Assessment and Treatment of Families with Visually Handicapped Children: A Project Description

1986 ◽  
Vol 80 (3) ◽  
pp. 633-635
Author(s):  
Vincent B. Van Hasselt ◽  
Michel Hersen ◽  
Louise E. Moor ◽  
Janet Simon
Keyword(s):  
Psychosocial Functioning ◽  
Emotional Adjustment ◽  
Handicapped Child ◽  
Self Report ◽  
Social And Emotional ◽  
Project Description ◽  
Assessment And Treatment ◽  
Quality Of Family Life ◽  
Visually Handicapped

A review of the literature on psychosocial functioning in families with a handicapped child reveals a striking paucity of empirical research. This paper describes one of the first comprehensive experimental efforts designed to evaluate and remediate disturbed interactions and effect social and emotional adjustment in such families. Direct observational and self-report methods are presented, and components of a behavioral family treatment strategy, specifically developed for use with this population delineated with a discussion of the potential utility of this project for enhancing the adjustment of the visually handicapped child and the overall quality of family life.

scholarly journals Short and long-term quality of life outcomes in children after surgery for Hirschsprung Disease or Anorectal Malformations: A systematic review and meta-analysis

2020 ◽  
Author(s):  
Irina Oltean ◽  
Emily Beveridge ◽  
Lamia Hayawi ◽  
Vid Bijelic ◽  
Ahmed Nasr
Keyword(s):  
Quality Of Life ◽  
Systematic Review ◽  
Psychosocial Functioning ◽  
Meta Analysis ◽  
Hirschsprung Disease ◽  
Cochrane Collaboration ◽  
Anorectal Malformations ◽  
Case Control Studies ◽  
Social And Emotional

There is paucity of evidence examining quality of life in children with HD and ARM prioritizing dimensions other than physical functioning, such as psychosocial functioning in a precise manner. As such, we have developed a systematic review protocol to narratively and quantitatively summarize the physical and psychosocial functioning of children affected by HD and ARM in hopes of addressing this limitation. The following databases were searched on Nov 5, 2019: MEDLINE including Epub Ahead of Print, In-Process & Other Non-Indexed Citations (1946 to October 25, 2019) and Embase (1947 to 2019 October 25) and the CENTRAL Trials Registry of the Cochrane Collaboration (September 2019 Issue) using the Ovid interface. Searches were limited to English, to journal articles, and articles published since 2006. This review will identify retrospective and prospective cohort studies, case-control studies, case studies with greater than 5 participants, and randomized-control trials where the quality of life (i.e., physical and/or social functioning) of children aged 0-18 years with either anorectal malformations or Hirschprung’s disease is reported by children or parent proxies. Understanding the quality of life of children affected by HD and ARM after surgery will help clinical practitioners, specifically surgeons, create tailored and comprehensive protocols for managing these diseases while recognising the physical, social, and emotional toll they can inflict on children.

Impact of Perceived Social Support on Mental Health, Quality of Life, and Disability in Post–9/11 U.S. Military Veterans

2020 ◽  
pp. 0095327X2091992
Author(s):  
Eric Proescher ◽  
Darrin M. Aase ◽  
Holly M. Passi ◽  
Justin E. Greenstein ◽  
Christopher Schroth ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Mental Health ◽  
Social Support ◽  
Support Group ◽  
Psychosocial Functioning ◽  
Perceived Social Support ◽  
Self Report ◽  
Post Traumatic Stress ◽  
The Impact

This study examined the impact of perceived social support on mental health and psychosocial functioning in combat veterans after military deployment, including veterans with post-traumatic stress disorder (PTSD) and veterans with comorbid PTSD and alcohol use disorder. Veterans ( n = 139; female = 23) completed self-report and clinician-administered measures of social support, mental and physical health, functional impairment, and quality of life. The cohort was divided into high, medium, and low perceived social support based on averages of the total score from the Multidimensional Scale of Perceived Social Support. Relative to the low perceived social support group, the high perceived social support group reported fewer symptoms of PTSD, anxiety, and depression. The high perceived social support group also reported a more diverse and embedded social network, less disability, and better quality of life. Of note, the high and low perceived social support groups did not differ on age, gender, education, race ethnicity, or combat trauma exposure. These findings highlight that perceived social support may play an important role in the treatment of postwar veterans as they transition back to civilian life.

Quality of Life and Psychosocial Functioning in OCD

2017 ◽  
Author(s):  
Christina L. Boisseau ◽  
Carly M. Schwartzman ◽  
Steven A. Rasmussen
Keyword(s):  
Quality Of Life ◽  
Family Relationships ◽  
Psychosocial Functioning ◽  
Chronic Medical Conditions ◽  
Physical And Mental Health ◽  
Obsessive Compulsive ◽  
Adequate Treatment ◽  
Compulsive Disorder ◽  
Assessment And Treatment

This chapter examines quality of life (QoL) and psychosocial functioning in obsessive-compulsive disorder (OCD). More specifically, it summarizes recent investigations demonstrating that: (1) OCD negatively impacts multiple areas of life, such as social and family relationships, functioning at work and in the household, and aspects of physical and mental health; (2) the negative relation between OCD and QoL is as great as (or greater than) that observed in other psychiatric disorders and chronic medical conditions; (3) the degree of the QoL impairment is generally proportional to the severity of OCD symptoms; (4) specific OCD symptoms differentially impact aspects of psychosocial functioning; and (5) adequate treatment of OCD is associated with significant improvements in QoL. Finally, the chapter discusses future perspectives involved in the evaluation of QoL in OCD populations and the critical need to address these issues in assessment and treatment of individuals with OCD.

scholarly journals Applying a Biopsychosocial Perspective to Investigate Factors Related to Emotional Adjustment and Quality of Life for Individuals With Brain Tumour

2010 ◽  
Vol 11 (3) ◽  
pp. 270-280 ◽  
Author(s):  
Tamara Ownsworth ◽  
Anna L. Hawkes ◽  
Suzanne Chambers ◽  
David G. Walker ◽  
David Shum
Keyword(s):  
Social Support ◽  
Brain Tumour ◽  
Rating Scale ◽  
Emotional Adjustment ◽  
Self Report ◽  
Depression Anxiety Stress Scale ◽  
Biopsychosocial Perspective ◽  
And Coping ◽  
Patient Competency

AbstractObjective:This exploratory study applied a biopsychosocial perspective to investigate cognitive and psychosocial factors related to emotional adjustment and QoL after brain tumour.Methods:Participants included 30 adults with a brain tumour (60% benign and 40% malignant) who were aged 28 to 71 years (M= 51.5,SD= 12.3) and on average 5.4 years post-diagnosis (SD= 5.6 years). Participants completed a brief battery of cognitive tests and self-report measures of emotional status (Depression, Anxiety Stress Scale), subjective impairment (Patient Competency Rating Scale), coping (COPE), social support (Brief Social Support Questionnaire), and QoL (Functional Assessment of Cancer Therapy — Brain Tumour [FACT-Br]).Results:QoL was significantly associated with global cognitive ability (r= .49,p< .01), subjective impairment (r= .66,p< .01), and satisfaction with support (r= .50,p< .05). Level of depressive symptoms was significantly correlated with premorbid IQ (r= -.49,p< .01), use of planning to cope (r= -.48,p< .01), and satisfaction with support (r= -.47,p< .01).Conclusions:Overall, these exploratory findings indicate that emotional adjustment and QoL after brain tumour is related to a slightly different pattern of neuropsychological, psychological (self-perceptions and coping) and social factors. The clinical implications for interventions with individuals with brain tumour are discussed.

A-80 Psychosocial Functioning in Pediatric Anti-MOG Associated Disease

2021 ◽  
Vol 36 (6) ◽  
pp. 1125-1125
Author(s):  
Erin E Kennedy ◽  
Ana Hernandez ◽  
Benjamin Greenberg ◽  
Patricia Plumb ◽  
Cynthia Wang ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Academic Performance ◽  
Psychosocial Functioning ◽  
Social Problems ◽  
Transverse Myelitis ◽  
Psychosocial Problems ◽  
Acute Disseminated Encephalomyelitis ◽  
Self Report ◽  
History Of

Abstract Objective Anti-myelin oligodendrocyte glycoprotein associated disease (MOGAD) is a newly recognized demyelinating disorder, most commonly associated with acute disseminated encephalomyelitis (ADEM), optic neuritis and/or transverse myelitis. Given that psychosocial problems have previously been noted in individuals with demyelinating disorders, including ADEM, the primary aims of this study were to examine psychosocial functioning in patients with MOGAD and explore differences between subjects with a history of ADEM and those without. Method Thirty-two subjects with MOGAD (M age = 10.57; ADEM = 59.4%) and their caregivers completed questionnaires (Behavior Assessment Scales for Children, Pediatric Quality of Life, Educational History Form) to assess psychosocial functioning including externalizing (EXT) and internalizing behaviors (INT), quality of life (QOL), and academic performance. Results Overall, caregiver-ratings of internalizing and externalizing behaviors were not significantly different from the normative mean (EXT: p = 0.307; INT: p = 0.775). Caregiver and self-rated QOL was significantly below the normative mean for school and social functioning (p = &lt; 0.05), as was self-rated emotional functioning (p = 0.026). Further analysis did not reveal significant differences between subjects who had ADEM vs. those who did not across caregiver ratings or academic performance. Self-ratings revealed significantly more social problems for subjects with a history of ADEM (p = 0.018). Conclusions MOGAD may be associated with few caregiver-reported behavioral or emotional problems. While pediatric patients with MOGAD are noted to have academic and social problems per caregiver report, self-report further indicates problems with emotional QOL and greater risk of social problems for those with a history of ADEM. Additional research is needed to further understand the psychosocial features associated with MOGAD.

The Parent and Toddler Training Project for Visually Impaired and Blind Multihandicapped Children

1988 ◽  
Vol 82 (2) ◽  
pp. 59-64 ◽  
Author(s):  
B. Klein ◽  
V.B. Van Hasselt ◽  
M. Trefelner ◽  
D.J. Sandstrom ◽  
P. Brandt-Snyder
Keyword(s):  
Early Intervention ◽  
Visually Impaired ◽  
Intervention Program ◽  
Emotional Adjustment ◽  
Specific Treatment ◽  
Social Responsiveness ◽  
Parenting Skills ◽  
Training Project ◽  
Social And Emotional ◽  
Quality Of Family Life

Numerous clinical reports have shown that many families with visually impaired or blind multihandicapped children have problems of social and emotional adjustment and that the development of seriously handicapped children is enhanced by early intervention. This article describes the Parent and Toddler Training (PATT) Project—research-based early intervention program—that serves visually impaired and blind multihandicapped infants and toddlers and their families. The purpose of this project is to 1) increase the social responsiveness of handicapped infants, 2) implement a psychoeducational intervention program to develop adequate parenting skills, 3) initiate specific treatment approaches with parents to reduce psychological distress and improve the quality of family life, and 4) collect quantifiable data that permit the assessment of the progress of all participants.

scholarly journals Comparison of Performance on ADHD Quality of Care Indicators: Practitioner Self-Report Versus Chart Review

2016 ◽  
Vol 24 (10) ◽  
pp. 1457-1461 ◽  
Author(s):  
Megan K. Gordon ◽  
Rebecca A. Baum ◽  
William Gardner ◽  
Kelly J. Kelleher ◽  
Joshua M. Langberg ◽  
...  
Keyword(s):  
Quality Of Care ◽  
Chart Review ◽  
Rating Scales ◽  
Teacher Rating ◽  
Self Report ◽  
Actual Performance ◽  
Assessment And Treatment ◽  
Measure Of Performance ◽  
Evidence Based Care

Objective: This study compared practitioner self-report of ADHD quality of care measures with actual performance, as documented by chart review. Method: In total, 188 practitioners from 50 pediatric practices completed questionnaires in which they self-reported estimates of ADHD quality of care indicators. A total of 1,599 charts were reviewed. Results: The percentage of patients for whom practitioners self-reported that they used evidence-based care was higher in every performance category when compared with chart review, including higher use of parent and teacher rating scales during assessment and treatment compared with chart review. Self-reported use of Diagnostic and Statistical Manual of Mental Disorders (4th ed.; DSM-IV) criteria during assessment was also higher than by chart review. The actual number of days until the first contact after starting medication was nearly three times longer than self-report estimates. Conclusion: Practitioners overreport performance on quality of care indicators. These differences were large and consistent across ADHD diagnostic and treatment monitoring practices. Practitioner self-report of ADHD guideline adherence should not be considered a valid measure of performance.

Identification and Utility of a Short Form of the Pediatric Symptom Checklist-Youth Self-Report (PSC-17-Y)

2020 ◽  
Vol 36 (1) ◽  
pp. 56-64
Author(s):  
Paul Bergmann ◽  
Cara Lucke ◽  
Theresa Nguyen ◽  
Michael Jellinek ◽  
John Michael Murphy
Keyword(s):  
Psychosocial Functioning ◽  
Short Form ◽  
Parent Report ◽  
Self Report ◽  
Symptom Checklist ◽  
Factor Analyses ◽  
Youth Self Report ◽  
Confirmatory Factor Analyses ◽  
Pediatric Symptom Checklist ◽  
Exploratory Factor Analyses

Abstract. The Pediatric Symptom Checklist-Youth self-report (PSC-Y) is a 35-item measure of adolescent psychosocial functioning that uses the same items as the original parent report version of the PSC. Since a briefer (17-item) version of the parent PSC has been validated, this paper explored whether a subset of items could be used to create a brief form of the PSC-Y. Data were collected on more than 19,000 youth who completed the PSC-Y online as a self-screen offered by Mental Health America. Exploratory factor analyses (EFAs) were first conducted to identify and evaluate candidate solutions and their factor structures. Confirmatory factor analyses (CFAs) were then conducted to determine how well the data fit the candidate models. Tests of measurement invariance across gender were conducted on the selected solution. The EFAs and CFAs suggested that a three-factor short form with 17 items is a viable and most parsimonious solution and met criteria for scalar invariance across gender. Since the 17 items used on the parent PSC short form were close to the best fit found for any subsets of items on the PSC-Y, the same items used on the parent PSC-17 are recommended for the PSC-Y short form.

An Initial Investigation of the Use of Comparative Referents to Assess Social Anxiety

2018 ◽  
Vol 34 (6) ◽  
pp. 367-375 ◽  
Author(s):  
Laura D. Seligman ◽  
Erin F. Swedish ◽  
Jason P. Rose ◽  
Jessica M. Baker
Keyword(s):  
Social Anxiety ◽  
Discriminant Validity ◽  
Self Report ◽  
Injunctive Norms ◽  
Good Reliability ◽  
Convergent And Discriminant Validity ◽  
Excellent Internal Consistency ◽  
Social Quality Of Life ◽  
Comparison Measures

Abstract. The current study examined the validity of two self-report measures of social anxiety constructed using social comparative referent points. It was hypothesized that these comparison measures would be both reliable and valid. Results indicated that two different comparative versions – one invoking injunctive norms and another invoking descriptive norms – showed good reliability, excellent internal consistency, and acceptable convergent and discriminant validity. The comparative measures also predicted positive functioning, some aspects of social quality of life, and social anxiety as measured by an independent self-report. These findings suggest that adding a comparative reference point to instructions on social anxiety measures may aid in the assessment of social anxiety.

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