Evaluating the Construct Validity of the Kidscreen-52 Quality of Life Questionnaire within a South African Context

2012 ◽  
Vol 42 (2) ◽  
pp. 255-269 ◽  
Author(s):  
Naiema Taliep ◽  
Maria Florence
Keyword(s):  
Quality Of Life ◽  
Construct Validity ◽  
South African ◽  
Life Questionnaire ◽  
South African Context ◽  
Quality Of Life Questionnaire ◽  
African Context

Construct validity of the EORTC quality of life questionnaire information module

2012 ◽  
Vol 22 (1) ◽  
pp. 123-129 ◽  
Author(s):  
Susanne Singer ◽  
Philipp M. Engelberg ◽  
Gregor Weißflog ◽  
Susanne Kuhnt ◽  
Jochen Ernst
Keyword(s):  
Quality Of Life ◽  
Construct Validity ◽  
Life Questionnaire ◽  
Quality Of Life Questionnaire ◽  
Information Module ◽  
Eortc Quality

scholarly journals Validating an Instrument for Direct Patient Reporting of Distress and Chemotherapy-Related Toxicity among South African Cancer Patients

Cancers ◽  
2021 ◽  
Vol 14 (1) ◽  
pp. 95
Author(s):  
Charmaine L. Blanchard ◽  
Keletso Mmoledi ◽  
Michael H. Antoni ◽  
Georgia Demetriou ◽  
Maureen Joffe ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Construct Validity ◽  
Cancer Patients ◽  
South African ◽  
Pearson Correlation ◽  
Performance Status ◽  
Summary Score ◽  
Life Questionnaire ◽  
Patient Reported

Patient-reported outcome measures (PROM) for monitoring treatment toxicity improve quality of life (QoL) and clinical outcomes. However, no such PROMs exist for sub-Saharan African cancer patients. We aimed to validate the Patient Reported Symptoms-South Africa (PRS-SA) survey, a novel PROM for measuring distress and chemotherapy-related symptoms in South African cancer patients. We enrolled patients at the oncology clinic at Charlotte Maxeke Hospital, Johannesburg. At three separate visits, participants simultaneously completed the PRS-SA survey and several previously validated questionnaires. We constructed a receiver operator characteristics curve for distress levels predicting a Hospital Anxiety and Depression Scale (HADS) score ≥15. We evaluated construct validity for symptom items by comparing severity to the EORTC Core Quality of Life Questionnaire (QLQ-C30) summary score (Pearson correlation tests) and ECOG performance status (Mann–Whitney U tests). We assessed symptom item responsiveness by comparing change in severity to change in QLQ-C30 summary score and comparing standardized mean scores with negative, no, or positive change on the Global Impression of Change (GIC) questionnaire (Jockheere–Terpstra trend test). Overall, 196 participants with solid tumors completed instruments. A distress score of 4 had 82% sensitivity and 55% specificity for clinical depression/anxiety. All symptom items showed construct validity by association with either QLQ-C30 score or performance status (highest p = 0.03). All but cough showed responsiveness to change in QLQ-C30 score (highest p = 0.045). In South African cancer patients, the PRS-SA’s stress scale behaves similarly to the distress thermometer in other populations, and the symptom items demonstrated construct validity and responsiveness. Of note, 46% and 74% of participants who completed the PRS-SA in English or isiZulu, respectively, required assistance reading half or more of the instrument.

scholarly journals The 27-Item Multiple Sclerosis Quality of Life Questionnaire: A New Brief Measure Including Treatment Burden and Work Life

2021 ◽  
Author(s):  
Helen Beckmann ◽  
Christoph Heesen ◽  
Matthias Augustin ◽  
Christine Blome
Keyword(s):  
Quality Of Life ◽  
Multiple Sclerosis ◽  
Construct Validity ◽  
Convergent Validity ◽  
Life Questionnaire ◽  
Quality Of Life Questionnaire ◽  
Patient Reported ◽  
Disease Specific

Abstract Background: Treatment- and work-related aspects have been neglected in health-related quality of life (HRQOL) measures in multiple sclerosis (MS). We aimed to develop a brief instrument covering all important impairment-, activity-, participation-, and treatment-related aspects for use in research and practice. Methods: The 27-item Multiple Sclerosis Quality of Life Questionnaire (MS-QLQ27) was developed using open item collection, a multidisciplinary expert panel, and cognitive pretesting. It was evaluated for reliability, construct validity, and responsiveness with 100 patients presenting with relapse (84 at follow-up ~14 days later). Construct validity was analyzed by correlating the MS-QLQ27 with the disease-specific Hamburg Quality of Life Questionnaire in MS (HAQUAMS) and generic HRQOL instuments. The Expanded Disability Status Scale (EDSS) was used to analyze known-groups validity. Responsiveness was determined as the correlation of changes in MS-QLQ27 scores with changes in validation criteria. Results: Internal consistency was high (Cronbach α = 0.94 at baseline and 0.93 at follow-up). Convergent validity was supported by direction and magnitude of associations with disease-specific and generic instruments. Correlations with change in convergent criteria were strong, indicating responsiveness. The HAQUAMS showed the strongest associations with the MSQLQ27. The MS-QLQ27 showed the highest effect size compared with other patient-reported outcomes and the EDSS. It successfully distinguished between levels of disease severity. Conclusions: These results indicate that the MS-QLQ27 is a reliable, valid, and highly responsive instrument for assessing HRQOL during relapse evolution in MS. Its advantages are that it is brief yet comprehensive, covering work- and treatment-related aspects not addressed in previous measures.

scholarly journals Self-reported outcomes of aural rehabilitation for adult hearing aid users in a developing South African context

2010 ◽  
Vol 57 (1) ◽  
Author(s):  
Elaine Pienaar ◽  
Natalie Stearn ◽  
De Wet Swanepoel
Keyword(s):  
Quality Of Life ◽  
South African ◽  
Hearing Aids ◽  
Hearing Impaired ◽  
Healthcare Sector ◽  
Public Healthcare ◽  
South African Context ◽  
Aural Rehabilitation ◽  
African Context

Hearing impairment has far reaching consequences for affected individuals, in terms of quality of life indicators. In a developing South African context the hearing impaired population is faced with limited aural rehabilitation services. This study evaluated self-reported outcomes of aural rehabilitation in a group of adults in the public healthcare sector with a standardized outcomes measurement tool (IOI-HA). Sixty-one respondents participated (44% males; 56% females), with a mean age of 69.7 years. Results revealed that the majority of respondents experienced favourable outcomes in all domains of the inventory comprising of: daily use of hearing aids, benefits provided by hearing aids, residual activity limitation, satisfaction with hearing aids, residual participation restriction, impact of hearing difficulties on others, and changes in quality of life. Statistically significant relationships were obtained between the daily use of hearing aids, the degree of hearing loss, and the type of hearing aids fitted, as well as the benefits received from hearing aids in difficult listening environments (p < 0.05). Despite challenges of developing contexts, the mean scores distribution compared positively to similar reports from developed countries. Outcomes of improved quality of life emphasize the importance of providing affordable hearing aids and services to all hearing impaired individuals in South Africa.

scholarly journals Present challenges and some critical issues for research in industrial/organisational psychology in South Africa

2007 ◽  
Vol 33 (1) ◽  
Author(s):  
S Rothmann ◽  
FVN Cilliers
Keyword(s):  
Quality Of Life ◽  
South Africa ◽  
Economic Development ◽  
South African ◽  
South African Context ◽  
Health And Wellness ◽  
The South ◽  
Critical Issues ◽  
African Context

The objective of this study was to determine a set of problems and critical issues that researchers in Industrial and Organisational Psychology deem to be important areas for immediate and future enquiry. The changing identity of this field of application is investigated, more relevant paradigms in the study of organisational health and wellness is explored and methods, techniques and interventions suitable to the South African context are suggested. Conclusions are formulated to increase the ability of organisations to work towards economic development, while promoting the wellness and quality of life of employees.

scholarly journals Psoriatic Arthritis Quality of Life Questionnaire: translation, cultural adaptation and validation into Brazilian Portuguese language

2021 ◽  
Vol 61 (1) ◽  
Author(s):  
Rafaela Silva Guimaraes Gonçalves ◽  
Alice Heaney ◽  
Stephen P. McKenna ◽  
Jonas Braynner Carvalho ◽  
Maria Eduarda Lima Vidal ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Psoriatic Arthritis ◽  
Construct Validity ◽  
Nottingham Health Profile ◽  
Joint Destruction ◽  
Brazilian Portuguese ◽  
Life Questionnaire ◽  
Quality Of Life Questionnaire ◽  
The Impact

Abstract Introduction Psoriatic arthritis (PsA) is a multifaceted inflammatory disease that can cause joint destruction and impair quality of life. The Psoriatic Arthritis Quality of Life Questionnaire (PsAQoL) was the first disease-specific tool for determining the impact of the disease on the quality of life of people with PsA. Objectives The primary objective was to develop and validate a Brazilian Portuguese version of the PsAQoL. Methods The UK PsAQoL was translated into Brazilian Portuguese using two translation panels. This translation then checked for face validity and construct validity with new samples of patients. Finally, a test-retest validation study was conducted with 52 patients with PsA. The survey included the Nottingham Health Profile (NHP) as a comparator instrument. Results Internal consistency and reproducibility were both excellent for the new adaptation (0.91 and 0.90 respectively Scores on the PsAQoL were found to correlate as expected with the comparator measure and the instrument was able to detect differences in score related to perceived severity of PsA, general health status and presence of a flare. Conclusion The Brazilian PsAQoL was found easy to understand and complete and has excellent reliability and construct validity. The new measure will be a valuable new tool for use in routine PsA practice and clinical trials.

Validation of the Lymphoedema Quality-of-Life Questionnaire (LYMQOL) in Dutch Patients Diagnosed with Lymphoedema of the Lower Limbs

2015 ◽  
Vol 31 (4) ◽  
pp. 257-263 ◽  
Author(s):  
CB van de Pas ◽  
AAM Biemans ◽  
RSM Boonen ◽  
PB Viehoff ◽  
HAM Neumann
Keyword(s):  
Quality Of Life ◽  
Construct Validity ◽  
Health Survey ◽  
Lower Limb ◽  
Short Form ◽  
Life Questionnaire ◽  
Short Form 36 ◽  
Quality Of Life Questionnaire ◽  
Test Retest Reliability

Background The Lymphoedema Quality-of-Life Questionnaire is a validated disease-specific instrument to measure the impact of lymphoedema on patients’ lives. In this study, we tested its psychometric properties and validated the use of the questionnaire in its Dutch translation. Methods We obtained the answers to a standardised questionnaire, including Lymphoedema Quality-of-Life Questionnaire and Short-Form (36) Health Survey, twice at an interval of 2 weeks in 60 patients with lower limb lymphoedema. Feasibility was tested on the basis of missing responses and response distribution. Structure was studied using factor analysis. The reliability of the Lymphoedema Quality-of-Life Questionnaire was assessed using Crohnbach’s α and test-retest reliability. Construct validity was tested by correlating Lymphoedema Quality-of-Life Questionnaire scores with the Short-Form (36) Health Survey scores. Results The response rate was 88.2%. One of the 22 items missed >10% of responses; another showed a borderline ceiling effect. Internal consistency was good and test-retest reliability was excellent. The Lymphoedema Quality-of-Life Questionnaire correlated well with the physical component of the Short-Form (36) Health Survey and moderately with the mental component, suggesting that its construct validity was good. Conclusion The Dutch Lymphoedema Quality-of-Life Questionnaire can be used for health-related quality-of-life research in lower limb lymphoedema patients.

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