scholarly journals Exploring Research Engagement and Priorities of Transgender and Gender Diverse Veterans

2021 ◽  
Author(s):  
Hill L Wolfe ◽  
Taylor L Boyer ◽  
Keri L Rodriguez ◽  
Gloria J Klima ◽  
Jillian C Shipherd ◽  
...  
Keyword(s):  
Data Collection ◽  
Health Services Research ◽  
Health Services ◽  
Research Participation ◽  
Future Research ◽  
Underrepresented Populations ◽  
Services Research ◽  
Electronic Health Record Data ◽  
Gender Diverse ◽  
And Gender

ABSTRACT Introduction In recent years, the U.S. Veterans Health Administration (VHA) has seen an increasing population of transgender and gender diverse (TGD) veterans accessing care. Approximately 139 per 100,000 VHA users had a gender identity disorder diagnosis documented in 2018 compared to 32.9 per 100,000 in 2013. Despite TGD patients being overrepresented within VHA, TGD veterans may distrust or face unique barriers with various aspects of the VHA, including health services research. Existing VHA health research focused on TGD populations is largely limited to secondary analyses of electronic health record data. Identifying strategies to enhance primary data collection is crucial for more deeply investigating health care challenges experienced by TGD veterans using VHA care. Additionally, describing health topics of importance for TGD veterans is important for making the research agenda more patient-centered. In this study, we offer veterans’ recommendations for researchers working with underrepresented populations based on our findings. Materials and Methods From September through October 2019, 30 TGD veterans were recruited through VHA lesbian, gay, bisexual, transgender, and queer/questioning Veteran Care Coordinators (LGBTQ+ VCC) located nationwide. Semi-structured interviews were used to explore barriers and facilitators to research participation, recommendations for improving outreach and engagement, and overall perspectives about priorities in health services research. Transcripts were independently and jointly reviewed and coded by two TGD research analysts, including a veteran using VHA care. Codes were derived inductively. Themes were identified using conventional content analysis. The VA Pittsburgh Healthcare System institutional review board approved this study. Results Participants cited privacy concerns of being “outed” and potentially having VHA benefits revoked, in addition to a level of distrust in researchers’ intentions as barriers to participating in studies. Facilitators for participating included feeling a sense of serving the TGD community and accessibility to study locations, especially VHA-affiliated sites. Suggestions for recruitment included tailored messaging and using other TGD peers or affirming VHA staff (e.g., LGBTQ+ VCCs) for study outreach. Mental health and gender-affirming hormone therapy were the most understudied topics identified by participants. Additionally, participants prioritized the inclusion and study of underrepresented subpopulations, such as transgender women of color, transgender men, and non-binary/gender diverse veterans, in future research. Conclusions By harnessing the VHA LGBTQ+ VCC network, this study recruited a national sample of TGD veterans to provide insight on methods for more effectively engaging TGD veterans in research and elicited their suggestions for health services research topics. The findings provide numerous suggestions for medicine and public health that are ripe for future research endeavors. Despite the study’s lack of gender, racial, and ethnic diversity, findings highlight the need for engagement and study of underrepresented veteran populations. These suggested areas of focus for research in combination with valuable insight on research participation provide researchers with guidance for developing research agendas and designing recruitment and data collection methods that can facilitate future primary research advancing health services research involving TGD patients. Similarly, VHA and non-VHA researchers conducting research involving other underrepresented populations can also gain insight from these findings.

scholarly journals Applying an extended theoretical framework for data collection mode to health services research

2010 ◽  
Vol 10 (1) ◽  
Author(s):  
Michael R Robling ◽  
David K Ingledew ◽  
Giles Greene ◽  
Adrian Sayers ◽  
Chris Shaw ◽  
...  
Keyword(s):  
Data Collection ◽  
Health Services Research ◽  
Health Services ◽  
Theoretical Framework ◽  
Services Research

scholarly journals Diffusion of published cost-utility analyses in the field of health policy and practice

2005 ◽  
Vol 21 (3) ◽  
pp. 399-402 ◽  
Author(s):  
Seema S. Sonnad ◽  
Dan Greenberg ◽  
Allison B. Rosen ◽  
Peter J. Neumann
Keyword(s):  
Health Policy ◽  
Health Services Research ◽  
Health Services ◽  
New Technologies ◽  
Medical Literature ◽  
General Medicine ◽  
Cost Utility ◽  
Future Research ◽  
Services Research ◽  
Over Time

Objectives: The diffusion of cost-utility analyses (CUAs) through the medical literature was examined, documenting visible patterns and determining how they correspond with expectations about the diffusion of process innovations.Methods: This study used 539 CUAs from a registry. It includes data elements comprising year of publication, the research center in which the study was performed, the clinical area covered by the CUA, and the specific journal. Finally, each paper was assigned to a journal type that could be one of the three categories: health services research, general medicine, or clinical specialty.Results: When the average number of publications is plotted against time, the plot reveals an S-shaped curve. It appears that, whereas CUAs initially were published more frequently in general medical or health services research journals, there was a clear increase in the diffusion of CUA into subspecialty journals over time. The concentration ratio for research centers as measured by the Herfindhal–Hirschman Index decreased over time.Conclusions: The spread of CUA through the medical literature follows patterns identified for the diffusion of other new technologies and processes. Future research should focus on what impact this spread has had on the practice of medicine and formulation of health policy.

scholarly journals Research participation registers can increase opportunities for patients and the public to participate in health services research

2016 ◽  
Vol 21 (3) ◽  
pp. 183-187 ◽  
Author(s):  
Verity Leach ◽  
Sabi Redwood ◽  
Gemma Lasseter ◽  
Axel Walther ◽  
Colette Reid ◽  
...  
Keyword(s):  
Health Services Research ◽  
Health Services ◽  
Research Participation ◽  
Services Research ◽  
The Public

scholarly journals Using accreditation surveyors to conduct health services research: a qualitative, comparative study in Australia

2020 ◽  
Vol 32 (Supplement_1) ◽  
pp. 89-98
Author(s):  
Teresa Winata ◽  
Robyn Clay-Williams ◽  
Natalie Taylor ◽  
Emily Hogden ◽  
Peter Hibbert ◽  
...  
Keyword(s):  
Data Collection ◽  
Health Services Research ◽  
Health Services ◽  
Comparative Study ◽  
Research Data ◽  
Services Research ◽  
Research Activities ◽  
Short Notice ◽  
Staff Engagement ◽  
And Training

Abstract Objective Healthcare accreditation surveyors are well positioned to gain access to hospitals and apply their existing data collection skills to research. Consequently, we contracted and trained a surveyor cohort to collect research data for the Deepening our Understanding of Quality in Australia (DUQuA) project. The aim of this study is to explore and compare surveyors’ perceptions and experiences in collecting quality and safety data for accreditation and for health services research. Design A qualitative, comparative study. Setting and Participants Ten surveyors participated in semi-structured interviews, which were audio recorded, transcribed and coded using Nvivo11. Interview transcripts of participants were analysed thematically and separately, providing an opportunity for comparison and for identifying common themes and subthemes. Intervention(s) None. Main Outcome Measure(s) Topics addressed data collection for healthcare accreditation and research, including preparation and training, structure, organization, attitudes and behaviours of staff and perceptions of their role. Results Five themes and ten subthemes emerged from the interviews: (1) overlapping facilitators for accreditation and research data collection, (2) accreditation-specific facilitators, (3) overlapping barriers for accreditation and research data collection, (4) research data collection-specific barriers and (5) needs and recommendations. Subthemes were (1.1) preparation and training availability, (1.2) prior knowledge and experiences; (2.1) ease of access, (2.2) high staff engagement, (3.1) time, (4.1) poor access and structure, (4.2) lack of staff engagement, (4.3) organizational changes; (5.1) short-notice accreditation and (5.2) preparation for future research. Conclusions Although hospital accreditation and research activities require different approaches to data collection, we found that suitably trained accreditation surveyors were able to perform both activities effectively. The barriers surveyors encountered when collecting data for research provide insight into the challenges that may be faced when visiting hospitals for short-notice accreditation.

scholarly journals Enriching Future Research: The Power of Qualitative Methods in Cancer-Related Health Services Research

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 687-688
Author(s):  
Sean Halpin
Keyword(s):  
Older Adults ◽  
Health Services Research ◽  
Health Services ◽  
Qualitative Methods ◽  
Cancer Care ◽  
Care Delivery ◽  
Guideline Implementation ◽  
Population Diversity ◽  
Future Research ◽  
Services Research

Abstract The ever-changing landscape of cancer care for older adults—with novel treatments, increasing survival rates, and growing population diversity—makes effective cancer care delivery increasingly complex. Qualitative research is uniquely poised to make sense of this complexity and shape potential interventions and their implementation. While the potential power of qualitative methods in cancer-related health services research and implementation science is great, as recognized in a recent National Cancer Institute report, the range of qualitative methods can make identifying and applying the most appropriate method(s) challenging. To meet this challenge, this symposium will bring together researchers across disciplines to report on three qualitative techniques and how each was applied in cancer research with older adults. Halpin will present on the use of applied conversation analysis to study medical education delivery to patients with multiple myeloma. The method is particularly well-suited to investigate health education and communicative efficacy. Carrion will discuss in-depth qualitative interviews that were conducted to understand the cancer beliefs and attitudes of older Latinx adults. The interviews, conducted in Spanish, offer an opportunity to consider how qualitative methods are key to illuminating the experiences of underrepresented populations. Seaman will report on the multiple qualitative methods used, including questionnaires, interviews, and site observations, to document survivorship care practices among head and neck cancer programs. The triangulation of qualitative methods allowed for an unparalleled understanding of guideline implementation and program variation. Exploring a range of methods, the presentations make a powerful argument for qualitative methods in cancer-related health services research.

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