different translations. Data supported the RSCSE’s sensitivity to change following specific psychosocial caregiving interventions.DiscussionThe reliability and validity of different translations of the RSCSE support continued use with cross-national samples of dementia family caregivers. Limitations of the scale point to the need for further self-efficacy measurement development within caregiving domains. Consistent with Bandura’s discussion of social cognitive theory in cultural contexts, personal agency for caregiving challenges remains generalizable to cross-national populations. This review discusses the implications for cross-cultural research and practice.

scholarly journals BESI: Behavioral and Environmental Sensing and Intervention for Dementia Caregiver Empowerment—Phases 1 and 2

2020 ◽  
Vol 35 ◽  
pp. 153331752090668 ◽  
Author(s):  
Azziza Bankole ◽  
Martha S. Anderson ◽  
Nutta Homdee ◽  
Ridwan Alam ◽  
Ashley Lofton ◽  
...  
Keyword(s):  
Phase 1 ◽  
Care Facility ◽  
Community Dwelling ◽  
Ethnographic Study ◽  
Environmental Sensing ◽  
Dementia Caregiver ◽  
Home Based ◽  
Person With Dementia ◽  
Design And Methods ◽  
The Relationship

Background and Objectives: Caregiver burden associated with dementia-related agitation is one of the commonest reasons a community-dwelling person with dementia (PWD) transitions to a care facility. Behavioral and Environmental Sensing and Intervention for Dementia Caregiver Empowerment (BESI) is a system of body-worn and in-home sensors developed to provide continuous, noninvasive agitation assessment and environmental context monitoring to detect early signs of agitation and its environmental triggers. Research Design and Methods: This mixed methods, remote ethnographic study is explored in a 3-phase, multiyear plan. In Phase 1, we developed and refined the BESI system and completed usability studies. Validation of the system and the development of dyad-specific models of the relationship between agitation and the environment occurred in Phase 2. Results: Phases 1 and 2 results facilitated targeted changes in BESI, thus improving its overall usability for the final phase of the study, when real-time notifications and interventions will be implemented. Conclusion: Our results show a valid relationship between the presence of dementia related agitation and environmental factors and that persons with dementia and their caregivers prefer a home-based monitoring system like BESI.

scholarly journals How to Measure Baha’i Religiosity: The CRSi-20 for Baha’is as a First Reliable and Valid Measurement

Religions ◽  
2020 ◽  
Vol 11 (1) ◽  
pp. 29 ◽  
Author(s):  
Sarah Demmrich
Keyword(s):  
Reliability And Validity ◽  
Psychology Of Religion ◽  
Fit Indices ◽  
Factor Analyses ◽  
Confirmatory Factor Analyses ◽  
Public Practice ◽  
Valid Measurement ◽  
Confirmatory Factor ◽  
Emic Perspective

The concepts and measurements in psychology of religion often adhere to its Judeo-Christian roots, which causes problems when measuring non-Christian religiosity. In this paper, two successive studies are presented. The first study applied Huber’s CRS-15, while the second study used the CRSi-20. Both samples consisted of believers of the non-Christian, Abrahamic Baha’i religion in Germany. In the first study, in which N = 472 participated (MAge = 43.22, SDAge = 15.59, 60.0% female), the reliability and validity issues related to items of public practice and experience of the CRS-15 were uncovered. After modifying the content of these items and adding the five additional items of the interreligious CRSi-20, which was tested among N = 324 participants (MAge = 47.12, SDAge = 17.06, 59.6% female) in a second study, most reliability issues were solved. Confirmatory factor analyses revealed that the CRSi-20 model describes the data appropriately with adequate fit indices. Therefore, the CRSi-20 for Baha’is offers the first reliable and valid measurements of Baha’i religiosity, being at the same time capable of taking the emic perspective fully into account while maintaining the possibility of cross-religious comparisons.

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