Mothers’ experience of Intensive Interaction

Potential Barriers ◽

Low Expectations ◽

Insight Into ◽

Parents Experiences

There is limited research into parents’ experiences of Intensive Interaction. Despite this, there are parents who use it and may hold unique experiences. Exploring this could provide insight into how to support parents using Intensive Interaction. Six mothers, who used Intensive Interaction with their children with intellectual disabilities and/or autism, were interviewed. Results were analysed using interpretative phenomenological analysis. The analysis yielded 10 subordinate themes which were organised into 4 superordinate themes: ‘The Connection’, ‘Bittersweet’, ‘Fighting for Support’ and ‘Challenging Underlying Low Expectations & Stigma’. Intensive Interaction was found to help some mothers feel connected with their child; they appeared to indicate that accessing timely support with Intensive Interaction was beneficial. Intensive Interaction was also perceived to challenge assumptions and stigma, but these factors were also perceived to be potential barriers to using the approach.

Exploring the functions of music in the lives of young people on the autism spectrum

Psychology of Music ◽

10.1177/03057356211008968 ◽

2021 ◽

pp. 030573562110089

Author(s):

Melissa L Kirby ◽

Karen Burland

Keyword(s):

Young People ◽

Everyday Life ◽

Autism Spectrum ◽

Multiple Methods ◽

Social Functions ◽

Interview Technique ◽

Autistic People ◽

Current research investigating the functions of music in everyday life has identified cognitive, emotional, and social functions of music. However, previous research focuses almost exclusively on neurotypical people and rarely considers the musical experiences of autistic people. In addition, there is limited research which focuses explicitly on the musical experiences of young people on the autism spectrum. Current research exploring the functions of music may therefore not accurately represent the experiences of the autistic community. This article aims to explore the function of music in the lives of young people on the autism spectrum through a series of interviews. Eleven young people on the autism spectrum age 12 to 25 ( M = 19.4) were interviewed about the function of music in their lives. An adaptive interview technique, utilizing multiple methods of communication, was employed to account for the participants’ broad communicative and personal needs. Interpretative phenomenological analysis revealed four key functions of music in the participants’ lives: Cognitive, Emotional, Social, and Identity. Collectively, these results provide a unique insight into the musical experiences of young people on the autism spectrum.

A Tsunami of Love: Overcoming the Violence of Curiosity—The Lived Experiences of Young Adults Born with Variations of Sex Characteristics

International Journal of Feminist Approaches to Bioethics ◽

10.3138/ijfab-14.2.02 ◽

2021 ◽

Vol 14 (2) ◽

pp. 11-35

Author(s):

Eva De Clercq

Keyword(s):

Young Adults ◽

Quality Care ◽

Sex Characteristics ◽

Health Providers ◽

Structured Interviews ◽

Patient Centered ◽

Medical Settings ◽

This study provides insight into the experiences of young adults born with variations of sex characteristics to identify aspects of care and social support that need improvement. Semi-structured interviews with intersex youths in Switzerland were analyzed using interpretative, phenomenological analysis. Young adults desire timely, patient-centered information about their diagnoses. Peer support is key to delivering high-quality care but rarely systematically implemented. Intersex youth often face misrepresentation, stigma, and discrimination in medical settings and in society. Increased visibility alone cannot tackle these issues, but a feminist curiosity of care will enable health providers and society to overcome preconceptions of body normativity.

Lived experiences within a longstanding coach-athlete relationship. The case of one paralympic athlete

Ágora para la Educación Física y el Deporte ◽

10.24197/aefd.2-3.2018.279-297 ◽

2018 ◽

Vol 20 (2-3) ◽

pp. 279-297

Author(s):

Fernando Santos ◽

Martin Camiré ◽

Dany J. MacDonald

Keyword(s):

Lived Experiences ◽

Acute Bout ◽

Insight Into ◽

Constant Support

The purpose of the present study was to explore the lived experiences of one male Paralympic athlete who maintained a longstanding relationship with his coach. This case provides insight into how a coach can serve as a key supportive agent in enabling an athlete to thrive both in sport and in life. The athlete was interviewed on two separate occasions and an interpretative phenomenological analysis was conducted. The athlete discussed the consequences of an acute bout of meningitis experienced at four years of age that left him impaired. During adolescence and adulthood, the athlete experienced the death of his mother and sister as well as the challenges associated with him assuming his homosexuality. Throughout these ordeals, his coach acted as a constant support figure. The athlete attributed much weight to his coach’s trust, respect, and empathy in explaining the significant success he attained on the international stage. The recommendations offered focus on how coaches can support athletes when athletes are navigating tough challenges.

Caring for people with severe myalgic encephalomyelitis: An interpretative phenomenological analysis of parents’ experiences

Journal of Health Psychology ◽

10.1177/1359105315587137 ◽

2016 ◽

Vol 21 (12) ◽

pp. 2824-2837 ◽

Cited By ~ 7

Author(s):

Martina Mihelicova ◽

Zachary Siegel ◽

Meredyth Evans ◽

Abigail Brown ◽

Leonard Jason

Keyword(s):

Lived Experience ◽

Health Professionals ◽

Coping Mechanisms ◽

Myalgic Encephalomyelitis ◽

Future Research ◽

Identity Change ◽

Guilt Feeling ◽

Parents Experiences

Experiences of parents who care for sons or daughters with severe myalgic encephalomyelitis are rarely discussed within the literature. Narratives of parent–carers in Lost Voices from a Hidden Illness were analyzed using interpretative phenomenological analysis. This study aimed to give voices to those who care for individuals with myalgic encephalomyelitis and are often stigmatized and inform future research supporting parent–carers. Results included themes of identity change, guilt, feeling like outsiders, uncertainty, changing perceptions of time, coping mechanisms, and improvement/symptom management. Findings could inform the development of carer-focused interventions and provide vital information to health professionals about parent–carers’ lived experience.

The impact of socio-cultural values on autistic women: An interpretative phenomenological analysis

Autism ◽

10.1177/13623613211037896 ◽

2021 ◽

pp. 136236132110378

Author(s):

Stella Mo ◽

Nina Viljoen ◽

Shivani Sharma

Keyword(s):

Intellectual Disabilities ◽

Cultural Values ◽

Sense Of Self ◽

Cultural Beliefs ◽

Structured Interviews ◽

Dominant Culture ◽

Norms And Values ◽

The Impact

It is well recognised that culture plays an important role in how people experience the world. However, there is limited knowledge on the impact of socio-cultural norms and values on the lives of autistic women. This qualitative study used individual semi-structured interviews to explore how eight cis-gendered autistic women, without co-occurring intellectual disabilities, describe dominant socio-cultural beliefs, values and norms and their influence on their own sense of self. Findings elucidated three interdependent themes related to the ‘pervasive influence of cultural values’, ‘individualisation as an autistic woman’ and ‘social connectivity’. Autistic women described how they experienced their environments and made choices about their place within the dominant culture and the impact of these decisions on their identities and experience. The findings of this study have implications for the continued need to shift societal and clinical attitudes towards understanding and appreciating diversity among autistic women. Lay abstract Autistic women with average or above intellectual abilities are often overlooked clinically or identified at older ages compared to autistic males. Their experiences can provide insight into the socio-cultural factors that impact on how they develop and are seen by others. This study asked autistic women to describe the culture around them and explore how this has influenced their lived experiences. Individual semi-structured interviews were conducted with eight autistic women without a co-occurring diagnosis of intellectual disabilities. These were used for interpretative phenomenological analysis. Overall, we found three closely connected themes on the pervasive influence of cultural values on autistic women, how autistic women define themselves and the importance of connecting with society. These findings suggest that dominant cultural beliefs, values and norms effect how autistic women are recognised by others and develop their sense of self. Broadening how people think about autistic women in society and clinically may benefit how we identify and support autistic women.

Sports effects on ethical judgement skills of successful entrepreneurs: adaptation of interpretative phenomenological analysis

Journal of Entrepreneurship in Emerging Economies ◽

10.1108/jeee-08-2020-0305 ◽

2021 ◽

Vol ahead-of-print (ahead-of-print) ◽

Author(s):

Nico van Rensburg ◽

Ogujiuba Kanayo

Keyword(s):

Athletic Training ◽

Small Sample ◽

Primary Data ◽

Ethical Judgement ◽

Content Type ◽

Active Involvement ◽

Successful Entrepreneurs ◽

Purpose This paper aims to identify how entrepreneurs’ active involvement in sports/athletic training affects and adds to their overall ethical judgement skills within and outside the workplace. Design/methodology/approach This study adopted a qualitative approach and included a combination of 12 male and female entrepreneurs who were purposively selected based on the study’s requirements. The primary data was collected through semi-structured one-on-one interviews, and interpretative phenomenological analysis served as the primary method of data analysis. Findings Findings from this study suggest that entrepreneurs’ active involvement in sports/athletic training does indeed influence their ethical judgement skills all-round. Arising from a combination of sports involvement factors, a unique group of underlying elements surfaced that proves valuable accustomed relationships concerning the significant impact sports/athletic training have on successful entrepreneurs’ ethical judgement skills. Research limitations/implications The active involvement in sports/athletic training undoubtedly plays a vital role in achieving entrepreneurs’ daily ethical judgement ability. However, this study was limited to the opinion of a small sample of participants in a specific field. Also, this study’s phenomenological nature requires the researcher’s interpretation of the results to be viewed as the truth. Practical implications This study provides a new perspective and validates how purposeful involvement in sports/athletic training regimens can boost the ethical judgement skills of entrepreneurs all-round. This study also proves powerful and new insight into the unique relationships among the accustomed factors and the underlying elements thereto – contributing beyond existing theory. Originality/value This study is novel and provides new and powerful insight into the ethical judgement skills and benefits derived thereof that can be developed by entrepreneurs from the active involvement in sports/athletic training.

A functional model explaining the dynamics of flourishing during adolescence: an interpretative phenomenological analysis

Qualitative Research Journal ◽

10.1108/qrj-08-2021-0086 ◽

2022 ◽

Vol ahead-of-print (ahead-of-print) ◽

Author(s):

Durgesh Nandinee ◽

Suvashisa Rana ◽

Naga Seema

Keyword(s):

Family Environment ◽

Functional Model ◽

Content Type ◽

Cultural Component ◽

Study Participants ◽

Depth Interviews ◽

Transitional Phase ◽

PurposeThe objectives of the study were to explore the lived experiences of adolescents for understanding the process of their flourishing and develop a functional model to explain the dynamics of flourishing during adolescence.Design/methodology/approachGuided by the qualitative approach, the authors used interpretative phenomenological analysis (IPA) to explore how various factors affect the process of flourishing during adolescence. The authors conducted in-depth interviews with 10 adolescents to collect qualitative data.FindingsA total of eight boosters (four internal and four external) and seven barriers (five internal and two external) emerged. The results highlighted the importance of a functional model that explained the dynamics of adolescents' flourishing. Though the authors conceded that the presence of boosters and absence of barriers were instrumental in enhancing flourishing during adolescence, based on the extant literature, the authors assumed the existence and operation of other intra-individual and inter-individual factors or correlates.Research limitations/implicationsFirst, the study participants are school-going adolescents living in a supported urban family environment where expectations to study and achieve are an important cultural component. Second, the study has focussed on the participants belonging to late adolescence—a transitional phase to emerging adulthood.Practical implicationsThere are three implications of the study—theoretical (conceptualisation of a functional model), practical (construction of a new measure of flourishing) and clinical (designing intervention programmes to enhance positive living in adolescents).Originality/valueThe study has provided a deeper insight into adolescents' flourishing from insiders' perspectives using the framework of IPA and discovered and elaborated a functional model of adolescents' flourishing.