Difficulties and Results of Endometrial Cancer Registration by a Cancer Registry

2015 ◽  
pp. 5-11
Author(s):  
R. Schaerer ◽  
F. Menegoz ◽  
J. M. Lutz ◽  
P. Swiercz ◽  
M. Mousseau
Keyword(s):  
Endometrial Cancer ◽  
Cancer Registry ◽  
Cancer Registration

Modeling Cancer Registration Processes with an Enhanced Activity Diagram

2005 ◽  
Vol 44 (01) ◽  
pp. 11-13 ◽  
Author(s):  
W. Williams ◽  
D. Lyalin
Keyword(s):  
Cancer Registry ◽  
Business Processes ◽  
Unified Modeling Language ◽  
Cancer Registration ◽  
Activity Diagram ◽  
Unified Modeling ◽  
Domain Specific ◽  
Enhanced Activity ◽  
Health Domains ◽  
Uml Activity Diagram

Summary Objectives: Adequate instruments are needed to reflect the complexity of routine cancer registry operations properly in a business model. The activity diagram is a key instrument of the Unified Modeling Language (UML) for the modeling of business processes. The authors aim to improve descriptions of processes in cancer registration, as well as in other public health domains, through the enhancements of an activity diagram notation within the standard semantics of UML. Methods: The authors introduced the practical approach to enhance a conventional UML activity diagram, complementing it with the following business process concepts: timeline, duration for individual activities, responsibilities for individual activities within swimlanes, and descriptive text. Results: The authors used an enhanced activity diagram for modeling surveillance processes in the cancer registration domain. Specific example illustrates the use of an enhanced activity diagram to visualize a process of linking cancer registry records with external mortality files. Conclusions: Enhanced activity diagram allows for the addition of more business concepts to a single diagram and can improve descriptions of processes in cancer registration, as well as in other domains. Additional features of an enhanced activity diagram allow to advance the visualization of cancer registration processes. That, in turn, promotes the clarification of issues related to the process timeline, responsibilities for particular operations, and collaborations among process participants. Our first experiences in a cancer registry best practices development workshop setting support the usefulness of such an approach.

Does post-operative radiochemotherapy improve survival in high-grade endometrial cancer patients? Results of a population-based cohort analysis of a cancer registry

2018 ◽  
Vol 297 (5) ◽  
pp. 1245-1253 ◽  
Author(s):  
Sophia Scharl ◽  
Thomas Papathemelis ◽  
Karin Kronberger ◽  
Michael Gerken ◽  
Anton Scharl ◽  
...  
Keyword(s):  
Endometrial Cancer ◽  
Cancer Patients ◽  
Cancer Registry ◽  
Cohort Analysis ◽  
Population Based ◽  
High Grade

scholarly journals Development of a National Cancer Registry in a Low Resourced Country: The Case of Kenya National Cancer Registry Programme

2018 ◽  
Vol 4 (Supplement 2) ◽  
pp. 216s-216s
Author(s):  
A. Korir ◽  
R. Gakunga ◽  
N. Okerosi ◽  
A. Karagu ◽  
N. Buziba ◽  
...  
Keyword(s):  
Cancer Registry ◽  
Hpv Vaccination ◽  
Cancer Registries ◽  
Population Based ◽  
National Registry ◽  
Cancer Registration ◽  
National Cancer Registry ◽  
Background Population ◽  
Geographical Regions ◽  
Entire Country

Background: Population-based cancer registration represents the gold standard for the provision of information on cancer incidence in a defined population (Bray F, et. al, IARC Technical Report No. 43). In Kenya, the incidence and prevalence of cancer has not been well documented. The existing population-based cancer registries (PBCRs) cover less than 10% of Kenya's population. Kenya is made up of 47 administrative counties and has a population of over 45 million people. Aim: To establish a National Cancer Registry Program that will compile national data on incidence, mortality and trends of cancer in Kenya over time. Methods: Three functional PBCRs have been in existence covering 3 counties: Nairobi, Eldoret and Kisumu. Needs assessment was conducted in the 3 registries. Additional support and resources were provided. New registries were set up in different geographical regions of Kenya. A centralized office to host the national registry was established and equipped at the Centre for Clinical Research, Kenya Medical Research Institute. Sensitization and awareness activities targeting the leaders in the selected counties were undertaken. Similarly trainings and technical support of the regional registries were conducted. Data were collected on to case registration forms, coded using the International Classification of Diseases for Oncology (ICD-O); data entry, validation and analysis done using IARC software CanReg5. Results: Variations in cancer occurrence in the different counties were noted. However the leading cancers were somewhat similar in the 8 counties with prostate and esophageal cancers being the leading in men while breast and cervical cancer being top among women. These variations could provide understanding on causation of certain types of cancers. Data highlights the need to develop and expand intervention programs like HPV vaccination, screenings, early detection and early treatment. Governments' allocation of resources to cancer registries and surveillance programs is important as well as building partnerships. Conclusion: In countries with limited resources it is expensive to develop a national cancer registry covering the entire country. Our program demonstrates that a national cancer registry program can be established by setting up regional population-based cancer registries that covers a reasonable population of the entire country and aggregating the data in a centralized system. Population-based cancer registries are critical in generating data on burden of cancer in specified populations. These data should be used to inform effective cancer control programs and research.

scholarly journals Increase Coverage Cancer Registry by Strengthening and Improving the Reporting of Breast Cancer Screening Program in Jakarta as One of Data Source

2018 ◽  
Vol 4 (Supplement 2) ◽  
pp. 142s-142s ◽  
Author(s):  
D.T. Sinulingga ◽  
A. Kadir ◽  
D. Purwanto ◽  
K. Kardinah ◽  
E. Suzanna ◽  
...  
Keyword(s):  
Breast Cancer ◽  
Early Detection ◽  
Cancer Registry ◽  
Registry Data ◽  
Cancer Registration ◽  
Birth Date ◽  
Screening Programs ◽  
Cancer Registry Data ◽  
Mobile Mammography ◽  
Data Source

Background and context: Breast cancer screening programs by mobile mammography have been done since 2005 for Jakarta and around by collaboration of Dharmais National Cancer Center with The Indonesia Breast Cancer Foundation and Jakarta Health Department. Every activity, mobile mammography has been examined 50 persons for 60-80 times yearly. For 2015 there were 3493 examinations with 529 cases (15.1%) were abnormal which 43 from that cases (8.1%) are suspect malignancy. All that data were compile with early detection and cancer registry data to know the real cancer, but there were no malignancy and only 15 benign cases had come to follow-up to Dharmais NCC. The result is no malignancy. To compile the mobile mammography data with detection unit and cancer registry data were difficult because of the difference terms of the variables. National Cancer Registry of Indonesia has been announced by Ministry of Health since 2016. The coverage of cancer that diagnosed in 2008-2012 in Jakarta just 30.7%. One of the sources of data are screening data. In Indonesia, screening programs for breast and cervix cancer have been done sporadically, including at Jakarta. Unfortunately for 2008-2012 diagnose year, there were no data can compile to cancer registry because there were no address data and name. So we collaborate to improve the data variables for cancer registration system. Aim: To conduct the mobile mammography screening data as one of the sources data for cancer registration to improve the coverage in Jakarta and to prepare the breast specific cancer registry system. Strategy/Tactics: Cancer Registry, Early Detection, Radiology and Pathology Unit was collaborating with The Indonesia Breast Cancer Foundation to improve the variables. Program/Policy process: We to improve the variables and their operational definition especially for name, address and birth date include risk factors and physical examinations variables. The palpations of breast was conduct by midwives or doctors before the examination with mammography. Cancer registration variables definition is the standard, so the name variable is the name that written in the National Identity Card, include the birth date and address. Information system department in Dharmais NCC has made the program to this data system and have been take place since July 2017. Outcomes: There were 1462 data that have been in hospital data based for mobile mammography with 237 cases (16.2%) were abnormal which 14 cases (5.9%) are suspect malignancy. Only 5 suspect malignancy cases had more examination in Dharmais NCC and all of them were diagnosed breast malignancy. What was learned: Standardization of variable definitions is very important for cancer registry data source to improve the coverage especially for early stage finding cases. But to know the standard diagnose and to follow the cases real conditions, we have to make a good and clear referral system networking.

scholarly journals Impact of lymphadenectomy on the treatment of endometrial cancer using data from the JSOG cancer registry

2020 ◽  
Author(s):  
Keiko Saotome ◽  
Wataru Yamagami ◽  
Hiroko Machida ◽  
Yasuhiko Ebina ◽  
Yoichi Kobayashi ◽  
...  
Keyword(s):  
Endometrial Cancer ◽  
Cancer Registry ◽  
Using Data

scholarly journals Cancer Registration in the Middle East, North Africa, and Turkey: Scope and Challenges

2021 ◽  
pp. 1101-1109
Author(s):  
Zahi Abdul-Sater ◽  
Ali Shamseddine ◽  
Ali Taher ◽  
Fouad Fouad ◽  
Ghassan Abu-Sitta ◽  
...  
Keyword(s):  
Middle East ◽  
Cancer Registry ◽  
North Africa ◽  
Online Survey ◽  
Control Strategies ◽  
Cancer Control ◽  
Population Based ◽  
Cancer Registration ◽  
Middle Income ◽  
Conflict Zones

PURPOSE National cancer control strategies have been identified as essential tools for reducing and managing the growing burden of cancer in low- and middle-income countries. Cancer registration is an instrumental component of any cancer control strategy, providing the data to inform effective cancer policy. In the Middle East, North Africa, and Turkey (MENAT) region, cancer registration varies immensely and faces multifaceted challenges including protracted conflict. This study investigates and maps out the present capacities and outputs of cancer registration in the MENAT region and identifies thematic barriers facing implementation and utilization of cancer registry data. MATERIALS AND METHODS We used a self-administered online survey with open and close-ended questions targeting national and institutional cancer registry managers in the MENAT countries. RESULTS Registry managers from 19 MENAT countries reported the presence of 97 population-based, 48 hospital-based, and 24 pathology-based registries. Most population-based registries were well- or partially developed. Lack of accurate death records, complete medical records, and communication between stakeholders and deficiencies in trained personnel were critical challenges that were more severe in active conflict zones and neighboring conflict-affected regions. Cancer registration challenges included weak health infrastructure, absence of legislation mandating cancer registration, and disruption of cancer registration because of active conflict and loss of funding. Refugee host countries, such as Lebanon, Turkey, and Jordan, also reported conflict-related challenges including refugee mobility and lack of accurate data on forced migrants. CONCLUSION This study provides a much-needed understanding of the current landscape and contextual challenges affecting cancer registration in the MENAT. These data are important for identifying areas on which to focus regional capacity-strengthening initiatives.

Association of adjuvant therapy in early-stage low-risk endometrial cancer with increased mortality: A statewide cancer registry analysis.

2012 ◽  
Vol 30 (15_suppl) ◽  
pp. 5095-5095
Author(s):  
Michael R. Milam ◽  
Bin Huang ◽  
Mana Moghadamfalahi ◽  
Lynn Parker ◽  
Daniel Metzinger ◽  
...  
Keyword(s):  
Endometrial Cancer ◽  
Adjuvant Therapy ◽  
Cancer Registry ◽  
Cox Regression ◽  
Early Stage ◽  
Low Risk ◽  
Cox Regression Analysis ◽  
Increased Risk ◽  
Stage Ia ◽  
Registry Analysis

5095 Background: National Comprehensive Cancer Network (NCCN) guidelines state that patients with early stage low risk endometrial cancer (defined with 2009 criteria as stage IA endometrioid endometrial cancer) may be managed with observation with consideration of adjuvant therapy.The premise of this study is to review the patterns of care of those patients who received adjuvant therapy and its impact on survival. Methods: This is a retrospective cohort analysis of 1044 women from 2004-2008 in the Kentucky Cancer Registry (KCR) one of the affiliates utilized in the Surveillance, Epidemiology and End Results (SEER) Program database. Inclusion criteria for the patients in this analysis were those women with 2009 Stage IA uterine cancer of endometrioid histology, moderate and well differentiated tumor grade, who received definitive primary surgery. Adjuvant therapy was defined as any postoperative radiotherapy and/or chemotherapy after definitive surgical treatment. Patients with adjuvant therapy after surgery (AT) were compared to those patients who underwent surgery only (SO). Chi-square tests were used to identify associations between type of treatment and clinical/demographic factors. K-M plots and Cox regression models were used to examine survival between the two treatment groups. Results: 5.3% (55/1044) of patients with early stage low risk endometrial cancer were treated with AT compared to 94.7% (989/1044) of SO patients.No statistical differences in mean age, race, tumor size, smoking status, insurance status, lymph node dissection and gynecologic oncology care were found among the AT or SO groups. Five year survival was significantly better in the SO cohort compared to the AT cohort (92% alive at 5 years for SO vs. 66% alive at 5 years; p<0.0001). Controlling for other confounders in the multivariate Cox regression analysis, SO patients had substantially less risk for death compared to the AT groups (HR: 0.21; 95%CI 0.12-0.38; p<0.0001). Conclusions: In this statewide cancer registry analysis, adjuvant therapy after surgery in early stage low risk endometrial cancer patients is uncommon and is associated with an increased risk of mortality.

scholarly journals Indicators of Data Quality at the Cancer Registry Zurich and Zug in Switzerland

2018 ◽  
Vol 2018 ◽  
pp. 1-11 ◽  
Author(s):  
Miriam Wanner ◽  
Katarina L. Matthes ◽  
Dimitri Korol ◽  
Silvia Dehler ◽  
Sabine Rohrmann
Keyword(s):  
Data Quality ◽  
Childhood Cancer ◽  
Cancer Registry ◽  
Incidence Rates ◽  
Cancer Registration ◽  
Reference Ranges ◽  
Comprehensive Overview ◽  
Non Melanoma Skin Cancer ◽  
The Stability ◽  
Over Time

Data quality is an important issue in cancer registration. This paper provides a comprehensive overview of the four main data quality indicators (comparability, validity, timeliness, and completeness) for the Cancer Registry Zurich and Zug (Switzerland). We extracted all malignant cancer cases (excluding non-melanoma skin cancer) diagnosed between 1980 and 2014 in the canton of Zurich. Methods included the proportion of morphologically verified cases (MV%), the proportion of DCN and DCO cases (2009–2014), cases with primary site uncertain (PSU%), the stability of incidence rates over time, age-specific incidence rates for childhood cancer, and mortality:incidence (MI) ratios. The DCO rate decreased from 6.4% in 1997 to 0.8% in 2014 and was <5% since 2000. MV% was 95.5% in 2014. PSU% was <3% over the whole period. The incidence rate of all tumours increased over time with site-specific fluctuations. The overall M:I ratio decreased from 0.58 in 1980 to 0.37 in 2014. Overall, data quality of the Cancer Registry Zurich and Zug was acceptable according to the methods presented in this review. Most indicators improved over time with low DCO rates, high MV%, low PSU%, relatively low M:I ratios and age-specific incidence of childhood cancer within reference ranges.

Validity of Breast Cancer Registration from One Hospital into the Swedish National Cancer Registry 1961-1970

1990 ◽  
Vol 29 (2) ◽  
pp. 125-128 ◽  
Author(s):  
J. P. Garne ◽  
K. Aspegren ◽  
T. Möller
Keyword(s):  
Breast Cancer ◽  
Cancer Registry ◽  
Cancer Registration ◽  
National Cancer Registry
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