scholarly journals A Prospective Study to Assess the Quality of Life in Children with Newly Diagnosed Asthma and Their Caregivers using the Pediatric Asthma Quality of Life Questionnaire

2020 ◽  
Vol 11 ◽  
pp. 215013272096127
Author(s):  
Monika Battula ◽  
Preethi Arunashekar ◽  
Vinoth Ponnurangam Nagarajan
Keyword(s):  
Quality Of Life ◽  
Prospective Study ◽  
Pediatric Asthma ◽  
Clinical Severity ◽  
Life Questionnaire ◽  
Newly Diagnosed ◽  
Asthmatic Children ◽  
Quality Of Life Questionnaire ◽  
Significant Change

Objectives: The study aims to assess the quality of life (QOL) in newly diagnosed asthmatic children and their caregivers before and after treatment using mini pediatric asthma quality of life questionnaire (PAQLQ) and pediatric asthma caregivers quality of life questionnaire (PACQLQ) and to compare their quality of life with ACS (asthma clinical severity score). Materials and Methods: This prospective study was done among 99 children and their caregivers, who were interviewed using mini PAQLQ and PACQLQ on 2 occasions: at the time of inclusion and 4 weeks after treatment. During their clinic visit, asthma clinical severity scoring was done, and children were treated according to GINA (Global Initiative for Asthma). Results: After 4 weeks of treatment, there was a significant change in all domains of mini PAQLQ ( P < .001) and PACQLQ ( P < .001). In children, the change in the emotional domain after treatment was minimal when compared to other domains. When ACS was compared with mini PAQLQ and PACQLQ, children with well-controlled asthma had a better quality of life than partially-controlled asthmatic children ( P < .001) and there wasn’t a significant change in the quality of life of the caregivers after treatment ( P = .321) Conclusion: During treatment, QOL of newly diagnosed asthmatic children and their caregivers showed significant improvement but children lagged in their emotional domain. Despite medical intervention, these children also require psychological support and counseling. Also, caregivers didn’t perceive a change in their QOL when compared with ACS and it indicates that parent’s and child health-related quality of life should be taken as independent dimensions.

Pediatric asthma quality of life questionnaire (PAQLQ): Validation among asthmatic children in Thailand

2005 ◽  
Vol 0 (0) ◽  
pp. 051220035135011 ◽  
Author(s):  
Orapan Poachanukoon ◽  
Nualanong Visitsunthorn ◽  
Watcharee Leurmarnkul ◽  
Pakit Vichyanond
Keyword(s):  
Quality Of Life ◽  
Pediatric Asthma ◽  
Life Questionnaire ◽  
Asthmatic Children ◽  
Quality Of Life Questionnaire

scholarly journals Quality of Life of asthmatic children and their caregivers

2019 ◽  
Vol 35 (2) ◽  
Author(s):  
Nahla Khamis Ibrahim ◽  
Maha Alhainiah ◽  
Maie Khayat ◽  
Orjwan Abulaban ◽  
Sarah Almaghrabi ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Pediatric Asthma ◽  
Cross Sectional Study ◽  
University Hospital ◽  
Life Questionnaire ◽  
Cross Sectional ◽  
Asthmatic Children ◽  
Quality Of Life Questionnaire ◽  
Creative Commons

Objectives: To assess Quality of Life (QOL), and its associated factors between asthmatic children and their caregivers, and determine the correlation between QOL of patients and caregivers, at King Abdulaziz University Hospital (KAUH), Jeddah. Methods: A cross-sectional study was conducted among eligible participants who attended Pediatric Pulmonology Outpatient Clinic of KAUH, during 2016/2017. A data collection sheet was used. The standardized Arabic version of Pediatric Asthma Quality of Life Questionnaire (PAQLQ) for children aged 7 - 17 years was completed. The caregiver who accompanied the child fulfilled the Pediatric Asthma Caregiver’s Quality of Life Questionnaire (PACQLQ). Descriptive and inferential analyses were performed. Results: QOL scores were reduced among asthmatic children who had other type of allergy, or a family history of allergies. Uncontrolled management of asthma presented by frequent waking-up at night, frequent wheezes, visiting Emergency Rooms (ER), or hospital admission was associated with poor QOL of both asthmatic children and their caregivers. There is a positive correlation between child symptoms domain of PAQLQ and emotional domain of PACQLQ of their caregivers. Conclusion: Uncontrolled asthma was associated with poor QOL of asthmatic child and caregivers. Better management of asthma is recommended to improve their QOL. How to cite this:Ibrahim NK, Alhainiah M, Khayat M, Abulaban O, Almaghrabi S, Felmban O. Quality of Life of asthmatic children and their caregivers. Pak J Med Sci. 2019;35(2):---------. doi: https://doi.org/10.12669/pjms.35.2.686 This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/3.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.

scholarly journals Health-Related Quality of Life in Transplant-Ineligible Patients With Newly Diagnosed Multiple Myeloma: Findings From the Phase III MAIA Trial

2020 ◽  
pp. JCO.20.01370
Author(s):  
Aurore Perrot ◽  
Thierry Facon ◽  
Torben Plesner ◽  
Saad Z. Usmani ◽  
Shaji Kumar ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Multiple Myeloma ◽  
Phase Iii ◽  
Life Questionnaire ◽  
Newly Diagnosed ◽  
European Organization ◽  
Quality Of Life Questionnaire ◽  
Depth Of Response ◽  
Descriptive System

PURPOSE To evaluate the effects of daratumumab, lenalidomide, and dexamethasone (D-Rd) versus lenalidomide and dexamethasone (Rd) on patient-reported outcomes (PROs) in the phase III MAIA study. PATIENTS AND METHODS PROs were assessed on the European Organization for Research and Treatment of Cancer Quality of Life Questionnaire Core 30-item and the EuroQol 5-dimensional descriptive system at baseline and every 3 months during treatment. By mixed-effects model, changes from baseline are presented as least squares means with 95% CIs. RESULTS A total of 737 transplant-ineligible (TIE) patients with newly diagnosed multiple myeloma were randomly assigned to D-Rd (n = 368) or Rd (n = 369). Compliance with PRO assessments was high at baseline (> 90%) through month 12 (> 78%) for both groups. European Organization for Research and Treatment of Cancer Quality of Life Questionnaire Core 30-item global health status scores improved from baseline in both groups and were consistently greater with D-Rd at all time points. A global health status benefit was achieved with D-Rd, regardless of age (< 75 and ≥ 75 years), baseline Eastern Cooperative Oncology Group (ECOG) performance status score, or depth of response. D-Rd treatment resulted in significantly greater reduction in pain scores as early as cycle 3 ( P = .0007 v Rd); the magnitude of change was sustained through cycle 12. Reductions in pain with D-Rd were clinically meaningful in patients regardless of age, ECOG status, or depth of response. Similarly, PRO improvements were observed with D-Rd and Rd on the EuroQol 5-dimensional descriptive system visual analog scale score. CONCLUSION D-Rd compared with Rd was associated with faster and sustained clinically meaningful improvements in PROs, including pain, in transplant-ineligible patients with newly diagnosed multiple myeloma regardless of age, baseline ECOG status, or depth of treatment response.

Psychometric Properties of the Mini Pediatric Asthma Quality of Life Questionnaire in a US Sample

2016 ◽  
Vol 29 (3) ◽  
pp. 137-142 ◽  
Author(s):  
Rohan Mahabaleshwarkar ◽  
Yhenneko J. Taylor ◽  
Hazel Tapp ◽  
Michael F. Dulin
Keyword(s):  
Quality Of Life ◽  
Psychometric Properties ◽  
Pediatric Asthma ◽  
Life Questionnaire ◽  
Quality Of Life Questionnaire

scholarly journals Pediatric Asthma Caregiver’s Quality of Life Questionnaire is a useful tool for monitoring asthma in children

2011 ◽  
Vol 21 (9) ◽  
pp. 1639-1642 ◽  
Author(s):  
Iwona Stelmach ◽  
Daniela Podlecka ◽  
Katarzyna Smejda ◽  
Paweł Majak ◽  
Joanna Jerzyńska ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Pediatric Asthma ◽  
Life Questionnaire ◽  
Quality Of Life Questionnaire ◽  
Asthma In Children

The Serbian Version of the Pediatric Asthma Quality of Life Questionnaire in Daily Practice

2009 ◽  
Vol 46 (9) ◽  
pp. 936-939 ◽  
Author(s):  
Sofija Cerović ◽  
Zorica Živković ◽  
Branislava Milenković ◽  
Jasmina Jocić Stojanović ◽  
Aleksandra Opanĉina Bajec ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Pediatric Asthma ◽  
Daily Practice ◽  
Life Questionnaire ◽  
Quality Of Life Questionnaire ◽  
Serbian Version
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