scholarly journals People living with dementia and their family carers’ adherence to home-based Tai Chi practice

Dementia ◽  
2020 ◽  
pp. 147130122095775
Author(s):  
Yolanda Barrado-Martín ◽  
Michelle Heward ◽  
Remco Polman ◽  
Samuel R Nyman
Keyword(s):  
Tai Chi ◽  
Exercise Intervention ◽  
Perceived Benefits ◽  
Family Carers ◽  
Home Practice ◽  
Structured Interviews ◽  
Home Based ◽  
Thematic Approach ◽  
Tai Chi Exercise ◽  
At Home

Objectives The aim of this study was to understand what influenced people living with dementia and their family carers’ adherence to the home-based component of a Tai Chi exercise intervention. Method Dyads, of people living with dementia and their family carers, who participated in the intervention arm of the Tai Chi for people living with dementia trial, were invited to join weekly Tai Chi classes for 20 weeks and practice at home. Semi-structured dyadic home interviews were conducted on average after 16 weeks of classes. The views of 15 dyads with a range of home practice adherence were sought in semi-structured interviews. The interviews were analysed using an inductive thematic approach. Results Most participants found time to practise Tai Chi at home and practised for 18 hours on average. Amongst the barriers to adherence were participants’ competing commitments and a booklet not sufficiently conveying the Tai Chi movements. Hence, a video or DVD was requested by participants. Facilitators of their adherence to the home-based component of the intervention were their enjoyment of the practice and the development of a habit, which was supported by their commitment to the study and their willingness to benefit from Tai Chi. Conclusion Enjoyment and perceived benefits had a great impact on participants living with dementia and their carers’ adherence to home-based Tai Chi practice. However, difficulties to perceive the Tai Chi movements through images might be hindering sustained participation. Hence, alternative aids such as videos and DVDs should be explored to facilitate adherence.

scholarly journals Seeing the collective: family arrangements for care at home for older people with dementia

2018 ◽  
Vol 39 (06) ◽  
pp. 1200-1218 ◽  
Author(s):  
CHRISTINE CECI ◽  
HOLLY SYMONDS BROWN ◽  
MARY ELLEN PURKIS
Keyword(s):  
Family Care ◽  
High Volume ◽  
Ethnographic Study ◽  
Family Carers ◽  
Care Giving ◽  
People With Dementia ◽  
Home Based ◽  
Health And Social Care ◽  
Care At Home ◽  
At Home

ABSTRACTWith the predicted growth in the number of people with dementia living at home across the globe, the need for home-based care is expected to increase. As such, it will be primarily family carers who will provide this crucial support to family members. Designing appropriate support for family carers is thus essential to minimise risks to their health, to prevent premature institutionalisation or poor care for persons with dementia, as well as to sustain the effective functioning of health and social care systems. To date, the high volume of research related to care at home and acknowledged low impact of interventions suggests that a re-examination of the nature of care at home, and how we come to know about it, is necessary if we are to advance strategies that will contribute to better outcomes for families. This paper describes findings from an ethnographic study that was designed to support an analysis of the complexity and materiality of family care arrangements – that is, the significance of the actual physical, technological and institutional elements shaping care-giving situations. In this paper, we describe the arrangements made by one family to show the necessary collectivity of these arrangements, and the consequences of the formal care system's failure to respond to these.

scholarly journals Feasibility of a Tai Chi with Thera-Band Training Program: A Pilot Study

2020 ◽  
Vol 17 (22) ◽  
pp. 8462
Author(s):  
Meiling Qi ◽  
Wendy Moyle ◽  
Cindy Jones ◽  
Benjamin Weeks
Keyword(s):  
Randomized Controlled Trial ◽  
Tai Chi ◽  
Exercise Intervention ◽  
Controlled Trial ◽  
Well Being ◽  
Office Workers ◽  
Learning Stage ◽  
Enrolment Rate ◽  
Randomized Controlled ◽  
Tai Chi Exercise

Tai Chi, combined with Thera-band (TCTB) exercise may be associated with an improvement in health where it increases physical fitness, improves psychological well-being, and decreases pain. This paper aimed to determine the feasibility of TCTB exercise in older sedentary office workers. Forty office workers aged over 55 years participated in a pilot randomized controlled trial (i.e., 12-week TCTB exercise or Tai Chi exercise only). Feasibility of the TCTB exercise approach was ascertained through the recruitment and enrolment rate, acceptability of the study intervention by participants including retention and adherence rates, participants’ learning process, the appropriateness of data collection as well as the participants’ evaluation of the intervention. Recruitment took longer than planned, with a low recruitment rate of 2.0% (42/2020), but a high enrolment rate of 95.2% (40/42). Thirty-one participants (i.e., 77.5%) completed the intervention. Of those who completed the trial, the overall average attendance was reported as 85.2%; 84.7% in the TCTB group and 85.7% in the Tai Chi only group. A total of 58.3% of participants (n = 21) could independently practice the TCTB or Tai Chi exercise motions at the end of the learning stage. There were no missing data except for the nine participants who withdrew during the intervention. No adverse events or effects were reported, and all participants were satisfied with the 12-week exercise intervention. Results support the feasibility of a large-scale randomized controlled trial to explore the efficacy of a TCTB program for improving health in older sedentary office workers.

scholarly journals Carer and staff perceptions of end-of-life care provision: case of a hospice-at-home service

2021 ◽  
Vol 26 (1) ◽  
pp. 30-36
Author(s):  
Alison Ward ◽  
Judith Sixsmith ◽  
Stephen Spiro ◽  
Anne Graham ◽  
Heather Ballard ◽  
...  
Keyword(s):  
Hospital Admissions ◽  
Family Carers ◽  
Specialist Care ◽  
Structured Interviews ◽  
Night Time ◽  
Phone Calls ◽  
Care And Support ◽  
Home Service ◽  
Hospice At Home ◽  
At Home

People requiring palliative care should have their needs met by services acting in accordance with their wishes. A hospice in the south of England provides such care via a 24/7 hospice at home service. This study aimed to establish how a nurse-led night service supported patients and family carers to remain at home and avoid hospital admissions. Semi-structured interviews were carried out with family carers (n=38) and hospice-at-home staff (n=9). Through night-time phone calls and visits, family carers felt supported by specialist hospice staff whereby only appropriate hospital admission was facilitated. Staff provided mediation between family carer and other services enabling more integrated care and support to remain at home. A hospice-at-home night service can prevent unnecessary hospital admissions and meet patient wishes through specialist care at home.

Abstract WP509: Stroke Survivors’ Perceptions of Well-Being and Recovery After a Tai Chi Exercise Intervention

Stroke ◽  
2019 ◽  
Vol 50 (Suppl_1) ◽  
Author(s):  
Ruth E Taylor-Piliae ◽  
Melinda A Zeimantz ◽  
Anne G Rosenfeld
Keyword(s):  
Tai Chi ◽  
Exercise Intervention ◽  
Well Being ◽  
Stroke Survivors ◽  
Tai Chi Exercise

scholarly journals “In the Bengali Vocabulary, There Is No Such Word as Care Home”:Caring Experiences of UK Bangladeshi and Indian Family Carers of People Living With Dementia at Home

2019 ◽  
Author(s):  
Ruminda Herat-Gunaratne ◽  
Claudia Cooper ◽  
Naaheed Mukadam ◽  
Penny Rapaport ◽  
Monica Leverton ◽  
...  
Keyword(s):  
Care Home ◽  
Care Recipient ◽  
Family Carers ◽  
Structured Interviews ◽  
Indian Family ◽  
People With Dementia ◽  
Care Family ◽  
Care Models ◽  
Design And Methods ◽  
At Home

Abstract Background and Objectives We aimed to explore experiences of South Asian carers of people with dementia receiving health or social care in the United Kingdom, purposively recruited to encompass a range of migration, economic and cultural experiences. While previous work in this area has reported carers’ understanding of, and attitudes to dementia, we explored how carers’ cultural identities and values influenced their experiences, negotiation of the caring role and relationship with services. Research Design and Methods We conducted semi-structured interviews with 10 Bangladeshi and Indian family carers of people living with dementia at home. We recruited participants from community settings in London and Bradford, UK. Interviews were audio recorded, transcribed and thematically analyzed. Results We identified 4 themes: an expectation and duty to care, expectation and duty as a barrier to accessing formal care (family carer reluctance, care recipient reluctance, and service organization), culturally (in)sensitive care, and the importance of support from informal care networks. Discussion and Implications Interviewees described tensions between generations with different understandings of familial care obligations. Expectations to manage led to burden and guilt, and the cost of caring, in terms of lost employment and relationships was striking. Unlike in previous studies, interviewees wanted to engage and be supported by services, but were frequently offered care models they could not accept. There was a tension between a state-provided care system obliged to provide care when there are no alternatives, and family carers who feel a duty to always provide alternatives. Informal social networks often provided valued support.

Effects of Tai Chi Exercise on Physical and Mental Health of College Students

2004 ◽  
Vol 32 (03) ◽  
pp. 453-459 ◽  
Author(s):  
Yong "Tai" Wang ◽  
Leslie Taylor ◽  
Marcia Pearl ◽  
Li-Shan Chang
Keyword(s):  
Mental Health ◽  
College Students ◽  
Tai Chi ◽  
Exercise Intervention ◽  
Bodily Pain ◽  
Physical And Mental Health ◽  
Practice Session ◽  
Positive Effects ◽  
Before And After ◽  
Tai Chi Exercise

The purpose of this pilot study is to examine the effects of Tai Chi Quan, a body-mind harmony exercise, on college students' perceptions of their physical and mental health. A three-month intervention of Tai Chi exercise was administered to college students, and multidimensional physical (PHD) and mental (MHD) health scores were assessed using the SF-36v2 health survey questionnaire before and after the intervention. Thirty college students participated in a 1-hour-long Tai Chi exercise intervention twice a week for 3 months. Each practice session included 10 minutes of breathing and stretching exercises followed by 50 minutes of Tai Chi Quan 24-form practice. PHD including physical function (PF), role physical (RP), bodily pain (BP), general health (GH), and MHD including social function (SF), role mental/emotion function (RE), vitality (VT), perceptions of mental health (MH) were assessed. The normalized scores of each variable and the combined PHD or MHD scores before and after the Tai Chi intervention were examined by paired t-test ( p <0.05). Physical measures of BP and GH, and mental measures of RE, VT and MH were significantly improved after Tai Chi exercise intervention. When the overall PHD or MHD scores were evaluated, the MHD had increased significantly. In conclusion, Tai Chi exercise had positive effects on the self-assessed physical and mental health of college students. Scores on the mental health dimension appeared to be particularly sensitive to change. Colleges/universities might consider offering Tai Chi as a component of their ongoing physical activity programs available to students.

scholarly journals Home-based palliative care management: what are the useful resources for general practitioners? a qualitative study among GPs in France

2020 ◽  
Vol 21 (1) ◽  
Author(s):  
Carol-Anne Boudy ◽  
Tiphanie Bouchez ◽  
Didier Caprini ◽  
Isabelle Pourrat ◽  
Stéphane Munck ◽  
...  
Keyword(s):  
Palliative Care ◽  
Qualitative Study ◽  
General Practitioners ◽  
Real Life ◽  
Continuous Medical Education ◽  
Care Practice ◽  
Multidisciplinary Teams ◽  
Structured Interviews ◽  
Home Based ◽  
At Home

Abstract Background Most French people (71%) would like to die at home, but only one out of four actually do. While the difficulties inherent in the practice of home-based palliative care are well described, few studies highlight the resources currently used by general practitioners (GPs) in real life. We have therefore sought to highlight the resources actually used by GPs providing home-based palliative care. Methods Twenty-one GPs of different ages and practice patterns agreed to participate to this qualitative study based upon semi-structured interviews. They were recruited according to a purposive sampling. Transcripts analysis was based upon General Inductive Analysis. Results The resources highlighted have been classified into two main categories according to whether they were internal or external to the GPs. The internal resources raised included the doctor’s practical experience and continuous medical education, personal history, work time organization and a tacit moral contract related to the referring GP’s position. External resources included resource personnel, regional assistance platforms and health facilities, legislation. Conclusion This study provides a simple list that is easy to share and pragmatic solutions for GPs and policymakers. Home-based palliative care practice can simultaneously be burdensome and yet a fulfilling, meaningful activity, depending on self-efficacy and professional exhaustion (burnout), perhaps to a greater extent than on medical knowledge. Home-based palliative care promotion is a matter of social responsibility. The availability of multidisciplinary teams such as regional assistance platforms and Hospitalization at Home is particularly important for the management of palliative care. Policymakers should consolidate these specific resources out of hospitals, in community settings where the patients wish to end their life.

scholarly journals Dance at home for people with Parkinson’s during COVID-19 and beyond: Participation, perceptions and prospects

2021 ◽  
Author(s):  
Judith Bek ◽  
Michelle Groves ◽  
David Leventhal ◽  
Ellen Poliakoff
Keyword(s):  
Social Interaction ◽  
Digital Media ◽  
Online Survey ◽  
Strong Preference ◽  
Perceived Benefits ◽  
Digital Resources ◽  
Home Based ◽  
Further Development ◽  
Lack Of Knowledge ◽  
At Home

Emerging evidence shows that dance can provide both physical and non-physical benefits for people living with Parkinson’s disease (PD). The suspension of in-person dance classes during the COVID-19 pandemic necessitated a transition to remote provision via live and recorded digital media. An online survey explored accessibility of and engagement with these home-based dance programs, as well as perceived benefits. The survey was co-developed by researchers and dance program providers, with input from people with PD and physiotherapists. Responses were collected from 276 individuals, including 178 current users of home-based programs, the majority of whom were participating at least once per week. Among respondents not currently using digital resources, lack of knowledge and motivation were the primary barriers. Most participants (94.9%) reported that home based practice provided some benefits, including physical (e.g., balance, posture) and non-physical (e.g., mood, confidence) improvements. Participants valued the convenience and flexibility of digital participation, but noted limitations including reductions in social interaction, support from instructors and peers, and routine. There was a strong preference (70.8%) for continuing with home-based practice alongside in-person classes in the future.The results indicate that at-home dance is accessible and usable for people with PD, and that some of the previously-reported benefits of dance may be replicated in this context. While COVID-19 expedited the development of digital programs, these will likely remain a key element of future provision for people with PD. The findings will inform the further development of resources and research into outcomes of home-based dance participation.

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