G51(P) The psychosocial needs of teenagers and young people with cancer

Author(s):  
G Priday
Author(s):  
Janet E. McDonagh ◽  
Helena Gleeson

Young people are distinctly different from children and adults and as such require developmentally appropriate, youth-friendly rheumatology services to meet their medical and psychosocial needs. Adolescent development continues into the third decade of life and both influences and is affected by, health and illness (including) during this time. Effective transitional care in rheumatology is underpinned by the core principles of adolescent medicine, self-management of long-term conditions, and a developmentally appropriate, youth-friendly rheumatology service including staff trained in adolescent and young adult (AYA) health.


2019 ◽  
Vol 72 (7) ◽  
pp. 1219-1243 ◽  
Author(s):  
Matthew Hotton ◽  
Sarah Kilcoyne ◽  
Camilla Holden ◽  
Louise Dalton ◽  
Jonathan H Norris ◽  
...  

2010 ◽  
Vol 8 (3) ◽  
pp. 255-265 ◽  
Author(s):  
Pandora Patterson ◽  
Anita Rangganadhan

AbstractObjective:Research into parental loss has led to an understanding of the types of reactions and responses that children, and to a lesser extent adolescents and young adults, have when a parent dies. Only limited studies, however, have directly investigated the psychosocial needs of young people during this period. The aim of the current study was to identify and better understand the needs of adolescents and young adults who have lost a parent to cancer, and to ascertain the extent to which these needs had been met.Method:As the study is exploratory in nature, a qualitative questionnaire was used to explore the needs and unmet needs of adolescents and young adults who have had a parent die of cancer. Sixty-two parentally bereaved young people aged 12–23 participated.Results:The data were thematically analyzed and seven conceptually distinct need themes emerged, namely: support and understanding; help coping with feelings; to talk to people who have had a similar experience; information; have a break/have fun; space and time to grieve; and help with household responsibilities.Significance of results:The research findings will assist health professionals in developing services and interventions which are more responsive to the needs of parentally bereaved young people.


Author(s):  
Janet E. McDonagh ◽  
Helena Gleeson

Young people are distinctly different from children and adults and as such require developmentally appropriate, youth-friendly rheumatology services to meet their medical and psychosocial needs. Adolescent development continues into the third decade of life and both influences and is affected by, health and illness (including rheumatic disease) during this time. Effective transitional care in rheumatology is underpinned by the core principles of adolescent medicine, self-management of long-term conditions, and a youth-friendly rheumatology service including staff trained in adolescent health.


2019 ◽  
Vol 28 (1) ◽  
pp. 34-36 ◽  
Author(s):  
Taimalieutu Kiwi Tamasese ◽  
Allister Bush ◽  
Tafaoimalo Loudeen Parsons ◽  
Richard Sawrey ◽  
Charles Waldegrave

Objective: To describe a community-based single-session group intervention designed to address psychosocial needs of Samoan young people following a tsunami. Method: This programme resulted from collaboration between Samoan therapists, Samoan Catholic pastoral care workers and non-Samoan mental health clinicians. Informed by Samoan concepts of self and wellbeing, it incorporated cultural and spiritual practices familiar to Samoan young people and their families as well as body-centred therapeutic techniques, the ‘Tree of life’ exercise and provision of a cooked meal. Results: Following household visits to affected families in villages throughout southern and eastern Upolu and the island of Manono, the programme was devised and carried out in 11 villages with 1295 children participating. There was a high degree of acceptance of the programme by Pulenu’u (village governance leaders), young people, their families and community members. Conclusions: Interventions to address the psychological needs of Indigenous Pacific children and adolescents following a major disaster need to be embedded in the values of their communities. This paper describes an innovative programme based on Samoan values that was consistent with evidence-informed principles used to guide post-disaster responses.


2021 ◽  
Author(s):  
Venetia Baker ◽  
Georgia Arnold ◽  
Sara Piot ◽  
Lesedi Thwala ◽  
Judith Glynn ◽  
...  

BACKGROUND In April 2020, as cases of the novel coronavirus disease (COVID-19) spread across the globe, MTV Staying Alive Foundation created the educational entertainment miniseries MTV Shuga: Alone Together. In 70 short episodes released daily on YouTube, Alone Together aimed to disseminate timely and accurate information to increase young people’s knowledge, motivation and actions to prevent COVID-19. OBJECTIVE We sought to identify young people’s perspectives on the global COVID-19 pandemic and national lockdowns by examining the words, conversations, experiences and emotions expressed on social media in response to the Alone Together episodes. We also assessed how viewers used the series and its online community as a source of support during the global pandemic. METHODS 3,982 comments and 70 live chat conversations were extracted from YouTube between April-October 2020 and analysed through a data-led inductive thematic approach. Analyses were conducted within one week of episodes premiering. Aggregated demographic and geographical data were collected using YouTube Analytics. RESULTS The miniseries had a global reach across 5 continents, with a total 7.7 million views across MTV Shuga platforms. The series had almost 1 million views over 70 episodes on YouTube and an average 5,683 unique viewers per episode on YouTube. The dominant audience was young people (65%, between 18-24 years old) and women (85%). Across diverse countries like Nigeria, Ghana, the USA and the UK, viewers believed that COVID-19 was serious and expressed that it was people’s social responsibility to follow public health measures. The series storylines about the impact of self-isolation on mental health, exposure to violence in lockdowns and restricted employment opportunities due to the pandemic resonated with young viewers. Tuning in to the miniseries provided viewers with reliable information, entertainment, and an online community during an isolating, confusing and worrying time. CONCLUSIONS During the first wave of COVID-19, young people from 53 countries connected on social media via the MTV miniseries. The analysis showed how digitally connected young people, predominantly young women, felt compelled to follow COVID-19 safety measures despite the pandemic’s impact on their psychosocial needs. Viewers used social media to reach out to fellow viewers for advice, solace, support and resources. Organisations, governments and individuals have been forced to innovate during the pandemic to ensure people can access services safely and remotely. This analysis showed that young people are receptive to receiving support from online communities and media services. Peer influence and support online can be a powerful public health tool as young people have a great capacity to influence each other and shape norms around public health. However, online services are not accessible to everyone, and COVID-19 has increased disparities between digitally connected and unconnected young people.


Author(s):  
Lydia Andoh-Quainoo

Social media usage among young people has grown astronomically, generating interest among a number of interest groups. This chapter fills a gap on social media psychosocial antecedents propelling high-usage behavior and the subsequent psychosocial outcomes showing in attachment to the social media. The chapter explored the emergent psychosocial needs driving young people's level of usage in social media and the consequences, among a population in Ghana. The findings revealed that young consumers' social media behavior could be greatly influenced by their social psychological needs, but individual psychological variables did not significantly predict usage behavior in social media. The findings also suggest that young people are more emotionally attached to social media, slightly attached cognitively and not attached behaviorally. This implies young people have developed some level of emotional involvement for the use of social media which could affect their well-being positively or negatively.


Author(s):  
Janet E. McDonagh ◽  
Helena Gleeson

Young people are distinctly different from children and adults and as such require developmentally appropriate, youth-friendly rheumatology services to meet their medical and psychosocial needs. Adolescent development continues into the third decade of life and both influences and is affected by, health and illness (including rheumatic disease) during this time. Effective transitional care in rheumatology is underpinned by the core principles of adolescent medicine, self-management of long-term conditions, and a youth-friendly rheumatology service including staff trained in adolescent health.


2007 ◽  
Vol 18 (9) ◽  
pp. 633-634 ◽  
Author(s):  
R A Ferrand ◽  
R F Miller ◽  
E A Jungmann

Increasing numbers of HIV-infected children are now reaching adulthood and young people account for 10% of new HIV diagnosis in the UK each year. This audit of young people attending specialist and generic HIV services in Inner London in 2006 ( n=39) highlights the complex medical and psychosocial needs of this patient group: 63% were diagnosed with HIV because of poor health, 39% had received more than three antiretroviral regimens, 21% had resistance to two antiretroviral classes and 32% had significant mental health problems. In addition, 45% reported to be sexually active with poor uptake of contraception other than condoms and frequent non-disclosure of their HIV status to a sexual partner.


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