scholarly journals Mothers’ Perceived Barriers to and Recommendations for Health Care Appointment Keeping for Children Who Have Cerebral Palsy

2019 ◽  
Vol 6 ◽  
pp. 233339361986897 ◽  
Author(s):  
Marilyn Ballantyne ◽  
Laurie Liscumb ◽  
Erin Brandon ◽  
Janice Jaffar ◽  
Andrea Macdonald ◽  
...  

Children with cerebral palsy (CP) require ongoing rehabilitation services to address complex health care needs. Attendance at appointments ensures continuity of care and improves health and well-being. The study’s aim was to gain insight into mothers’ perspectives of the factors associated with nonattendance. A qualitative descriptive design was conducted to identify barriers and recommendations for appointment keeping. Semi-structured interviews were conducted with 15 mothers of children with CP. Data underwent inductive qualitative analysis. Mothers provided rich context regarding barriers confronted for appointment keeping—transportation and travel, competing priorities for the child and family, and health services. Mothers’ recommendations for improving the experience of attending appointments included virtual care services, transportation support, multimethod scheduling and appointment reminders, extended service hours, and increased awareness among staff of family barriers to attendance. The results inform services/policy strategies to facilitate appointment keeping, thereby promoting access to ongoing rehabilitation services for children with CP.

Curationis ◽  
1995 ◽  
Vol 18 (4) ◽  
Author(s):  
M. M. S. Ntshona

Social, economic and health care needs of elderly black persons in Port Elizabeth and areas in its immediate vicinity are investigated. Conclusions are drawn from a sample study of 301 elderly people. The investigation reveals that the majority of pensioners are -women, their educational standard is below standard 10, and they have little vocational or specialized training. A high proportion (86%) of them are breadwinners and therefore they are unwilling to reside in institutions. Recreational facilities are inadequate. Pension payout points are overcrowded and disorganized. Also health care services are inaccessible to most elderly people. In view of these findings, a community-based approach to care for the elderly is recommended. The approach should promote social interaction among elderly through establishment of luncheon clubs and service centres and well-being of all elderly through geriatric clinics as well as home care services for the infirm. This entails an intersectorial collaboration, with the elderly being fully involved and participating. Considering the exponential growth of the elderly population in South Africa, it is imperative that the government and other organizations should take cognizance of studies of this nature when making future decisions as regards the care of this group.


2015 ◽  
Vol 11 (2) ◽  
pp. 73-85 ◽  
Author(s):  
Soorej Jose Puthoopparambil ◽  
Beth Maina Ahlberg ◽  
Magdalena Bjerneld

Purpose – The immigration detention environment largely influences the health and well-being of detainees by either aggravating medical conditions or contributing to new illness. There is limited research on how detainees experience and try to cope with this environment. The purpose of this paper is to describe experiences of detainees in Swedish immigration detention centres. Design/methodology/approach – Semi-structured interviews were conducted in three detention centres with a total of 21 detainees who had been detained for at least two weeks. Interview transcripts were analysed using thematic analysis. Findings – The detainees likened immigration detention to imprisonment. They experienced lack of control over their life situation mainly through arbitrary restrictions and lack of proper response from authorities making it appear futile to seek help. This perceived lack of control forced them into passivity. Differences in amenities provided in the centres were observed and some of these were reported to assist in making detention more bearable. Research limitations/implications – This study provides only one stakeholder perspective. The perspectives of other stakeholders, such as detention staff, health care professionals and volunteers must be explored to improve understanding and mitigate the effects of detention. Originality/value – Irrespective of the better standards of detention in Sweden, the detainees considered detention as imprisonment affecting their health and well-being. If states deem detention to be necessary, improved staff-detainee interaction should be ensured through proper staff training, arbitrary restrictions within detention should be avoided and health care services should be improved.


2002 ◽  
Vol 8 (2) ◽  
pp. 138-147 ◽  
Author(s):  
Mary Patricia Lindsey

Comprehensive health care services respond effectively to the needs of their patients not just in terms of treatment of health problems but also by addressing overall well-being by understanding, informing, involving, counselling and respecting the individual. By contrast, the history of health care for people with learning disabilities has been characterised by a lack of communication and poor understanding of their ordinary and special needs. There have been many barriers to access to health services that most members of the population take for granted. In addition, people with learning disabilities have many special health care needs that also have to be addressed. Therefore, person-centred services must be aware of the wide range of needs to which they must be able to respond while treating each person as an individual (see Box 1).


2017 ◽  
Vol 11 (12) ◽  
pp. 5197
Author(s):  
Sarah Vieira Figueiredo ◽  
Lívia Lopes Custódio ◽  
Aline Mayra Lopes Silva ◽  
Roselene Soares De Oliveira ◽  
Juliana Vieira Figueiredo ◽  
...  

RESUMOObjetivo: compreender o acesso de crianças e adolescentes com deficiências aos serviços de Atenção Primária em Saúde a partir da experiência de familiares. Método: estudo qualitativo, descritivo, exploratório, desenvolvido a partir de entrevistas semiestruturadas, realizadas em hospital de referência pediátrica. Os dados foram analisados pela Técnica de Análise categorial temática. Resultados: os achados revelaram uma subutilização desses serviços em consequência das suas fragilidades em relação à assistência e ao acesso de crianças e adolescentes com deficiências, como ausência de adaptações estruturais para essas pessoas e de profissionais de saúde qualificados. Conclusão: a Atenção Primária precisa passar por reestruturações, tanto em relação às suas condições físicas quanto à capacitação dos seus recursos humanos e criação de estratégias que contribuem para o acesso de infantes com necessidades especiais de saúde. Descritores: Criança; Adolescente; Acesso aos Serviços de Saúde; Atenção Primária à Saúde; Pessoas com Deficiências.ABSTRACTObjective: to understand the access of children and adolescents with disabilities to Primary Health Care services based on family experience. Method: this is a qualitative, descriptive, exploratory study, developed from semi-structured interviews, performed in a pediatric referral hospital. The data were analyzed by the Thematic Categorical Analysis Technique. Results: The findings revealed an underutilization of these services as a result of their weaknesses in the care and access of children and adolescents with disabilities, such as the lack of structural adaptations for these people and qualified health professionals. Conclusion: primary Care needs to undergo restructuring, both in its physical conditions and the training of its human resources and the creation of strategies that contribute to the access of infants with special health needs. Descriptors: Child; Adolescent; Health Services Accessibility; Primary Health Care; Disabled Persons.RESUMENObjetivo: comprender el acceso de niños y adolescentes con deficiencias a los servicios de Atención Primaria en Salud a partir de la experiencia de familiares. Método: estudio cualitativo, descriptivo, exploratorio, desarrrollado a partir de entrevistas semi-estructuradas, realizadas en hospital de referencia pediátrica. Los datos fueron analizados por la Técnica de Análise categorial temática. Resultados: los hallados revelaron una subutilización de esos servicios en consecuencia de sus fragilidades en relación a la asistencia y al acceso de niños y adolescentes con deficiencias, como ausencia de adaptaciones estructurales para esas personas y de profesionales de salud calificados. Conclusión: la Atención Primaria precisa pasar por reestructuraciones, tanto em sus condiciones físicas como en la capacitación de sus recursos humanos y creación de estrategias que contribuyen para el acceso de infantes con necesidades especiales de salud. Descriptores: Niño; Adolescente; Accesibilidad a los Servicios de Salud; Atención Primaria de Salud; Personas con Discapacidad.


2021 ◽  
Vol 15 (6) ◽  
pp. 155798832110626
Author(s):  
Alexa B. D’Angelo ◽  
Kira Argenio ◽  
Drew A. Westmoreland ◽  
Max N. Appenroth ◽  
Christian Grov

Since the onset of the COVID-19 pandemic, global research has suggested that the pandemic has negatively affected lesbian, gay, bisexual, transgender, and queer or questioning (LGBTQ) populations, including by limiting health care access. There is little research on the impact of COVID-19 among transmasculine persons and men assigned female sex at birth (AFAB) in the United States, who face unique health care challenges outside of the pandemic context. Between May and June of 2020, 20 transmasculine individuals and AFAB men who have sex with men participated in semi-structured interviews about their experiences during the early months of the COVID-19 pandemic. Participants were asked how the pandemic affected their access to health care, overall health, and well-being. Interviews were analyzed using an inductive, thematic approach. Participants reported reduced access to in-person health care, which in some cases meant overdue hormone-related bloodwork and unmet health care needs. Most participants reported that they were able to maintain their testosterone regimen, although some were concerned about future access, citing anxiety about potential shortages. Three participants reported canceled or deferred gender-affirming procedures, which they were uncertain would be rescheduled soon. Participants generally reported that the expansion of telehealth improved access to care, particularly for gender-affirming psychotherapy that was otherwise inaccessible or inconvenient prior to the pandemic. Other salient themes include the pandemic’s impact on health behaviors and daily routines. Although the COVID-19 pandemic created new challenges for maintaining health, it also expanded access to gender-affirming health care, largely through the expansion of telehealth. Our findings provide new insights for supporting the health of transmasculine individuals and AFAB men.


2021 ◽  
pp. 097206342110115
Author(s):  
Feryad A. Hussain

Integrative models of health care have garnered increasing attention over the years and are currently being employed within acute and secondary health care services to support medical treatments in a range of specialities. Clinical hypnosis has a history of working in partnership with medical treatments quite apart from its psychiatric associations. It aims to mobilise the mind–body connection in order to identify and overcome obstacles to managing symptoms of ill health, resulting in overall improved emotional and physical well-being. This article aims to encourage the use of hypnotherapy in physical health care by highlighting the effectiveness of hypnosis as an adjunct to medical treatment and identifying barriers preventing further integrative treatments.


Author(s):  
Fatemeh Rahmanian ◽  
Soheila Nazarpour ◽  
Masoumeh Simbar ◽  
Ali Ramezankhani ◽  
Farid Zayeri

AbstractBackgroundA dimension of reproductive health services that should be gender sensitive is reproductive health services for adolescents.ObjectiveThis study aims to assess needs for gender sensitive reproductive health care services for adolescents.MethodsThis was a descriptive cross-sectional study on 341 of health care providers for adolescents in health centers and hospitals affiliated to Shiraz University of Medical Sciences in Iran in 2016. The subjects of the study were recruited using a convenience sampling method. The tools for data collection were: (1) a demographic information questionnaire and; (2) a valid and reliable questionnaire to Assess the Needs of Gender-Sensitive Adolescents Reproductive Health Care Services (ANQ-GSARHS) including three sections; process, structure and policy making for the services. Data were analyzed using SPSS 21.ResultsThree hundred and forty-one health providers with an average working experience of 8.77 ± 5.39 [mean ± standard deviation (SD)] years participated in the study. The results demonstrated the highest scores for educational needs (92.96% ± 11.49%), supportive policies (92.71% ± 11.70%) and then care needs (92.37% ± 14.34%) of the services.ConclusionsProviding gender sensitive reproductive health care services for adolescents needs to be reformed as regards processes, structure and policies of the services. However, the gender appropriate educational and care needs as well as supportive policies are the priorities for reform of the services.


2013 ◽  
Vol 6 (4) ◽  
pp. 317-324 ◽  
Author(s):  
Thomas R. Miller ◽  
Timothy R. Elliott ◽  
Darcy M. McMaughan ◽  
Ashweeta Patnaik ◽  
Emily Naiser ◽  
...  

1998 ◽  
Vol 28 (3) ◽  
pp. 555-574 ◽  
Author(s):  
Larissa I. Remennick ◽  
Naomi Ottenstein-Eisen

The post-1989 immigration wave from the former U.S.S.R. has increased the Israeli population by over 12 percent, seriously affecting the host health care system. This study draws on semi-structured interviews with the immigrants visiting outpatient clinics in the Tel-Aviv area in order to explore organizational and cultural aspects of their encounter with the Israeli medical services. While instrumental aspects of care were seen as an improvement over the Soviet standards, communication between providers and clients was seriously flawed, reflecting both a language barrier and diverse cultures of illness and cure. Many interviewees complained of the impersonal, “technical” attitude of Israeli physicians toward patients and the lack of holism in care, which they allegedly enjoyed before emigration. Some immigrant patients feel deprived of the paternalism of the Soviet medical system, complaining that Israeli providers “forego responsibility” for patients' health. A consumerist approach to medical services is also a novelty, and immigrants have to learn to be informed and assertive clients. Most problems are experienced by the elderly patients; overall, women seem to adjust to the new system better than men.


2020 ◽  
Vol 23 (2) ◽  
pp. 160-171
Author(s):  
Rachel Fisher ◽  
Jasneet Parmar ◽  
Wendy Duggleby ◽  
Peter George J. Tian ◽  
Wonita Janzen ◽  
...  

Introduction Family caregivers (FCGs) play an integral, yet often invisible, role in the Canadian health-care system. As the population ages, their presence will become even more essential as they help balance demands on the system and enable community dwelling seniors to remain so for as long as possible. To preserve their own well-being and capacity to provide ongoing care, FCGs require support to the meet the challenges of their daily caregiving responsibilities. Supporting FCGs results in better care provision to community-dwelling seniors receiving health-care services, as well as enhancing the quality of life for FCGs. Although FCGs rely upon health-care professionals (HCPs) to provide them with support and services, there is a paucity of research pertaining to the type of health workforce training (HWFT) that HCPs should receive to address FCG needs. Programs that train HCPs to engage with, empower, and support FCGs are required. Objective To describe and discuss key findings of a caregiver symposium focused on determining components of HWFT that might better enable HCPs to support FCGs. Methods A one-day symposium was held on February 22, 2018 in Edmonton, Alberta, to gather the perspectives of FCGs, HCPs, and stakeholders. Attendees participated in a series of working groups to discuss barriers, facilitators, and recommendations related to HWFT. Proceedings and working group discussions were transcribed, and a qualitative thematic analysis was conducted to identify key themes. Results Participants identified the following topic areas as being essential to training HCPs in the provision of support for FCGs: understanding the FCG role, communicating with FCGs, partnering with FCGs, fostering FCG resilience, navigating healthcare systems and accessing resources, and enhancing the culture and context of care. Conclusions FCGs require more support than is currently being provided by HCPs. Training programs need to specifically address topics identified by participants. These findings will be used to develop HWFT for HCPs.


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