scholarly journals Choice, Voice, and Coproduction in Intermediate Care: Exploring Geriatric Patients’ and Their Relatives’ Perspectives on Patient Participation

SAGE Open ◽  
2019 ◽  
Vol 9 (3) ◽  
pp. 215824401987631 ◽  
Author(s):  
Linda Aimée Hartford Kvæl ◽  
Jonas Debesay ◽  
Asta Bye ◽  
Anne Langaas ◽  
Astrid Bergland

Geriatric patients in intermediate care (IC) often do not feel involved in their rehabilitation process. We conducted interviews with 15 patients and 12 relatives to explore their experiences and preferences regarding patient participation in IC and identify types of patient participation and their potential empowering or disempowering effect. The analysis disclosed a lack of patient choice in a predetermined IC pathway. Being deserving of help meant being sick enough and was associated with the compliant patient who fits the system. Some main additional features were the need of a rehabilitation perspective and patient engagement to enable coproduction as well as the important contribution of relatives as advocates and allies. Finally, the results show the patients’ vulnerable voice in the meeting with the experts’ views. The study will add important knowledge on how staff can contribute to the tailoring of good interventions in IC and improve the understanding of underlying structures.

2007 ◽  
Vol 17 (3) ◽  
pp. 199-218 ◽  
Author(s):  
Andrew Wilson ◽  
Suzanne Richards ◽  
Janette Camosso-Stefinovic

Although intermediate care takes a variety of different forms and has developed somewhat differently in different countries, we believe that intermediate-care schemes have enough in common to make it meaningful to examine the relationship between this method of care and the views of older patients receiving either it or its alternatives. This is particularly important as one of the underlying principles of intermediate care is to extend patient choice; furthermore, most intermediate-care services target older people. In this review we examine evidence about whether older people prefer intermediate or hospital care, and what they like and dislike about intermediate care.


2012 ◽  
Vol 16 (4) ◽  
pp. 74-78 ◽  
Author(s):  
Julia Maslowski

To ensure effective management of Canadian healthcare system resources, increasing demands are placed on patients to become further engaged in their health. The registered nurse (RN) must understand the complex factors that influence the provision of meaningful care to successfully work in partnership with patients. ray’s (1989) theory of bureaucratic caring provides a valuable framework through which patient participation may be explored utilizing the social, ethical, and political variables from this theory. The importance of patient engagement with implications for the patient, RN, healthcare team, and larger healthcare system are examined.


1994 ◽  
Vol 57 (2) ◽  
pp. 45-48 ◽  
Author(s):  
Karen R Whalley Hammell

Part 1 of this study examined the range of objectives that must be included in a personal rehabilitation plan, in order to ensure compatibility with clients' goals, values and aspirations. In Part 2, examination is made of the importance of identifying when objectives have been reached and what characteristics these objectives should have for it to be possible to recognise that they have been achieved. This is placed in the context of accountability and the use of outcome measures. Spinal cord injury is again used for illustration. Consideration is given to the possible barriers to active patient participation in the rehabilitation process.


Bioanalysis ◽  
2020 ◽  
Vol 12 (13) ◽  
pp. 957-970
Author(s):  
Christopher Bailey ◽  
Cecilia Arfvidsson ◽  
Lynsey Woodford ◽  
Miné de Kock

This paper shares experiences and learning from introducing patient-centric sampling (PCS) into AstraZeneca trials. Through two case studies we show how modeling approaches can assist pharmacokinetic (PK) bridging studies accounting for blood partitioning and hematocrit and how reduced PK sampling schedules, profiles constructed from composite data (plasma & dry blood) and combined assays (PK & pharmacodynamic) can all reduce patient sampling burden without impacting study outcomes. Following sharing some clinical operational challenges, we finally highlight some key requirements for implementing a patient-centric sampling strategy such as collaborative working across organizational silos, continuous patient engagement throughout the study life cycle and accepting that if the aim is to give patient choice, then one solution (device, procedure and design) will not fit all.


Author(s):  
Alba Carrero-Planells ◽  
Ana Urrutia-Beaskoa ◽  
Cristina Moreno-Mulet

The use of physical restraints is a common practice in the care of hospitalised and institutionalised elderly people. This use is determined by factors related to the patients, their families, the healthcare professionals, the institution, and prevailing social values. Today, however, this practice is often questioned because of its physical, psychological, moral, ethical, and legal repercussions. The present study explores attitudes among healthcare professionals towards the physical restraint of geriatric patients in intermediate care hospitals in Majorca. This study is based on a qualitative design, combining an ethnomethodological approach with critical discourse analysis. The theoretical framework is drawn from Foucault’s work in this field and from Haslam’s theory of mechanisation. Individual interviews will be conducted with physicians, nurses, and nursing assistants at intermediate care hospitals in Majorca. The analysis will focus on these professionals’ knowledge, attitudes, and practices regarding the use of such measures, seeking to identify the factors, especially institutional factors, that determine the use of restraints. It is essential to determine the prevailing culture among healthcare professionals regarding the use of physical restraints on geriatric patients in order to design and propose a more dignified health care model in which such restraints are eliminated.


J ◽  
2020 ◽  
Vol 3 (1) ◽  
pp. 20-31
Author(s):  
Rona Blendell ◽  
Omorogieva Ojo

The aim of this article was to identify the main contributing factors to optimising improved experience and better outcomes for older adults participating in intermediate care setting. Background: Intermediate care is an integrated team intervention for patients experiencing an acute change in their function and well-being. Crisis intervention is one of several intermediate care pathways and provides a timely, person-centred, goal setting assessment to determine appropriate care and support for patients in the community. Method: This systematic review was conducted using key search terms and Boolean operators. A Critical Appraisal Skills Programme (CASP) tool was used to evaluate the studies and the data was extracted and synthesised systematically to develop themes relating to the research question. Results: Seven qualitative primary research studies and one mixed methods study were identified. The main themes were ‘communicating with patients’ and ‘patient participation’. Results showed neither themes are parallel entities but co-dependent. Patient-centred approaches to communication by professionals encouraged active patient participation, in turn optimising patient outcomes. Conclusion: This review showed that patient participation in intermediate care requires professionals using advanced communication skills and taking time to actively listen to what is important to the patients. In addition, poor professional communication resulted in passive patient participation. Implications for future practice are discussed.


Author(s):  
Lawrence C. Becker

This chapter argues, on ethical grounds, that wherever possible patient-participation must be kept consistent with the level of healthy rational agency that is, or might be, available to the patient. Merely compliant patient-participation is not enough. This is also true of patient-adaptation or adjustment. Mere adaptive compliance is not enough. Accepting patient-consent, cooperation, and compliance as an adequate indication of genuine agentic participation is often hard to avoid, but such acceptance is also often inconsistent with appropriate healthcare. These conclusions follow, as a matter of empirically informed practical ethics, from an analysis of the lifelong habilitative tasks that face every human being, and the role that the patient's healthy agency plays in the development, protection, or restoration of the patient's agency itself and the patient's basic good health generally.


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