scholarly journals Parents’ experiences of requests for organ and tissue donation: the value of asking

2019 ◽  
Vol 104 (9) ◽  
pp. 837-843 ◽  
Author(s):  
Anne-Sophie Darlington ◽  
Tracy Long-Sutehall ◽  
Duncan Randall ◽  
Claire Wakefield ◽  
Victoria Robinson ◽  
...  

ObjectiveA proportion of children die, making them potentially eligible to be organ/tissue donors. Not all are approached for donation, and experiences of those parents are not well understood. The objective was to investigate to what extent organ and tissue donation (OTD) is discussed as part of end-of-life care and to explore parents’ and healthcare professionals’ (HCPs) experiences.DesignA retrospective qualitative study.SettingMulticentre study with participants recruited through two neonatal intensive care units (ICUs), two paediatric ICUs, a cardiac ICU and a children’s hospice.PatientsBereaved parents, parents of a child with a long-term condition (LTC) and HCPs.InterventionsNone.Main outcomes and measuresParents’ and HCPs’ views and experiences of discussions about OTD.Results24 parents of 20 children were interviewed: 21 bereaved parents and 3 parents of a child with a LTC. Seven parents were asked about donation (13 not asked), four agreed and two donated. 41 HCPs were interviewed. Themes: complexity of donation process, OTD as a coping strategy, the importance of asking, difficulty of raising the topic,\ and parents’ assumptions about health of organs (when donation is not discussed).ConclusionsThe findings add new knowledge about parents’ assumptions about the value of their child’s organs when discussions about OTD are not raised, and that HCPs do not routinely ask, are sometimes hesitant to ask in fear of damaging relationships, and the reality of the complexity of the donation process. Given the current levels of awareness around OTD, the topic should be raised.

Author(s):  
Alicija Vileito ◽  
Christian V. Hulzebos ◽  
Mona C. Toet ◽  
Dyvonne H. Baptist ◽  
Eduard A. A. Verhagen ◽  
...  

AbstractNeonatal organ and tissue donation is not common practice in the Netherlands. At the same time, there is a transplant waiting list for small size-matched organs and tissues. Multiple factors may contribute to low neonatal donation rates, including a lack of awareness of this option. This study provides insight into potential neonatal organ and tissue donors and reports on how many donors were actually reported to the procurement organization. We performed a retrospective analysis of the mortality database and medical records of two largest neonatal intensive care units (NICUs) in the Netherlands. This study reviewed records of neonates with a gestational age >37 weeks and weight >3000g who died in the period from January 1, 2005 through December 31, 2016. During the study period, 259 term-born neonates died in the two NICUs. In total, 132 neonates with general contra-indications for donation were excluded. The medical records of 127 neonates were examined for donation suitability. We identified five neonates with documented brain death who were not recognized as potential organ and/or tissue donors. Of the remaining neonates, 27 were found suitable for tissue donation. One potential tissue donor had been reported to the procurement organization. In three cases, the possibility of donation was brought up by parents.Conclusion: A low proportion (2%) of neonates who died in the NICUs were found suitable for organ donation, and a higher proportion (12%) were found suitable for tissue donation. We suggest that increased awareness concerning the possibility of neonatal donation would likely increase the identification of potential neonatal donors. What is Known:• There is an urgent need for very small organs and tissues from neonatal donorsWhat is New:• A number of neonates who died in the NICU were suitable organ or/and tissue donors but were not recognized as donors.• Knowledge on neonatal donation possibilities is also important for proper counseling of parents who sometimes inquire for the possibility of organ and tissue donation.


1996 ◽  
Vol 6 (1) ◽  
pp. 32-36 ◽  
Author(s):  
Mark T Gravel ◽  
Penelope Szeman

Although transplantation centers directly benefit from organ and tissue donation, they continue to yield low organ and tissue referral and donation rates. Our medical center and organ procurement organization developed a model to increase referral and donation rates. This model, called the Transplant Center Development Model, facilitates the donation process, specializes staff education, and promotes administrative involvement. After it was was implemented at our medical center in 1991, the referral and donation rates from 1988 to 1990 were compared with those from 1991 to 1993. The results showed that after implementation of the model, the organ referral mean increased 47%; the organ donation mean, 50%; and the tissue donation mean, 117%. These findings suggest that this model may be a valuable tool in transplant center development.


2020 ◽  
Vol 29 ◽  
Author(s):  
Neide da Silva Knihs ◽  
Ana Carolina Barbosa dos Santos ◽  
Aline Lima Pestana Magalhães ◽  
Sayonara de Fatima Faria Barbosa ◽  
Sibele Maria Schuantes Paim ◽  
...  

ABSTRACT Objective: to identify the activities developed by nurses in care management in the organ and tissue donation process. Method: this is a quantitative, retrospective, exploratory and descriptive study, carried out in two hospital institutions in southern Brazil, between June 2013 and June 2016. The sample consisted of 104 records of patients notified to the State Transplant Center. For data analysis, descriptive statistics were used. Results: at Institution A, 70.2% (73) of medical records were analyzed and at Institution B, 29.8% (31). As for activities developed by nurses, it is noteworthy that in the first, they carried out 1,299 management activities (93.7%) and in the second, 317 (53.9%). As for assistance activities, in the first, 507 (83.1%) and in the second, 217 (63.1%) activities. With regard to nursing care, care should be taken to maintain temperature, water balance and glycemic control. Conclusion: it was possible to identify that nurses develop a greater number of actions aimed at management issues in the donation process. As for assistance, there was a greater concern with maintaining the temperature.


2018 ◽  
Author(s):  
Anne-Sophie Darlington ◽  
Tracy Long-Sutehall ◽  
Duncan Randall ◽  
Claire Wakefield ◽  
Victoria Robinson ◽  
...  

2005 ◽  
Vol 15 (2) ◽  
pp. 124-128 ◽  
Author(s):  
Christian C. Essman ◽  
Daniel J. Lebovitz

Purpose Increasing healthcare professionals' knowledge about organ and tissue donation; the national mandates regarding referral compliance; and the effect on donors, donor families, and transplant recipients is a challenging task. Physicians not routinely involved in organ donation or transplantation are some of the most difficult professionals for organ procurement organizations to access. A course for medical students was developed to initiate the transfer of information, comfort, and familiarity with the organ and tissue donation process. Methods Discussions with a local medical school revealed that little organized education on organ and tissue donation existed. An elective course was developed consisting of 2-hour lectures, once a week for 6 weeks. Topics included an overview of tissue and organ donation, history and significance of the current crisis, determination of brain death and its role in organ donation, tissue donation, pretransplant and posttransplant processes, ethical issues, and the donor family and recipient experience. Results A thorough course proposal was presented to the medical school's Chairman of Surgery and Chairman of Transplantation. The proposal was approved for first- and second-year medical students. Conclusion Offering medical students a unique and comprehensive course may attract curious students who could become future champions for donation. This type of educational approach may significantly influence future interactions between physicians and organ procurement organizations. If more organ procurement organizations implement this type of program, the medical students' knowledge of donation will not only affect and benefit the local organ procurement organization's service area but other procurement organizations throughout the country as well.


Author(s):  
Lucia Migliorelli ◽  
Annalisa Cenci ◽  
Michele Bernardini ◽  
Luca Romeo ◽  
Sara Moccia ◽  
...  

Abstract Intensive medical attention of preterm babies is crucial to avoid short-term and long-term complications. Within neonatal intensive care units (NICUs), cribs are equipped with electronic devices aimed at: monitoring, administering drugs and supporting clinician in making diagnosis and offer treatments. To manage this huge data flux, a cloud-based healthcare infrastructure that allows data collection from different devices (i.e., patient monitors, bilirubinometers, and transcutaneous bilirubinometers), storage, processing and transferring will be presented. Communication protocols were designed to enable the communication and data transfer between the three different devices and a unique database and an easy to use graphical user interface (GUI) was implemented. The infrastructure is currently used in the “Women’s and Children’s Hospital G.Salesi” in Ancona (Italy), supporting clinicians and health opertators in their daily activities.


2021 ◽  
Vol 22 (11) ◽  
pp. 5481
Author(s):  
Raymand Pang ◽  
Adnan Advic-Belltheus ◽  
Christopher Meehan ◽  
Daniel J. Fullen ◽  
Xavier Golay ◽  
...  

Neonatal encephalopathy is a leading cause of morbidity and mortality worldwide. Although therapeutic hypothermia (HT) is now standard practice in most neonatal intensive care units in high resource settings, some infants still develop long-term adverse neurological sequelae. In low resource settings, HT may not be safe or efficacious. Therefore, additional neuroprotective interventions are urgently needed. Melatonin’s diverse neuroprotective properties include antioxidant, anti-inflammatory, and anti-apoptotic effects. Its strong safety profile and compelling preclinical data suggests that melatonin is a promising agent to improve the outcomes of infants with NE. Over the past decade, the safety and efficacy of melatonin to augment HT has been studied in the neonatal piglet model of perinatal asphyxia. From this model, we have observed that the neuroprotective effects of melatonin are time-critical and dose dependent. Therapeutic melatonin levels are likely to be 15–30 mg/L and for optimal effect, these need to be achieved within the first 2–3 h after birth. This review summarises the neuroprotective properties of melatonin, the key findings from the piglet and other animal studies to date, and the challenges we face to translate melatonin from bench to bedside.


2021 ◽  
Vol 74 (2) ◽  
Author(s):  
Neide da Silva Knhis ◽  
Sabrina Regina Martins ◽  
Aline Lima Pestana Magalhães ◽  
Saulo Fábio Ramos ◽  
Camila Telemberg Sell ◽  
...  

ABSTRACT Objectives: to identify information that can support creating good practice assumptions to develop family interview for organ and tissue donation. Methods: this scoping study, conducted in two Brazilian hospitals in the southern, between April and December 2017, included integrative review and consultation with 15 families who experienced interview for organ donation. For data analysis, thematic content analysis was used. Results: three categories emerged: communication of death, which shows the need to know the history of hospitalization of patients; emotional support, the team must have mastery of the stages of mourning; information about donation, professionals need to know the stages of the donation process and respect families’ time. Final Considerations: good practice assumptions point to the need for team training, respect for family time and the use of simple language.


Sign in / Sign up

Export Citation Format

Share Document