scholarly journals PARE0028 LEAD PATIENTS – A RESOURCE FOR IMPROVEMENT OF THE HEALTH CARE SYSTEM

2020 ◽  
Vol 79 (Suppl 1) ◽  
pp. 1300.2-1300
Author(s):  
M. Beermann ◽  
K. Nilke Nordlund

Background:The project “Lead Patients – a new resource for health”, led by researcher Sara Riggare at Karolinska Institutet and financed by Vinnova, the Swedish innovation authority, launched in 2017 and the Swedish National Organization for Young Rheumatics was one out of 14 partners. One of our tasks was to develop training courses for health care staff, and to try out what happens when lead patients are giving the opportunity to educate. We developed and produced nine different courses, and during the Autumn of 2019, we had the chance to try out two of them within the project.Objectives:The aim was to switch the perspective and see what would happen when patients’ expertise and knowledge is used to educate health care professionals and challenge the norm about health care professionals being superior. The objective with first training course, “Teams that enable self-realization”, was to create conditions and find new methods for the health care professionals to better support patients with what actually matters to them. The objective with the second training course, “Anti-oppressive pedagogy and language impact”, was to create new knowledge as a group and find methods for inclusion and anti-discrimination.Methods:“Teams that enable self-realization” was conducted as an interactive lecture with a concluding workshop. The lecture was based on results from the Swedish Young Rheumatics Report, teamwork and the Swedish Patient Act. The workshop consisted of a case, where the participants were supposed to come up with a plan for a first meeting and treatment of a patient. “Anti-oppressive pedagogy and language impact” was conducted in two parts, with one week in between the two occasions. The first one was mainly a lecture with background and theory about anti-oppressive pedagogy, norms and power structures, followed by a workshop where the participants analyzed the organizations’ own value principals. The second occasion was a deepened discussion with the purpose of identifying new methods for work and strategies to move forward.Results:The main goal with the training was to highlight positive examples and create creative conditions to be able to identify these new methods and tools. And during the training, there was a great will from the staff to work in a more patient-centered way and let what is most important fort the patient to be what is directing the meeting. Some suggested that the patient should be considered a part of the health care team, but that methods are missing for making it work today. There was also a great will to reflect over what consequences the current health care system might have, and to discuss possible changes. It was exciting to see the traditional hierarchy, where patients are seen as passive receivers of care, being challenged for real and letting patients not only talk about “what it’s like to live with a chronic disease” but actually be seen as capable and qualified educators.Conclusion:If lead patient-led training becomes an obvious and vital part in building and develop the health care system, it will lead to new opportunities and possibilities to better form the health care based on patients’ needs, both strategically and operational. Because converting to a patient focused care isn’t just about changing old attitudes and organizational culture, it’s also about building new adapted structures and methods for governing the health care system.Disclosure of Interests:None declared

Author(s):  
Architha Aithal ◽  
Ateendra Jha

Many developing countries are facing a crisis in human health resources due to a critical shortage of health workers. Despite of many trained health care professionals our health care system is struggling to provide optimum services to the patients. Gaps still exist with respect to patient care, which are unevenly delivered. The data collected from 228 subjects reveals that only 7.01% of the subjects have received counseling always, 59.65% think that counseling should be given and only 41.66% are satisfied with current health care system while 56.57% are not satisfied. Our study shows that there is a huge burden on health care professionals due to a high number of the patient load which leads to the hindrance in optimum patient care and finally leads to the degradation in the quality of health care services. Now time has approached when the term task shifting should be taken seriously especially in the health care sectors. Pharmacists, an ignored profession in the health care sector have a crucial role for optimum patient care. It is the demand of the scenario that pharmacist should be taken as a key role player between the patient and prescriber. A proper communication between the patient and prescriber can be established only if all health care professionals will start working to assist each other not to compete with each other.


Author(s):  
Tashfeen Akhtar ◽  
Mehak Maqsood ◽  
M Adnan Bashir ◽  
Umer Hayat Gul ◽  
Amina Rashid ◽  
...  

<p>The healthcare team is mainly a triad of Physicians, Pharmacist &amp; Nurses. Objective: The purpose of this paper is to help healthcare professionals understand more clearly the role of pharmacists within a health care team, especially inter-professional communication, pharmacists' responsibilities, and availability issues. A total of 200 samples were selected from 4 hospitals which include 100 samples of doctors and 100 of the nurses. Each sample is basically a questionnaire comprising of 23 questions. A total of two hundred questionnaires were distributed and one hundred and seventy-six questionnaires were returned resulting in the response rate of 88%. Pharmacists are being one of the major healthcare professional groups in the world after physicians and nurses are playing a very significant role in health care system. This understanding is a requirement for better communication and collaboration among the professions and for accomplishing the combined goal of better health care system.</p>


2019 ◽  
Vol 2019 (4) ◽  
pp. 49-59 ◽  
Author(s):  
Татьяна Семенова ◽  
Tat'yana Semenova

The article dedicated to the realization of the federal project «Provision of medical organizations of the health care system with qualified staff» that aimed at increase of staffing levels in health care system. The article presents the schemes of staff provision for regional health care systems and recommended methods of requirement estimation of professional staff, as well as the ways of elimination of staff imbalances and deficits in the regions of the Russian Federation.


2009 ◽  
Vol 29 (4) ◽  
pp. 162-168
Author(s):  
AL Dewar ◽  
K Gregg ◽  
MI White ◽  
J Lander

A new framework is needed for patients with chronic pain and their primary care physicians that acknowledges the individual’s experiences and provides evidence-informed education and better linkages to community-based resources. This study describes the experience of 19 chronic-pain sufferers who seek relief via the health care system. Their experiences were recorded through in-depth semistructured interviews and analyzed through qualitative methods. The participants reported early optimism, then disillusionment, and finally acceptance of living with chronic pain. Both individuals with chronic pain and their health care professionals need evidence-informed resources and information on best practices to assist them to manage pain. Empathetic communication between health care professionals and individuals with chronic pain is crucial because insensitive communication negatively affects the individual, reduces treatment compliance and increases health care utilization.


Author(s):  
Tiffany D. Joseph

Tiffany D. Joseph’s chapter examines how stratification of access by immigration status effectively undermined a “universal” health policy. While the ACA only extended coverage to U.S. citizens and eligible documented immigrants, Massachusetts pursued a universal health care system at the state level and offered coverage to all residents, regardless of documentation status. Despite this policy that aimed for inclusion, immigrants in Massachusetts were still more likely than non-immigrants to remain uninsured. Joseph interviewed Brazilian and Dominican immigrants, health care professionals, and immigrant/health organization employees to find out why immigrants remained uninsured. She identified immigration-related, health care system, and bureaucratic barriers that prevented individuals from effectively accessing care. Massachusetts serves as both a model and a cautionary tale for ACA implementation, with barriers exacerbated for immigrant, low-income, and minority populations.


2019 ◽  
Vol 35 (3) ◽  
pp. 185-191 ◽  
Author(s):  
David A. Agom ◽  
Stuart Allen ◽  
Sarah Neill ◽  
Judith Sixsmith ◽  
Helen Poole ◽  
...  

Background: There is a dearth of research focusing on identifying the social complexities impacting on oncology and palliative care (PC), and no study has explored how the health-care system in Nigeria or other African contexts may be influencing utilization of these services. Aim: This study explored how social complexities and the organization of health-care influenced the decision-making process for the utilization of oncology and PC in a Nigerian hospital. Methods: This qualitative study used an interpretive descriptive design. Data were collected using semistructured interview guides with 40 participants, comprising health-care professionals, patients, and their families. Thematic analysis was conducted to generate and analyze patterns within the data. Findings: Three themes were identified: dysfunctional structural organization of the health-care delivery system, service-users’ economic status, and the influence of social networks. The interrelationship between the themes result in patients and their family members decisions either to present late to the hospital, miss their clinical appointments, or not to seek oncological health care and PC. Conclusion: This article offers insights into the role of the health-care system, as organized currently in Nigeria, as “autoinhibitory” and not adequately prepared to address the increasing burden of cancer. We therefore argue that there is a need to restructure the Nigerian health-care system to better meet the needs of patients with cancer and their families as failure to do so will strengthen the existing inequalities, discourage usage, and increase mortality.


2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S379-S379
Author(s):  
Mary F Wyman ◽  
Verena R Cimarolli ◽  
Robyn Stone

Abstract It is well-established that there is a critical shortage of trained health care staff who can deliver high-quality behavioral health services to persons with dementia. The development of innovative professional training curricula, and effectively implementing and sustaining such programs, is a key element in addressing this workforce crisis. This symposium highlights cutting-edge efforts being conducted across the continuum of care, to train health care professionals to support optimal behavioral health for persons with dementia. In the outpatient setting, Wyman et al. present data from a survey of mental health clinicians on their perspectives about working with persons with dementia and caregivers, revealing critical gaps in knowledge and skills to target in continuing education programming. Wray and colleagues focus on integrated behavioral health in primary care, discussing how geriatric experts can most effectively contribute to improved assessment and treatment within this setting. Koepp presents an innovative program to transform outpatient mental health care for persons with dementia through provider training and consultation. In the residential care setting, Reinhardt and colleagues report on the implementation of a comprehensive approach to the alleviation of behavioral health problems through training direct care staff in person-directed care in nursing homes. Finally, Karel et al share how VA interprofessional nursing home teams learn and sustain an evidence-based program to address behavioral concerns among residents with dementia. The discussant will lend a deep expertise in research and policy related to the geriatric workforce to her remarks on the presentations.


2020 ◽  
Vol 37 (13) ◽  
pp. 1377-1384
Author(s):  
Yvonne Peng Mei Ng ◽  
Yi Fen Low ◽  
Xin Lei Goh ◽  
Doris Fok ◽  
Zubair Amin

The novel coronavirus disease 2019 (COVID-19) pandemic has resulted in changes to perinatal and neonatal care, concentrating on minimizing risks of transmission to the newborn and health care staff while ensuring medical care is not compromised for both mother and infant. Current recommendations on infant care and feeding when mother has COVID-19 ranges from mother–infant separation and avoidance of human milk feeding, to initiation of early skin-to-skin contact and direct breastfeeding. Health care providers fearing risks of severe acute respiratory syndrome-coronavirus-2 (SARS-CoV-2) maternal–infant transmission may veer toward restricted breastfeeding practices. We reviewed guidelines and published literature and propose three options for infant feeding depending on various scenarios. Option A involves direct breastfeeding with the infant being cared for by the mother or caregiver. In option B, the infant is cared for by another caregiver and receives mother's expressed milk. In the third option, the infant is not breastfed directly and does not receive mother's expressed milk. We recommend joint decision making by parents and the health care team. This decision is also flexible as situation changes. We also provide a framework for counseling mothers on these options using a visual aid and a corresponding structured training program for health care providers. Future research questions are also proposed. We conclude that evidence and knowledge about COVID-19 and breastfeeding are still evolving. Our options can provide a quick and flexible reference guide that can be adapted to local needs. Key Points


Author(s):  
Luc Legris ◽  
Michel Préville

ABSTRACTFive semi-structured interviews were conducted, using the psychological autopsy method, in order to document the causes of geriatric suicide and to describe the interaction among suicidal elderly persons, their personal and social environments, and health care professionals. The results of this study support our hypothesis that elderly persons view suicide as a means of alleviating the psychological suffering associated with the frustration they experience on account of their inability to satisfy their basic needs. Three types of basic needs that affect the suicidal tendency of elderly persons were identified: the need to self-actualize, the need to belong, and the need to feel safe. The results also show that the people who make up the social and personal environment of elderly persons have a limited role in the prevention of suicide. This is due to their unfamiliarity with the problems surrounding the fulfilment of the basic needs of the suicidal elderly. Furthermore, as revealed in the cases studied here, the intervention of the health care system has centred mainly on the use of medication as a treatment for symptoms of psychological distress. The health care system pays little attention to the dissonance associated with the frustration suicidal elderly persons experience on account of their inability to satisfy their basic needs. Finally, the outcome of this qualitative study suggests that understanding the basic needs of the elderly can be very useful in understanding geriatric suicide.


2010 ◽  
Vol 34 (4) ◽  
pp. 441 ◽  
Author(s):  
Haylee J. Weaver ◽  
Grant A. Blashki ◽  
Anthony G. Capon ◽  
Anthony J. McMichael

Climate change will affect human health, mostly adversely, resulting in a greater burden on the health care system, in addition to any other coexistent increases in demand (e.g. from Australia’s increasingly ageing population). Understanding the extent to which health is likely to be affected by climate change will enable policy makers and practitioners to prepare for changing demands on the health care system. This will require prioritisation of key research questions and building research capacity in the field. There is an urgent need to better understand the implications of climate change for the distribution and prevalence of diseases, disaster preparedness and multidisciplinary service planning. Research is needed to understand the relationship of climate change to health promotion, policy evaluation and strategic financing of health services. Training of health care professionals about climate change and its effects will also be important in meeting long-term workforce demands.


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