Implications of we-talk for relationships and health among patients with type 1 diabetes and their spouses

2019 ◽  
Vol 37 (1) ◽  
pp. 345-354 ◽  
Author(s):  
Juwon Lee ◽  
Vicki S. Helgeson ◽  
Meredith Van Vleet ◽  
Eunjin L. Tracy ◽  
Robert G. Kent de Grey ◽  
...  
Keyword(s):  
Type 1 Diabetes ◽  
Relationship Satisfaction ◽  
Emotional Support ◽  
Diabetes Management ◽  
Well Being ◽  
Person Plural ◽  
Bootstrap Models ◽  
First Person Plural ◽  
Care Behavior

We-talk (first-person plural pronoun usage) is frequently used to represent the degree to which a person views an illness as shared within a couple. There is evidence that we-talk is related to good relationship and health. However, research has failed to examine the implications of we-talk for spouses and the interpersonal mechanisms that underlie relational and health benefits. To address these limitations, we investigated the association of we-talk to relationship and health among 199 couples in which one person had type 1 diabetes. We-talk was assessed in the context of a brief coping interview with patients and spouses separately. Patients reported their perceptions of their spouse’s behavior over the past month. Actor–partner interdependence, regression, and bootstrap models showed that patient we-talk was unrelated to patient and spouse well-being, but greater spouse we-talk was associated with higher patient relationship satisfaction, higher patient self-efficacy, and better patient self-care behavior. For spouses, greater spouse we-talk also was associated with higher relationship satisfaction, lower stress, and fewer depressive symptoms. Mediational analyses showed that patients’ perceptions of spouses’ greater emotional support and fewer critical behaviors partially accounted for these associations. Spouse we-talk may be more important than patient we-talk because it signifies that spouses are involved in helping with diabetes management, namely by providing emotional support and refraining from criticizing the patient.

scholarly journals Covid Lockdown Impact on Type 1 Diabetes Health and Well-Being

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. A338-A338
Author(s):  
Jamie Calma ◽  
Sabrina Sangha ◽  
Marina Basina
Keyword(s):  
Type 1 Diabetes ◽  
Glycemic Control ◽  
Diabetes Management ◽  
Healthcare Delivery ◽  
Severe Depression ◽  
Well Being ◽  
Depression Symptoms ◽  
Published Data ◽  
The Impact

Abstract Introduction: Data on the impact of the COVID-19 lockdown on glycemic control and psychological well-being in individuals with Type 1 Diabetes Mellitus (T1DM) showed mixed results. Some studies showed improvement in glycemic control attributed to more time for self-care and a more regular lifestyle schedule during the lockdown. However, most published data reflects a short duration of 3–5 months. The impact of long-term social isolation and transition to telemedicine on the health of T1DM patients remains unknown. Our study analyzes patient perception surrounding the impact of an 11-month lockdown on glycemic control, well-being, and self-reported depression symptoms. Methods: PHQ-9 was integrated into a 55-question survey created using RedCap, a secure portal for managing surveys. The survey was sent to 160 T1DM patients over the age of 18 to gauge their current diabetes management and overall well-being prior to, and during the pandemic. The survey also inquired about patients’ perceived effectiveness of telemedicine visits. PHQ9 scores were collected and analyzed along with survey responses. Results: Data collection is still ongoing. From the 47 responders, the PHQ9 screening showed 51% were in the minimal depression score, 34% in the range of mild depression, 11% in moderate depression, and 4% scored in moderate to severe depression. No patients scored within severe depression. In a regular week during the pandemic, 40% of patients experienced difficulty with their motivation and diabetes management and 60% reported no concern, as compared to 36% and 64% respectively before the pandemic. Among the 47 of patient respondents, 30 reported both A1c levels prior and during the pandemic of which 46% showed an improved A1c amid the pandemic, 10% had no change, and 44% reported a worsened A1c level. For the telehealth part of the survey, 90% of patients reported feeling “comfortable with the level of care” they receive via telemedicine, whereas the other 10% were not. Whilst 54% of patients preferred in-person visits and 46% indicated a preference for telehealth visits. Conclusion: T1DM management is challenging. The pandemic adds to the complexity and burden to both self-management and healthcare delivery. Staying locked down for a prolonged period of time imposes economical, psychological, and medical constraints to diabetes care, as nearly half of the patients reported worsening of glycemic control. Our comprehensive survey reports the longest duration reported up to date of how the COVID-19 lockdown impacts patient’s perceived changes in their mental health and diabetes management. It helps clinicians understand the connection between mental and physical health during the pandemic and improve time-restricted telehealth visits by understanding patient concerns. Additional larger scale studies are imperative to expand the knowledge in this field.

Conflicting Logics in a Changing Action Space: Challenges Related to Type 1 Diabetes in Work Life

2021 ◽  
pp. 104973232110018
Author(s):  
Mathilde Overgaard ◽  
Ulla Christensen ◽  
Mette A. Nexø
Keyword(s):  
Type 1 Diabetes ◽  
Diabetes Management ◽  
Well Being ◽  
Work Life ◽  
Action Space ◽  
Data Sets ◽  
Work Tasks ◽  
Do So

Well-being at work is important to quality of life. However, reconciling work and diabetes management is often challenging; failing to do so threatens the well-being of people with type 1 diabetes (T1D). We explored the mechanisms underlying diabetes-specific challenges at work using theories of logics, involvement, and action space. Thematic analyses of two data sets, consisting of interviews with adults with T1D ( n = 22) showed that people with T1D experience a conflict between two logics linked to diabetes and work, owing to the contradictory demands of work life and diabetes management. Individuals’ ability to lower the priority of work tasks—shifting them from their main to a side involvement so as to properly manage T1D—helps resolve the conflict, as does being able to create an enabling action space for diabetes management at work. These insights can inform interventions targeting the well-being of workers with T1D.

scholarly journals Information Visualization for Diabetes Management: A Literature Review

2020 ◽  
Author(s):  
Yixuan Zhang ◽  
Andrea G. Parker ◽  
Cody Dunne
Keyword(s):  
Type 1 Diabetes ◽  
Diabetes Management ◽  
Well Being ◽  
Multidimensional Data ◽  
Complex Data ◽  
Glucose Levels ◽  
Physical Activity Monitoring ◽  
Analysis Tools ◽  
Final Design

Type 1 diabetes is a chronic illness that affects millions of people. People with type 1 diabetes regularly collect multidimensional data which they use to improve their well-being. Such data often includes blood glucose levels, insulin administration, diet, and physical activity. Monitoring and analysis tools for diabetes care often include information visualizations to help people make sense of this complex data. However, we have only an incomplete understanding of the visualization design approaches used or any justifications for the final design. To address this gap, we surveyed 21 diabetes data analysis tools which use visualization. From this, we derived a design space that consists of data, views, and strategies. We also provide design considerations for future researchers, tool designers, and developers.

scholarly journals Well-being, diabetes management and breastfeeding in mothers with type 1 diabetes – An explorative analysis

2018 ◽  
Vol 15 ◽  
pp. 77-82 ◽  
Author(s):  
Karolina Linden ◽  
Marie Berg ◽  
Annsofie Adolfsson ◽  
Carina Sparud-Lundin
Keyword(s):  
Type 1 Diabetes ◽  
Diabetes Management ◽  
Well Being

Associations of Well-Being and Perceived Stress with Diabetes Control and Self-Care Behavior in Adolescents with Type 1 Diabetes

Diabetes ◽  
2018 ◽  
Vol 67 (Supplement 1) ◽  
pp. 1393-P
Author(s):  
ANANTA ADDALA ◽  
RANDALL CHAN ◽  
MARC WEIGENSBERG
Keyword(s):  
Type 1 Diabetes ◽  
Perceived Stress ◽  
Self Care ◽  
Well Being ◽  
Diabetes Control ◽  
Care Behavior

scholarly journals Egocentric network characteristics of persons with Type 1 Diabetes and their relationships to perceived social support and well-being

2020 ◽  
Author(s):  
Tian Cheyne ◽  
Michael A. Smith ◽  
Thomas Victor Pollet
Keyword(s):  
Social Support ◽  
Type 1 Diabetes ◽  
Emotional Support ◽  
Perceived Social Support ◽  
Well Being ◽  
Support Networks ◽  
Support Network ◽  
Contact Network ◽  
Social Support Networks

Objectives: The size of one's support network is positively related to health and well-being. It is therefore important to understand this association in people with Type 1 diabetes, which is hitherto unknown. Moreover, the type of support (emotional, instrumental, informational) offered likely varies by gender of both the person seeking support and offering support. We thus examine the relationship between the composition of (perceived) social support networks and well-being in a sample of 121 persons with Type 1 diabetes. Design: An egocentric social network survey, combined with survey measures. Main outcome(s): The size and composition of support networks and well-being. Measures: Participants indicated the type of support individuals in their contact network offered and their gender, alongside measures of perceived social support and well-being. They indicated which individuals offered which types of support (emotional, instrumental, informational). Results: Perceived support was associated with the actual size of the emotional support network. Further, the size of the emotional support network was associated with well-being. Using multilevel models we examined assortment by gender in social support networks. Compared to women, men were more inclined to list the opposite gender as support, especially for emotional and informational support. Conclusion: Mapping out an individual’s multidimensional support network paints a more complete picture of support than single item measures of support. Our findings suggest further avenues for studying the support networks of people with Type 1 diabetes.

Fear of hypoglycemia, anxiety, and subjective well-being in parents of children and adolescents with type 1 diabetes

2016 ◽  
Vol 24 (2) ◽  
pp. 209-218 ◽  
Author(s):  
Tanja Pate ◽  
Simona Klemenčič ◽  
Tadej Battelino ◽  
Nataša Bratina
Keyword(s):  
Type 1 Diabetes ◽  
Children And Adolescents ◽  
Diabetes Management ◽  
Severe Hypoglycemia ◽  
Well Being ◽  
Subjective Well Being ◽  
Paired Samples ◽  
Fear Of Hypoglycemia ◽  
Fear And Anxiety

This study explored the association between parental fear of hypoglycemia, anxiety, and subjective well-being in parents of children and adolescents with type 1 diabetes. A total of 120 mothers and 79 fathers participated. Mothers’ and fathers’ fear of hypoglycemia was significantly associated with anxiety and negative affect as well as with worse glycemic control in child. Paired-samples t-test showed that mothers were more involved in diabetes management and reported more fear and anxiety compared to fathers, but they did not differ in worries about hypoglycemia. The findings suggest screening for fear of hypoglycemia and subjective well-being in all parents regardless of whether their child experienced severe hypoglycemia.

scholarly journals Contested Daily Routines, Contested Care. Children with Type 1 Diabetes in Covid-19 Times

2021 ◽  
Author(s):  
Melike Şahinol ◽  
Gülşah Başkavak
Keyword(s):  
Type 1 Diabetes ◽  
Continuous Glucose Monitoring ◽  
Conventional Treatment ◽  
Glucose Monitoring ◽  
Well Being ◽  
Monitoring Systems ◽  
Solvable Problem ◽  
Daily Routines ◽  
Depth Interviews

AbstractThe conventional treatment of Type 1 Diabetes (T1D) is especially demanding for children, both physically and psychologically (Iversen et al. Int J Qual Stud Health Well-being,13(1), 1487758, 2018). Continuous Glucose Monitoring Systems (CGM) are an important aid for children and their families in dealing with the disease. In their work, however, Şahinol and Başkavak (2020) point out that CGM carry the risk of viewing T1D as a technologically solvable problem instead of considering the disease as a whole. This is mainly creating confidence in technology due to CGM experiences while neglecting significant dietary measures and exercises needed to be integrated into daily routines. During the current pandemic, this problem seems to take on a whole new level. Based on two periods of in-depth interviews and observations conducted with 8 families with T1D children aged 6 to 14 living in Istanbul and Ankara (Turkey) from May to November 2019 and again from May to June 2020, we compare and focus on the experiences prior to and during the pandemic time. We argue that despite the possibility of technological regulation of the disease, the vulnerability of children is increased and, more than ever, depends on socio-bio-technical entanglements.

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