scholarly journals Coping strategies adopted by Iranian families of children with Down syndrome

Medicine ◽  
2020 ◽  
Vol 99 (28) ◽  
pp. e20753
Author(s):  
Roqayeh Gashmard ◽  
Fazlollah Ahmadi ◽  
Sima Mohammad Khan Kermanshahi
Keyword(s):  
Down Syndrome ◽  
Coping Strategies ◽  
Children With Down Syndrome

Psycho-educational Nursing Intervention for Improving Coping Strategies and Psychological Well-Being among Family Caregivers of Children with Down Syndrome

2021 ◽  
Vol 19 (5) ◽  
pp. 49-60
Author(s):  
Amgad Said Mohammed ◽  
Sahar Mahmoud Mohamed ◽  
Rania Abdel-Hamid Zaki
Keyword(s):  
Down Syndrome ◽  
Coping Strategies ◽  
Family Caregivers ◽  
Well Being ◽  
Nursing Intervention ◽  
Instrumental Support ◽  
Post Intervention ◽  
Psychological Well Being ◽  
Children With Down Syndrome ◽  
Brief Cope

Background: Training family caregivers of children with Down Syndrome on how to promote their own psychological well-being and to cope effectively is essential as they are frequently unstable and forego their psychological well-being. Aim: This study aimed to assess the effect of psycho-educational nursing intervention on coping strategies and psychological well-being among family caregivers of children with Down Syndrome. Design: A quasi-experimental design was utilized in this study. Setting: This study was carried out in the Genes Clinics of Down Syndrome in the specialized clinics of the university pediatric hospital affiliated to Ain Shams University Hospitals. Subjects: A sample of 60 family caregivers of children with Down Syndrome. The study tools were: 1) Interviewing Questionnaire, 2) Brief-COPE inventory (Carver, 1997), 3) Ryff’s Psychological well-being scale (1989) and 4) Psycho-educational program. The results: There were highly statistically significant differences between pre & post intervention regarding to emotion-focused coping strategies except for humor, acceptance, religion, venting and substance use and there were highly statistically significant differences between pre & post intervention regarding to problem-focused coping strategies except for use of instrumental support. Conclusions: There were highly statistically significant differences between pre & post intervention regarding the level of psychological well-being. There was a negative statistically significant correlation between psychological well-being pre & post intervention and all types of emotion-focused coping strategies except for humor, acceptance and religion. Meanwhile, there was a highly positive statistically significant correlation between psychological well-being pre & post intervention and problem-focused coping strategies regarding active coping and positive reframing and a positive statistically significant correlation regarding use of instrumental support and planning. Recommendations: Future research to assess challenges encountered by siblings of Down Syndrome children and to apply supportive intervention that promotes positive relationships and attitudes.

scholarly journals Parenting Styles, Coping Strategies and Life Satisfaction of Parents Having Children with Down Syndrome

2017 ◽  
Vol 3 (1) ◽  
pp. 35-43
Author(s):  
Tooba Zia ◽  
Fozia Akram
Keyword(s):  
Life Satisfaction ◽  
Down Syndrome ◽  
Coping Strategies ◽  
Parenting Styles ◽  
Coping Styles ◽  
Clinical Psychologist ◽  
Satisfaction Scale ◽  
Children With Down Syndrome ◽  
Approach Coping ◽  
Age Range

The present study explores the relationship among Parenting styles, Coping Strategies and Life Satisfaction of parents having children with Down syndrome. Purposive sampling and comparative study were used to select the sample. A sample consisted of (N=100) parents mothers and fathers of Down syndrome children were taken from different government and private institutes of Faisalabad. The sample was further divided into (n=50) mothers and (n=50) fathers of Down syndrome children. The age range of participants was taken 30-55 years above. Parenting Styles Dimension Questionnaire (PSDQ) translated Urdu version by (Batool, 2013). Coping Response Inventory (CRI) translated Urdu version by (Mahmood & Sheraz, 2012) and Life satisfaction scale (LSS) Urdu version translated by (Mahmood, 2013) were used for data collection. Pearson Product Moment Correlation Coefficient and Independent Sample T-Test were calculated for statistical analysis. Findings indicates that male parents of Down syndrome children scored high on Authoritative and permissive parenting styles and it’s also showed that male parents of Down syndrome children have scored high on the scale of approach coping styles .Through that study it indicates that male parents use more approach coping styles than female parents. And male parents are equally satisfied with their lives. This study aims to use effective coping strategies and parenting styles to improve the quality of life of parents of those who are having children with disability. It also aims to increase the role of the clinical psychologist in the treatment of those children who are suffering from disability or psychological illness and also psych educate parents those are directly or indirectly taking pain of their children.

scholarly journals Stres rodzicielski matek dzieci z autyzmem

2018 ◽  
pp. 109-126
Author(s):  
Anna Banasiak
Keyword(s):  
Down Syndrome ◽  
Intellectual Disabilities ◽  
Coping Strategies ◽  
Parental Stress ◽  
Developmentally Delayed ◽  
Autistic Children ◽  
Children With Down Syndrome ◽  
The Family ◽  
Potential Sources ◽  
Health Situation

The aim of the research presented in this article was to determine the level of parental stress among mothers of autistic children. Thirty-nine mothers of autistic children, forty mothers of children with Down syndrome as well as forty mothers of children with developing normally took part in the study. We used the Questionnaire on Resources and Stress (QRS, designed by J. Holroyd) to assess the parental stress among families of developmentally delayed children or children with intellectual disabilities. The results of the study indicate that, comparing to mothers of children with Down syndrome and mothers of children developing well, mothers of autistic children are the ones who experience the highest level of parental stress. Potential sources of coping strategies among mothers of children that suffer from autism are associated with relatively low stress levels as a result of disharmony within the family, personal issues, the child’s health situation and financial problems.

Cognitive Coping Strategies and Stress in Parents of Children With Down Syndrome: A Prospective Study

2009 ◽  
Vol 47 (4) ◽  
pp. 295-306 ◽  
Author(s):  
Shelley M. C. van der Veek ◽  
Vivian Kraaij ◽  
Nadia Garnefski
Keyword(s):  
Down Syndrome ◽  
Coping Strategies ◽  
Parental Stress ◽  
Stress Index ◽  
Future Research ◽  
Positive Reappraisal ◽  
Cognitive Coping ◽  
Cognitive Emotion Regulation ◽  
Cross Sectional ◽  
Children With Down Syndrome

Abstract The purpose of this study was to explore the cross-sectional and prospective relationships between cognitive coping strategies and parental stress in parents of children with Down syndrome. A total of 621 participants filled out questionnaires, including the Cognitive Emotion Regulation Questionnaire to measure cognitive coping and the Nijmeegse Ouderlijke Stress Index—Korte Versie (A. J. L. L. De Brock, A. A. Vermulst, J. R. M. Gerris, & R. R. Abidin, 1992) to measure parental stress. After 8 months, stress was measured again. Cross-sectionally, using acceptance, rumination, positive refocusing, refocusing on planning, and catastrophizing to a greater extent was related to more stress, whereas using positive reappraisal more often was related to less stress. Prospectively, acceptance and catastrophizing were related to more stress, whereas positive reappraisal was related to less stress. Implications for future research and prevention and intervention activities are discussed.

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