Persistence and Change in Challenging and Problem Behaviours of Young Adults with Intellectual Disability Living in the Family Home

1996 ◽  
Vol 9 (3) ◽  
pp. 181-193 ◽  
Author(s):  
Chris Kieman ◽  
Alison Alborz
Keyword(s):  
Young Adults ◽  
Intellectual Disability ◽  
Problem Behaviours ◽  
The Family ◽  
Family Home

scholarly journals How to improve the transition process to independent living for adolescents with profound intellectual disabilities? Experiences from parents and employees.

2020 ◽  
Author(s):  
Eirik Roos ◽  
Erik Sondenaa
Keyword(s):  
Young Adults ◽  
Intellectual Disability ◽  
Independent Living ◽  
Early Stage ◽  
Transition Process ◽  
Main Question ◽  
Burden Of Care ◽  
Subjective Burden ◽  
The Family ◽  
Family Home

Abstract BackgroundThe transition process from the family home to independent living for young adults with profound intellectual disability (PID) becomes delayed. Those families face challenges that exceed those of typical families such as higher objective and subjective burden, more frequent psychological distress and lower social support. The aim of this study was to explore the collaboration process between parents and employees and identify factors that improve the transition with less burden.MethodsA descriptive qualitative study was undertaken with 18 persons (9 parents and 9 employees) interviewed individually and in groups. In accordance with the municipality`s guidelines, families with profound intellectual disability (PID) child should apply for housing, when the child turns 16. The purpose is to ensure interdisciplinary collaboration, information flow and coordinated services according to family’s needs. The main question in the interviews was ‘What was your experience with cooperation in the transition process, and what would you do to improve this process?’ The interviews were analysed with a thematic approach using systematic text condensation.ResultsThe parents experienced a lack of general information about the ‘housing waiting list’, level of services, and the plan for time of moving from the family home, and how to choose where and whom to live with. Parents described that they had an unsustainable burden of care during the waiting period, and a family crisis caused the allocation of an apartment in a group house. Employees shared challenges to meet families’ wishes, as there were too few group homes. They experienced good collaboration with families and said they offered respite care, due to reduce parents’ burden of care. Employees experienced that PID children developed skills, mastery and degrees of independence after completing a residency at the Folk High School.ConclusionsTo improve the transition process from family home to independent living for young adults with PID, the informants highlighted some factors to reduce the burden of care to families: 1) Systematic follow-up program for families to observe their needs at an early stage 2) More available group houses 3) Information about the housing-priorities of the services and 4) Educational preparing programs to families.

scholarly journals Improving the transition process to independent living for adolescents with profound intellectual disabilities. Experiences of parents and employees.

2020 ◽  
Author(s):  
Eirik Roos ◽  
Erik Sondenaa
Keyword(s):  
Young Adults ◽  
Independent Living ◽  
Early Stage ◽  
Transition Process ◽  
General Information ◽  
Main Question ◽  
Burden Of Care ◽  
Subjective Burden ◽  
The Family ◽  
Family Home

Abstract Background The transition process from the family home to independent living for young adults with profound intellectual disability (PID) becomes delayed. Those families face challenges that exceed those of typical families such as higher objective and subjective burden, more frequent psychological distress and lower social support. The aim of this study was to explore the collaboration process between parents and employees and identify factors that improve the transition with less burden. Methods A descriptive qualitative study was undertaken with 18 persons (9 parents and 9 employees) interviewed individually and in groups. In accordance with the municipality`s guidelines, families with a child with PID should apply for housing, when the child turns 16. The purpose is to ensure interdisciplinary collaboration, information flow and coordinated services according to family’s needs. The main question in the interviews was ‘What was your experience with cooperation in the transition process, and what would you do to improve this process?’ The interviews were analysed with a thematic approach using systematic text condensation.Results The parents experienced a lack of general information about the ‘housing waiting list’, level of services, and the plan for time of moving from the family home, and how to choose where and whom to live with. Parents described an unsustainable burden of care during the waiting period, and a family crisis caused the allocation of an apartment in a group house. Employees shared challenges to meet families’ wishes, as there were too few group homes. They experienced good collaboration with families and said they offered respite care, due to reduce parents’ burden of care. Employees experienced that PID adolescents developed skills, mastery and degrees of independence after completing a residency at the Folk High School. Conclusions To improve the transition process from family home to independent living for young adults with PID, the informants highlighted some factors to reduce the burden of care on families: 1) Systematic follow-up program for families to observe their needs at an early stage; 2) More available group houses; 3) Information about the housing priorities of the services and; 4) Educational preparation programs for families.

scholarly journals Improving the transition process to independent living for adolescents with profound intellectual disabilities. Experiences of parents and employees

2020 ◽  
Vol 20 (1) ◽  
Author(s):  
Eirik Roos ◽  
Erik Søndenaa
Keyword(s):  
Young Adults ◽  
Independent Living ◽  
Early Stage ◽  
Transition Process ◽  
General Information ◽  
Main Question ◽  
Burden Of Care ◽  
Subjective Burden ◽  
The Family ◽  
Family Home

Abstract Background The transition process from the family home to independent living for young adults with profound intellectual disability (PID) becomes delayed. Those families face challenges that exceed those of typical families such as higher objective and subjective burden, more frequent psychological distress and lower social support. The aim of this study was to explore the collaboration process between parents and employees and identify factors that improve the transition with less burden. Methods A descriptive qualitative study was undertaken with 18 persons (9 parents and 9 employees) interviewed individually and in groups. In accordance with the municipality’s guidelines, families with a child with PID should apply for housing, when the child turns 16. The purpose is to ensure interdisciplinary collaboration, information flow and coordinated services according to family’s needs. The main question in the interviews was ‘What was your experience with cooperation in the transition process, and what would you do to improve this process?’ The interviews were analysed with a thematic approach using systematic text condensation. Results The parents experienced a lack of general information about the ‘housing waiting list’, level of services, and the plan for time of moving from the family home, and how to choose where and whom to live with. Parents described an unsustainable burden of care during the waiting period, and a family crisis caused the allocation of an apartment in a group house. Employees shared challenges to meet families’ wishes, as there were too few group homes. They experienced good collaboration with families and said they offered respite care, due to reduce parents’ burden of care. Employees experienced that PID adolescents developed skills, mastery and degrees of independence after completing a residency at the Folk High School. Conclusions To improve the transition process from family home to independent living for young adults with PID, the informants highlighted some factors to reduce the burden of care on families: 1) Systematic follow-up program for families to observe their needs at an early stage; 2) More available group houses; 3) Information about the housing priorities of the services and; 4) Educational preparation programs for families.

The Influence of Residence on Young Adult Attitudes toward Healthy Eating

2008 ◽  
Vol 14 (2) ◽  
pp. 33-49 ◽  
Author(s):  
Tegan Piggford ◽  
Maria Raciti ◽  
Debra Harker ◽  
Michael Harker
Keyword(s):  
Young Adults ◽  
Healthy Eating ◽  
Living Arrangements ◽  
Food Choice ◽  
Independent Living ◽  
Intervention Strategies ◽  
The Family ◽  
Unexplored Area ◽  
Family Home ◽  
Self Administered Questionnaire

Like other Western countries, Australia too reports record numbers of overweight and obese individuals with young Australian adults in a particularly high-risk position. It is suspected that the transition from dependent living in the family home to independent living during young adulthood influences food choice. As such, this study sought to investigate if attitudes toward healthy eating varied by the place of residence (dependent or independent) of these young adults. Using a self-administered questionnaire, quantitative data from 310 Australians between the ages of 18 to 24 years found that young adults who lived independently displayed a significantly more positive attitude toward healthy eating than those who remained in the family home. Furthermore, we found that a significant, positive relationship between attitude toward healthy eating and the number of recommended serves consumed in both independent and dependent living arrangements. Being an unexplored area, these findings are novel and provide valuable insights for the implementation of an inducement process for planned social change as well as informing the education and motivation elements of intervention strategies.

Care-giving dynamics and futures planning among ageing parents of adult offspring with intellectual disability

2018 ◽  
Vol 39 (7) ◽  
pp. 1512-1527 ◽  
Author(s):  
RUTH WALKER ◽  
CLAIRE HUTCHINSON
Keyword(s):  
Intellectual Disability ◽  
Adult Children ◽  
Service Providers ◽  
Theoretical Perspective ◽  
Older Parents ◽  
Supported Accommodation ◽  
Care Giving ◽  
The Family ◽  
The Future ◽  
Family Home

ABSTRACTThe number of older parents ageing in tandem with their adult children with intellectual disability (ID) is increasing. This unique situation calls for greater research that investigates how older parents experience this extended care-giving role, including the extent to which they are engaging in futures planning. Participants were recruited via disability service providers in South Australia. Using the theoretical perspective of hermeneutic phenomenology to understand lived experiences, semi-structured in-depth interviews were carried out with older parents (N = 17, mean age 70 years). Six offspring were living in the family home while the remainder were in supported accommodation. Main themes to emerge from the data were: (a) perpetual parenting, (b) costs and rewards and (c) planning to plan. Parents were providing care across a range of areas, regardless of whether their offspring lived at home or in supported accommodation. While aware of the need to plan for the future, most did not have a firm plan in place. Parents are providing a high level of support to their adult children with ID regardless of whether they live in supported accommodation or the family home. While some have started to think about future care arrangements, most appear unclear over what the future holds.

Young adults with intellectual disability recall their childhood

2011 ◽  
Vol 15 (4) ◽  
pp. 229-240 ◽  
Author(s):  
Mikaela Starke
Keyword(s):  
Young Adults ◽  
Intellectual Disability ◽  
Later Life ◽  
Growing Up ◽  
Informal Networks ◽  
Negative Experiences ◽  
The Family ◽  
Being Bullied ◽  
Positive Experiences ◽  
Study Participants

Eleven young adults with an intellectual disability were interviewed for this exploratory study aimed at charting their experiences of growing up in homes where at least one parent had the same or a similar disability. Two main themes emerged from the interviews. Firstly, a clear majority of the young adults had positive experiences of family life during their upbringing, as expressed especially through their memories of their grandparents. Secondly, the study participants all described experiences of being bullied and harassed outside the family context. The results obtained in this study highlight the importance of the parents, the family, and informal networks in the upbringing of these children. The study also considers the consequences that the study participants’ negative experiences of peer contacts and their sense of exclusion might have for their prospects in later life.

scholarly journals Parents living with profound intellectual disabilities – how to improve the transition process from family home to independent living. A qualitative study with parents and employees

2020 ◽  
Author(s):  
Eirik Roos ◽  
Erik Sondenaa
Keyword(s):  
Intellectual Disability ◽  
Qualitative Study ◽  
Independent Living ◽  
Transition Process ◽  
Main Question ◽  
Burden Of Care ◽  
Subjective Burden ◽  
The Family ◽  
Family Home ◽  
Collaboration Process

Abstract Background The transition process from the family home to independent living for young adults with intellectual disability (ID) becomes delayed. Those families face challenges that exceed those of typical families such as higher objective and subjective burden, more frequent psychological distress and lower social support. The aim of this study was to explore the collaboration process between parents and employees and identify factors that improve the transition with less burden. Methods A descriptive qualitative study was undertaken with 18 persons (9 parents and 9 employees) interviewed individually and in groups. In accordance with the municipality`s guidelines, families with profound intellectual disability (PID) child should apply for housing, when the child turns 16. The purpose is to ensure interdisciplinary collaboration, information flow and coordinated services according to family’s needs. The main question in the interviews was ‘What was your experience with cooperation in the transition process, and what would you do to improve this process?’ The interviews were analysed with a thematic approach using systematic text condensation. Results The parents experienced a lack of general information about the ‘housing waiting list’, level of services, the plan for time of moving from the family home, and how to choose where and whom to live with. Parents described that they had an unsustainable burden of care during the waiting period, and a family crisis caused the allocation of an apartment in a group house. Employees shared challenges to meet families’ wishes, as there were too few group homes. They experienced good cooperation with families and said they offered respite care, due to reduce parents’ burden of care. Employees experienced that PID children developed skills, mastery and degrees of independence after completing a residency at the Folk High School. Conclusions To improve the collaboration process to reduce the burden of care to families, the informants highlighted the following imported factors:

scholarly journals New, precarious adulthood: kidults in the ‘crowded nest’

2020 ◽  
pp. 43-69
Author(s):  
Mariola Bieńko
Keyword(s):  
Young Adults ◽  
Social Life ◽  
Individual Development ◽  
Economic Changes ◽  
Adult Age ◽  
The Social ◽  
The Family ◽  
Education Participation ◽  
Family Home ◽  
Industrialised Countries

In the period of young adulthood, i.e., between ages 18–20 and 30–35, the coupling of the duties, goals, and ambitions connected with various life activities takes place, these being in education, participation in the labour market, self-supporting a household, starting a family, becoming a parent, and active participation in the social life. The social and cultural as well as economic changes that are occurring nowadays affect the course of family life as well as the stages of individual development. One of these stages refers to a young adult leaving the family home. However, it is more and more often the case that this moment gets deferred. Research conducted by sociologists and demographers in the recent years shows that the growing share of young people in industrialised countries choose to live with their parents in spite of their adult age. The increase in young adults staying in the family home in the recent years has led to the term ‘nesters’ being coined for them, while the effect of their bond with their guardians being stretched in time is now referred to as the ‘crowded nest’ or ‘cluttered nest’. This article offers an insight into one of the components of the process of reaching adulthood, namely leaving parental home. The qualitative study (carried out in 2012 and 2013) combines statistical analyses and personal interviews; its results are based on 42 interviews with women and men aged between 27 and 38 who live with their parents in Warsaw, Poland. This interview-based analysis focuses on demonstrating the process of nesting of young adults and the interviewed persons’ perception of this behaviour.

scholarly journals Improving the transition process to independent living for adolescents with profound intellectual disabilities. Experiences of parents and employees.

2020 ◽  
Author(s):  
Eirik Roos ◽  
Erik Sondenaa
Keyword(s):  
Young Adults ◽  
Independent Living ◽  
Early Stage ◽  
Transition Process ◽  
General Information ◽  
Main Question ◽  
Burden Of Care ◽  
Subjective Burden ◽  
The Family ◽  
Family Home

Abstract Background The transition process from the family home to independent living for young adults with profound intellectual disability (PID) becomes delayed. Those families face challenges that exceed those of typical families such as higher objective and subjective burden, more frequent psychological distress and lower social support. The aim of this study was to explore the collaboration process between parents and employees and identify factors that improve the transition with less burden. Methods A descriptive qualitative study was undertaken with 18 persons (9 parents and 9 employees) interviewed individually and in groups. In accordance with the municipality`s guidelines, families with a child with PID should apply for housing, when the child turns 16. The purpose is to ensure interdisciplinary collaboration, information flow and coordinated services according to family’s needs. The main question in the interviews was ‘What was your experience with cooperation in the transition process, and what would you do to improve this process?’ The interviews were analysed with a thematic approach using systematic text-condensation. Results The parents experienced a lack of general information about the ‘housing waiting list’, level of services, and the plan for time of moving from the family home, and how to choose where and whom to live with. Parents described that they had an unsustainable burden of care during the waiting period, and a family crisis caused the allocation of an apartment in a group house. Employees shared challenges to meet families’ wishes, as there were too few group homes. They experienced good collaboration with families and said they offered respite care, due to reduce parents’ burden of care. Employees experienced that PID children developed skills, mastery and degrees of independence after completing a residency at the Folk High School. Conclusions To improve the transition process from family home to independent living for young adults with PID, the informants highlighted some factors to reduce the burden of care on families: 1) Systematic follow-up program for families to observe their needs at an early stage; 2) More available group houses; 3) Information about the housing priorities of the services and; 4) Educational preparation programs for families.

Sign in / Sign up

Export Citation Format

Share Document