Characteristics, Treatment and Prognostic Factors of Patients with Gynaecological Malignancies Treated in a Palliative Care Unit at a University Hospital

2013 ◽  
Vol 36 (11) ◽  
pp. 642-648
Author(s):  
Samantha Aeckerle ◽  
Marina Moor ◽  
Lothar R. Pilz ◽  
Deniz Gencer ◽  
Ralf-Dieter Hofheinz ◽  
...  
2020 ◽  
pp. 003022282095218
Author(s):  
Frédérique Drillaud ◽  
Camille Saussac ◽  
Florence Keusch ◽  
Danièle Lafaye ◽  
Hélène Bely ◽  
...  

The WHO has included the spiritual dimension in its definition of palliative care since 1990, but this dimension is frequently confused with notions of religion. Yet, the spiritual suffering experienced by palliative care patients is primarily a matter of existential suffering. The objective of this study was to examine the ways in which the existential dimension was manifested in the experiences of those present in a palliative care unit. This anthropological monograph was conducted in a palliative care unit in a French University Hospital. The existential dimension appears to reside in the connections between individuals and the proximity of death appears to shed new light on the meaning of life. The mirror effect of death on life, could serve to encourage greater appreciation of the value of our connections with others, and the desire to take care of others, which offers new insight into forms of solidarity and social organisation.


2021 ◽  
Vol 39 (28_suppl) ◽  
pp. 23-23
Author(s):  
Kaissa Ouali ◽  
Christine Mateus ◽  
Ariane Laparra ◽  
Elena Pavliuc ◽  
Patricia Martin Romano ◽  
...  

23 Background: Early phase clinical trials usually include patients (pts) with advanced disease who have failed to standard therapies. Early palliative care (EPC) for these pts has shown to improve quality of life and even survival. Pallia 10 score (from 1 to 10) is a tool developed by the French Palliative Care Society to identify the best time to introduce palliative care. Methods: We assessed the Pallia 10 score and other prognostic factors (age, ECOG, Royal Marsden Hospital (RMH) score, LDH and albumin levels, number (nb) of prior systemic treatments and metastatic sites) in pts enrolled in phase I trials (P1CT) prospectively during 2 periods of time (cohort 1 (C1) and 2 (C2)). A double-blind assessment of the Pallia 10 score was done during 15 days by a member of the palliative care unit in C2. A Pallia 10 > 3 motivated a dedicated palliative care consultation. Results: From 01/07/2018 to 01/11/2018 (C1) and from 01/12/2020 to 16/04/2021 (C2), a total of 85 pts were assessed in C1 and 302 in C2. Gastro-intestinal (23%), hematological (14%) and lung (11%) cancer were the most frequent tumor types. Pallia 10 score and prognostic factors were similar between both cohorts (Table). On C1 and C2, 12% and 4% of pts had a dedicated palliative consultation with median time of referral of 18 and 2 months (m) after the P1CT onset (p = 0.003), with a median Pallia 10 score of 1.5 and 2 (p = 0.65), respectively. Overall, 75% and 76% of pts in C1 and C2 were still alive beyond 3m after discontinuation of the P1CT (p = 0.91), followed by at least one subsequent treatment in 56% and 54% of pts. In C2, assessment of Pallia 10 score was significantly different between palliative care physician (median 5, range 3-8), phase I physician (median 1, range 1 -6) and phase I nurse (median 3, range 1-8) (p < 0.001). Conclusions: Only a few patients included in P1CT were referred to the palliative care unit. Median Pallia 10 score was low when assessed by the phase I physician which suggests the need for a better tool to implement EPC in clinical practice and trials.[Table: see text]


Author(s):  
Livia Costa de Oliveira ◽  
Karla Santos da Costa Rosa ◽  
Alessandra Zanei Borsatto ◽  
Luciana Aparecida Faria de Oliveira ◽  
Renata de Freitas ◽  
...  

Author(s):  
Atsushi Shimizu ◽  
Mitsue Takeuchi ◽  
Fumio Kurosaki ◽  
Kaichiro Tamba ◽  
Naohiro Sata ◽  
...  

Background: Physician attire influences perceptions of care. This study was conducted to evaluate the impact of physician attire on perceptions of care by patients and families in a Japanese palliative care unit. Methods: From November 2018 to February 2020, patients and family members admitted to the Palliative Care Unit at Jichi Medical University Hospital were recruited and completed a survey consisting of 4 demographic questions and 15 questions regarding perceptions of care. A 7-point Likert scale (1 = strongly agree, 4 = neutral, 7 = strongly disagree) was used to judge attire (name tag, long sleeve white coat, short sleeve white coat, scrubs, scrub color, jeans, sneakers) addressing patient and overall impact on perception of care. Results: Of 203 patients admitted, 79 were enrolled. Surveys were received from 23 patients and 52 family members. Patients and families want physicians to wear name tags (median, interquartile range) (2, 1-2) and white coats (3, 2-4). Patients want to be addressed by surnames (2, 1.5-4). Patients and family members have neutral opinions about short sleeve white coats (4, 4-4) and scrubs (4, 4-4). Jeans were not liked (4, 4-6) while sneakers are acceptable (3, 2-4). The impact of attire on perceptions of care is significantly (p = .04) greater for patients (3, 2-4) than family members (4, 3-4). Conclusion: Patients and family members prefer their physicians to wear name tags and white coats and address patients by surnames. Physician attire has a significantly greater impact on perceptions of care for patients than family members in a palliative care unit.


2022 ◽  
Author(s):  
Kaïssa Ouali ◽  
Cristine Mateus ◽  
Arianne Laparra ◽  
Elena Pavliuc ◽  
Patricia Martin-Romano ◽  
...  

Abstract Background Early phase clinical trials usually include patients with advanced disease who have failed standard therapies. Early palliative care for these patients has shown to improve quality of life and even survival. PALLIA 10 score (ranging from 1 to 10) is a tool developed by the French Palliative Care Society to identify the best time to introduce palliative care. Methods We assessed the PALLIA 10 score and other prognostic factors (age, ECOG, Royal Marsden Hospital (RMH) score, LDH and albumin levels, number of prior systemic treatments and metastatic sites) in patients enrolled in phase I trials at Gustave Roussy Cancer Center prospectively during 2 periods of time (cohort 1 (C1) and 2 (C2)). A double-blind assessment of the PALLIA 10 score was done during 15 days by a member of the palliative care unit in C2. A PALLIA 10 > 3 motivated a dedicated palliative care consultation. Results From July 1st 2018 to November 1st 2018 (C1) and from December 1st 2020 to April 16th 2021 (C2), a total of 86 patients were assessed in C1 and 302 in C2. No difference was observed between the two cohorts regarding prognostic factors. Median PALLIA 10 was also similar and very low (median 1, range 1-5 in C1 and 1-8 in C2). On C1 and C2, 12% and 5% of patients had a dedicated palliative consultation. Overall, 77% and 74% of patients in C1 and C2 were still alive beyond 3 months after discontinuation of the trial (p=0.78), followed by at least one subsequent treatment in 63% and 70% of pts. In C2, assessment of PALLIA 10 score was significantly different between palliative care physician (median 5, range 3-8), phase I physician (median 1, range 1 -6) and phase I nurse (median 3, range 1-8) (p<0.001). Conclusion Only a few patients included in phase I clinical trial were referred to the palliative care unit. Median PALLIA 10 score was low when assessed by the phase I physician which suggests the need for a better tool to implement early palliative care in clinical practice and trials.


Author(s):  
Josiane Létourneau ◽  
Marie Alderson

Contexte : Les difficultés rencontrées pour améliorer les taux d'adhésion à l'hygiène des mains des infirmières suggèrent que de modifier ce comportement est une tâche complexe. Une approche novatrice - la déviance positive - propose de déterminer la présence d’individus plus performants afin de comprendre les facteurs qui pourraient expliquer cette meilleure performance. Le but de cette étude était d’explorer, sous l’angle de l’approche de la déviance positive, les facteurs qui influencent la pratique de l’hygiène des mains des infirmières en contexte hospitalier québécois. Méthode : Deux ethnographies focalisées ont été effectuées auprès de 21 infirmières sur une unité de médecine-chirurgie et une de soins palliatifs d’un centre hospitalier universitaire de Montréal. La collecte des données s’est déroulée en 2015, principalement lors de 18 entrevues individuelles et 14 périodes d’observation. Les données colligées ont été codées et regroupées sous des catégories. Résultats : Au niveau individuel, les participantes reconnaissent l’importance des connaissances sur le rôle de l’hygiène des mains dans la prévention des infections. Au niveau organisationnel, on constate une pratique collaborative à l’intérieur de chacune des équipes de soins. Au niveau environnemental, la disponibilité des distributeurs de solution hydro-alcoolique facilite la pratique de l’hygiène des mains. Au niveau socioculturel, les deux équipes travaillent ensemble vers un but commun, ce que nous avons nommé cohésion sociale, favorisée sur l’unité de médecine-chirurgie par le leadership de son infirmier-chef et sur l’unité des soins palliatifs par une pratique de soins empreinte d’humanisme. Discussion/Conclusion : Les connaissances découlant de cette étude permettent de comprendre qu’afin d’améliorer l’adhésion à l’hygiène des mains des infirmières, il serait préférable de cibler les équipes de soins qui performent le mieux afin d’y puiser des idées pour aider celles avec une moins bonne performance et d’élaborer des interventions qui intègrent des facteurs à plusieurs niveaux, non seulement au niveau individuel, mais aussi aux niveaux organisationnels, environnementaux et socioculturels. Background: Challenges encountered in improving nurses’ hand hygiene adherence rates suggest that changing this behavior is a complex task. An innovative approachpositive deviance-propose to identify better-performing individuals in order to understand the factors that could explain their better performance. The aim of this study was to investigate the factors influencing nurses’ hand hygiene practices at a Quebec hospital from the perspective of positive deviance. Method: Two focused ethnographies were conducted involving 21 nurses on one medical-surgery unit and one palliative care unit at a Montreal university hospital. Data was collected in 2015, primarily during 18 individual interviews and 14 observation periods. The collected data was coded and sorted into categories. Results: At an individual level, the participants recognized the importance of knowledge of the role of hand hygiene in the prevention of infections. At the organizational level, we observed collaborative practices within each care team. At the environmental level, the availability of alcohol-based hand hygiene dispensers facilitated hand hygiene practice. At the sociocultural level, the two teams worked together towards a common goal, a practice we refer to as social cohesion, encouraged on the medicalsurgery unit by the head nurse’s leadership and on the palliative care unit by a humanistic care practice. Discussion/conclusion: The knowledge gained from this study shows that, to improve nurses’ hand hygiene adherence, it would be preferable to target better-performing care teams so that we may draw on their ideas to help less performing teams and develop interventions integrating factors at several levels, not only individually but also organizationally, environmentally and socio-culturally.


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