scholarly journals Promoting Safe and Effective Genetic Testing in the United States. Final Report of the Task Force on Genetic Testing: Edited by Neil A Holtzmann and Michael S Watson, Baltimore, John Hopkins University Press, 1998, 186 pages, pound23.00 (pb)

2000 ◽  
Vol 26 (6) ◽  
pp. 482-482 ◽  
Author(s):  
A. Kent
PMLA ◽  
2011 ◽  
Vol 126 (2) ◽  
pp. 460-466
Author(s):  
Amy Hollywood

In October 2006, the Harvard University task force on general education issued a preliminary report describing and justifying a new program of general education for Harvard College. Contending that “[g]eneral education is the public face of liberal education,” the task force enumerated what a person liberally educated in the twenty-first-century United States should know—or, perhaps better, know how to think about in reasoned and nuanced ways (Preliminary Report 3). The report called for seven semester-long courses in “five broad areas of inquiry and experience”: Cultural Traditions and Cultural Change, The Ethical Life, The United States and the World, Reason and Faith, and Science and Technology. In addition, the task force suggested that students be required to take three semester-long courses that “develop critical skills”: writing and oral communication, foreign language, and analytic reasoning (6). Not surprisingly, “Reason and Faith” generated some of the most heated discussion—and it was the first suggested requirement dropped by the task force, replaced in December 2006 by a new category, “What It Means to Be a Human Being.” By the time of the final report, this too was gone, replaced by “Culture and Belief,” an area of inquiry that may include the study of religion but is broader in scope than what was initially proposed (Report of the Task Force 11–12).


1999 ◽  
Vol 45 (5) ◽  
pp. 732-738 ◽  
Author(s):  
Neil A Holtzman

Abstract The Task Force on Genetic Testing was created to review genetic testing in the United States and, when necessary, to make recommendations to ensure the development of safe and effective genetic tests. A survey to explore the state of genetic testing was undertaken for the Task Force and completed in early 1995. The survey, as well as literature reports and other information collected for the Task Force, showed problems affecting safety and effectiveness, as defined by the Task Force: validity and utility of predictive tests, laboratory quality, and appropriate use by healthcare providers and consumers. On the basis of these findings, the Task Force made several recommendations to ensure safe and effective genetic testing. The Secretary of Health and Human Services followed up one recommendation by creating the Secretary’s Advisory Committee on Genetic Testing. One of its functions will be to implement other recommendations of the Task Force.


2018 ◽  
Vol 47 (3) ◽  
pp. 130-134

This section, updated regularly on the blog Palestine Square, covers popular conversations related to the Palestinians and the Arab-Israeli conflict during the quarter 16 November 2017 to 15 February 2018: #JerusalemIstheCapitalofPalestine went viral after U.S. president Donald Trump recognized Jerusalem as the capital of Israel and announced his intention to move the U.S. embassy there from Tel Aviv. The arrest of Palestinian teenager Ahed Tamimi for slapping an Israeli soldier also prompted a viral campaign under the hashtag #FreeAhed. A smaller campaign protested the exclusion of Palestinian human rights from the agenda of the annual Creating Change conference organized by the US-based National LGBTQ Task Force in Washington. And, UNRWA publicized its emergency funding appeal, following the decision of the United States to slash funding to the organization, with the hashtag #DignityIsPriceless.


2002 ◽  
Vol 20 (22) ◽  
pp. 4485-4492 ◽  
Author(s):  
Wendy Y. Chen ◽  
Judy E. Garber ◽  
Suzanne Higham ◽  
Katherine A. Schneider ◽  
Katie B. Davis ◽  
...  

PURPOSE: BRCA1/2 genetic testing has been commercially available in the United States since 1996. Most published reports described BRCA1/2 testing as research studies at large academic centers, but less is known about testing in the community. This study evaluates the process and early outcomes of BRCA1/2 genetic testing as a clinical service in the community setting. METHODS: Surveys were mailed to women in the United States whose health care providers ordered BRCA1/2 genetic testing from Myriad Genetic Laboratories from August 1998 through July 2000. Women tested at 149 large academic centers were excluded. Main outcome measures were demographic characteristics, recall of and satisfaction with the genetic testing process, and likelihood of pursuing cancer prevention strategies. RESULTS: Among the 646 respondents, 414 (64%) had a personal history of cancer and 505 (78%) had at least one first-degree relative with breast and/or ovarian cancer. Most subjects (82%) recalled discussions of informed consent before testing (median time, 30 minutes). Genetic results were conveyed during an office visit (57%), by telephone (39%), or by mail (3%). More than 75% of respondents were “very satisfied with the counseling received.” Cancer-free subjects with a germline mutation were more likely to consider prevention strategies after receiving the genetic results. CONCLUSION: Virtually all respondents had a personal and/or family history of breast/ovarian cancer. Although pretest and posttest communications were not standardized, overall satisfaction with clinical breast cancer genetic testing was high. Additional follow-up will provide data on future cancer prevention practices and cancer incidence.


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