scholarly journals The state of the responsible research and innovation programme

2019 ◽  
Vol 17 (2) ◽  
pp. 145-166
Author(s):  
George Inyila Ogoh ◽  
N. Ben Fairweather
Keyword(s):  
Intellectual Property ◽  
Ethical Issues ◽  
Social Science Research ◽  
Research Process ◽  
Responsible Research And Innovation ◽  
Content Type ◽  
Ethical Implications ◽  
Research And Innovation ◽  
Horizon Scanning ◽  
Responsible Research

Purpose Many of the ethical issues of additive manufacturing (AM) are not well known or understood, and there remains a policy vacuum that needs to be addressed. This paper aims to describe an approach that has been applied successfully to other emerging technologies, referred to as the responsible research and innovation (RRI) framework programme. A case is then made for the application of this approach in the AM industry with an illustration of how it might be used. Design/methodology/approach The research uses an RRI approach referred to as AREA, an acronym for Anticipate, Reflect, Engage and Act, to assess the ethical implications of AM. For the anticipation phase, horizon scanning was done to explore the ethical issues of AM based on extant literature, while reflective analysis was carried out all through the work to reflect on the data being collected and the research process. The engage phase involved interviews with five participants from small- and medium-sized enterprises (SMEs) involved in 3D printing. Findings The findings indicate that although AM appears to pose a threat to intellectual property rights, many in the industry do not care about this issue. As AM becomes mainstream, intellectual property will likely become a big problem. Also, very little is known about the health impacts of AM. This study shows that AM can be hazardous. Research limitations/implications Only users at SME level were sampled. Other researchers might test the usefulness of AREA at the enterprise level. Practical implications The research demonstrates how the AREA framework may be useful in information systems and social science research by enabling a more anticipatory and reflective research process. Originality/value The paper responds to the need for a novel approach to identifying ethical issues of AM.

scholarly journals Societal impact of synthetic biology: responsible research and innovation (RRI)

2016 ◽  
Vol 60 (4) ◽  
pp. 371-379 ◽  
Author(s):  
Daniel Gregorowius ◽  
Anna Deplazes-Zemp
Keyword(s):  
Synthetic Biology ◽  
Technology Assessment ◽  
Ethical Issues ◽  
Responsible Research And Innovation ◽  
Societal Impact ◽  
Biotechnological Applications ◽  
Research And Innovation ◽  
Challenges And Opportunities ◽  
Living Organisms ◽  
Responsible Research

Synthetic biology is an emerging field at the interface between biology and engineering, which has generated many expectations for beneficial biomedical and biotechnological applications. At the same time, however, it has also raised concerns about risks or the aim of producing new forms of living organisms. Researchers from different disciplines as well as policymakers and the general public have expressed the need for a form of technology assessment that not only deals with technical aspects, but also includes societal and ethical issues. A recent and very influential model of technology assessment that tries to implement these aims is known as RRI (Responsible Research and Innovation). In this paper, we introduce this model and its historical precursor strategies. Based on the societal and ethical issues which are presented in the current literature, we discuss challenges and opportunities of applying the RRI model for the assessment of synthetic biology.

scholarly journals Involving Patients in Research? Responsible Research and Innovation in Small- and Medium-Sized European Health Care Enterprises*

2018 ◽  
Vol 28 (1) ◽  
pp. 144-152 ◽  
Author(s):  
KALYPSO IORDANOU
Keyword(s):  
Health Care ◽  
Research Ethics ◽  
Innovation Process ◽  
Ethics Committees ◽  
Research Process ◽  
Responsible Research And Innovation ◽  
Research And Innovation ◽  
Governance Tools ◽  
European Health ◽  
Responsible Research

Abstract:Health research is generally undertaken to resolve existing health problems or enhance existing solutions. Research ethics committees have been the main governance tool for research for more than half a century. Their role is to ensure that research is undertaken ethically. To close the increasing gap between science and society, other governance tools are required. The European Commission recommends and actively promotes the policy of responsible research and innovation (RRI). In addition to sound research ethics, a key feature of RRI is the involvement of different societal stakeholders throughout the research process.But how accepted is the involvement of societal stakeholders in the research of small- and medium-sized enterprises (SMEs) in the health care sector? This question is examined based on 18 in-depth interviews with private health care industry representatives from across Europe in companies focusing on developing medical device technology. Findings suggest that SMEs are reluctant to undertake research involving patients, especially in the early stages of the research and innovation process. For some SMEs this is due to concerns about the dangers of raising expectations they cannot meet, while for others the main concerns are increasing costs and producing less competitive products. Implications of the research findings are discussed.

Conversation skills training for people with autism through virtual reality: using responsible research and innovation approach

2019 ◽  
Vol 6 (1) ◽  
pp. 3-16 ◽  
Author(s):  
Yurgos Politis ◽  
Connie Sung ◽  
Lizbeth Goodman ◽  
Michael Leahy
Keyword(s):  
Virtual Reality ◽  
Participatory Design ◽  
Skills Training ◽  
Autism Spectrum ◽  
Responsible Research And Innovation ◽  
Content Type ◽  
Baseline Design ◽  
Conversation Skills ◽  
Research And Innovation ◽  
Responsible Research

PurposeUsers’ role in co-designing products has changed: from influencing outcomes to influencing development/design; from standardizing to customising products/outcomes; from participating to engaging designers/developers. Although this participatory design (PD) approach makes users’ role more prominent it has been under-utilised for the technological development of products for people with neurodevelopmental disabilities (NDD). The purpose of this paper is to present a responsible research and innovation example, in conversation skills training for people with autism, using virtual reality (VR).Design/methodology/approachThe PD approach was adopted during the iterative development of the virtual world and training materials. Multiple baseline design was utilised consisting of three participants on the mild/moderate end of the autism spectrum. Participants joined 15–16 sessions over four phases of structured conversations, delivered both face-to-face and virtually.FindingsThe feedback sessions revealed that the participants felt VR has the potential in providing training for people with autism spectrum disorders. Moreover, they thought delivering the training in three formats could enhance their learning, since PowerPoints, videos and chatbot would represent teaching, showing and practicing, respectively.Social implicationsPD promotes a “one-size-fits-one approach”, cultivating agile, inclusive, responsive design approaches for people with NDDs, so that outcome meets their needs and preferences, while VR training allows for a wider implementation, benefiting a wider range of learners.Originality/valueThe RRI approach increases the inclusion of people with disabilities in the decision-making process through dialogue with “experts”, making their role more visible, fostering an ethical and sustainable innovation process, leading to more desirable outcomes.

The legal, governance and ethical implications of involving service users and carers in research

2019 ◽  
Vol 32 (5) ◽  
pp. 818-831
Author(s):  
Virginia Minogue ◽  
Mary Cooke ◽  
Anne-Laure Donskoy ◽  
Penny Vicary
Keyword(s):  
Service User ◽  
Research Study ◽  
Ethical Issues ◽  
Research Process ◽  
Project Team ◽  
Research Management ◽  
Service Users ◽  
Content Type ◽  
Team Members ◽  
Ethical Implications

Purpose Service user and carer involvement in all aspects of the health and care research process, from co-applicant on funding applications to active engagement in a research study, is now a requirement for most research funders. However, as co-production increases and service users and carers take on more responsibilities, this involvement has legal, governance and ethical implications. The purpose of this paper is to raise awareness of the issues and consider potential solutions. Design/methodology/approach Experiences of engagement as co-applicants in research funding applications, of involvement as research study team members, and as co-researchers were gathered from a range of service user and carer experts. Consultation and a workshop gathered further evidence from a range of stakeholders across the research management community. Findings Service users and carers, who contribute to the research protocol and process, feel a strong sense of responsibility to ensure the high quality of a research study. However, they may be new to their roles, status and key responsibilities when acting as project team members, co-researchers or co-applicants engaging in funding applications. The responsibility of sponsors, grant holding organisations, funders and other members of the research community is to communicate with and support service users and carers in those roles. More needs to be done to understand the contractual, a legal and governance issues and responsibilities that are specific to service user and carer co-applicants, project team members and co-researchers, from both an organisational and individual service user and carer perspective. Practical implications The implications of the findings are to raise awareness of the practical, legal and ethical issues arising from this type of involvement and the potential risks arising from lack of cohesion or understanding. The review also highlights the concerns and barriers service users and carers may find in becoming involved. Originality/value The findings highlight a range of issues for research regulators, sponsors and investigators to consider to ensure service users and carers can fulfil their responsibilities and be supported in doing so.

scholarly journals Ethical Issues in Research and Development of Epigenome-wide Technologies

2020 ◽  
Vol 13 ◽  
pp. 251686572091325 ◽  
Author(s):  
Eline M Bunnik ◽  
Marjolein Timmers ◽  
Ineke LLE Bolt
Keyword(s):  
Cervical Cancer ◽  
Research And Development ◽  
Ethical Issues ◽  
Ethical Dilemmas ◽  
Current Phase ◽  
Ethical Implications ◽  
Research And Innovation ◽  
Expert Meeting ◽  
Innovation Approach ◽  
Responsible Research

To date, few scholarly discussions on ethical implications of epigenetics and epigenomics technologies have focused on the current phase of research and development, in which researchers are confronted with real and practical ethical dilemmas. In this article, a responsible research and innovation approach, using interviews and an expert meeting, is applied to a case of epigenomic test development for cervical cancer screening. This article provides an overview of ethical issues presently facing epigenomics researchers and test developers, and discusses 3 sets of issues in depth: (1) informed consent; (2) communication with donors and/or research participants, and (3) privacy and publication of data and research results. Although these issues are familiar to research ethics, some aspects are new and most require reinterpretation in the context of epigenomics technologies. With this article, we aim to start a discussion of the practical ethical issues rising in research and development of epigenomic technologies and to offer guidance for researchers working in the field of epigenetic and epigenomic technology.

Responsible research and innovation key performance indicators in industry

2018 ◽  
Vol 16 (2) ◽  
pp. 214-234 ◽  
Author(s):  
Emad Yaghmaei
Keyword(s):  
Performance Indicators ◽  
Design Methodology ◽  
Performance Indicator ◽  
Key Performance Indicators ◽  
Responsible Research And Innovation ◽  
Key Performance Indicator ◽  
Content Type ◽  
Research And Innovation ◽  
A Company ◽  
Responsible Research

Purpose Responsible research and innovation (RRI) is taking a role in assisting all types of stakeholders, including industry members, in moving their research and innovation (R&I) initiatives to tackle grand challenges. The literature on RRI, however, focuses little on how industry can implement RRI principles. To solve this gap, the purpose of this study is to construct a conceptual framework for managing and assessing RRI principles in the industry. Design/methodology/approach Qualitative research was used to build the RRI key performance indicator list; 30 interviews were conducted to design a framework which was pilot tested in a company to identify how to align technology outcomes to the values, needs and expectations of the society. Findings This study depicts five successive RRI implementation levels and exhibits RRI key performance indicators. Drawing on extant models, this study develops RRI levels and indicators to discuss why industry should become engaged in RRI, how it can embed RRI principles into R&I processes and how RRI indicators can be managed systematically. Originality/value The connection between RRI key performance indicators and RRI levels determines how industry can integrate principles and methodologies of RRI into R&I processes. The model in the study shows how companies move from one RRI stage to another and this study aims to exhibit an ideal stage of RRI for industry.

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