The Formation of Postsecondary Expectations Among Parents of Youth With Autism Spectrum Disorder

2019 ◽  
Vol 35 (2) ◽  
pp. 118-128 ◽  
Author(s):  
Anne V. Kirby ◽  
Nancy Bagatell ◽  
Grace T. Baranek
Keyword(s):  
Autism Spectrum Disorder ◽  
Transition To Adulthood ◽  
Autism Spectrum ◽  
Parent Expectations ◽  
Spectrum Disorder ◽  
Future Research ◽  
Structured Interviews ◽  
The Family ◽  
Postsecondary Expectations

Research suggests higher parent expectations can predict more independent outcomes of youth with autism spectrum disorder (ASD), yet little is known about how parents’ expectations are formed. To gain an understanding of their formation, we conducted semi-structured interviews with seven parents of adolescents with ASD. Three main types of influences on parent expectations were identified: factors related to the youth, to the parent, and to social and societal forces external to the family. Although not directly probed, all of the participants also discussed their approaches to planning for the future, suggesting a connection with their expectations. These findings contribute to a growing body of literature on the role of parent expectations during the transition to adulthood. Future research and clinical practice implications include designing interventions aimed at expanding parent expectations in addition to approaches directly preparing youth with ASD for adulthood as a means to improve outcomes.

scholarly journals The Role of the Family in Socializing the Autistic Children: A Study in Bangladesh

2015 ◽  
Vol 55 ◽  
pp. 70-85
Author(s):  
Md. Arif Uddin Khan
Keyword(s):  
Autism Spectrum Disorder ◽  
Children With Autism ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Survey Method ◽  
Autistic Children ◽  
The Family ◽  
Spectrum Disorders ◽  
Delayed Language Development

Autism Spectrum Disorders are increasingly known in developing countries like Bangladesh. The children with autism exhibit significant deficits in social communication, including delayed language development and imitation skills. This disorder is different from other disorders and its characteristics and functions are also different. Families having children with autism spectrum disorder play important role in their socialization and face many challenges as the disorder is associated with disruptive antisocial behavior. The main objective of this research is to know the role of family in socializing autistic children. This research was conducted though survey method by using a semi-structured questionnaire. The data of this study was collected from 78 parents having children with autism spectrum disorder. In our country autism newly introduced and research on autism especially role of the family of the autistic children in socialization are very few. So, this study discusses the role of family in socializing autistic children.

Autism Spectrum Disorder and Co-Occurring Psychiatric Conditions: A Conceptual Framework

2020 ◽  
pp. 1-26
Author(s):  
John Elder Robison
Keyword(s):  
Risk Factors ◽  
Autism Spectrum Disorder ◽  
Theoretical Models ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Future Research ◽  
Increased Risk ◽  
Research Designs ◽  
Psychiatric Conditions

There is strong evidence to suggest that individuals with autism spectrum disorder (ASD) are at heightened risk for developing co-occurring psychiatric conditions. However, the reasons behind this increased risk remain unclear. This chapter describes multiple conceptual models of the reasons for comorbidity and appraises the strength for each in relation to currently available evidence. The first section considers the evidence to suggest the reported increase in prevalence can be explained by purely artefactual factors (e.g., issues in sample acquisition or symptom measurement) and concludes this is unlikely as a complete explanation. The second section discusses more theoretical models, and how these could manifest in autistic individuals (e.g., increased prevalence or potency of established risk factors, and the role of ASD-specific risk factors). There is evidence to support multiple mechanisms playing a role in explaining the increased prevalence of psychiatric conditions, and these mechanisms are unlikely to be mutually exclusive. As the current literature is limited, priority areas for future research are suggested, including the need for accurate measurement of predictors and outcomes, more sensitive research designs, and the inclusion of underrepresented groups.

Psychiatric care of children with autism spectrum disorder – What do their siblings think about it? A qualitative study

Autism ◽  
2017 ◽  
Vol 23 (2) ◽  
pp. 326-337 ◽  
Author(s):  
Jordan Sibeoni ◽  
Louise Chambon ◽  
Noel Pommepuy ◽  
Clementine Rappaport ◽  
Anne Revah-Levy
Keyword(s):  
Autism Spectrum Disorder ◽  
Data Analysis ◽  
Qualitative Study ◽  
Psychiatric Care ◽  
Children With Autism ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Structured Interviews ◽  
Older Siblings

The expectations and role of families in the care of children with autism spectrum disorder are increasingly important. Nonetheless, no study has thus far explored the perspectives of siblings about the care received by a brother or sister with this disorder. The objective of this study was to fill this gap in the literature. This multicentre qualitative study took place in France, where we conducted semi-structured interviews with adolescents who were older siblings of children receiving care in a day hospital for an autism spectrum disorder. Data collection by purposive sampling continued until we reached ‘theoretical sufficiency’, and data analysis was thematic. The study included 20 participants: 13 sisters and 7 brothers. Four themes emerged in the data analysis: (1) the treatment targets, (2) the treatment’s perceived effectiveness, (3) the complex questions it raises and (4) the role of intrafamily relationships. Our results allowed us to report original aspects of the experience of siblings, in particular, their confusion with regard to the treatment, their difficulty in separating themselves from their parents’ discourse and their assertion of their role as caregivers for their younger brothers and sisters.

scholarly journals Growing up with a brother diagnosed with autism spectrum disorder

2019 ◽  
Vol 55 (1) ◽  
pp. 1-12
Author(s):  
Silvija Hinek ◽  
Ana Tokić Milaković
Keyword(s):  
Autism Spectrum Disorder ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Growing Up ◽  
Structured Interviews ◽  
Close Relationship ◽  
High Level ◽  
Families With Children ◽  
The Relationship

The relationship between siblings is often the longest lasting relationship within an individual’s life (Cicirelli, 1995). This relationship is especially important for individuals with developmental difficulties, since their siblings are usually those who undertake the role of caregivers, after the parents are no longer available to do so. However, recent research suggests that establishing a close relationship with a sibling diagnosed with autism spectrum disorder (ASD) may be considerably more challenging compared to siblings with other developmental difficulties (Tomeny et.al., 2017). Although the siblings of individuals diagnosed with ASD have received a certain amount of attention in the last decade worldwide, this area is still under-researched in Croatia, and is insufficiently addressed in interventions aimed at helping families with children diagnosed with ASD. The aim of this study was to explore the experiences of siblings living with a brother with ASD and their perceptions of the received and needed support. Six semi-structured interviews with adult siblings of individuals with ASD were conducted and analysed using thematic analysis. Generally, most of the interviewed individuals show a relatively high level of acceptance and affection towards their brother and feel that they have adapted to the brother’s condition. Although they mentioned some positive experiences and outcomes, they reported on many difficult aspects of growing up with their brother on the autism spectrum. None of them received any professional support during their growing up, and their opinions about the potential usefulness of programs targeted at siblings are divided.

Oppositional Defiant Disorder and Related Disruptive Behaviors in Autism Spectrum Disorder

2020 ◽  
pp. 136-158
Author(s):  
Connor M. Kerns ◽  
Chandler Puhy ◽  
Chelsea M. Day ◽  
Steven J. Berkowitz
Keyword(s):  
Autism Spectrum Disorder ◽  
Oppositional Defiant Disorder ◽  
Challenging Behaviors ◽  
Disruptive Behaviors ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Future Research ◽  
Oppositional Defiant ◽  
Assessment And Treatment ◽  
Defiant Behavior

The Diagnostic and Statistical Manual of Mental Disorders, fifth edition characterizes oppositional defiant disorder (ODD) as reflecting pervasive patterns of irritable mood, defiant behavior, and/or vindictiveness. Youth with autism spectrum disorder (ASD) exhibit high rates of disruptive behaviors commonly associated with ODD, such as noncompliance, irritability, temper tantrums, and mood dysregulation. This chapter reviews the presentation of ODD in individuals with ASD, including current prevalence estimates, proposed etiology, validated assessment methods, and emerging best practices designed to treat challenging behaviors. Although there is a robust literature describing assessment and treatment procedures for disruptive behaviors in individuals with ASD, conceptualizing these hallmark behaviors within the framework of ODD is relatively novel and not without controversy. Discussion thus includes challenges around the applicability of the diagnostic criteria in this population and future research directions that may provide clarity on this issue.

Exploring Growth in Expressive Communication of Infants and Toddlers With Autism Spectrum Disorder

2021 ◽  
pp. 105381512199557
Author(s):  
Jay Buzhardt ◽  
Anna Wallisch ◽  
Dwight Irvin ◽  
Brian Boyd ◽  
Brenda Salley ◽  
...  
Keyword(s):  
Autism Spectrum Disorder ◽  
Progress Monitoring ◽  
Autism Spectrum ◽  
Growth Patterns ◽  
Spectrum Disorder ◽  
Future Research ◽  
Infants And Toddlers ◽  
Early Communication ◽  
Children With Asd ◽  
Language Growth

One of the earliest indicators of autism spectrum disorder (ASD) is delay in language and social communication. Despite consensus on the benefits of earlier diagnosis and intervention, our understanding of the language growth of children with ASD during the first years of life remains limited. Therefore, this study compared communication growth patterns of infants and toddlers with ASD to growth benchmarks of a standardized language assessment. We conducted a retrospective analysis of growth on the Early Communication Indicator (ECI) of 23 infants and toddlers who received an ASD diagnosis in the future. At 42 months of age, children with ASD had significantly lower rates of gestures, single words, and multiple words, but significantly higher rates of nonword vocalizations. Children with ASD had significantly slower growth of single and multiple words, but their rate of vocalization growth was significantly greater than benchmark. Although more research is needed with larger samples, because the ECI was designed for practitioners to monitor children’s response to intervention over time, these findings show promise for the ECI’s use as a progress monitoring measure for young children with ASD. Limitations and the need for future research are discussed.

scholarly journals A systematic review and meta-analysis of studies on metaphor comprehension in individuals with autism spectrum disorder: Do task properties matter?

2019 ◽  
Vol 40 (6) ◽  
pp. 1421-1454 ◽  
Author(s):  
Tamar Kalandadze ◽  
Valentina Bambini ◽  
Kari-Anne B. Næss
Keyword(s):  
Systematic Review ◽  
Autism Spectrum Disorder ◽  
Syntactic Structure ◽  
Meta Analysis ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Response Format ◽  
Metaphor Comprehension ◽  
The Relationship

AbstractIndividuals with autism spectrum disorder (ASD) often experience difficulty in comprehending metaphors compared to individuals with typical development (TD). However, there is a large variation in the results across studies, possibly related to the properties of the metaphor tasks. This preregistered systematic review and meta-analysis (a) explored the properties of the metaphor tasks used in ASD research, and (b) investigated the group difference between individuals with ASD and TD on metaphor comprehension, as well as the relationship between the task properties and any between-study variation. A systematic search was undertaken in seven relevant databases. Fourteen studies fulfilled our predetermined inclusion criteria. Across tasks, we detected four types of response format and a great variety of metaphors in terms of familiarity, syntactic structure, and linguistic context. Individuals with TD outperformed individuals with ASD on metaphor comprehension (Hedges’ g = −0.63). Verbal explanation response format was utilized in the study showing the largest effect size in the group comparison. However, due to the sparse experimental manipulations, the role of task properties could not be established. Future studies should consider and report task properties to determine their role in metaphor comprehension, and to inform experimental paradigms as well as educational assessment.

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