Re-establishing an occupational identity after stroke – a theoretical model based on survivor experience

2017 ◽  
Vol 80 (10) ◽  
pp. 620-630 ◽  
Author(s):  
Kim Walder ◽  
Matthew Molineux
Keyword(s):  
Life Story ◽  
Constructivist Grounded Theory ◽  
Occupational Identity ◽  
Stroke Survivors ◽  
Occupational Engagement ◽  
Central Process ◽  
Permanent Disability ◽  
Emotional Management ◽  
Therapy Services ◽  
The Impact

Introduction Annually, approximately five million people worldwide are left with a permanent disability following a stroke, often with ongoing occupational issues. A deeper understanding of the emerging picture of occupational disruption and identity reconstruction after stroke is needed to inform client-centred practice. Method In-depth interviews using constructivist grounded theory methodology were conducted with six Queensland (Australia) adult stroke survivors. Data analysis identified themes which were woven into an overarching theory about the process of reintegration back into the community and living a meaningful life. Findings The central process of adjustment for all participants was reconstruction of an occupational identity, facilitated through connections within and across three domains – self, others and reality. Connecting with self involved emotional management; motivation; confidence; occupational engagement; and seizing control. Connecting with others included being understood; belonging; receiving help; and interactions. Connecting with reality meant confronting the impact on daily life and one's unfolding life story according to three realities: past reality, the reality of the stroke and future reality. Conclusion Exploring how stroke survivors form and maintain connections across the domains of self, reality and others provides a framework to ground occupational therapy services in the reality of individual needs from an occupational perspective.

scholarly journals The impact of a teacher-based positive education intervention on student wellbeing literacy

2021 ◽  
Vol 2 (1) ◽  
pp. 22-43
Author(s):  
Lea Waters ◽  
Matthew Charles Higgins
Keyword(s):  
Mental Health ◽  
Education Intervention ◽  
Positive Education ◽  
Post Intervention ◽  
Emotional Management ◽  
Strength Based ◽  
Before And After ◽  
Education Interventions ◽  
Written Descriptions ◽  
The Impact

Over the past decade, research has consistently found that positive education interventions have a beneficial effect on mental health outcomes for students, such as improvements in life satisfaction and reduction of anxiety. While it is encouraging to see these changes in student mental health, the research has not yet adequately explored whether positive education interventions change a student’s understanding of wellbeing itself. Wellbeing literacy is a new construct within the field of positive education and is defined as the ability to understand the concept and language of wellbeing. This study examines whether student language and understanding of wellbeing changes following an intervention that trains teachers in the core principles of positive education. Students across grades five, six and seven (ages 11–13; n = 231) from three Australian schools provided brief written descriptions of their understanding of wellbeing before and after their teachers undertook an eight-month positive education intervention. Thematic analysis was used as the methodological tool to analyze student language and understanding of wellbeing. Inferential frequency-based statistical analyses were used to compare the pre-intervention and post-intervention responses. The results revealed that student understanding of wellbeing evolved in four key ways to become more: (1) detailed; (2) strength based; (3) expanded/multidimensional; and (4) relational. Post-intervention understanding of wellbeing was significantly more likely to include aspects of emotional management, strengths, coping, mindfulness and self-kindness. Implications, limitations and future directions are discussed.

scholarly journals The Emotional Gaze: A Symbol Of My Mother’s Deep Reflections In Term Of Artwork

2019 ◽  
Vol 4 (2) ◽  
pp. 11-19
Author(s):  
Ruzamira Abdul Razak ◽  
◽  
Ramlan Abdullah
Keyword(s):  
Life Story ◽  
Single Thing ◽  
The Impact ◽  
Thesis Work ◽  
The Way

My mother, Rusimah Ibrahim relates the thoughts of contemporary mother, living in a petty apartment with her out-of-work husband with her three toddlers, who must take care for the foods, schools, pay the bills and every single thing. The pressure of my mother felt for the half of her life is not a barrier to survive. It is because she held on to a principle that she believed would be able to change the behaviour of my father. As an artist, I took this opportunity to study my own lives and record my experience, in this way which the way I love. In the way that gives evidence. This thesis marked my process of collecting her struggles and suffer into a documented narrative based on my own perspectives and interpretations. This thesis work, I transform her facial’s entire identity into something substantial. As I reflected on the impact and meaning of my mother’s life story as a conduit for the art process, I felt extremely fragmented in my own personal reactions and recollections towards her suffer. Therefore, I treat each painting individually as I respond to her experience and memory that I hold. Moreover, each artwork approaches different stage of her experience. As a painter, I choose watercolour medium as my tools to represent the idea. Somehow I felt increasingly cognizant of how my mother and I became closer and my feelings and attitudes changes toward our relationship started to resemble in my artworks. However, my intention would stick in one agenda which to produced artworks and being honest I personally think that the findings are enticing, nevertheless

scholarly journals Healing at the End of Life: The Voice of the Patient

2014 ◽  
Vol 1 (1) ◽  
Author(s):  
Cory Ingram
Keyword(s):  
Quality Of Life ◽  
Palliative Care ◽  
Lived Experience ◽  
End Of Life ◽  
Life Story ◽  
Patient Centered ◽  
Whole Person ◽  
Centered Care ◽  
The Impact

In palliative care we have the privilege to care for seriously ill people and their families. Some people value capturing their life story or illness journey on film. I have been fortunate to have been invited into the lives of many people close the end of life for a heartfelt conversation.On an interactive iPad incorporated in the poster, the recorded narrative of patients and one bereft spouse the poster audience will experience the lived experience of people close to the end of life as they reflect on their lives. The narratives will demonstrate how each lived with a new found improved quality of life in the face of increasing symptoms, declining functioning and the approaching end of life; otherwise known as healing. Topics of healing and quality of life, patient-centered care, dignity, human development, spirituality and love will be the focus of their stories. The stories lay bare the very practical, emotional, existential, and personal experience central to our provision of whole person care through palliative care. The poster audience will experience a renewed sense of the impact of a dedicated approach to whole person care as experienced through those on the receiving end.

scholarly journals Pastoreo extensivo en un pueblo de Soria: Etnografía de un mundo en extinción

2020 ◽  
pp. 33-56
Author(s):  
Anna Mata Romeu
Keyword(s):  
Life Story ◽  
Participant Observation ◽  
Green Revolution ◽  
Cultivation Systems ◽  
Forms Of Life ◽  
Historia De Vida ◽  
The Impact

El artículo ofrece datos sobre el pastoreo extensivo y sobre los sistemas de cultivo y las formas de vida hasta los años 70 en Torreandaluz, un pueblo del suroeste soriano. Se fundamenta en una etnografía llevada a cabo entre mediados de 2015 y la actualidad. Está basada en la observación participante, la historia de vida de un pastor de Torreandaluz y entrevistas informales a agricultores y pastores jubilados del lugar. Pretende ofrecer una visión sobre el impacto que sobre las formas de agricultura y ganadería ovina extensiva, así como sobre las formas de vida, tuvo la llegada de las técnicas de la llamada Revolución Verde. The article offers data on extensive shepherding, cultivation systems and lifestyles up to the 1970s, in Torreandaluz, a village in the southwest of Soria province. It is based on an ethnography carried out from the middle of 2015 until today. The participant observation, the life story of a shepherd of Torreandaluz and informal interviews with farmers and retired shepherds of the place made up this study. It intends to offer a vision about the impact that the arrival of the techniques of the so-called Green Revolution had on agriculture and extensive sheep farming, as well as on forms of life.

Predictors of carer distress following stroke

1999 ◽  
Vol 9 (3) ◽  
pp. 265-271 ◽  
Author(s):  
Valerie Morrison
Keyword(s):  
Depressed Mood ◽  
Social Care ◽  
Stroke Survivors ◽  
Care Provision ◽  
Health And Social Care ◽  
Informal Carers ◽  
The Impact ◽  
The Relationship

Whilst there is a considerable literature surrounding predictors of depressed mood in stroke survivors, much less research has been directed towards identifying the impact of a stroke on primary informal carers and the nature of the relationship between patient and carer characteristics, stroke consequences and carer distress. This review attempts to elucidate such relationships so that implications for health and social care provision can be drawn.

Abstract 28: Effects of Self-Esteem, Optimism, and Perceived Control on Depression: Testing Dyadic Dynamics in Stroke Survivor-Spouse Dyads

Stroke ◽  
2013 ◽  
Vol 44 (suppl_1) ◽  
Author(s):  
Misook L Chung ◽  
Tamilyn Bakas ◽  
Laurie D Plue ◽  
Linda S Williams
Keyword(s):  
Perceived Control ◽  
Stroke Survivor ◽  
Self Esteem ◽  
Stroke Survivors ◽  
Control Scale ◽  
Life Orientation Test ◽  
Life Orientation ◽  
Actor Partner Interdependence Model ◽  
Patient Health ◽  
The Impact

Background: Depression is common in stoke survivors and their caregivers. Given the interdependent relationship among the members of dyads in post-stroke management, improving depression in dyads may depend on their partner’s characteristics. Self-esteem, optimism, and perceived control, all known to be associated with depression in an individual, may also contribute to their partner’s depression. The purpose of this study was to examine whether an individual’s self-esteem, optimism and perceived control predict their own, as well as their partner’s depression. Methods: A total of 112 ischemic stroke survivor-spouse dyads completed surveys in which depression, self-esteem, optimism, and perceived control were assessed using the Patient Health Questionnaire, the Rosenberg Self-esteem Scale, the Revised Life Orientation Test, and the Sense of Control Scale. Multilevel modeling, actor-partner interdependence model (APIM) regression with distinguishable dyad was used to determine influences on depression within the dyad. In APIM, actor effect is the impact of a person’s factors on their own depression and partner effect is the impact of a person’s factors on their partner’s depression. Results: As shown in Figure1, individuals with lower self-esteem, optimism, and perceived control had higher level of depression. Spouses who had stroke survivors with low self-esteem had higher levels of depression. Stroke survivors who had spouses with lower self-esteem and optimism had higher levels of depression. Conclusion: Stroke survivor self-esteem and spouse self-esteem and optimism influenced their partner’s depression. These findings suggest that dyadic intervention is needed to improve depression for the dyads and that depressed stroke survivors may benefit from interventions that improve spousal self-esteem and optimism.

Abstract P207: Association Between Rehabilitation and Functional Outcomes of Stroke Survivors: A Population-Based Study

Stroke ◽  
2021 ◽  
Vol 52 (Suppl_1) ◽  
Author(s):  
Zahra Azizi ◽  
Pouria Alipour ◽  
Michael Rotondi ◽  
Chris I Ardern
Keyword(s):  
Functional Outcomes ◽  
Survey Design ◽  
Healthcare Access ◽  
Stroke Care ◽  
Canadian Community Health Survey ◽  
Population Based ◽  
Stroke Survivors ◽  
Primary Endpoints ◽  
Community Health Survey ◽  
The Impact

Background: The increasing rate of stroke and its consequent disabilities has contributed to a growing proportion of stroke survivors requiring rehabilitation. Further research is needed to understand the provision of rehabilitation in the community settings and relationship between variance in stroke care and patient outcomes. Hypothesis: To investigate the association between rehabilitation and functional outcomes of stroke survivors. Method: Data for this analysis was derived from the Canadian Community Health Survey (CCHS) (merged cycles 2013-2016: 237,121 participants). Participants reporting complications from stroke were selected to assess the effect of physiotherapy (PT) and other allied health (AH) utilization. Primary endpoints included need for assistance in activity of daily living (ADL) and injury due to fall in the past 12 months (Inj-Fall). All statistical analyses were performed using R (V.4.0.2) and survey design. Results: Overall, 3,773 (1.1%) patients with stroke (47% females, 71.1% older than 60 years) were studied. Total of 0.2% and 1.6% of stroke survivors in 2013-14 had consulted PT and AH compared to 9.1% and 21% in 2015-16, respectively. Consequently, the rate of need for ADL and Inj-Fall were significantly greater in 2013-14. In general, age was a significant predictor of low accessibility to PT (OR=0.66(0.51-0.85)) or AH (OR=0.79(0.66-0.93)) whereas no significant association between sex and access to PT or AH (P=0.1). As expected, higher income was associated with greater PT utilization (OR=2.11(1.1-4.2)). Finally, PT or AH consultations were significantly associated with less need for assistance in ADL and lower Inj-Fall (Table1). Conclusion: Results of this study reinforce the beneficial effect of rehabilitation on ADL and injury in stroke survivors. Future longitudinal work is necessary to understand directionality of the relationship, and the impact of healthcare access, within varied healthcare systems and models of health .

scholarly journals Identity as Resistance: Identity Formation at the Intersection of Race, Gender Identity, and Sexual Orientation

2019 ◽  
Vol 44 (1) ◽  
pp. 67-83 ◽  
Author(s):  
Alison Cerezo ◽  
Mariah Cummings ◽  
Meredith Holmes ◽  
Chelsey Williams
Keyword(s):  
African American ◽  
Sexual Orientation ◽  
Gender Identity ◽  
Identity Formation ◽  
Psychological Research ◽  
Research Literature ◽  
Constructivist Grounded Theory ◽  
Future Research ◽  
And Gender ◽  
The Impact

Although the concept of intersectionality has gained widespread attention in psychological research, there remains a significant gap related to the impact of intersectionality on identity formation for persons negotiating multiple minority statuses. This gap is especially pronounced among sexual and gender expansive women of Latinx and African American descent—two groups that face disparate personal and public health risks but are largely ignored in the research literature. In response to this gap, we carried out a qualitative study using constructivist grounded theory with 20 Latinx and African American sexual minority, gender expansive women to understand participants’ experiences of forming an intersectional social identity. Following an exploration of identity formation related to the specific domains of race, gender identity, and sexual orientation, we prompted participants to consider how each of the specified identity domains impacted the formation and experience of an overall intersectional identity (e.g., how racial position impacted gender identity and/or sexual identity formation). Findings revealed four major themes that were critical in identity formation: (a) family and cultural expectations, (b) freedom to explore identity, (c) the constant negotiation of insider/outsider status, and (d) identity integration as an act of resistance. Implications for future research and psychological services are discussed.

Hard return: the development and transformation process of social participation in stroke survivors; a qualitative study and initial theory

2020 ◽  
Vol 34 (6) ◽  
pp. 824-836 ◽  
Author(s):  
Xuan Zhou ◽  
Minxia Du ◽  
Yingli Weng ◽  
Lanshu Zhou
Keyword(s):  
Social Participation ◽  
Development Process ◽  
Transformation Process ◽  
Constructivist Grounded Theory ◽  
Stroke Survivors ◽  
Theory Approach ◽  
Rest Home ◽  
Hard Return ◽  
Using Data

Objectives: Given the characteristic of high disability rates, the successful return of stroke patients to society is increasingly becoming a serious challenge. This study aimed developing a theory to reveal the development and transformation process of social participation among stroke survivors as a foundation for creating strategies to improve their social participation. Design: A constructivist grounded theory approach using data from in-depth semi-structure interviews. Setting: The settings were various, including the stroke follow-up clinic, rehabilitation institutions, subjects’ homes, park, work unit, and rest home in Shanghai, China. Subjects: In all, 36 stroke survivors who have passed through the acute phase and returned home participated in this study to share their experiences of social participation and processes of changes from September 2017 to January 2019. Results: A substantive theory on the development and transformation process of social participation among stroke survivors was generated, which included four process ingredients: “in-orbit,” “off-orbit,” “returning orbit,” and “in-orbit again.” The core concept “hard return” revealed not only the tough development process but also the unsatisfactory change results. Both participation abilities and participation willingness had an important impact on social participation and also played a significant role in driving its development. Conclusion: This study has identified the development process of social participation in stroke survivors and “hard-return” suggests not only the tough process but also unsatisfactory results. Interventions targeted process ingredients seem to be potentially promising to improve stroke survivors’ social function outcomes.

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