Abstract 93: How is the Quality of Life and the Psychosocial Adjustment affected in Patients with Congenital Heart Disease?

2012 ◽  
Vol 5 (suppl_1) ◽  
Author(s):  
Marta Castro ◽  
Isabela Freitas ◽  
Sofia Sarmento ◽  
Flávio Teixeira ◽  
Rosália Coelho ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Social Support ◽  
Social Relationships ◽  
School Performance ◽  
Psychosocial Adjustment ◽  
Congenital Heart ◽  
Negative Impact ◽  
Psychiatric Morbidity ◽  
Physical Limitations

Introduction: High rates of survival in Congenital Heart Disease (CHD) allowed patients to face different challenges in life cycle, and made the topics on adjustment and quality of life more and more central in healthcare. Hypothesis: We tested the hypothesis that CHD has a negative impact over psychosocial adjustment, psychiatric morbidity, quality of life and school performance, and that the severity of disease and the number of surgeries increase the negative impact over adjustment and the social support generates a buffer, good effect on it. Objective: We aimed to study Quality of Life (QOL), Psychosocial Adjustment (PSA), Psychiatric Morbidity, School Performance, Physical Limitations, and Social Support of adolescents and young adults with CHD. Methods: We evaluated 110 CHD patients, 62 males, aged from 12 to 26 years old (M=18.00 ± 3.62), 58 cyanotic. The participants were interviewed on such topics as social support, family/educational background, self-image, physical limitations and emotional adjustment, were administered a standardized psychiatric interview (SADS-L) and completed self-report questionnaires on QOL (WHOQOL-BREF) and PSA (YSR and ASR). Observational versions of the same questionnaires (CBCL, ABCL) were filled by one of their relatives. Full clinical and demographic history was collected. Results: We found a 22% rate of lifetime prevalence of psychopathology (14.5% in males and 31.3% in females) and 50% of school retentions (M=1.50 years + 0.50). Patients with severe forms of CHD showed worse PSA than those with moderate and mild forms of illness (internalization: u=939.000; p=0.030), the cyanotic versus acyanotic and those with moderate-to-severe residual lesions versus mild ones have worse QOL on physical dimension; those submitted to surgery showed worse QOL on physical (t=-2.525; p=0.013), psychological (t=-2.394; p=0,018), social relationships (t=-2.502; p=0,014) and general (u=1294,000; p=0.006) dimensions, and worse PSA (more withdrawn: u=719,000; p=0,037). Social support has a great impact improving patients’ physical (t=2.707; p=0,008), psychological (t= 2.755; p=0.007), social relationships (t=4.976; p=0,000), environment (t=3.085; p=0,003) and general (u=623.500; p=0,000) QOL and poorer social support resulted in more withdrawn (u=557.500; p=0.000) and social problems (u=748.500; p=0,023). Patients with more physical limitations showed worse physical (t=-2.093; p=0,039), psychological (t=-2.674; p=0.009) and general (u=971.500; p=0,002) QOL and more withdrawn (u=1023.000; p=0,015). Female patients showed more somatic complaints (u=260.000;p=0,011), anxiety/ depression (u=984.000;p=0,002), aggressive behavior (u=920.500;p=0,001), thought problems (u=1069.500;p=0,010), internalization (u=869.000;p=0,000) and externalization (u=1163.000; p=0,050). Good performance in school also showed a significant impact incrementing QOL and PSA. Conclusion: We concluded that we should set a special emphasis in maximizing social support and improving school performance, when supplying care in CHD, as they have a positive impact over self-confidence of patients and life adjustment.

Living with CHD: quality of life (QOL) in early adult life

2014 ◽  
Vol 24 (S2) ◽  
pp. 60-65 ◽  
Author(s):  
Maria E. G. Areias ◽  
Catarina I. Pinto ◽  
Patrícia F. Vieira ◽  
Marta Castro ◽  
Isabela Freitas ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Social Support ◽  
Academic Performance ◽  
Psychosocial Adjustment ◽  
Psychiatric Morbidity ◽  
Adult Life ◽  
Psychiatric Interview ◽  
Perception Of Quality ◽  
Physical Limitations

AbstractAimsThe aim of this study was to assess the quality of life, psychiatric morbidity, and the psychosocial adjustment of adolescents and young adults with CHD, and determine which variables play a role in buffering stress and promoting resilience and which ones have a detrimental effect; and to investigate the situation on school performance and failures, social and family support, physical limitations, and body image of these patients.MethodsThe study enrolled 137 CHD patients (79 male), with age ranging from 12 to 26 years old (M=17.60±3.450 years). The patients were interviewed regarding social support, family educational style, self-image, demographic information, and physical limitations. They responded to questions in a standardised psychiatric interview (SADS-L) and completed self-reported questionnaires for the assessment of quality of life (WHOQOL-BREF) and psychosocial adjustment (YSR/ASR).ResultsWe found a 19.7% lifetime prevalence of psychopathology in our patients (27.6% in female and 13.9% in male). Of them, 48% had retentions in school (M=1.61 year±0.82). The perception of quality of life in CHD patients is better compared with the Portuguese population in the social relationships and environmental dimensions. However, it is worse in complex forms of CHD than in moderate-to-mild ones, in cyanotic versus acyanotic patients, in moderate-to-severe versus mild residual lesions, in patients submitted versus those not submitted to surgery, in patients with versus without physical limitations, and patients who have need for medication versus those who do not. Social support is very important in improving quality of life of patients in all dimensions as well as academic performance.ConclusionsFemale patients and patients with poor academic performance and poor social support have worse psychosocial adjustment and perception of quality of life.

scholarly journals Quality of life of patients with congenital heart diseases

2011 ◽  
Vol 21 (6) ◽  
pp. 670-676 ◽  
Author(s):  
Ana M. Silva ◽  
Cláudia Vaz ◽  
Maria E. G. Areias ◽  
Daniela Vieira ◽  
Cidália Proença ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Social Support ◽  
Congenital Heart Disease ◽  
Heart Disease ◽  
Congenital Heart ◽  
Negative Impact ◽  
Heart Diseases ◽  
Emotional Adjustment ◽  
Perception Of Quality

AbstractObjectivesTo assess the perception of the quality of life of adolescents and young adults with congenital heart disease and to examine the variables that have a negative impact on it and that add a resilience effect.MethodsA total of 22 male and 18 female patients, aged 12–26 years, of whom 27 were admitted to surgery and 13 were not, participated in this study. All patients had complete medical records and were interviewed once; demographic and clinical data were collected, and patients filled a questionnaire on quality of life, the WHOQOL-BREF, and underwent an interview on social support, educational style, self-image, functional limitations, and emotional adjustment.Results/ConclusionsOur patients showed a better perception of quality of life than did the general population, on the basis of psychological, social relationship and environment scales. Older patients hold a better perception of quality of life on the psychological scale. Cyanosis did not show any significant impact over perception of quality of life decay; however, the number of surgical procedures and the persistence of moderate-to-severe residual injuries had considerable detrimental effect. Social support had an impact on increasing resilience, promoting adjustment to illness. Several factors may play a role in adjustment to congenital heart disease, either improving the perception of quality of life or worsening it. We may conclude that some buffer variables on congenital heart disease may play roles in increasing the perception of quality of life of patients during their lifetime, social support probably explaining why the perception of quality of life is better than in the normal population. The number of surgeries and the moderate-to-severe residual injuries, however, reverted that effect.

Psychosocial well-being and quality of life in siblings of children with congenital heart disease: A systematic review

2021 ◽  
pp. 136749352110129
Author(s):  
Alice S Schamong ◽  
Hannah Liebermann-Jordanidis ◽  
Konrad Brockmeier ◽  
Elisabeth Sticker ◽  
Elke Kalbe
Keyword(s):  
Quality Of Life ◽  
Cystic Fibrosis ◽  
Congenital Heart Disease ◽  
Heart Disease ◽  
Associated Factors ◽  
Congenital Heart ◽  
Negative Impact ◽  
Well Being

Congenital heart disease (CHD) is a major global health problem. Until recently, the siblings of this group did not receive much attention. This review, conducted from November 2019 to October 2020, aims to summarize knowledge about psychosocial well-being and quality of life (QoL), associated factors, and interventions for siblings of children with CHD. Systematic searches were conducted in PubMed, PsycINFO, PsycARTICLES, Web of Science via EBSCOhost, and CENTRAL. Twelve articles were included. Results showed that psychosocial well-being was impaired in 14% to 40% of siblings. Negative impact of illness was highest for CHD siblings compared to siblings of children with cancer, cystic fibrosis, or diabetes. QoL was impaired in up to one-third. Siblings of children with CHD and cancer rated their QoL lower than those of siblings of children with cystic fibrosis or type-1 diabetes. Associated factors were sibling age, gender, socioeconomic status, miscarriage, previous sibling death, visibility of illness, and severity of condition. Only one of two interventions focused on siblings of CHD children. Although data are scarce and inhomogeneous, it indicates that siblings of CHD children suffer from lower psychosocial well-being and QoL than siblings of children with other chronic conditions. Interventions to improve their situation should be developed.

scholarly journals Association between social support and quality of life of relative caregivers of elderly dependents

2015 ◽  
Vol 20 (5) ◽  
pp. 1321-1330 ◽  
Author(s):  
Karla Ferraz dos Anjos ◽  
Rita Narriman Silva de Oliveira Boery ◽  
Rafael Pereira ◽  
Larissa Chaves Pedreira ◽  
Alba Benemérita Alves Vilela ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Social Support ◽  
Social Relationships ◽  
Family Health ◽  
Cross Sectional Study ◽  
Full Time ◽  
Cross Sectional ◽  
Relative Caregivers ◽  
The Social

Objective: to ascertain the association between the social support and the quality of life of relative caregivers of elderly dependents at home.Method: a cross-sectional study conducted with 58 relative caregivers of elderly dependents, registered in the Family Health Strategy. Data were collected from the Katz instrument, sociodemographic, Zarit Burden Interview, WHOQOL-bref, and analyzed using descriptive statistics and multiple linear regression.Results: the majority of caregivers were women, who took care full-time and presented moderate to severe burden. Most caregivers are satisfied with their social relationships and the social support received. It is found that the burden and the time of care correlated with the social relationships domain, which is associated with social support, and consequently, reduced quality of life.Conclusion: social support for caregivers is important to prevent health implications, burden, biopsychosocial stress, and provide favorable conditions for quality of life, by allowing greater freedom to develop their daily activities.

scholarly journals Quality of Life, Social Support, Coping Strategies, and Psychiatric Morbidity in Patients with Rheumatoid Arthritis

2022 ◽  
Author(s):  
Naresh Nebhinani ◽  
Surendra Kumar Mattoo ◽  
Ajay Wanchu
Keyword(s):  
Quality Of Life ◽  
Rheumatoid Arthritis ◽  
Social Support ◽  
Coping Strategies ◽  
Psychiatric Disorders ◽  
Disease Severity ◽  
Psychiatric Morbidity ◽  
Psychological Morbidity ◽  
Physical Functions

Abstract Background and Objectives Patients with rheumatoid arthritis (RA) have greater psychological morbidity, despite that research in this area is scarce from developing countries. This study was aimed to assess the association of quality of life, social support, coping strategies, and psychological morbidity in patients with RA. Materials and Methods In this cross-sectional study, 40 patients with RA, who were not receiving steroids or disease modifying antirheumatic drugs, were recruited through purposive sampling. Social support questionnaire, coping strategy check list, and World Health Organization quality of life-BREF (WHOQOL-BREF) were administered to assess social support, coping, and quality of life, respectively. Results More than half of the patients had psychiatric disorders (60%), with depression being the commonest disorder (52.5%). Internalization coping and disease severity indicators like tender joints counts, swollen joints counts, pain, and disease activity were found as significant predictors for psychiatric disorders, while externalization coping, quality of life (all domains), and physical functions were found to protect against psychiatric morbidity. Conclusions Coping, quality of life, disease severity, and physical functions predicted the psychiatric disorders in RA. Multipronged interventions to enhance quality of life with promoting adaptive coping and timely treatment may further improve their mental health and overall disease course.

scholarly journals Psychosocial burden, approach versus avoidance coping, social support and quality of life (QOL) in caregivers of persons with dementia in Java, Indonesia: A cross-sectional study

2019 ◽  
Author(s):  
Christina Hunger ◽  
Sara Sibel Kuru ◽  
Sinta Kristanti
Keyword(s):  
Quality Of Life ◽  
Social Support ◽  
Cultural Values ◽  
Family Caregivers ◽  
Process Model ◽  
Negative Impact ◽  
Psychosocial Burden ◽  
Avoidance Coping ◽  
Brief Cope

Abstract Background: Dementia-caregiving causes severe distress and has a negative impact on caregivers’ health. This study examined the association of family caregivers’ psychosocial burden and quality of life (QOL), using the revised sociocultural model of stress and coping (rSMSC) (Knight & Sayegh, 2010), in an Indonesian sample. Methods: Participants were family caregivers of persons with dementia living in Java, Indonesia. Caregivers completed the Burden Assessment Schedule (BAS), the WHOQOL-Bref, the Brief-COPE and the Multidimensional Scale of Social Support (MSPSS). Mediator analyses were performed to examine the association between psychosocial burden, OQL, social support and approach versus avoidance coping. Results : 45 Indonesian family caregivers (M = 41 years, SD = 12.38; 77.8% female; 64.4% Cohousing) of persons with dementia ((M = 41 years, SD = 12.38) were involved. Caregivers’ psychosocial burden was negatively associated with their QOL. Avoidance coping showed a significant indirect negative effect of psychosocial burden on their QOL in the physical and psychological (partial mediations) and social domain (complete mediation). Approach coping and social support did not reveal significance in the mediation analyses. Conclusion: Interventions for caregivers should integrate psychoeducation and training in the rSMSC, especially focusing on the benefits and harms associated with the different approach and avoidance coping strategies, on cultural values and their impact on the different coping styles, and how these variables are associated to physical, mental and social health. . Keywords: Caregiver, Dementia, Alzheimer, Stress Process Model, Mediation, Indonesia

scholarly journals Predictors of quality of life among community psychiatric patients in a peri-urban district of Gauteng province, South Africa

2018 ◽  
Vol 24 ◽  
Author(s):  
Dumakazi Mapatwana ◽  
Andrew Tomita ◽  
Jonathan Burns ◽  
Lesley Robertson
Keyword(s):  
Quality Of Life ◽  
Social Support ◽  
South Africa ◽  
Social Relationships ◽  
Psychiatric Symptoms ◽  
Psychiatric Patients ◽  
Community Dwelling ◽  
Gauteng Province ◽  
Community Psychiatric

Introduction: Few studies on quality of life (QoL) in the mentally ill population of South Africa have been conducted, but none in community-dwelling individuals. This study examined the QoL of psychiatric patients at community mental health clinics in Gauteng province of South Africa.Methods: A cross-sectional interview-based study was conducted on 121 adult patients attending community psychiatric clinics. To reduce the impact of acute psychiatric symptoms on subjective QoL, only clinically stable patients were included. Instruments used included the World Health Organization Quality of Life BREF domains (i.e. physical health, psychological health, social relationships and environment), the Brief Psychiatric Rating Scale (BPRS) for severity of illness and a socio-demographic and clinical questionnaire.Results: Just under half of the sample rated their overall QoL as good or very good. The strongest predictor of a poor QoL in all four domains was residual psychiatric symptomatology. The most severe BPRS scores were for the symptoms of depression, anxiety and somatic concern. Perceived social support significantly predicted a better QoL in the psychological, social relationships and environmental domains.Conclusion: This study highlights the negative impact of residual psychiatric symptoms on subjective QoL, and the importance of social support and enhancing QoL. If better QoL is the goal of care, then our findings highlight the importance of managing residual symptoms and promoting social support.

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