The Existential Dimension of Palliative Care: The Mirror Effect of Death on Life

2020 ◽  
pp. 003022282095218
Author(s):  
Frédérique Drillaud ◽  
Camille Saussac ◽  
Florence Keusch ◽  
Danièle Lafaye ◽  
Hélène Bely ◽  
...  

The WHO has included the spiritual dimension in its definition of palliative care since 1990, but this dimension is frequently confused with notions of religion. Yet, the spiritual suffering experienced by palliative care patients is primarily a matter of existential suffering. The objective of this study was to examine the ways in which the existential dimension was manifested in the experiences of those present in a palliative care unit. This anthropological monograph was conducted in a palliative care unit in a French University Hospital. The existential dimension appears to reside in the connections between individuals and the proximity of death appears to shed new light on the meaning of life. The mirror effect of death on life, could serve to encourage greater appreciation of the value of our connections with others, and the desire to take care of others, which offers new insight into forms of solidarity and social organisation.

2020 ◽  
Vol 37 (10) ◽  
pp. 844-852
Author(s):  
Monica C. Fliedner ◽  
Monika Hagemann ◽  
Steffen Eychmüller ◽  
Cynthia King ◽  
Christa Lohrmann ◽  
...  

Background: Nurses’ end of life (EoL) care focuses on direct (eg, physical) and indirect (e,g, coordination) care. Little is known about how much time nurses actually devote to these activities and if activities change due to support by specialized palliative care (SPC) in hospitalized patients. Aims: (1) Comparing care time for EoL patients receiving SPC to usual palliative care (UPC);(2) Comparing time spent for direct/indirect care in the SPC group before and after SPC. Methods: Retrospective observational study; nursing care time for EoL patients based on tacs® data using nonparametric and parametric tests. The Swiss data method tacs measures (in)direct nursing care time for monitoring and cost analyses. Results: Analysis of tacs® data (UPC, n = 642; SPC, n = 104) during hospitalization before death in 2015. Overall, SPC patients had higher tacs® than UPC patients by 40 direct (95% confidence interval [CI]: 5.7-75, P = .023) and 14 indirect tacs® (95% CI: 6.0-23, P < .001). No difference for tacs® by day, as SPC patients were treated for a longer time (mean number of days 7.2 vs 16, P < .001).Subanalysis for SPC patients showed increased direct care time on the day of and after SPC ( P < .001), whereas indirect care time increased only on the day of SPC. Conclusions: This study gives insight into nurses’ time for (in)direct care activities with/without SPC before death. The higher (in)direct nursing care time in SPC patients compared to UPC may reflect higher complexity. Consensus-based measurements to monitor nurses’ care activities may be helpful for benchmarking or reimbursement analysis.


Author(s):  
Atsushi Shimizu ◽  
Mitsue Takeuchi ◽  
Fumio Kurosaki ◽  
Kaichiro Tamba ◽  
Naohiro Sata ◽  
...  

Background: Physician attire influences perceptions of care. This study was conducted to evaluate the impact of physician attire on perceptions of care by patients and families in a Japanese palliative care unit. Methods: From November 2018 to February 2020, patients and family members admitted to the Palliative Care Unit at Jichi Medical University Hospital were recruited and completed a survey consisting of 4 demographic questions and 15 questions regarding perceptions of care. A 7-point Likert scale (1 = strongly agree, 4 = neutral, 7 = strongly disagree) was used to judge attire (name tag, long sleeve white coat, short sleeve white coat, scrubs, scrub color, jeans, sneakers) addressing patient and overall impact on perception of care. Results: Of 203 patients admitted, 79 were enrolled. Surveys were received from 23 patients and 52 family members. Patients and families want physicians to wear name tags (median, interquartile range) (2, 1-2) and white coats (3, 2-4). Patients want to be addressed by surnames (2, 1.5-4). Patients and family members have neutral opinions about short sleeve white coats (4, 4-4) and scrubs (4, 4-4). Jeans were not liked (4, 4-6) while sneakers are acceptable (3, 2-4). The impact of attire on perceptions of care is significantly (p = .04) greater for patients (3, 2-4) than family members (4, 3-4). Conclusion: Patients and family members prefer their physicians to wear name tags and white coats and address patients by surnames. Physician attire has a significantly greater impact on perceptions of care for patients than family members in a palliative care unit.


Religions ◽  
2022 ◽  
Vol 13 (1) ◽  
pp. 53
Author(s):  
Alessandro Mantini ◽  
Maria Adelaide Ricciotti ◽  
Eleonora Meloni ◽  
Anita Maria Tummolo ◽  
Sabrina Dispenza ◽  
...  

In the A. Gemelli university hospital in Rome, the presence of highly specialized inter-professional palliative care teams and spiritual assistants who are dedicated to their role in the service of inpatients is valuable to person-centered healthcare. Spiritual needs are commonly experienced by patients with sudden illness, chronic conditions, and life-limiting conditions, and, consequently, spiritual care is an intrinsic and essential component of palliative care. This paper focuses on the sacrament of the Anointing of the Sick to demonstrate the importance of spiritual care as an integral part of palliative care and highlights the need for all interdisciplinary team members to address spiritual issues in order to improve the holistic assistance to the patient. Over a 3-year period (October 2018–September 2021), data about the sacrament of the Anointing of the Sick administered by the hospitaller chaplaincy were collected. A total of 1541 anointings were administered, with an average of 514 anointings per year, excluding reductions related to the COVID-19 pandemic. In 98% of cases, the sacrament was requested by health personnel, and in 96% of cases, the same health personnel participated in the sacrament. These results demonstrate that, at the A. Gemelli polyclinic in Rome, the level of training that the care team has received in collaboration with the chaplains has generated a good generalized awareness of the importance of integrating the spiritual needs of patients and their families into their care, considering salvation as well as health, in a model of dynamic interprofessional integration.


Author(s):  
Josiane Létourneau ◽  
Marie Alderson

Contexte : Les difficultés rencontrées pour améliorer les taux d'adhésion à l'hygiène des mains des infirmières suggèrent que de modifier ce comportement est une tâche complexe. Une approche novatrice - la déviance positive - propose de déterminer la présence d’individus plus performants afin de comprendre les facteurs qui pourraient expliquer cette meilleure performance. Le but de cette étude était d’explorer, sous l’angle de l’approche de la déviance positive, les facteurs qui influencent la pratique de l’hygiène des mains des infirmières en contexte hospitalier québécois. Méthode : Deux ethnographies focalisées ont été effectuées auprès de 21 infirmières sur une unité de médecine-chirurgie et une de soins palliatifs d’un centre hospitalier universitaire de Montréal. La collecte des données s’est déroulée en 2015, principalement lors de 18 entrevues individuelles et 14 périodes d’observation. Les données colligées ont été codées et regroupées sous des catégories. Résultats : Au niveau individuel, les participantes reconnaissent l’importance des connaissances sur le rôle de l’hygiène des mains dans la prévention des infections. Au niveau organisationnel, on constate une pratique collaborative à l’intérieur de chacune des équipes de soins. Au niveau environnemental, la disponibilité des distributeurs de solution hydro-alcoolique facilite la pratique de l’hygiène des mains. Au niveau socioculturel, les deux équipes travaillent ensemble vers un but commun, ce que nous avons nommé cohésion sociale, favorisée sur l’unité de médecine-chirurgie par le leadership de son infirmier-chef et sur l’unité des soins palliatifs par une pratique de soins empreinte d’humanisme. Discussion/Conclusion : Les connaissances découlant de cette étude permettent de comprendre qu’afin d’améliorer l’adhésion à l’hygiène des mains des infirmières, il serait préférable de cibler les équipes de soins qui performent le mieux afin d’y puiser des idées pour aider celles avec une moins bonne performance et d’élaborer des interventions qui intègrent des facteurs à plusieurs niveaux, non seulement au niveau individuel, mais aussi aux niveaux organisationnels, environnementaux et socioculturels. Background: Challenges encountered in improving nurses’ hand hygiene adherence rates suggest that changing this behavior is a complex task. An innovative approachpositive deviance-propose to identify better-performing individuals in order to understand the factors that could explain their better performance. The aim of this study was to investigate the factors influencing nurses’ hand hygiene practices at a Quebec hospital from the perspective of positive deviance. Method: Two focused ethnographies were conducted involving 21 nurses on one medical-surgery unit and one palliative care unit at a Montreal university hospital. Data was collected in 2015, primarily during 18 individual interviews and 14 observation periods. The collected data was coded and sorted into categories. Results: At an individual level, the participants recognized the importance of knowledge of the role of hand hygiene in the prevention of infections. At the organizational level, we observed collaborative practices within each care team. At the environmental level, the availability of alcohol-based hand hygiene dispensers facilitated hand hygiene practice. At the sociocultural level, the two teams worked together towards a common goal, a practice we refer to as social cohesion, encouraged on the medicalsurgery unit by the head nurse’s leadership and on the palliative care unit by a humanistic care practice. Discussion/conclusion: The knowledge gained from this study shows that, to improve nurses’ hand hygiene adherence, it would be preferable to target better-performing care teams so that we may draw on their ideas to help less performing teams and develop interventions integrating factors at several levels, not only individually but also organizationally, environmentally and socio-culturally.


2013 ◽  
Vol 36 (11) ◽  
pp. 642-648
Author(s):  
Samantha Aeckerle ◽  
Marina Moor ◽  
Lothar R. Pilz ◽  
Deniz Gencer ◽  
Ralf-Dieter Hofheinz ◽  
...  

2016 ◽  
Vol 34 (2) ◽  
pp. 179-179
Author(s):  
Peter A. Selwyn

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