Providing Telephone-Based Support for Patients With Haematological Malignancies: A Qualitative Investigation of Expert Nurses

2021 ◽  
pp. 084456212110132
Author(s):  
Sarah J. Liptrott ◽  
Penny Bee ◽  
Karina Lovell
Keyword(s):  
Information Needs ◽  
Framework Analysis ◽  
Dynamic Information ◽  
Perceived Needs ◽  
Intervention Acceptability ◽  
Provider Perspective ◽  
Expert Nurses ◽  
Cancer Trajectory ◽  
Healthcare Interventions ◽  
Nurses Perceptions

Background Telephone-based interventions are frequently used to address cancer patient’s needs, often delivered by nurses; however, little is known about nurses’ opinions of such interventions. Purpose The objective of this study was to investigate expert nurses’ perceptions of hemato-oncology patient’s needs, use of telephone interventions providing support and symptom management and intervention acceptability from a service provider perspective. A qualitative study was undertaken with focus group and individual interview. Inductive and deductive data analysis was performed using Framework Analysis and the Theoretical Framework of Acceptability. Results Two themes emerged: (1) perceived needs of haemato-oncology patients across the cancer trajectory – multifactorial influences, dynamic information needs, and continuity of care, (2) acceptability for nurses delivering interventions was determined by identification of need, agreed expectations and organisational support for the intervention. Conclusions Greater understanding of contextual factors for recipients and individuals delivering healthcare interventions may contribute to identification of potential barriers and facilitators to adoption in clinical practice.

scholarly journals Understanding data and information needs for palliative cancer care to inform digital health intervention development in Nigeria, Uganda and Zimbabwe: protocol for a multicountry qualitative study

BMJ Open ◽  
2019 ◽  
Vol 9 (10) ◽  
pp. e032166 ◽  
Author(s):  
Kehinde Okunade ◽  
Kennedy Bashan Nkhoma ◽  
Omolola Salako ◽  
David Akeju ◽  
Bassey Ebenso ◽  
...  
Keyword(s):  
Qualitative Study ◽  
Cancer Care ◽  
Information Needs ◽  
Research Council ◽  
Digital Health ◽  
Health Interventions ◽  
Sub Saharan Africa ◽  
Institutional Review Boards ◽  
National Council ◽  
Framework Analysis

IntroductionPalliative care is a clinically and cost‐effective component of cancer services in sub-Saharan Africa (SSA). Despite the significant need for palliative cancer care in SSA, coverage remains inadequate. The exploration of digital health approaches could support increases in the quality and reach of palliative cancer care services in SSA. However, there is currently a lack of any theoretical underpinning or data to understand stakeholder drivers for digital health components in this context. This project addresses this gap through engaging with key stakeholders to determine data and information needs that could be supported through digital health interventions.Methods and analysisThis is a multicountry, cross-sectional, qualitative study conducted in Nigeria, Uganda and Zimbabwe. In-depth interviews will be conducted in patients with advanced cancer (n=20), caregivers (n=15), health professionals (n=20) and policy-makers (n=10) in each of the three participating countries. Data from a total of 195 interviews will transcribed verbatim and translated into English before being imported into NVivo software for deductive framework analysis. The analysis will seek to understand the acceptability and define mechanisms of patient-level data capture and usage via digital technologies.Ethics and disseminationEthics approvals have been obtained from the Institutional Review Boards of University of Leeds (Ref: MREC 18–032), Research Council of Zimbabwe (Ref: 03507), Medical Research Council of Zimbabwe (Ref: MRCZ/A/2421), Uganda Cancer Institute (Ref: 19–2018), Uganda National Council of Science and Technology (Ref: HS325ES) and College of Medicine University of Lagos (Ref: HREC/15/04/2015). The project seeks to determine optimal mechanisms for the design and development of subsequent digital health interventions to support development, access to, and delivery of palliative cancer care in SSA. Dissemination of these findings will occur through newsletters and press releases, conference presentations, peer-reviewed journals and social media.Trial registration numberISRCTN15727711

Information needs of Chinese surgical patients on discharge:a comparison of patients’ and nurses’ perceptions

2010 ◽  
Vol 67 (5) ◽  
pp. 1041-1052 ◽  
Author(s):  
Hellene Y.M. Yiu ◽  
Wai-Tong Chien ◽  
May How-Lin Lui ◽  
Bai Qin
Keyword(s):  
Information Needs ◽  
Surgical Patients ◽  
Nurses Perceptions

The Needs of Women and Healthcare Providers regarding Polycystic Ovary Syndrome Information, Resources, and Education: A Systematic Search and Narrative Review

2018 ◽  
Vol 36 (01) ◽  
pp. 035-041 ◽  
Author(s):  
Eliza Tassone ◽  
Helena Teede ◽  
Anuja Dokras ◽  
Rhonda Garad ◽  
Melanie Gibson-Helm
Keyword(s):  
Polycystic Ovary Syndrome ◽  
Information Needs ◽  
Best Practice ◽  
Polycystic Ovary ◽  
Healthcare Providers ◽  
Indirect Evidence ◽  
Research Literature ◽  
Systematic Search ◽  
Ovary Syndrome ◽  
Perceived Needs

AbstractThis article aims to identify and summarize the information, resource, and education needs of women with polycystic ovary syndrome (PCOS) and their healthcare providers. A systematic search of peer-reviewed, primary research literature was conducted. A total of 4,230 articles were identified, duplicates were removed, as well as the title and abstract of 2,819 studies and the full texts of 123 studies were screened against predetermined inclusion criteria. Findings from 35 included studies are described narratively. Main outcome measures include women's perceived needs for, and experiences of, PCOS care and information; healthcare providers' delivery of PCOS care and information; and healthcare providers' perceived needs for PCOS information, education programs, or professional development. There is a wealth of literature informing how PCOS information, education, and resources can better meet the needs of women, and about the role women expect healthcare providers to play in providing information within optimal PCOS care. However, few studies evaluate how well existing resources meet women's diverse needs. There is growing indirect evidence about the information and education needed by healthcare providers to provide best-practice PCOS care. However, little research has directly investigated healthcare providers' information needs or efficacy of PCOS-specific educational programs for healthcare providers. PCOS resources for women should be comprehensive, evidence-based, include the bio-psychosocial dimensions of the condition, and available through a variety of modes. The range of healthcare providers that women may seek care from need resources to support consistent use of the recommended diagnostic criteria, effective recommendation of lifestyle management, and early detection and treatment of symptoms and complications.

Nurses' Advocacy Behaviors in End-of-Life Nursing Care

2008 ◽  
Vol 15 (2) ◽  
pp. 174-185 ◽  
Author(s):  
Karen S Thacker
Keyword(s):  
End Of Life ◽  
Nursing Care ◽  
Skill Levels ◽  
Acute Care Nurses ◽  
End Of Life Decisions ◽  
Dying Patients ◽  
Expert Nurses ◽  
Nurses Perceptions ◽  
Life Education ◽  
Nursing Professionals

Nursing professionals are in key positions to support end-of-life decisions and to advocate for patients and families across all health care settings. Advocacy has been identified as the common thread of quality end-of-life nursing care. The purpose of this comparative descriptive study was to reveal acute care nurses' perceptions of advocacy behaviors in end-of-life nursing practice. The 317 participating nurses reported frequent contact with dying patients despite modest exposure to end-of-life education. This study did not confirm an overall difference in advocacy behaviors among novice, experienced and expert nurses; however, it offered insight into the supports and barriers nurses at different skill levels experienced in their practice of advocacy.

Multidimensional Audience Analysis for Dynamic Information

2003 ◽  
Vol 33 (3) ◽  
pp. 263-279 ◽  
Author(s):  
Michael J. Albers
Keyword(s):  
Cognitive Ability ◽  
Technical Communication ◽  
Information Needs ◽  
Multidimensional Model ◽  
Dynamic Adjustment ◽  
Analysis Model ◽  
Dynamic Information ◽  
Information Requirements ◽  
Audience Analysis ◽  
Topic Knowledge

As technical communication gains the technology to deliver dynamic custom documents, the importance of audience analysis increases. As a major factor in supporting dynamic adjustment of document content, the audience analysis must clearly capture the range of user goals and information needs in a flexible manner. Replacing a linear audience analysis model with a multidimensional model provides one method of achieving that flexibility. With a minimum of three separate dimensions to capture topic knowledge, detail required, and user cognitive ability, this model provides the writer a means of connecting content with information requirements and ensuring the dynamic document fits varying audience needs.

scholarly journals IDENTIFICATION AND REVIEW OF COST-EFFECTIVENESS MODEL PARAMETERS: A QUALITATIVE STUDY

2014 ◽  
Vol 30 (3) ◽  
pp. 333-340 ◽  
Author(s):  
Eva Kaltenthaler ◽  
Munira Essat ◽  
Paul Tappenden ◽  
Suzy Paisley
Keyword(s):  
Health Economic ◽  
Information Needs ◽  
Model Development ◽  
Clinical Effectiveness ◽  
Assessment Process ◽  
Rapid Review ◽  
Model Parameters ◽  
Framework Analysis ◽  
Focus Group Data ◽  
Types Of Information

Objectives: Health economic models are developed as part of the health technology assessment process to determine whether health interventions represent good value for money. These models are often used to directly inform healthcare decision making and policy. The information needs for the model require the use of other types of information beyond clinical effectiveness evidence to populate the model's parameters. The purpose of this research study was to explore issues concerned with the identification and use of information for the development of such models.Methods: Three focus groups were held in February 2011 at the University of Sheffield with thirteen UK HTA experts. Attendees included health economic modelers, information specialists and systematic reviewers. Qualitative framework analysis was used to analyze the focus group data.Results: Six key themes, with related sub-themes, were identified dealing with decisions and judgments; searching methods; selection and rapid review of evidence; team communication; modeler experience and clinical input and reporting methods. There was considerable overlap between themes.Conclusions: Key issues raised by the respondents included the need for effective communication and teamwork throughout the model development process, the importance of using clinical experts as well as the need for transparent reporting of methods and decisions.

scholarly journals Informed choice or guessing game? Understanding caregivers’ perceptions and use of infant formula labelling

2018 ◽  
Vol 22 (2) ◽  
pp. 273-286 ◽  
Author(s):  
Lenka Malek ◽  
Hazel Fowler ◽  
Gillian Duffy ◽  
Lisa Katzer
Keyword(s):  
New Zealand ◽  
Focus Group ◽  
Infant Formula ◽  
Information Needs ◽  
Informed Choice ◽  
Education Level ◽  
Health Claims ◽  
Framework Analysis ◽  
Labelling Information ◽  
Product Choices

AbstractObjectiveAlthough breast-feeding is the recommended way to feed an infant, a safe and nutritious substitute for breast milk is needed for infants who are not breast-fed. Labelling information on infant formula (IF) products aims to enable caregivers (who have already made the decision to use IF) to make informed product choices. Yet, there is limited data on how caregivers understand and use the information provided on IF packaging. The present study aimed to increase understanding of caregivers’ interpretation and use of the following label elements on IF products: the nutrition information statement; the ingredients list; and statements around nutrition content and health claims.DesignQualitative data were obtained from twenty-one focus group discussions. To enable comparison of findings by education level and ethnicity, focus group participants were homogeneous with respect to educational attainment (Australian groups) or ethnic background (New Zealand groups).SettingFocus groups were conducted in metropolitan and regional areas of Australia and New Zealand.ParticipantsCaregivers (n 136) of formula-fed infants.ResultsFramework analysis revealed that caregivers commonly experience difficulties when using labelling information, particularly when trying to identify and understand key differences between products. Moreover, comparing products can be a complex task regardless of education level and ethnicity.ConclusionsFurther research is required to determine the most effective strategies for meeting information needs of caregivers and allowing easier identification and understanding of product differences. This is especially important given that the vast range of IF products across large price ranges in the market adds to the complexity of purchase decisions.

Influence of Needs and Experiences of Haemato-Oncology Patients on Acceptability of a Telephone Intervention for Support and Symptom Management: A Qualitative Study

2020 ◽  
Vol 29 (8) ◽  
pp. 627-637
Author(s):  
Sarah J. Liptrott ◽  
Karina Lovell ◽  
Penny Bee
Keyword(s):  
Qualitative Study ◽  
Unmet Needs ◽  
Implementation Strategies ◽  
Information Provision ◽  
Telephone Intervention ◽  
Framework Analysis ◽  
Oncology Patients ◽  
Intervention Acceptability ◽  
Personal Context ◽  
And Coping

Healthcare technologies are increasingly used to address the unmet needs of patients with cancer; however new service developments must be acceptable to patients. The objective of this study was to determine the unmet needs of haemato-oncology patients and their influence on the perceived acceptability and participation in a telephone intervention delivering. A qualitative study was designed interviewing 20 participants having received the intervention. Data were analysed inductively and deductively using Framework Analysis. Three core themes emerged: (1) fluctuations in emotional distress and coping across the cancer trajectory with evidence of adaptive and maladaptive coping; (2) potential deficits in patient support, continuity of care and information provision; and (3) intervention acceptability analysis underpinned by the Theoretical Framework of Acceptability showed acceptability was influenced by participants’ subjective illness contexts and unmet needs. This work contributes to understanding of personal context as a determinant of intervention acceptability in order to enhance implementation strategies.

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