scholarly journals Percepção da sobrecarga familiar nos cuidados ao paciente psiquiátrico crônico

2011 ◽  
Vol 2 (4) ◽  
pp. 245-247
Author(s):  
Mohema Duarte de Oliveira ◽  
Mariana Ferreira de Sá ◽  
Maria Luciene Rocha
Keyword(s):  
Mental Illness ◽  
Family Caregivers ◽  
Literature Search ◽  
Psychiatric Patients ◽  
Family Burden ◽  
The Family ◽  
The Impact ◽  
Chronic Psychiatric Patients

Objetivos: avaliar o impacto da sobrecarga familiar nos cuidados ao paciente psiquiátrico crônico. Metodologia: pesquisa bibliográfica por meio de referências publicadas em documentos, livros, revistas, artigos científicos, internet, ou seja, aborda tudo o que foi publicado sobre o tema proposto. Resultados: a convivência com a pessoa acometida por uma doença mental é desgastante para o familiar e, muitas vezes, há dificuldade de compreensão dos sintomas apresentados pelo doente. Conclusão: há a necessidade de desenvolver programas de informação, orientação e apoio aos familiares dos pacientes psiquiátricos.Descritores: Sobrecarga, Familiares Cuidadores, Pacientes Psiquiátricos.Perception of the familiar overload in the cares to the chronic psychiatric patientAims: to assess the impact of family burden in caring for chronic psychiatric patients. Methodology: literature search by means of references in published papers, books, magazines, papers, and internet, that is, it approaches all publishings on the theme. Results: living with the person affected by mental illness is stressful for the family and sometimes there is difficulty in understanding the symptoms presented by the patient. Conclusion: there is a need to develop information, guidance and support to families of psychiatric patients.Descriptors: Overload, Family Caregivers, Psychiatric Patients.La percepción de la carga familiar en el cuidado de pacientes psiquiátricos crónicosObjectivos: Evaluar el impacto de la carga familiar en el cuidado de pacientes psiquiátricos crónicos. Metodología: la literatura a través de referencias de artículos publicados, libros, revistas, periódicos, internet, o las direcciones de lo que se ha publicado sobre el tema. Resultados: la convivencia con la persona afectada por una enfermedad mental es muy estresante para la familia y con frecuencia hay dificultad en la comprensión de los síntomas que presenta el paciente. Conclusión: Hay una necesidad de desarrollar programas de información, orientación y apoyo a las familias de los pacientes psiquiátricos.Descriptores: Sobrecarga, Los Cuidadores Familiares, Los Pacientes Psiquiátricos.

The mentally ill and their impact on family caregivers: A qualitative case study

2017 ◽  
Vol 62 (1) ◽  
pp. 461-471 ◽  
Author(s):  
Azlinda Azman ◽  
Paramjit Singh Jamir Singh ◽  
Jamalludin Sulaiman
Keyword(s):  
Mental Illness ◽  
Family Caregivers ◽  
Support Groups ◽  
Mentally Ill ◽  
Negative Impact ◽  
Social Psychological ◽  
The Family ◽  
Financial Burdens ◽  
The Impact

The impact of mental illness is profound. This qualitative study aims to explore the impact experienced by family caregivers who provide care to relatives with mental illness. A total of 15 family caregivers from the state of Kedah in Malaysia participated in this study. The findings indicated that the family caregivers experienced four types of negative impact, including financial burdens and social, psychological and physical health. This study suggests that the family caregivers should engage in support groups to obtain emotional support and the required information from other caregivers who have similar experiences in caring for individuals with mental illness.

Protective preparation: a process central to family caregivers of persons with mild cognitive impairment

2017 ◽  
Vol 30 (3) ◽  
pp. 375-384 ◽  
Author(s):  
Ching-Lin Wang ◽  
Li-Min Kuo ◽  
Yi-Chen Chiu ◽  
Hsiu-Li Huang ◽  
Huei-Ling Huang ◽  
...  
Keyword(s):  
Cognitive Impairment ◽  
Mild Cognitive Impairment ◽  
Family Caregivers ◽  
Caregiver Burden ◽  
Family Caregiving ◽  
Healthcare Providers ◽  
Theory Approach ◽  
Face To Face ◽  
The Family ◽  
The Impact

ABSTRACTBackground:To develop a theoretical model explaining the longitudinal changes in the caregiving process for family caregivers of persons with mild cognitive impairment (MCI) in Taiwan.Methods:A longitudinal, grounded theory approach using in-depth face-to-face interviews and an open-ended interview guide. We conducted 42 interviews over a two-year period; each participant was interviewed at least once every six months. All participants were interviewed in their home. The participants total of 13 family caregivers of persons with MCI.Results:One core theme emerged: “protective preparation.” This reflected the family caregiving process of preparation for a further decline in cognitive function, and protection from the impact of low self-esteem, accidents, and symptoms of comorbidities for the family member with MCI. Protective preparation contained three components: ambivalent normalization, vigilant preparation, and protective management.Conclusions:Interventions to help family caregivers manage the changes in persons with MCI can reduce caregiver burden. Our findings could provide a knowledge base for use by healthcare providers to develop and implement strategies to reduce caregiver burden for family caregivers of persons with MCI.

scholarly journals PSYCHOLOGICAL PROBLEMS OF FAMILY CAREGIVERS OF PATIENTS WITH SCHIZOPHRENIA

2020 ◽  
pp. 43-44
Author(s):  
Sejal Macwan ◽  
Ninad Jhala
Keyword(s):  
Mental Health ◽  
Mental Illness ◽  
Family Caregivers ◽  
Psychological Problems ◽  
World Health ◽  
World Health Report ◽  
Care Givers ◽  
Care Giving ◽  
Health Report ◽  
The Family

Approximately 24 million people worldwide experiencing schizophrenia (The World Health Report, 2001). Several people with mental disorder have to rely on support of family and friends to help them in their day-to-day happenings. In that era, caregivers are at risk for physical and mental health dilemma.1 Caring for a person with any mental illness often creates physical, emotional dilemma among the family caregivers more than they think. That is why it is also essential to rationalize that issue too. Family care givers of patients with any mental illness have different perspectives and coping strategies about the situation that may lead to feeling of sadness, loneliness, helplessness, hopeless at a variance among the care givers. OBJECTIVES: • To study levels of psychological problems faced by the family caregivers of patients with schizophrenia. • To study association between demographic variables and levels of psychological problems of family caregivers with schizophrenia. METHOD: A descriptive study was carried out to examine the psychological problems faced by family caregivers of patients with schizophrenia. 200 family caregivers were selected by applying stratified systematic sampling method from the government hospitals of mental health of Gujarat state with a criterion of minimum facility of 100 beds. A self-structured interview schedule was designed for study purpose by referring the Burden Assessment Tool of Thara et.al (1998) and Zarit Burden Interview. RESULT: Majority of the respondents (51%) feel anxious, depressed and frustrated due to caregiving responsibility. Majority of the respondents (52.5%) believed that care giving responsibility is mentally tiring for the family caregivers. Majority of the respondents (40.5%) agree with the statement that their contacts with family & friends have lessened due to the illness of care receiver.

Benefits of a support programme for family caregivers of patients at the end of life: A randomised controlled trial

2020 ◽  
pp. 135910532094499
Author(s):  
Ana Lucila Soto-Rubio ◽  
Selene Valero-Moreno ◽  
Marián Pérez-Marín
Keyword(s):  
End Of Life ◽  
Family Caregivers ◽  
Psychological Intervention ◽  
Controlled Trial ◽  
Intervention Programme ◽  
Care Recipients ◽  
Support Programme ◽  
The Family ◽  
Randomised Controlled ◽  
The Impact

This study aims to analyse the impact that a psychological intervention programme has on the emotional state of family caregivers of patients at the end of life. The study is longitudinal with two arms (control and experimental). Data was collected from 154 primary family caregivers of patients at the end of life as well as from their respective 154 care-recipients. The intervention programme has shown its effectiveness in reducing anxiety, emotional distress and burden in the family caregivers of end-of-life patients. A reduction of anxiety of patients whose family caregivers participated in the intervention was also observed.

A conceptual model and key variables for guiding supportive interventions for family caregivers of people receiving palliative care

2003 ◽  
Vol 1 (4) ◽  
pp. 353-365 ◽  
Author(s):  
PETER HUDSON
Keyword(s):  
Palliative Care ◽  
Conceptual Model ◽  
Family Caregivers ◽  
Family Caregiver ◽  
Intervention Development ◽  
World Health ◽  
The Family ◽  
Key Variables ◽  
Supportive Interventions ◽  
The Impact

According to the World Health Organization, the patient and family should be viewed as the “unit of care” when palliative care is required. Therefore family caregivers should receive optimal supportive care from health professionals. However, the impact of supporting a dying relative is frequently described as having negative physical and psychosocial sequalae. Furthermore, family caregivers consistently report unmet needs and there has been a dearth of rigorous supportive interventions published. In addition, comprehensive conceptual frameworks to navigate the family caregiver experience and guide intervention development are lacking. This article draws on Lazarus and Folkman's seminal work on the transactional stress and coping framework to present a conceptual model specific to family caregivers of patients receiving palliative care. A comprehensive account of key variables to aid understanding of the family caregiver experience and intervention design is provided.

scholarly journals Psychometric Properties and Correlates of the Beck Hopelessness Scale in Family Caregivers of Nigerian Patients with Psychiatric Disorders in Southwestern Nigeria

2016 ◽  
Vol 07 (S 01) ◽  
pp. S018-S025 ◽  
Author(s):  
Olutayo Aloba ◽  
Olayinka Ajao ◽  
Taiwo Alimi ◽  
Olufemi Esan
Keyword(s):  
Factor Analysis ◽  
Psychometric Properties ◽  
Family Caregivers ◽  
Psychiatric Patients ◽  
Health Questionnaire ◽  
Southwestern Nigeria ◽  
The Family ◽  
Beck Hopelessness Scale ◽  
Fit Index ◽  
Distress Scale

ABSTRACT Objectives: To examine the construct and correlates of hopelessness among family caregivers of Nigerian psychiatric patients. Materials and Methods: This is a cross-sectional, descriptive study involving 264 family caregiver-patients’ dyads recruited from two university teaching hospitals psychiatric clinics in Southwestern Nigeria. Results: Exploratory factor analysis revealed a two-factor 9-item model of the Beck Hopelessness Scale (BHS) among the family caregivers. Confirmatory factor analysis of the model revealed satisfactory indices of fitness (goodness of fit index = 0.97, comparative fit index = 0.96, Chi-square/degree of freedom (CMIN/DF) = 1.60, root mean square error of approximation = 0.048, expected cross-validation index = 0.307, and standardized root mean residual = 0.005). Reliability of the scale was modestly satisfactory (Cronbach’s alpha 0.72). Construct validity of scale was supported by significant correlations with the family caregivers’ scores on the Zarit Burden Interview, mini international neuropsychiatric interview suicidality module, General Health Questionnaire-12 (GHQ-12), and Patient Health Questionnaire-9. The greatest variance in the family caregivers’ scores on the BHS was contributed by their scores on the psychological distress scale (GHQ-12). Conclusions: The BHS has adequate psychometric properties among Nigerian psychiatric patients’ family caregivers. There is the need to pay attention to the psychological well-being of the family caregivers of Nigerian psychiatric patients.

scholarly journals RELATIONSHIP BETWEEN FAMILY INTERACTION, FAMILY BURDEN AND QUALITY OF LIFE AMONG CAREGIVERS OF PATIENTS WITH EPILEPSY

2016 ◽  
Vol 4 (4) ◽  
pp. 108-114
Author(s):  
M. Senthil
Keyword(s):  
Quality Of Life ◽  
Family Caregivers ◽  
Demographic Data ◽  
Family Interaction ◽  
Interaction Pattern ◽  
Family Burden ◽  
Cross Sectional ◽  
Quality Of Life Scale ◽  
The Impact

Living with epilepsy imposes great challenges on both patients and their family caregivers but most researchers only explored the impact on patients, with less attention given to family caregivers. Our study intended to explore the needs and problems of epilepsy family caregivers of epilepsy patients encountered during the caregiving process. The present study was an attempt to assess the relationship between Family interaction pattern, family burden schedule and Quality of life of the caregivers of individuals with epilepsy. This study was conducted at the Ranchi Institute of Neuro-Psychiatry and Allied Sciences, Ranchi. It was a cross sectional study and purposive sampling was used. The present study was conducted among 60 caregivers of epilepsy, those who were willing to participate and those who have satisfied with inclusion and exclusion criteria have been included in the study. The socio demographic data sheet had been used for collecting socio demographic details of the caregivers of individuals with epilepsy. Family interaction pattern scale, family burden interview schedule and WHO Quality of life scale were applied on the caregivers of individuals with epilepsy. Statistical analysis was performed by using the SPSS programme 16.0 version. The result found that family interaction pattern has effect on family burden and quality of life. Likewise family burden has greater impact on quality of life. The study highlights the need for family interventional programs to address the specific issues related to family interaction, burden and quality of life of caregivers.

scholarly journals A study to assess the content validity of the modified engulfment scale-family version.

2021 ◽  
Author(s):  
Andria Aiello
Keyword(s):  
Mental Illness ◽  
Case Studies ◽  
Strong Evidence ◽  
Content Validity ◽  
Self Concept ◽  
Validity Index ◽  
Scale Family ◽  
Study Results ◽  
The Family ◽  
The Impact

This study was conducted to assess the content validity of the Modified Engulfment Scale - Family Version (MES-FV) which measures the impact of schizophrenia on a family member’s self-concept and on the identity of the family as a whole. The concept of family engulfment offers a perspective for understanding how a family member’s self-concept and a family’s identity might incorporate the experience of mental illness. Evidence of content validity was sought by computing a content validity index (CVI), based on ratings of item relevance by seven experts. Case studies, and domain and item matching were also used to obtain evidence pertaining to the content validity of the scale. The study results show strong evidence for the content validity of the MES-FV. The results of the case studies, and domain and item matching were particularly useful in extending the understanding of the relevance ratings (CVIs) which were given for certain MES-FV items.

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