Portal for Employees in the Public Sector

The need to reduce public spending has led Portugal to make administrative reforms. To that end, it called on the so-called e-government, using ICT as a mechanism to increase the quality and transparency of public services while lowering costs and operationalizing new public policies. Although administrative decentralisation is enshrined in the Constitution of the Portuguese Republic, only recently has it been prioritised as one of the great objectives of the administrative reforms of the state. To this end, the transfer of the necessary financial and human resources are foreseen. This will imply the implementation of human resources management strategies and mechanisms that avoid surplus or shortage of human resources, both in Central and Local Administration. Therefore, in this chapter, the creation of the “Portal for Employees in the Public Sector” is proposed as a shared management tool.

ENVIRONMENTAL CITIZENSHIP FOR THE RATIONAL MANAGEMENT OF HOUSEHOLD AND SIMILAR WASTE IN THE CITY OF BEJAIA, ALGÉRIA (REPORT AND LIMITS)

The problematic of rational management of household and similar wasteis a responsibility shared between all the actors of the city. The citizen or user has a great contribution in the success of this management. This by contribution to the realization of their duty and right in the collection of household and similar waste (HSW). The objective of this study is to examine the degree of enrollment of environmental citizenship in relation to the management of (HSW) in the collection and pre-collection phase in the city of Bejaia. The amount of waste generated in this city continues to increase (0.84 Kg/d /Inhabitant), with a daily tonnage which reaches 191 tonnes. These quantities of household waste produced and thrown away daily appear dispersed and scattered randomly in the sectors of the city. This observation reflects the negative behavior of the inhabitants, and has caused several consequences on the living environment, and on the tourist vocation of the city in general. This does not allow the city to play its functionality and represents a discomfort in front of all users, and particularly a failure in front of the actors of this city. Resorting to the implementation of shared management will allow the city of Bejaia to strengthen the level of environmental citizenship. Thus, correct the level of offset in the collection phase.

Possibilities and challenges for the shared management of solid waste in the Metropolitan Region of Natal (RN) considering Federal Law nº 12.305/2010

The National Solid Waste Policy emerged as a guideline for an environmental problem that was observed in Brazilian municipalities: the generation of solid waste combined with a prevalence of landfills. These problems largely became evident in metropolitan regions, which were characterized, among other aspects, by population concentration. Federal Law No. 12,305/2010 explicitly highlighted the issue of metropolitan management. The proposed study aimed to investigate the challenges for achieving the shared management of solid waste in the Metropolitan Region of Natal (RMN). To this end, documentary research and the systematization of secondary databases were undertaken, which enabled diagnostic research into the management of solid waste in the fifteen municipalities that make up the RMN. The study has revealed the difficulties in forming agreements between the municipal entities in the studied spatial profile, thereby influencing the outreach of an integrated management program in the RMN.

O002. Factors facilitating the self- and shared-management of Juvenile Idiopathic Arthritis

Background Juvenile idiopathic arthritis (JIA) requires some form of lifelong management, with at least one third of children symptomatic in adulthood. Therefore, empowering children to competently self-manage their health and wellbeing across the lifecourse is logical, while supporting families in their shared-management role during childhood. However, there was a limited theoretical basis to the self- and shared-management of JIA across the lifecourse. The objective is to explore the factors facilitating the self- and shared-management of JIA using a realist approach to evaluation. Methods Guided by the Individual and Family Self-management Theory, a three-stage realist approach to evaluation was undertaken: 1) initial JIA self- and shared-management question theories were elicited from literature reviews and stakeholder insights [1]; 2) seven initial question theories were tested using teacher-learner cycle interviews with 20 participants; 3) findings were analysed using a theory-driven approach to thematic analysis, using deductive, inductive, and retroductive reasoning to extend or refute the initial question theories, in order to identify demi-regularities in the data. Results Six refined JIA self- and shared-management question theories emerged: 1) meaningful and bespoke self-management support across the life course for children and young people with JIA; 2) recognised and valued shared-management support for the families of children and young people with JIA, with autonomy in mind; 3) individual healthcare plans as a shared management communication tool to facilitate optimal management of JIA; 4) consistent recognition, value, and encourage of self- and shared-management support from the paediatric rheumatology multi-disciplinary team and associated professionals; 5) child, young-person, and family-focused paediatric rheumatology care and support services across the lifecourse; and 6) bespoke and inclusive approaches by education providers to enable children and young people with JIA to feel safe, supported, and able to fulfil their potential. Conclusion There is an increasing recognition of the importance of self- and shared-management of JIA and other paediatric-onset chronic conditions. However, there is a lack of an overall, cohesive approach to self- and shared-management between healthcare providers, education providers, and patient/parent organisations. The findings from this study illuminate the factors facilitating JIA self- and shared-management at individual, interpersonal, institutional and infrastructural levels, bearing relevance to individuals and organisations involved in caring for, and supporting children with JIA and their families.

Escape Rooms as a Collaborative Problem-Solving Environment

Escape room games are a popular recreative activity that recently started gaining popularity as both a means for conducting research studies and a teaching and learning environment. This paper follows a group of 16- to 17-year-old students in an escape room while they encounter logical challenges in order to escape from the room in a limited amount of time. Their ability to work effectively as a team and complete activities quickly is a key element to success. In this setting, the aim was to examine in what ways this innovative environment might help students benefit in terms of social metacognition. The findings gave evidence that during collaborative problem-solving in an escape room, cognitive demands are distributed among the players. This makes metacognition visible, facilitates shared management thus improving individual cognition, facilitates reciprocal scaffolding, and enhances motivation.

O papel dos privados na gestão de áreas protegidas: O caso da Fundação MO´Ã na Reserva Particular do Patrimônio Natural (RPPN) Estadual MO´Ã/BRASIL e da Irmandade da Penha no Monte da Penha/PORTUGAL.

The MO´Ã Foundation in Rio Grande do Sul / Brazil is a Non-Governmental Organization (NGO) of Studies and Research for Environmental Protection and Development and works through actions and projects aimed at Environmental Education. In 2007 the MO´Ã Foundation acquired an area of 24 hectares of Atlantic Forest that was classified as a Private Reserve of Natural Heritage (RPPN), in 2015, after a long and complex process. In Guimarães, Portugal, the Sisterhood of Nossa Senhora do Carmo da owns about 60 hectares of the area where it receives the devotees and promotes the management of green space and the conservation of tourist infrastructure and religious heritage. In 2019, the Municipality of Guimarães submitted the application of Monte da Penha to a locally protected area, in a process still under evaluation by the Institute for the Conservation of Nature and Forests. The work presented aims to infer the role of the private sector in the administration and shared management of protected areas, in a comparative analysis between the MO´Ã Foundation and the Sisterhood of Penha. Based on a systematic review of a database in journals (CAPES, EBSCO, SCIELO, Open Access Scientific Repositories of Portugal), documents, fieldwork and interviews, we conclude that private institutions assume a fundamental relevance in the governance of areas protected, ensuring the main objective of these: the conservation and / or protection of nature in a sustainable way.

POS0057-PARE SUMMARY OF PATIENT/PARENT ORGANISATION SERVICES PROMOTING SELF- AND SHARED-MANAGEMENT OF JIA IN THE UK AND IRELAND

Background:Various patient/parent organisations provide information, education, and support services to children and young people with JIA and their families. Some organisations are JIA/uveitis focused, while others are umbrella rheumatic and musculoskeletal disease (RMD) organisations or have a broader remit to long-term conditions (LTCs). However, there are no summaries of such collective services offered in the UK and Ireland, which can add to confusion for children, young people, and families, while contributing to inconsistent signposting to services from healthcare professionals.Objectives:To summarise current and recent services promoting self- and shared-management of JIA by patient/parent organisations in the UK and Ireland.Methods:An electronic search of known patient/parent organisation platforms (website and/or social networking sites) was performed between August 2020 and January 2021. Materials provided at conference exhibitions since October 2016 were also reviewed. Services were identified, including their aims and further details, if available. These were then mapped by format (e.g., educational, telemedicine, art therapy) and element (e.g., informational videos, monitoring through self-report diaries, discussing art and related feelings), according to their mode of delivery (individual or group), adapted from Sattoe et al. (2015) [1].Results:Twelve patient/parent organisations in the UK and Ireland were identified (11 of which had some form of charity/company registration): seven were JIA-specific, one was uveitis-specific, two were RMD-focused, and two were LTC-focused. In total, 48 services were identified across the twelve organisations. Generally, group mode of delivery was more popular than individual mode of delivery. Of group-based services, educational and/or support sessions and residential/excursion programmes were the most frequently observed. Of individual-based services, educational sessions including written and visual information were predominant. No one organisation provided services across all formats and elements identified. There appeared to be a limited focus on goal setting, individual level skills training, and explicitly improving self-and/or shared-management capacity. Gamification techniques were notably absent, as was the use of psychotherapeutic approaches, such as cognitive behavioural therapy and motivational interviewing.Conclusion:Various services are offered by multiple patient/parent organisations with an interest in JIA across the UK and Ireland to promote self- and shared-management. However, no single organisation provides a comprehensive package of services to address the entire information, education, and support needs of children and young people with JIA, or their families. Furthermore, clarity of services offered across the sector is poor. Enhanced collaboration between organisations, together with a clearer focus on enhancing self- and shared-management of JIA across the lifecourse, may help to improve the offering to children, young people, and their families, so that they can more competently manage JIA.References:[1]Sattoe et al. Self-management interventions for young people with chronic conditions: A systematic overview. Patient Education and Counseling 2015; 98(6): 704-715.Acknowledgements:This work formed part of a PhD study funded by the University of Leeds.Disclosure of Interests:Simon Stones Speakers bureau: Janssen., Consultant of: Envision Pharma Group., Veronica Swallow: None declared, Linda Milnes: None declared.

POS1473-HPR SELF- AND SHARED-MANAGEMENT INTERVENTIONS FOR CHILDREN, YOUNG PEOPLE, AND FAMILIES LIVING WITH RHEUMATIC AND MUSCULOSKELETAL DISEASES: AN INTEGRATIVE REVIEW

Background:Self-management refers to the manner in which individuals manage the symptoms, treatment, physical and psychosocial impact of long-term conditions (LTCs). The importance of equipping children and young people living with LTCs, like rheumatic and musculoskeletal diseases (RMDs) with the capacity to self-manage is increasingly recognised in the literature, and in conversation. In addition, there is a strong case to support families who assume a shared-management role for their child. However, there is a limited understanding of interventions designed to improve self- and shared-management capacity in this population, prompting for a review of the literature, across multiple study designs.Objectives:The aim of this integrative review was to identify and describe interventions promoting self-management of RMDs by children and young people, and shared-management of RMDs by families.Methods:The integrative review followed a six-stage process [1]. Studies published since 2010 were identified through a search of eight bibliographic databases. Studies reporting on any paediatric-onset RMD were included, as were those in multiple condition areas where RMDs were included in the analysis. Twenty-six articles met the inclusion criteria: 24 research articles reporting on 17 interventions, and two review articles containing a further four research articles. The methodological quality of included articles was assessed using the Mixed Methods Appraisal Tool, and a thematic synthesis was undertaken.Results:Most study participants were CYP and families living with JIA. A minority of studies included CYP and families living with other RMDs, as well as chronic pain, type 1 diabetes mellitus, epilepsy, sleeping disorder, and cancer. Around half of the articles reported a specific theory and/or model or framework guiding the intervention. Interventions tended to be focussed at either CYP or families, with few designed to span the lifecourse from birth to young adulthood, while supporting all members of the family unit. Intervention types included: decisional aids; comic educational book; family retreat weekend; internet- and group-based cognitive behavioural programme; internet-based peer mentoring intervention; internet-based self-guided self-management intervention with weekly social support; internet-based electronic patient-reported outcome platform; smartphone applications; telenursing intervention; therapeutic recreational camp; therapeutic family nursing conversations; transition programme/clinic; and video games-based task-orientated activity training.Conclusion:This integrative review identified a range of interventions that have been evaluated to promote self- and shared management of RMDs by CYP and their families. There is a noticeable lack of emphasis on targeting the whole lifecourse for CYP, as well as supporting both CYP and families as they manage their RMD. Further work is needed to explore the underlying mechanisms which dictate how self- and shared-management interventions influence outcomes for CYP and families, under differing contexts, since this was overlooked by the majority of included studies.References:[1]De Souza et al. Integrative review: What is it? How to do it? Einstein (São Paulo) 2010; 8(1): 102-106.Acknowledgements:This work formed part of a PhD study funded by the University of Leeds.Disclosure of Interests:Simon Stones Speakers bureau: Janssen, Consultant of: Envision Pharma Group

POS0154-HPR FACTORS FACILITATING THE SELF- AND SHARED-MANAGEMENT OF JIA BY CHILDREN, YOUNG PEOPLE, THEIR FAMILIES, AND PROFESSIONALS INVOLVED IN THEIR CARE: A REALIST EVALUATION

Background:Juvenile idiopathic arthritis (JIA) is a long-term condition, often requiring some element of lifelong management. Therefore, it is logical that children and young people are empowered to become competent at self-managing their health and wellbeing, while families are supported in their shared-management role during childhood, relinquishing control at age- and developmentally appropriate periods in their child’s development. However, there are limited theoretical foundations underpinning optimal self- and shared-management support for children, young people and families living with JIA.Objectives:To explain the factors facilitating the self- and shared-management of JIA by children, young people, and their families, with professional support from healthcare professionals, third sector organisations, and education professionals.Methods:Guided by the Individual and Family Self-management Theory and the Shared Management Model, a three-stage realist evaluation was undertaken: 1) initial JIA self- and shared-management question theories were elicited from a document review, integrative review, and stakeholder insights [1]; 2) seven initial question theories were tested using qualitative research methods with 20 participants (young people, families, healthcare professionals, education professionals, and third sector representatives); 3) analysis of findings using a theory-driven approach to thematic analysis, in order to identify demi-regularities to extend or refute the initial question theories. The analysis drew on deductive, inductive, and retroductive reasoning.Results:There were six refined JIA self- and shared-management question theories: 1) meaningful and bespoke self-management support across the life course for children and young people with JIA; 2) recognised and valued shared-management support for the families of children and young people with JIA, with autonomy in mind; 3) individual healthcare plans as a shared management communication tool to facilitate optimal management of JIA; 4) consistent recognition, value, and encourage of self- and shared-management support from the paediatric rheumatology multi-disciplinary team and associated professionals; 5) child, young-person, and family-focused paediatric rheumatology care and support services across the lifecourse; and 6) bespoke and inclusive approaches by education providers to enable children and young people with JIA to feel safe, supported, and able to fulfil their potential.Conclusion:There is an increasing recognition of the importance of self- and shared-management of JIA. However, there is a lack of an overall, cohesive approach to self- and shared-management between healthcare providers, education providers, and the third sector. Findings from this study illuminate the factors facilitating JIA self- and shared-management at individual, interpersonal, institutional and infrastructural levels. Further work is required to empirically test these refined question theories with interventions designed to enhance JIA care, education, and support.References:[1]Stones et al. (2020). A realist approach to eliciting the initial programme theories for the self- and shared-management of juvenile idiopathic arthritis by children, young people, families and professionals involved in their care. Pediatric Rheumatology 18(Suppl 2): O062.Acknowledgements:The authors thank all of the participants who helped to shape the findings of this study. This work formed part of a PhD study funded by the University of Leeds.Disclosure of Interests:Simon Stones Speakers bureau: Janssen, Consultant of: Parexel, Envision Pharma Group, 67 Health, On The Pulse Consultancy, Veronica Swallow: None declared, Linda Milnes: None declared