scholarly journals Parenting Styles, Coping Strategies and Life Satisfaction of Parents Having Children with Down Syndrome

Author(s):  
Tooba Zia ◽  
Fozia Akram

The present study explores the relationship among Parenting styles, Coping Strategies and Life Satisfaction of parents having children with Down syndrome. Purposive sampling and comparative study were used to select the sample. A sample consisted of (N=100) parents mothers and fathers of Down syndrome children were taken from different government and private institutes of Faisalabad. The sample was further divided into (n=50) mothers and (n=50) fathers of Down syndrome children. The age range of participants was taken 30-55 years above. Parenting Styles Dimension Questionnaire (PSDQ) translated Urdu version by (Batool, 2013). Coping Response Inventory (CRI) translated Urdu version by (Mahmood & Sheraz, 2012) and Life satisfaction scale (LSS) Urdu version translated by (Mahmood, 2013) were used for data collection. Pearson Product Moment Correlation Coefficient and Independent Sample T-Test were calculated for statistical analysis. Findings indicates that male parents of Down syndrome children scored high on Authoritative and permissive parenting styles and it’s also showed that male parents of Down syndrome children have scored high on the scale of approach coping styles .Through that study it indicates that male parents use more approach coping styles than female parents. And male parents are equally satisfied with their lives. This study aims to use effective coping strategies and parenting styles to improve the quality of life of parents of those who are having children with disability. It also aims to increase the role of the clinical psychologist in the treatment of those children who are suffering from disability or psychological illness and also psych educate parents those are directly or indirectly taking pain of their children.

2017 ◽  
Vol 4 (2) ◽  
Author(s):  
M. Sandhya Rani ◽  
Dr. P. Sree Devi

The present study makes an attempt to understand the Relationship between Caretaker Variable on Occupation and Coping Strategies of Caretakers Attending to Patients with Cancer Problems. Caretakers who were ready and willing to extend their cooperation for in-depth interview were selected as population for the study. Thus a total number of 80 caretakers were selected purposively for conducting the present study. The results revealed that caretakers used both approach and avoidance coping styles. Higher the occupational status of the care taker, better were the coping strategies i.e. they were using more approach coping strategies.


2021 ◽  
Vol 19 (5) ◽  
pp. 49-60
Author(s):  
Amgad Said Mohammed ◽  
Sahar Mahmoud Mohamed ◽  
Rania Abdel-Hamid Zaki

Background: Training family caregivers of children with Down Syndrome on how to promote their own psychological well-being and to cope effectively is essential as they are frequently unstable and forego their psychological well-being. Aim: This study aimed to assess the effect of psycho-educational nursing intervention on coping strategies and psychological well-being among family caregivers of children with Down Syndrome. Design: A quasi-experimental design was utilized in this study. Setting: This study was carried out in the Genes Clinics of Down Syndrome in the specialized clinics of the university pediatric hospital affiliated to Ain Shams University Hospitals. Subjects: A sample of 60 family caregivers of children with Down Syndrome. The study tools were: 1) Interviewing Questionnaire, 2) Brief-COPE inventory (Carver, 1997), 3) Ryff’s Psychological well-being scale (1989) and 4) Psycho-educational program. The results: There were highly statistically significant differences between pre & post intervention regarding to emotion-focused coping strategies except for humor, acceptance, religion, venting and substance use and there were highly statistically significant differences between pre & post intervention regarding to problem-focused coping strategies except for use of instrumental support. Conclusions: There were highly statistically significant differences between pre & post intervention regarding the level of psychological well-being. There was a negative statistically significant correlation between psychological well-being pre & post intervention and all types of emotion-focused coping strategies except for humor, acceptance and religion. Meanwhile, there was a highly positive statistically significant correlation between psychological well-being pre & post intervention and problem-focused coping strategies regarding active coping and positive reframing and a positive statistically significant correlation regarding use of instrumental support and planning. Recommendations: Future research to assess challenges encountered by siblings of Down Syndrome children and to apply supportive intervention that promotes positive relationships and attitudes.


Medicine ◽  
2020 ◽  
Vol 99 (28) ◽  
pp. e20753
Author(s):  
Roqayeh Gashmard ◽  
Fazlollah Ahmadi ◽  
Sima Mohammad Khan Kermanshahi

2020 ◽  
Vol 2020 ◽  
pp. 1-6
Author(s):  
Adem Ugurlu ◽  
Emre Altinkurt

Purpose. To evaluate ocular findings in children with Down syndrome and to compare with the healthy children group. Methods. The study patients were divided into two groups as the diagnosed Down syndrome group and the control group. The study was designed as a prospective and single-center study in Istanbul University Faculty of Medicine Department of Ophthalmology. The study included 93 patients in the age range from 7 to 18 years, who applied to the ophthalmology department of our clinic in the period from July 2017 to June 2018. The study included the patients allocated into the control group and the Down syndrome patients allocated into the patient group, containing 49 and 44 participants, respectively. All patients underwent complete ophthalmologic examination with biomicroscopy. Autorefractometer measurements were performed in all patients, and the best corrected visual acuity (BCVA) was determined with the use of the Snellen chart. All patients underwent spectral domain optical coherence tomography (SD-OCT) measurements for central foveal retinal (CRT), subfoveal choroidal (CCT), and peripapillary retinal nerve fiber layer (pRNFL) thicknesses. Results. The average CRT was 241.2 ± 25.7 microns in Down syndrome group and 219.4 ± 21.1 microns in the control group. There was a statistically significant difference between the groups in regards to CRT (p<0.001). The average pRNFL values were 123.1 ± 15.4 microns in the Down syndrome group and 102.2 ± 8.7 microns in the control group (p<0.001). Conclusions. In the subjects with Down syndrome, the incidence of lens opacities, strabismus, and amblyopia was higher than the control group. CRT and pRNFL were thicker in the Down syndrome group than in control group. This may represent retinal developmental changes in the patients with Down syndrome.


2015 ◽  
Vol 22 (09) ◽  
pp. 1150-1158
Author(s):  
Atiq ur Rehman ◽  
Syeda Farhana Kazmi

Objectives: The main purpose of this research was to compare the level ofpsychological distress between HBV and HCV patients and to determine the effect of genderand age on psychological distress. Determine the relationship between coping strategies andpsychological distress. Method: For the present study 100 HBV patients (50 male and 50 female)and 100 HCV patients (50 male and 50 female) were selected. The sample was selected fromLiver Centre, district headquarter hospital Faisalabad. This was a cross sectional study. MHI-38was used to measure the psychological distress and CRI was used to measure the copyingstyles among HBV and HCV patients. Result: HCV patients have higher levels of psychologicaldistress t (198) = 6.54, p< .05 compared to HBV patients. Female hepatitis patients weresuffering from high levels of psychological distress t (198) = 3.90, p < .05 as compared to malehepatitis patients, with male, age is positively correlated with psychological distress, r = .32,p < .01 but with female age is negatively correlated with psychological distress r = -.49, p <.01. Approach coping is negatively correlated with psychological distress in male and femalehepatitis patients, respectively, r = -.45, p < .01 and, r = -.29, p <.01. Conclusion: HCV andfemale patients have higher levels of psychological distress comparatively of HBV and malepatients. Age is correlated with psychological distress. The approach coping styles play animportant role in controlling the psychiatric comorbidity in HBV and HCV patients.


2021 ◽  
Author(s):  
K M Amran Hossain ◽  
Karen Saunders ◽  
Mohamed Sakel ◽  
Lori Maria Walton ◽  
Veena Raigangar ◽  
...  

This study aims to investigate coping strategies used by Bangladeshi citizens during the COVID-19 pandemic. Design: Prospective, cross-sectional survey of adults (N=2001) living in Bangladesh. Methods: Participants were interviewed for socio-demographic data and completed the Bengali translated Brief-COPE Inventory. Statistical data analysis was conducted using SPSS (Version 20). Results: Participants (N=2001), aged 18 to 86 years, were recruited from eight administrative divisions within Bangladesh (mean age 31.85, SD 14.2 years). Male to female participant ratio was 53.4% (n=1074) to 46.6% (n=927). Higher scores were reported for approach coping styles (29.83, SD 8.9), with lower scores reported for avoidant coping styles (20.83, SD 6.05). Humor coping scores were reported at 2.68, SD 1.3, and religion coping scores at 5.64, SD 1.8. Both men and women showed similar coping styles. Multivariate analysis found a significant relationship between the male gender and both humor and avoidant coping (p <.01). Male gender was found to be inversely related to both religion and approach coping (p<.01). Marital status and education were significantly related to all coping style domains (p<.01). The occupation was significantly related to approach coping (p <.01). Rural and urban locations differed significantly in participant coping styles (p <.01). Factor analysis revealed two cluster groups (Factor 1 and 2) comprised of unique combinations from all coping style domains. Conclusion: Participants in this study coped with the COVID-19 pandemic by utilizing a combination of coping strategies. Factor 1 revealed both avoidant and approach coping strategies and Factor 2 revealed a combination of humor and avoidant coping strategies. Overall, higher utilization of approach coping strategies was reported, which has previously been associated with better physical and mental health outcomes. Religion was found to be a coping strategy for all participants. Future research may focus on understanding resilience in vulnerable populations, including people with disabilities or with migrant or refugee status in Bangladesh.


2012 ◽  
Vol 24 (1) ◽  
Author(s):  
Nor Fatihah Azhar ◽  
Eriska Riyanti ◽  
Iwan Ahmad Musnamirwan

Down syndrome is a common genetic disorder also known as Trisomy 21. There are special orofacial features of children with Down syndrome in contrast to normal children. The increasing occurrence of dental caries in Down syndrome children may be caused by the exposure towards cariogenic foods nowadays. This research was aimed to determine the prevalence of caries, def-t, and DMF-T index of 6-14 years old children with Down syndrome at Bandung in 2011. This study was a descriptive study with the surveying technique. The population of this research was the Down syndrome students of Special School (SLB) in Bandung City region with the age range of 6-14 years old. The Special Schools participated in this study were Muhammadiyah Special School; YPLB C-Special School; Asih Manunggal C- Special School; Terate S-Special School; Aditya Grahita BC-Special School; and YPLB Cipaganti BC-Special School. The sample of this research was 30 students. The caries prevalence, def-t, and DMF-T index of the students was measured by the examination of decayed, extracted or missing, and filled teeth. The research results showed that the prevalence of caries was 93%, while the def-t index was 3.03 and DMF-T index was 6.1. The conclusion of this research was the caries prevalence of children with Down syndrome was very high, whereas the def-t index was categorized in the moderate level, and the DMF-T index was categorized in the high level.


2003 ◽  
Vol 4 (3) ◽  
pp. 193-202 ◽  
Author(s):  
Ragnhild Raak ◽  
Ingrid Hurtig ◽  
Lis Karin Wahren

The present study describes pain- and stress-coping strategies and life satisfaction in subgroups of fibromyalgia patients. Thirty-two females with fibromyalgia syndrome (FMS) and 21 healthy pain-free women were studied. Those with FMS were classified as thermal (both heat and cold) pain sensitive or slightly cold pain sensitive based on pain thresholds determined using a Thermotest device. Global stress-coping styles, life satisfaction, and specific pain-coping strategies were measured. Patients classified as thermal pain sensitive were affected by physical symptoms to a greater extent than were those classified as slightly cold pain sensitive. The thermal pain sensitive group used more diverting attention coping strategies than the slightly cold pain sensitive group did. Separating fibromyalgia patients into subgroups might increase the potential for improving nursing care of these patients. Through the use of effective coping strategies in dealing with stress and pain, life satisfaction may also be enhanced.


Sign in / Sign up

Export Citation Format

Share Document