Self-management in children and young people with epilepsy: A systematic review and qualitative meta-synthesis

2020 ◽  
pp. 135910532096353
Author(s):  
Orla Mooney ◽  
Aoife McNicholl ◽  
Veronica Lambert ◽  
Pamela Gallagher
Keyword(s):  
Social Support ◽  
Systematic Review ◽  
Young People ◽  
Management Strategies ◽  
The Self ◽  
Self Management ◽  
Future Research ◽  
Limited Evidence ◽  
Self Monitoring ◽  
Children And Young People

The aim of this review was to conduct a meta-synthesis of qualitative studies exploring the self-management experiences, attitudes and perspectives of children and young people (CYP) living with epilepsy. Five databases were systematically searched up to September 2019. Fourteen papers were included. One analytical theme: self-management strategies was generated informed by four descriptive themes; concealment; medicine adherence; self-monitoring of activities; and seeking social support. The synthesis identified that while CYP with epilepsy engage in specific self-management strategies, there is limited evidence in understanding self-management and the processes underlying the use of it. Future research examining self-management in childhood is required.

scholarly journals A qualitative investigation of LGBTQ+ young people’s experiences and perceptions of self-managing their mental health

2021 ◽  
Author(s):  
Rosa Town ◽  
Daniel Hayes ◽  
Peter Fonagy ◽  
Emily Stapley
Keyword(s):  
Mental Health ◽  
Young People ◽  
Management Strategies ◽  
Intervention Development ◽  
Community Support ◽  
Self Management ◽  
Future Research ◽  
Youth Groups ◽  
Coping Methods ◽  
Group A

AbstractThere is evidence that young people generally self-manage their mental health using self-care strategies, coping methods and other self-management techniques, which may better meet their needs or be preferable to attending specialist mental health services. LGBTQ+ young people are more likely than their peers to experience a mental health difficulty and may be less likely to draw on specialist support due to fears of discrimination. However, little is known about LGBTQ+ young people’s experiences and perceptions of self-managing their mental health. Using a multimodal qualitative design, 20 LGBTQ+ young people participated in a telephone interview or an online focus group. A semi-structured schedule was employed to address the research questions, which focussed on LGBTQ+ young people’s experiences and perceptions of self-managing their mental health, what they perceived to stop or help them to self-manage and any perceived challenges to self-management specifically relating to being LGBTQ+ . Reflexive thematic analysis yielded three key themes: (1) self-management strategies and process, (2) barriers to self-management and (3) facilitators to self-management. Participants’ most frequently mentioned self-management strategy was ‘speaking to or meeting up with friends or a partner’. Both barriers and facilitators to self-management were identified which participants perceived to relate to LGBTQ+ identity. Social support, LGBTQ+ youth groups and community support were identified as key facilitators to participants’ self-management of their mental health, which merits further investigation in future research. These findings also have important implications for policy and intervention development concerning LGBTQ+ young people’s mental health.

O002. Factors facilitating the self- and shared-management of Juvenile Idiopathic Arthritis

Rheumatology ◽  
2021 ◽  
Vol 60 (Supplement_5) ◽  
Author(s):  
Simon Stones
Keyword(s):  
Juvenile Idiopathic Arthritis ◽  
Young People ◽  
Paediatric Rheumatology ◽  
The Self ◽  
Self Management ◽  
Management Support ◽  
Children And Young People ◽  
Realist Approach ◽  
Shared Management ◽  
Initial Question

Abstract Background Juvenile idiopathic arthritis (JIA) requires some form of lifelong management, with at least one third of children symptomatic in adulthood. Therefore, empowering children to competently self-manage their health and wellbeing across the lifecourse is logical, while supporting families in their shared-management role during childhood. However, there was a limited theoretical basis to the self- and shared-management of JIA across the lifecourse. The objective is to explore the factors facilitating the self- and shared-management of JIA using a realist approach to evaluation. Methods Guided by the Individual and Family Self-management Theory, a three-stage realist approach to evaluation was undertaken: 1) initial JIA self- and shared-management question theories were elicited from literature reviews and stakeholder insights [1]; 2) seven initial question theories were tested using teacher-learner cycle interviews with 20 participants; 3) findings were analysed using a theory-driven approach to thematic analysis, using deductive, inductive, and retroductive reasoning to extend or refute the initial question theories, in order to identify demi-regularities in the data. Results Six refined JIA self- and shared-management question theories emerged: 1) meaningful and bespoke self-management support across the life course for children and young people with JIA; 2) recognised and valued shared-management support for the families of children and young people with JIA, with autonomy in mind; 3) individual healthcare plans as a shared management communication tool to facilitate optimal management of JIA; 4) consistent recognition, value, and encourage of self- and shared-management support from the paediatric rheumatology multi-disciplinary team and associated professionals; 5) child, young-person, and family-focused paediatric rheumatology care and support services across the lifecourse; and 6) bespoke and inclusive approaches by education providers to enable children and young people with JIA to feel safe, supported, and able to fulfil their potential. Conclusion There is an increasing recognition of the importance of self- and shared-management of JIA and other paediatric-onset chronic conditions. However, there is a lack of an overall, cohesive approach to self- and shared-management between healthcare providers, education providers, and patient/parent organisations. The findings from this study illuminate the factors facilitating JIA self- and shared-management at individual, interpersonal, institutional and infrastructural levels, bearing relevance to individuals and organisations involved in caring for, and supporting children with JIA and their families.

scholarly journals A Systematic Review of Amenable Resilience Factors that Moderate and/or Mediate the Relationship between Childhood Adversity and Mental Health in Young People

2017 ◽  
Author(s):  
Jessica Fritz ◽  
Anne de Graaff ◽  
Helen Caisley ◽  
Anne-Laura Van Harmelen ◽  
Paul O. Wilkinson
Keyword(s):  
Mental Health ◽  
Social Support ◽  
Systematic Review ◽  
Young People ◽  
Empirical Support ◽  
Childhood Adversity ◽  
Future Research ◽  
Increased Risk ◽  
Resilience Factors ◽  
The Relationship

THIS IS A PRE-PRINT OF AN ARTICLE PUBLISHED IN "FRONTIERS IN PSYCHIATRY - SPECIAL ISSUE: RESILIENCE, LIFE EVENTS, TRAJECTORIES AND THE BRAIN (9: 230)". THE FINAL AUTHENTICATED VERSION IS AVAILABLE ONLINE AT: https://doi.org/10.3389/fpsyt.2018.00230Background: Up to half of Western children and adolescents experience at least one type of childhood adversity. Individuals with a history of childhood adversity have an increased risk of psychopathology. Resilience enhancing factors reduce the risk of psychopathology following childhood adversity. A comprehensive overview of empirically supported resilience factors is critically important for interventions aimed to increase resilience in young people. Moreover, such an overview may aid the development of novel resilience theories. Therefore, we conducted the first systematic review of social, emotional, cognitive and/ or behavioural resilience factors after childhood adversity.Methods: We systematically searched Web of Science, PsycINFO and Scopus (e.g. including MEDLINE) for English, Dutch and German literature. We included cohort studies that examined whether a resilience factor was a moderator and/ or a mediator for the relationship between childhood adversity and psychopathology in young people (mean age 13-24). Therefore, studies were included if the resilience factor was assessed prior to psychopathology, and childhood adversity was assessed no later than the resilience factor. Study data extraction was based on the STROBE report and study quality was assessed with an adapted version of Downs and Black’s scale. The preregistered protocol can be found at: http://www.crd.york.ac.uk/PROSPERO/display_record.asp?ID=CRD42016051978.Results: The search identified 1969 studies, of which 22 were included (eight nationalities, study sample n range: 59-6780). We found empirical support for 13 of 25 individual-level (e.g. high self-esteem, low rumination), six of 12 family-level (e.g. high family cohesion, high parental involvement), and one of five community-level resilience factors (i.e. high social support), to benefit mental health in young people exposed to childhood adversity. Single versus multiple resilience factor models supported the notion that resilience factors should not be studied in isolation, and that interrelations between resilience factors should be taken into account when predicting psychopathology after childhood adversity.Conclusions: Interventions that improve individual, family, and/ or social support resilience factors may reduce the risk of psychopathology following childhood adversity. Future research should scrutinize whether resilience factors function as a complex interrelated system that benefits mental health resilience after childhood adversity.

scholarly journals Dyslexia, Literacy Difficulties and the Self-Perceptions of Children and Young People: a Systematic Review

2019 ◽  
Author(s):  
Rosa Gibby-Leversuch ◽  
Brettany K. Hartwell ◽  
Sarah Wright
Keyword(s):  
Systematic Review ◽  
Young People ◽  
Attributional Style ◽  
The Self ◽  
Attributional Styles ◽  
Children And Young People ◽  
Self Perceptions ◽  
Positive Attitudes ◽  
Self Worth ◽  
The Impact

Abstract This systematic review investigates the links between literacy difficulties, dyslexia and the self-perceptions of children and young people (CYP). It builds on and updates Burden’s (2008) review and explores how the additional factors of attributional style and the dyslexia label may contribute to CYP’s self-perceptions. Nineteen papers are included and quality assessed. Quantitative papers measured the self-reported self-perceptions of CYP with literacy difficulties and/or dyslexia (LitD/D) and compared these with the CYP without LitD/D. Qualitative papers explored the lived experiences of CYP with LitD/D, including their self-views and how these were affected by receiving a dyslexia diagnosis. Results suggest that CYP with LitD/D may be at greater risk of developing negative self-perceptions of themselves as learners, but not of their overall self-worth. Factors found to be relevant in supporting positive self-perceptions include adaptive attributional styles, good relationships with peers and parents, and positive attitudes towards dyslexia and neurodiversity. In some cases, CYP with LitD/D felt that others perceived them as unintelligent or idle; for these CYP, a diagnosis led to more positive self-perceptions, as it provided an alternative picture of themselves. There is a need for further research to explore the impact of attributional style and the potential for intervention, as well as CYPs’ experiences of diagnosis and the associated advantages or disadvantages.

scholarly journals Guideline Development for Technological Interventions for Children and Young People to Self-Manage Attention Deficit Hyperactivity Disorder: Realist Evaluation (Preprint)

2018 ◽  
Author(s):  
Lauren Powell ◽  
Jack Parker ◽  
Val Harpin ◽  
Susan Mawson
Keyword(s):  
Attention Deficit Hyperactivity Disorder ◽  
Phase 1 ◽  
Management Strategies ◽  
Realist Evaluation ◽  
The Self ◽  
Self Management ◽  
Children And Young People ◽  
Hyperactivity Disorder ◽  
Key Stakeholders ◽  
Technological Interventions

BACKGROUND Attention deficit hyperactivity disorder (ADHD) is a complex neurodevelopmental disorder characterized by inattention, hyperactivity, and impulsivity. ADHD can affect the individual, the individual’s family, and the community. ADHD is managed using pharmacological and nonpharmacological treatments, which principally involves others helping children and young people (CAYP) manage their ADHD rather than learning self-management strategies themselves. Over recent years, technological developments have meant that technology has been harnessed to create interventions to facilitate the self-management of ADHD in CAYP. Despite a clear potential to improve the effectiveness and personalization of interventions, there are currently no guidelines based on existing evidence or theories to underpin the development of technologies that aim to help CAYP self-manage their ADHD. OBJECTIVE The aim of this study was to create evidence-based guidelines with key stakeholders who will provide recommendations for the future development of technological interventions, which aim to specifically facilitate the self-management of ADHD. METHODS A realist evaluation (RE) approach was adopted over 5 phases. Phase 1 involved identifying propositions (or hypotheses) outlining what could work for such an intervention. Phase 2 involved the identification of existing middle-range theories of behavior change to underpin the propositions. Phase 3 involved the identification and development of context mechanism outcome configurations (CMOCs), which essentially state which elements of the intervention could be affected by which contexts and what the outcome of these could be. Phase 4 involved the validation and refinement of the propositions from phase 1 via interviews with key stakeholders (CAYP with ADHD, their parents and specialist clinicians). Phase 5 involved using information gathered during phases 1 to 4 to develop the guidelines. RESULTS A total of 6 specialist clinicians, 8 parents, and 7 CAYP were recruited to this study. Overall, 7 key themes were identified: (1) positive rewarding feedback, (2) downloadable gaming resources, (3) personalizable and adaptable components, (4) psychoeducation component, (5) integration of self-management strategies, (6) goal setting, and (7) context (environmental and personal). The identified mechanisms interacted with the variable contexts in which a complex technological intervention of this nature could be delivered. CONCLUSIONS Complex intervention development for complex populations such as CAYP with ADHD should adopt methods such as RE, to account for the context it is delivered in, and co-design, which involves developing the intervention in partnership with key stakeholders to increase the likelihood that the intervention will succeed. The development of the guidelines outlined in this paper could be used for the future development of technologies that aim to facilitate self-management in CAYP with ADHD.

Connecting self-monitoring device and hypertension management: A qualitative inquiry of women with hypertension in rural Bangladesh (Preprint)

2020 ◽  
Author(s):  
Atiqur Rahman ◽  
Yasmin Jahan
Keyword(s):  
Salt Intake ◽  
Management Strategies ◽  
Qualitative Inquiry ◽  
Management Tool ◽  
Self Management ◽  
Future Research ◽  
Monitoring Device ◽  
Self Monitoring ◽  
Cultural Aspects ◽  
High Salt Intake

BACKGROUND Like many other developing countries, the implementation of urinary salt-monitoring devices in hypertension (HTN) management is lagging behind in Bangladesh. One possible reason is the limited resources and lack of awareness that impede to get access to home-based HTN management strategies. OBJECTIVE This study has implemented a self-monitoring device (KME-03) with an objective to explore the feasibility of such a device in a rural community level setting to manage HTN. Secondly, the study aimed at showcasing if and how associated socio-cultural aspects influence the understanding of salt intake. METHODS A qualitative approach was adopted for data collection using focus group discussion and key informant interviews. Participants (n=24) were recruited from two different categories namely, community health worker (CHW) (n=8), and hypertensive women (n=16) and the result is reported following the Standards for Reporting Qualitative Research (SRQR) guideline. Data were analyzed using the framework method. RESULTS Two potential themes were emerged (a) perceptions on KME-03: CHW and hypertensive patient; and (b) beliefs of salt intake: Socio-cultural cohesion. The main finding indicated the KME-03 device was effective for urinary salt excretion measurement and can potentially be applicable to HTN self-management. Participants were comfortable with the usage and functionalities of KME-03 and had identified some technical errors. The majority of them have disagreed that the device has reduced extra paperwork. Although few of the participants were aware of the detrimental effects of high salt intake, the majority agreed on unawareness which was stimulated by a number of socio-cultural perceptions. The arbitrarily defined cut-points towards salt intake reported that some individuals were susceptible to salt reduction whereas others did not. CONCLUSIONS The CHWs and hypertensive patients found KME-03 device a useful self-management tool in HTN management. The functionalities of the device motivated the participants to integrate HTN management strategies into their everyday life and made them feel like promising perceptions regarding KME-03. However, the findings also denote noteworthy perceptions of salt ingesting practice among HTN patients that are entangled with socio-cultural aspects. This finding has public health significance. Future research should look into this issue more closely to identify components may have an insidious impact on the positive use of self-monitoring device in HTN management. CLINICALTRIAL Bangladesh Medical Research Council (BMRC) registration number 06025072017.

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