Cancer screening for people with learning disabilities and the role of the screening liaison nurse

2015 ◽  
Vol 20 (4) ◽  
pp. 239-246
Author(s):  
Anna Marriott ◽  
Sue Turner ◽  
Sharon Ashby ◽  
Deborah Rees
Keyword(s):  
Learning Disabilities ◽  
Cancer Screening ◽  
Design Methodology ◽  
Unique Role ◽  
Content Type ◽  
Case Examples ◽  
Nurse Role ◽  
Adults With Learning Disabilities ◽  
Liaison Nurse

Purpose – The purpose of this paper is to describe the role of the screening liaison nurses for adults with learning disabilities employed by Peninsula Community Health. Design/methodology/approach – This paper reports on the national situation in regard to cancer screening for people with learning disabilities and explores the barriers which limit their participation in these screening programmes. It describes the screening liaison nurse role and presents case examples of the work they do. Findings – The local screening rates for people with learning disabilities have increased since the creation of this role in 2011. Originality/value – Increasing the uptake of cancer screening by people with learning disabilities is clearly in line with existing national priorities. To the author’s knowledge this is a unique role in this country and the authors propose that other areas would benefit from adopting this model of working.

Brick by brick: building up our knowledge base on the abuse of adults with learning disabilities

2014 ◽  
Vol 19 (3) ◽  
pp. 130-133 ◽  
Author(s):  
Michelle McCarthy
Keyword(s):  
Learning Disabilities ◽  
Knowledge Base ◽  
Design Methodology ◽  
Personal Relationships ◽  
Good Thing ◽  
Social Changes ◽  
Sources Of Information ◽  
Content Type ◽  
Adults With Learning Disabilities ◽  
Many Sources

Purpose – The purpose of this paper is to draw readers’ attention to the myriad ways to find out about abuse towards people with learning disabilities. Design/methodology/approach – Whilst acknowledging the continued importance of research studies specifically focused on the topic of abuse, this commentary reviews information about abuse of adults with learning disabilities from other sources, e.g., through service audits, studies on sexual and personal relationships. Findings – Having many sources of information about abuse against people with learning disabilities is a good thing, but there are some problems associated with this. First, some forms of abuse appear to be easier to find out about than others, and second, the difficult question of how the information can be used to improve the lives of people with learning disabilities. Originality/value – This commentary encourages readers to take a broad view of abuse of people with learning disabilities and to use all the knowledge available to support individuals, whilst at the same time demanding social changes.

Services in the forest-based sector – unexplored futures

foresight ◽  
2015 ◽  
Vol 17 (4) ◽  
pp. 378-398 ◽  
Author(s):  
Annukka Näyhä ◽  
Päivi Pelli ◽  
Lauri Hetemäki
Keyword(s):  
Design Methodology ◽  
Business Models ◽  
Services Research ◽  
Related Services ◽  
Content Type ◽  
Case Examples ◽  
The Future ◽  
Future Potential ◽  
Practical Implications

Purpose – The purpose of this paper is to analyze and provide a synthesis of how services are understood, how they are likely to develop and how future development can be studied more closely in the forest-based sector (FBS). Services are likely to have an increasing role in the FBS in the future. Design/methodology/approach – The findings are based on a literature review of FBS outlook studies, strategies and programs and services-related studies in FBS and general services literature. Three case examples of services businesses in FBS companies are presented, and possible foresight approaches related to them are discussed. Foresight methods used in parallel sectors are also discussed. Findings – The study provides the first systematic introduction, classification and review of FBS services to include both industry- and non-industry-related services. The paper also points out the need for foresight studies and suggests various approaches for an analysis of the potential of FBS services in the future bioeconomy. Practical implications – The study shows that the role of services in FBS research has been understood too narrowly. As a result, services research has been rather lacking and the future potential of services in the FBS has not been fully acknowledged. The study argues for and points toward the need to use foresight approaches to update FBS strategies, business models and policies to fully benefit from the future potential of services. Originality/value – The study is a novel introduction, review and discussion of the role of services in the FBS and their future outlook.

scholarly journals Concerned protesters: from compassion to retaliation

2017 ◽  
Vol 51 (5/6) ◽  
pp. 983-1010 ◽  
Author(s):  
Paolo Antonetti ◽  
Stan Maklan
Keyword(s):  
Design Methodology ◽  
Potential Role ◽  
Unique Role ◽  
Content Type ◽  
Corporate Behavior ◽  
Stakeholder Relationships ◽  
Present Information ◽  
Key Drivers ◽  
Practical Implications

Purpose The purpose of the study is to outline the unique role of compassion in reactions to cases of irresponsible corporate behavior that present information about victims of these events. In this study, four antecedents of compassion for the victims of irresponsibility are presented, and a model that explains the consequences of this emotion is tested empirically. Design/methodology/approach Two studies test the research hypotheses using a mix of experimental and survey research. The effects are tested both in laboratory conditions, where consumers assess a fictitious case of corporate irresponsibility, and through a test of reactions to real online campaigns. Findings Compassion is one of the drivers of consumers’ anger at the culprit, playing an indirect role in decisions to retaliate against perpetrators. Four key drivers of compassion are identified in the research: the perceived suffering of the victims, the perceived similarity of the victims to the observer, victims’ derogation and the vividness of the description of the victims. Practical implications The study offers insights both for campaigners wishing to instigate boycotts and organizations managing complex stakeholder relationships following a crisis. Insights on the role of compassion and its antecedents lead to more effective communications able to heighten or dampen this emotion. Originality/value Existing research offers contrasting views on the potential role of compassion in reactions to injustices. This study presents a novel account that clarifies previous findings and extends our knowledge of causes and consequences of compassion.

The Mental Welfare Commission for Scotland – a unique and influential voice

2015 ◽  
Vol 6 (3/4) ◽  
pp. 137-147
Author(s):  
Colin McKay ◽  
Heather Welsh
Keyword(s):  
Mental Health ◽  
Mental Illness ◽  
Learning Disabilities ◽  
Design Methodology ◽  
Vital Role ◽  
Persons With Disabilities ◽  
Content Type ◽  
Roles And Responsibilities ◽  
History Of

Purpose – The purpose of this paper is to describe the unique and independent role of the Mental Welfare Commission for Scotland. Design/methodology/approach – The paper takes the reader through the history of the Commission, its changing status, roles and responsibilities, its influence and impact, and current priorities. It is based on details of the Commission ' s development, narrative from current employees and published investigations and advice. Findings – The Mental Welfare Commission has advanced significantly since its original establishment. It plays a vital role in protecting the human rights of people in Scotland with learning disabilities and mental illness, by visiting those who are in receipt of care or treatment, investigating situations of concern, providing advice and guidance, monitoring the Mental Health (Care and Treatment) (Scotland) Act 2003 and Adults with Incapacity (Scotland) Act 2000 and shaping relevant policy and legislation. Originality/value – This paper provides an introduction to the work of the Commission, which will be of value to readers in Scotland and beyond. It illustrates its importance in preserving the rights of individuals with learning disabilities and mental illness in line with the UN Convention on the Rights of Persons with Disabilities and other legislation.

First-hand experience of accessible information

2015 ◽  
Vol 20 (2) ◽  
pp. 80-87 ◽  
Author(s):  
Clare Mander
Keyword(s):  
Learning Disabilities ◽  
Design Methodology ◽  
Local Authority ◽  
Primary Research ◽  
Content Type ◽  
Knowledge And Attitudes ◽  
Accessible Information ◽  
Service Staff ◽  
Adults With Learning Disabilities ◽  
Framework Approach

Purpose – The purpose of this paper is to report on primary research which investigated the first-hand experience of producing and implementing accessible information (AI). Design/methodology/approach – In total, 18 participants were recruited for a qualitative scoping exercise from four distinct sampling groups: adults with learning disabilities; specialist learning disability service staff; mainstream NHS and local authority staff; and speech and language therapists. Each participant took part in a semi-structured focus group or interview which explored their range of skills, knowledge and attitudes relating to AI. Findings – Framework approach to thematic analysis led to three main classifications: ideology of AI, AI practice and the outcomes of delivering AI. First-hand experience varied across the stakeholders, highlighting differences in the operationalisation of national policies and legislation. Originality/value – The data supported the notion of AI as a multifaceted process; although the practice of delivering accessible resources appeared less advanced than accessible resource production.

Realising the vision of communication inclusion

2016 ◽  
Vol 21 (1) ◽  
pp. 24-29 ◽  
Author(s):  
Kim Hartley Kean
Keyword(s):  
Learning Disabilities ◽  
Design Methodology ◽  
Public Services ◽  
Content Type ◽  
Communication Practice ◽  
Accessible Information ◽  
Adults With Learning Disabilities ◽  
Health Related ◽  
Definition Of ◽  
The Way

Purpose – The purpose of this paper is to provide a commentary on Clare Mander’s paper entitled “An investigation of the delivery of health-related accessible information for adults with learning disabilities”. The commentary discusses issues identified by the author in the field of accessible information and, more generally, inclusive communication practice. Design/methodology/approach – This commentary reviews factors which influence the communication accessibility of services and the policy, legislative and economic case for mainstreaming inclusive communication approaches. It highlights diversity in the definition of inclusive communication and the scope of its necessary implementation before proposing an approach to establishing consensus on the way forward. The commentary suggests how the task of mainstreaming inclusive communication throughout public services could be addressed, reflects on progress to date and proposes next steps for the growing numbers of those with an interest. Findings – Many factors influence communication accessibility. The communication attitude, knowledge, skills and resources individual providers and recipients bring to each interaction are as important as the whole organisation’s approach towards and investment in inclusive communication approaches. Legislation, policy, demographics and reducing budgets increase the requirement to mainstream inclusive communication approaches. Achieving this objective is an enormous task. Originality/value – Reflecting on all the drivers and influences on the objective of achieving mainstreamed quality inclusive communication practice throughout public services, the author offers potential suggestions for starting to address this enormous but worthwhile task with a view to generating discussion and collaboration among those with an interest.

Commentary on “Older carers of people with learning disabilities: their experiences with local authority assessment processes and personnel”

2021 ◽  
Vol ahead-of-print (ahead-of-print) ◽  
Author(s):  
Valerie Gant
Keyword(s):  
Learning Disabilities ◽  
Design Methodology ◽  
Local Authority ◽  
Family Context ◽  
Policy Changes ◽  
Care Needs ◽  
Content Type ◽  
Needs Assessments ◽  
The Past ◽  
Adults With Learning Disabilities

Purpose The purpose of this paper is to provide a commentary on “Older carers of people with learning disabilities: their experiences with local authority assessment processes and personnel” written by Rachel Forrester-Jones. Design/methodology/approach This commentary considers the experiences of older carers in the context of research, legislative and policy changes over the past 30+ years. Findings The needs of older carers of adults with learning disabilities are well recognised within the (limited) literature. Less attention has been given to practical strategies to identify and support such carers or to their broader family context. Originality/value This commentary highlights that assessors carrying out carers’ needs assessments should consider whether adults with learning disabilities are providing care to their older relative. The recognition of possible mutual or reciprocal care needs to be acknowledged and appropriate support offered.

Ordinary lives means ordinary schools: towards a unitary 0-99 years policy for adults and children with learning disabilities

2020 ◽  
Vol 25 (1) ◽  
pp. 40-46
Author(s):  
Christopher Goodey
Keyword(s):  
Learning Disabilities ◽  
Learning Disability ◽  
Design Methodology ◽  
Adult Life ◽  
Learning Disabled ◽  
General Sense ◽  
Content Type ◽  
Adults With Learning Disabilities ◽  
Adults And Children ◽  
Adult Lives

Purpose This paper aims to look forward to the next generation of policymaking on learning disability and recommends a unitary strategy covering all phases of life including childhood. Design/methodology/approach In this paper, the author addresses the policy gap between inclusion in ordinary (“mainstream”) schools and inclusion in ordinary adult life. The author asks why what has been accepted, at least in principle, for the adult two-thirds of the learning disabled population is still contested for the other, younger third. In the following sections, the author summarises the present discrepancy, compares the rights of children in general with those of people with learning disabilities and outlines the rationale for a 0-99 years focus in research and practice on learning disability, and for future government strategy to establish a 0-99 policy. Findings It is in the broad context of a unitary 0-99 years approach that policymaking must in future be addressed. The education of children is key to the success of their adult lives, and makes the policy of educating them together in ordinary schools (i.e. giving them from the start the “ordinary lives” that are the main goal of adult policy) an imperative. Originality/value The need to consider children’s rights in a general sense has not previously been applied to the field of policymaking for adults with learning disabilities.

Commentary on “Specialist community teams for adults with learning disabilities: referrals to a countywide service in England”

2019 ◽  
Vol 24 (2) ◽  
pp. 50-55
Author(s):  
Lawrence Patterson
Keyword(s):  
Learning Disabilities ◽  
Learning Disability ◽  
Design Methodology ◽  
Recent Literature ◽  
National Service ◽  
Content Type ◽  
Processing Demands ◽  
Adults With Learning Disabilities ◽  
Management Approaches ◽  
The Way

PurposeThe purpose of this paper is to provide a commentary on the paper “Specialist community teams for adults with learning disabilities: referrals to a countywide service in England” by Isabel Clare and colleagues.Design/methodology/approachThis paper reviews some themes presented in this paper relating to the practice and management of community teams for adults with learning disability within the context of recent national service initiatives.FindingsThere is a limited literature on the practice, purpose and service caseload management of community teams. Taken in the context of recent national service initiatives, the paper by Clareet al.illustrates the gaps between the way community teams are currently processing demands and how these services will likely need to behave in future.Originality/valueThere is little recent literature examining the purpose of, and management approaches in, community teams and this addition should stimulate some further consideration of how community teams need to adjust to meet changing demands.

Shifting notions of disability in Brazil

2016 ◽  
Vol 21 (2) ◽  
pp. 75-79 ◽  
Author(s):  
Clarice Rios ◽  
Barbara Costa Andrada
Keyword(s):  
Learning Disabilities ◽  
Design Methodology ◽  
Critical Appraisal ◽  
Individual Autonomy ◽  
Content Type ◽  
The Social ◽  
Key Issues ◽  
A Site ◽  
Brazilian Case

Purpose – The purpose of this paper is to comment on the article by Forrester-Jones and Carvalho and examine some issues on notions of disability in Brazil. Design/methodology/approach – Analysis of the specialized literature and a critical appraisal of key issues regarding notions of disability in Brazil. Findings – The authors focus on three issues: what could be characterized as learning disability in Brazil and how social movements, institutions and public policies shape and are shaped by local conceptions of disability; the limits of individual autonomy, independence and freedom in the case of learning disabilities and the social and historical particularities of the Brazilian case; and the role of the APAES and Pestalozzi Society both as a site of social exclusion and, more recently, as a source of expertise in the movement toward the development of “inclusive special education.” Originality/value – The commentary highlights some of the complexities of the local field of disability in Brazil.

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