Community Living for Adults with Developmental Disabilities: A Housing and Support Approach

1995 ◽  
Vol 20 (4) ◽  
pp. 300-310 ◽  
Author(s):  
Julie Ann Racino
Keyword(s):  
Developmental Disabilities ◽  
Independent Living ◽  
Structural Changes ◽  
Group Home ◽  
Community Integration ◽  
The United States ◽  
Community Living ◽  
Service Development ◽  
Power Relationships ◽  
Adults With Developmental Disabilities

This article reports on a multisite qualitative research study designed to better understand how the selected organizations support adults with developmental disabilities in community life. In particular, the study investigated the five characteristics potentially critical for service reconfiguration from a facility-based residential services model (e.g., group home, supervised apartments) to a housing and support approach (i.e., supporting adults to live in their own homes). Semistructured interviews and observations were conducted with informants at a purposeful sample of five agency sites in New Hampshire, Minnesota, California, North Dakota, and Wisconsin. The results indicated the following target areas for further research and applied change strategies: the distinctions between the theoretical and practical frameworks of community integration and independent living, personal changes in the relationship of individuals with each other in daily life, structural changes on the part of agencies and service systems, and “community” changes in acceptance, stigma, and power relationships. The author discusses the implications of these findings for further service development and research in community living for people with developmental disabilities in the United States.

Honor the Past. Then Get Over It.

2015 ◽  
Vol 53 (6) ◽  
pp. 409-413
Author(s):  
Sue Swenson
Keyword(s):  
Developmental Disabilities ◽  
Independent Living ◽  
Research Policy ◽  
Community Integration ◽  
The United States ◽  
Intellectual And Developmental Disabilities ◽  
Training Center ◽  
Policy And Practice ◽  
Rehabilitation Research ◽  
And Training

Abstract This speech was presented at a conference, the National Goals in Research, Policy, and Practice, held in Washington, DC, on August 6-7, 2015. The conference was a working meeting to summarize the current state of knowledge and identify a platform of national goals in research, practice, and policy in intellectual and developmental disabilities. The meeting was jointly organized by the Research and Training Center on Community Living, Institute on Community Integration, University of Minnesota; Rehabilitation Research and Training Center on Developmental Disabilities and Health, Institute on Disability and Human Development, University of Illinois Chicago; Rehabilitation Research and Training Center on Advancing Employment for Individuals with Intellectual and Developmental Disabilities, Institute for Community Inclusion, University of Massachusetts Boston; The Arc of the United States; Association of University Centers on Disabilities (AUCD); and American Association on Intellectual and Developmental Disabilities (AAIDD), with the support of National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR).

Individual and Family Correlates of Community Living Options Among Adults With Intellectual and Developmental Disabilities

Inclusion ◽  
2017 ◽  
Vol 5 (4) ◽  
pp. 279-292 ◽  
Author(s):  
Meghan M. Burke ◽  
Chung eun Lee ◽  
Moon Y. Chung ◽  
Kristina Rios ◽  
Catherine K. Arnold ◽  
...  
Keyword(s):  
Developmental Disabilities ◽  
Independent Living ◽  
Group Homes ◽  
Community Living ◽  
Intellectual And Developmental Disabilities ◽  
Functional Abilities ◽  
Future Planning ◽  
Adults With Disabilities ◽  
The Family ◽  
Family Home

Abstract With recent policy changes and case-law decisions, there are more opportunities for adults with intellectual and developmental disabilities (IDD) to live independently in inclusive settings. It is necessary to identify malleable correlates of community living options to develop interventions to increase inclusive, independent living. To this end, 546 parents and siblings of adults with IDD responded to a national survey. According to parent and sibling report, adults with IDD were more likely to live outside of the family home when the family engaged in future planning, the individual had more informal supports and more functional abilities and had parents with fewer caregiving abilities. Among the 187 adults with IDD who lived outside of the family home, individuals with more problem behaviors and fewer functional abilities were more likely to live in larger group homes (versus independently with or without supports). Further, when the family engaged in more future planning activities, adults with disabilities were more likely to live in a group home (versus independently). When parents had fewer caregiving abilities, adults with disabilities were more likely to live in bigger group homes (versus independently). Implications for policymakers, practitioners, and research are discussed.

An exploration of recreational therapy students’ attitudes toward adults with developmental disabilities

2017 ◽  
Vol 15 (3) ◽  
pp. 40
Author(s):  
Cara M. Prinzo, MS, CTRS ◽  
Gretchen Snethen, PhD, CTRS
Keyword(s):  
Developmental Disabilities ◽  
Undergraduate Students ◽  
Negative Impact ◽  
Community Integration ◽  
Healthcare Providers ◽  
Well Being ◽  
Recreational Therapy ◽  
Negative Attitudes ◽  
Students Attitudes ◽  
Adults With Developmental Disabilities

While more adults with developmental disabilities are living in the community, negative attitudes and stigma remain a barrier to independence and community integration. Both community members and healthcare providers harbor these attitudes, and thus may discriminate against this population. The adverse consequences of stigma particularly within the healthcare system have a negative impact on the health and well-being of adults with developmental disabilities. Because recreational therapists provide services that often promote independence and community integration, it is important to have an understanding of underlying attitudes toward this population. This article reports on the attitudes of recreational therapy undergraduate students toward adults with developmental disabilities and factors that may be associated with these attitudes. Based on correlational analyses, recommendations are made for recreational therapy curriculum to reduce stigmatizing attitudes.

scholarly journals Getting Out There: Community Support Services for People With Intellectual and Developmental Disabilities in Medicaid HCBS Waivers

Inclusion ◽  
2017 ◽  
Vol 5 (1) ◽  
pp. 33-44 ◽  
Author(s):  
Carli Friedman ◽  
Natasha A. Spassiani
Keyword(s):  
Developmental Disabilities ◽  
Support Services ◽  
Community Integration ◽  
Community Support ◽  
Transition Services ◽  
The United States ◽  
Fiscal Year ◽  
Intellectual And Developmental Disabilities ◽  
Community Support Services ◽  
Services And Supports

Abstract Despite an increased number of community-based services, people with intellectual and developmental disabilities (IDD) continue to struggle with meaningful community participation and often feel they are not valued community members. This study examined how community support services, which support physical placement and community integration, were allocated in Medicaid 1915(c) HCBS waivers, the largest provider of long-term services and supports for people with IDD in the United States. Community support services totaled $447.5 million of projected funding in fiscal year 2014. While community transition services funded expenses required to establish a basic household for the initial transition, community integration services promoted a successful community placement by utilizing natural supports and developing skills necessary to maintain community integration.

scholarly journals Clinical and functional effects of the COVID-19 pandemic and social distancing on Veterans with psychotic disorders and recently-housed Veterans

2020 ◽  
Author(s):  
Jonathan Wynn ◽  
Amanda McCleery ◽  
Derek M. Novacek ◽  
ERIC A REAVIS ◽  
Jack Tsai ◽  
...  
Keyword(s):  
Mental Health ◽  
Independent Living ◽  
Psychotic Disorders ◽  
Clinical Symptoms ◽  
Community Integration ◽  
The United States ◽  
Vulnerable Groups ◽  
Retrospective Assessment ◽  
Current Period ◽  
The Impact

Background: The COVID pandemic has upended the daily lives of everyone in the United States, negatively impacting social interactions, work, and living situations. The pandemic could lead to or exacerbate mental health issues, especially in people who are already vulnerable to such effects. Within the Department of Veterans Affairs (VA) healthcare system two populations vulnerable to social and functional disruptions include those who have recently experienced homelessness (recently housed Veterans, RHV) and those who have a psychotic disorder (PSY). Methods and Findings: We conducted phone interviews with PSY (n = 81), RHV (n = 76) and control Veterans (CTL, n = 74) between mid-May – mid-August, 2020 (“current”) and a retrospective assessment relative to January, 2020 (“pre-COVID”). We assessed clinical factors (e.g., depression, anxiety, loneliness) and community integration (e.g., family and social functioning, work) at both time periods, and risk and protective factors (e.g., resilience, uncertainty) for the current period. The two vulnerable groups had higher levels of clinical symptoms and poorer community integration relative to CTL, as expected. Regarding the effect of the pandemic, results showed that all three groups experienced worse clinical outcomes (i.e., increased depression, anxiety, loneliness) currently vs. pre-COVID; there were no significant interactions between group and time period indicating all three groups were equally impacted by the pandemic. For community integration, there was a small but significant decrease in social networks in all three groups currently vs. pre-COVID. RHV showed a small but significant increase in independent living relative to pre-COVID ratings. Finally, RHV had greater levels of intolerance of uncertainty compared to PSY and CTL.Conclusions: Our results indicate that vulnerable and non-vulnerable Veterans were equally negatively impacted by the COVID-19 pandemic. The lack of a disproportionate effect of the pandemic on the vulnerable groups may be due to the availability and utilization of comprehensive VA services available to vulnerable Veterans (e.g., housing and financial support, medical and mental health services), which may have helped to mitigate the impact of the pandemic.

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