Non-infectious uveitis burden on quality of life and work impairment assessed through different psychometric questionnaires

Background: The purpose of this study was to evaluate the association between a novel psychometric 12-item questionnaire (U-qest) and other validated questionnaires to assess quality of life and work impairment in patients with non-infectious uveitis. Methods: Data were collected at baseline and 3 months postbaseline using U-qest and two other validated questionnaires: The National Eye Institute 25-Item Visual Function Questionnaire (VFQ-25) and the 12-Item Short-Form Health Survey (SF-12). Results: A total of 136 patients (52.2% female) aged 47.9 ± 14.8 years (mean ± SD) were enrolled in 14 uveitis referral centres. U-qest correlated moderately with VFQ-25 and SF-12 at baseline and at 3 months. Both U-qest and VFQ-25 scores improved as disease improved; however, U-qest also detected improvement in patients for whom VFQ-25 scores did not improve. Disease activity was shown to significantly affect activity impairment. Patients and physicians expressed positive perceptions regarding the use and benefit of this instrument. U-qest showed very good reliability in terms of internal consistency (Cronbach’s alpha = 0.91). Conclusions: U-qest can be considered a useful tool to assess the burden of uveitis on quality of life.

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Validation of the Functional Assessment of Anorexia/Cachexia Therapy Instrument to Assess Quality of Life in Maintenance Hemodialysis-Treated Patients with Cachexia

10.21203/rs.3.rs-45306/v1 ◽

2020 ◽

Author(s):

Yang Zhen ◽

Huang Yanlin ◽

Lu Haizhen ◽

Zhao Ping ◽

Wang Han ◽

...

Keyword(s):

Quality Of Life ◽

Functional Assessment ◽

Discriminant Validity ◽

Short Form ◽

Demographic Data ◽

Reliability And Validity ◽

Maintenance Hemodialysis ◽

Good Reliability ◽

Assess Quality

Abstract Background Cachexia is the ultimate state of many maintenance hemodialysis (MHD)-treated patients. Functional Assessment of Anorexia/Cachexia Therapy (FAACT) is a tool used to evaluate the quality of life of patients with cachexia related to various diseases, but its effectiveness in MHD-treated patients has yet to be verified. This study aims to explore the applicability of FAACT in MHD-treated patients.Methods Qualified MHD-treated patients were selected for FAACT and The Kidney Disease Quality of Life Short Form 36 (KDQOL-36) questionnaire survey, and their demographic data and biochemical test results were collected from electronic medical records. Then, data were analyzed using statistical methods.Results This study enrolled 299 effective patients. The reliability of FAACT and its anorexia-cachexia subscale (ACS) were 0.904 and 0.842, respectively, and their retest exceeded 0.85. A reasonable correlation was found between FAACT and its items, and a reasonable calibration validity was identified between FAACT and KDQOL-36 subscale. FAACT and its subscale ACS showed good discriminant validity in the comparison of patients with different cachexia states and inflammatory states.Conclusions FAACT and ACS have good reliability and validity in MHD-treated patients and are suitable to measure the quality of life of MHD-treated patients with cachexia.

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Quality of life in a sample of Brazilian adults using the generic SF-12 questionnaire

Revista da Associação Médica Brasileira ◽

10.1590/1806-9282.64.03.234 ◽

2018 ◽

Vol 64 (3) ◽

pp. 234-242 ◽

Cited By ~ 2

Author(s):

Alessandro Gonçalves Campolina ◽

Rossana Veronica Mendoza Lopez ◽

Elene Paltrinieri Nardi ◽

Marcos Bosi Ferraz

Keyword(s):

Quality Of Life ◽

Skin Color ◽

Short Form ◽

Mean Value ◽

Life Assessment ◽

Future Research ◽

Mean Values ◽

Socio Demographic Factors ◽

Assess Quality

Summary Objective: This study describes the summary scores of the Short Form-12 (SF-12) questionnaire, according to socio-demographic factors obtained in a probabilistic and representative sample of the Brazilian urban population. Method: Five thousand (5,000) individuals, over the age of 15, were assessed in 16 capital cities, in the five regions of the country. The selection of households was random. Face-to-face approach was applied in the household interviews. The SF-12 questionnaire was used to assess quality of life. Demographic and socioeconomic characteristics were also evaluated: gender, age, marital status, skin color, region of the country and use of the public health service. Results: The mean value (SD) of the SF-12 for the entire population was 49.3 (8.7) for the physical component (PCS-12) and 52.7 (9.7) for the mental component (MCS-12). Statistical differences were found for gender (PCS-12 and MCS-12), age (PCS-12) and working status (PCS-12 and MCS-12). Women, elderly, widowed and unemployed individuals, those with lower income and with complaints in the last seven days showed lower mean values (PCS-12 and MCS-12). Conclusion: From this point forward, we can provide the basis for comparisons with future research that use the SF-12 for quality of life assessment in Brazil. The Brazilian population has a lower degree of quality of life related do the physical component, and the SF-12 is a useful and discriminative instrument for assessing quality of life in different socio-demographic groups.

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Loss of Work Productivity and Quality of Life in Patients With Autoimmune Bullous Dermatoses

Journal of Cutaneous Medicine and Surgery ◽

10.1177/1203475415582317 ◽

2015 ◽

Vol 19 (6) ◽

pp. 546-554 ◽

Cited By ~ 6

Author(s):

K. Heelan ◽

S. L. Hitzig ◽

S. Knowles ◽

A. M. Drucker ◽

N. Mittmann ◽

...

Keyword(s):

Quality Of Life ◽

Dermatology Life Quality Index ◽

Quality Index ◽

Life Quality ◽

Work Productivity ◽

Activity Impairment ◽

Work Impairment ◽

Life Quality Index ◽

The Impact

Background: Little is known about quality of life and work productivity in autoimmune bullous dermatoses (AIBDs). Objective: To determine the impact of AIBDs on quality of life and work productivity. Methods: An observational cross-sectional study took place between February and May 2013 at an AIBD tertiary referral centre. Ninety-four patients were included. All participants completed the Dermatology Life Quality Index and the Work Productivity and Activity Impairment–Specific Health Problem questionnaires. Results: Responders to treatment had less impairment ( P < .001) than nonresponders. Patients with severe AIBD had significantly more impairment that those with mild ( P < .001) and moderate ( P = .002) AIBD. Greater impairment was associated with higher percentage of work missed. Those with a higher Dermatology Life Quality Index score had greater work impairment and overall activity impairment ( P = .041, P = .024). Nonresponders had increased impairment while working ( P < .001), overall work impairment ( P < .001), and activity impairment ( P < .001). Severely affected patients had worse impairment in all Work Productivity and Activity Impairment Questionnaire domains. Conclusions: AIBD has the potential to be a large burden on ability to work and quality of life. Larger studies are needed to clarify how these domains change over time and whether or not they improve with treatment.

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Reliability and Validity Testing of the SF-36 Questionnaire for the Evaluation of the Quality of Life of Chinese Urban Construction Workers

Journal of International Medical Research ◽

10.1177/147323000903700425 ◽

2009 ◽

Vol 37 (4) ◽

pp. 1184-1190 ◽

Cited By ~ 21

Author(s):

B Qu ◽

HQ Guo ◽

J Liu ◽

Y Zhang ◽

G Sun

Keyword(s):

Quality Of Life ◽

Short Form ◽

Reliability And Validity ◽

Population Based ◽

Construction Workers ◽

Migrant Population ◽

Good Reliability ◽

Urban Construction ◽

Sf 36

The quality of life (QOL) of the Chinese ‘floating’ migrant population is of growing concern. Urban construction workers are the main migrant population in China, but there is little published research on their QOL. The reliability and validity of the 36-Item Short Form Health Survey (SF-36) questionnaire were assessed by conducting a population-based study of migrant construction workers in Shenyang, China. Two construction sites were randomly selected from each of the five districts of Shenyang City and 1200 copies of the questionnaire were distributed to rurally-registered, non-Shenyang workers aged ≥ 16 years at these sites. A total of 1125 questionnaires were evaluated. The overall Cronbach's a coefficient of the SF-36 questionnaire was 0.821 while the respective Cronbach's α coefficient for each dimension was > 0.70. Results showed that the SF-36 questionnaire demonstrated good reliability and validity, and that it can be used to measure QOL among Chinese migrant urban construction workers.

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Addressing Quality of Life of Children With Autism Spectrum Disorder and Intellectual Disability

Intellectual and Developmental Disabilities ◽

10.1352/1934-9556-58.5.393 ◽

2020 ◽

Vol 58 (5) ◽

pp. 393-408

Author(s):

Laura E. Gómez ◽

M. Lucía Morán ◽

M. Ángeles Alcedo ◽

Víctor B. Arias ◽

Miguel-Ángel Verdugo

Keyword(s):

Quality Of Life ◽

Autism Spectrum Disorder ◽

Intellectual Disability ◽

Children With Autism ◽

Autism Spectrum ◽

Spectrum Disorder ◽

Good Reliability ◽

Assess Quality ◽

Study Participants

Abstract Despite the advances on the assessment of quality of life, this concept is barely studied and is riddled with important limitations for those with autism spectrum disorder (ASD). This article is aimed at validating a questionnaire to assess quality of life of children with ASD and intellectual disability (ID). Based on the KidsLife Scale, geared toward people with ID, the most reliable items for those with ASD were selected. Study participants were 420 persons, from 4 to 21 years old. Results indicated that the KidsLife-ASD Scale measured eight intercorrelated domains, had good reliability, and exhibited adequate evidences of validity. KidsLife-ASD emerges as a helpful tool to guide person-centered planning addressed at improving quality of life.

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Age of First Exposure to Collision Sports Does Not Affect Quality of Life Outcomes in Community Rugby Players

Neurology ◽

10.1212/01.wnl.0000719972.69167.a2 ◽

2020 ◽

Vol 95 (20 Supplement 1) ◽

pp. S11.2-S11

Author(s):

Katie Hunzinger ◽

Katelyn Costantini ◽

Charles Buz Swanik ◽

Thomas A. Buckley

Keyword(s):

Quality Of Life ◽

Satisfaction With Life ◽

Short Form ◽

Later Life ◽

Well Being ◽

Psychological Status ◽

Online Questionnaire ◽

Assess Quality ◽

Rugby Players

ObjectiveTo determine the relationship between exposure to repetitive head impacts (RHI) through collision sports prior to the age of 12 and quality of life measures in community rugby players.BackgroundIt is suggested that RHI incurred before age 12 may be associated with later life neurologic impairments. However, research on age of first exposure (AFE) to collision sports and psychological outcomes has not be explored in rugby, a sport which participants often continue in community settings beyond college.Design/MethodsIndividuals over 18 years old who currently or previously played contact rugby completed an online questionnaire. To assess quality of life and psychological status, participants completed the Brief-Symptoms Inventory 18 (BSI-18), Short Form 12 (SF-12), and Satisfaction with Life Survey (SWLS). Participants were dichotomized into AFE to collision sports (12); AFE to rugby was not used since most participated in other collision sports prior to rugby. Data were not normally distributed; therefore, a Mann-Whitney U test was performed to compare outcomes between AFE groups.Results1,037 rugby players (31.6 + 11.3 years, 59.1% male) participated in this study. There were no significant differences between AFE 12 groups on all outcomes: BSI-18 Somatization (U = 97,286, p = 0.307), BSI-18 Depression (U = 100,267, p = 0.778), BSI-18 Anxiety (U = 98,851, p = 0.531), SF-12 Physical (U = 94,413, p = 0.241), SF-12 Mental (U = 96,517, p = 0.512), SWLS (U = 98,866, p = 0.537). Mean scores for all outcomes were: BSI-18 Somatization (2.33 + 2.99), BSI-18 Depression (4.20 + 4.91), BSI-18 Anxiety (3.32 + 3.75), SF-12 Physical (52.40 + 7.25), SF-12 Mental (46.20 + 11.45), SWLS (24.86 + 6.31).ConclusionsConsistent with recent cohort studies, there was no observed difference on three common measures of psychological well-being and quality of life in rugby players based upon AFE to collision sports. However, later life potential consequences of RHI in rugby players remains to be elucidated.

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Postoperative Assessment of the Quality of Life in Patients with Colorectal Endometriosis

Journal of Clinical Medicine ◽

10.3390/jcm10215211 ◽

2021 ◽

Vol 10 (21) ◽

pp. 5211

Author(s):

Claudia Mehedintu ◽

Francesca Frincu ◽

Lacramioara Aurelia Brinduse ◽

Andreea Carp-Veliscu ◽

Elvira Bratila ◽

...

Keyword(s):

Quality Of Life ◽

Short Form ◽

Bodily Pain ◽

Validity And Reliability ◽

Good Reliability ◽

Colorectal Endometriosis ◽

Sf 36 ◽

Patient Reported ◽

Role Limitation

Morbidity and mortality alone are not comprehensive measures of evaluating the benefits of surgical interventions in endometriosis patients, thus, subjective patient-reported instruments are required. The 36-tem Short Form Survey (SF-36) is a Health-Related Quality of Life (HRQoL) instrument that has not been validated yet for women with endometriosis. The aims of this study are to evaluate the validity and reliability of the SF-36 in patients with colorectal endometriosis and to compare the HRQoL before and after surgery, using different Quality of Life (QoL) instruments: the Gastrointestinal QoL Index (GIQLI) and Knowles–Eccersley–Scott Symptom Questionnaire (KESS). We conducted a retrospective study using prospectively recorded data in the North-West Inter-Regional Female Cohort for Patients with Endometriosis (CIRENDO) database. The assessment was performed on four hundred and eighty-eight patients before and 12 months after the surgery. Preoperative and postoperative item-internal consistency and Cronbach’s α proved evidence for good reliability showing that SF-36 is a useful instrument for endometriosis patients’ QoL. The domains of Role (limitation) physical, Bodily pain and Role (limitation) emotional showed the most remarkable improvements (difference before vs. one year after surgery) with p < 0.001. Our data show that SF-36 has validity and reliability and can be used in patients with endometriosis. Surgery improved the QoL and digestive function.

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Clinical evaluation of the short-form pediatric enuresis module to assess quality of life

Neurourology and Urodynamics ◽

10.1002/nau.20896 ◽

2010 ◽

Vol 29 (8) ◽

pp. 1397-1402 ◽

Cited By ~ 9

Author(s):

Christian Bachmann ◽

Conny Ackmann ◽

Ellen Janhsen ◽

Christian Steuber ◽

Hannsjörg Bachmann ◽

...

Keyword(s):

Quality Of Life ◽

Clinical Evaluation ◽

Short Form ◽

Assess Quality

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Quality of life of patients with paucibacillary leprosy

Anais Brasileiros de Dermatologia ◽

10.1590/s0365-05962012000300009 ◽

2012 ◽

Vol 87 (3) ◽

pp. 408-411 ◽

Cited By ~ 8

Author(s):

Iza Maria Corrêa Bottene ◽

Vitor Manoel Silva dos Reis

Keyword(s):

Quality Of Life ◽

Dermatology Life Quality Index ◽

Quality Index ◽

Short Form ◽

Life Quality ◽

Level Of Involvement ◽

Life Quality Index ◽

Assess Quality ◽

De Medicina

BACKGROUND: Leprosy, an infectious disease caused by Mycobacterium leprae, can affect the skin and the peripheral nervous system and, depending on the level of involvement, it can lead to severe deformities. Leprosy is classified into two major groups: paucibacillary (up to five lesions) and multibacillary (more than five lesions). The deformities that appear during the progress of the disease can affect the quality of life. OBJECTIVE: To assess quality of life of patients with paucibacillary leprosy diagnosed and treated early in the outpatients' clinic. METHODS: The Dermatology Life Quality Index questionnaire and ShortForm36 were applied to 49 outpatients undergoing treatment at the Leprosy Multidisciplinary Group of the Hospital das Clínicas of the Faculdade de Medicina of the Universidade de São Paulo. RESULTS: The majority of the patients (63%) did not show impairment of the quality of life, according to the results obtained by the Dermatology Life Quality Index questionnaire. In the questionnaire Short Form-36, the scores assessed showed slight impairment of the quality of life. CONCLUSION: On this study, we can conclude that this group of patients, with paucibacillary leprosy, did not show important impairment of the quality of life. Therefore we can conclude that the earlier the diagnosis and the treatment the lesser the influence on the quality of life.

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