scholarly journals Validation of online Asthma Control Questionnaire and Asthma Quality of Life Questionnaire

2020 ◽  
Vol 6 (1) ◽  
pp. 00289-2019
Author(s):  
Rishi J. Khusial ◽  
Persijn J. Honkoop ◽  
Victor van der Meer ◽  
Jiska B. Snoeck-Stroband ◽  
Jacob K. Sont
Keyword(s):  
Quality Of Life ◽  
Asthma Control ◽  
Intraclass Correlation ◽  
Correlation Coefficients ◽  
Random Order ◽  
Life Questionnaire ◽  
Asthma Control Questionnaire ◽  
Quality Of Life Questionnaire ◽  
Intraclass Correlation Coefficients

ObjectiveSeveral newly developed eHealth applications use online questionnaires to monitor asthma control. The Asthma Control Questionnaire (ACQ) and Asthma Quality of Life Questionnaire (AQLQ) are two such commonly used questionnaires. These questionnaires are validated for use on paper. This study aims to validate them by assessing the agreement between online and paper versions of the ACQ and AQLQ.MethodsPatients (aged 18 years and older) from the Self-Management in Asthma Supported by Hospitals, ICT, Nurses and General Practitioners (SMASHING)-trial and Davos@home study were included in this study. Patients completed both the paper and online Dutch versions of the ACQ and AQLQ in a random order within a 2-week interval. Agreement between the different versions was assessed with paired t-tests, intraclass correlation coefficients and Bland–Altman plots.ResultsIn total 44 patients were eligible for analysis. The mean difference between the paper and online versions of the ACQ was 0.04 (p=0.40) and for the AQLQ it was 0.08 (p=0.06). The intraclass correlation coefficient scores were 0.94 for the ACQ and 0.95 for the AQLQ.ConclusionThe online versions of the ACQ and AQLQ show high levels of agreement with the paper versions and can therefore be safely used in eHealth applications to respectively monitor asthma control and quality of life.

scholarly journals Reliability and acceptability of the Multiple Sclerosis Quality of Life-29 questionnaire in an English-speaking cohort

2018 ◽  
Vol 25 (11) ◽  
pp. 1539-1542
Author(s):  
Georgina Baker ◽  
Krishnan Padmakumari Sivaraman Nair ◽  
Kathleen Baster ◽  
Rosalba Rosato ◽  
Alessandra Solari
Keyword(s):  
Quality Of Life ◽  
Multiple Sclerosis ◽  
Intraclass Correlation ◽  
Correlation Coefficients ◽  
Life Questionnaire ◽  
Good Test ◽  
Quality Of Life Questionnaire ◽  
Related Quality ◽  
English Speaking

Background: Multiple Sclerosis Quality-of-Life Questionnaire-54 (MSQoL-54) is a disease-specific instrument for assessing health-related quality of life (HRQoL). Due to the number of items, the time taken to complete it is long. A shorter 29-item version, Multiple Sclerosis Quality-of-Life Questionnaire-29 (MSQoL-29) is yet to be evaluated in English. Objective: To assess reliability and acceptability of English version of MSQoL-29. Methods: Among 100 participants with MS who first completed both MSQoL-54 and MSQoL-29, 91 completed MSQoL-29 after 4–8 weeks. We looked for internal consistency (Cronbach’s alpha), acceptability, reliability (intraclass correlation coefficients (ICCs)) and agreement (Bland–Altman plots). Results: ICCs were strongly positive between MSQoL-54 and MSQoL-29 (Physical Health Composite (PHC) –ICC = 0.914, confidence interval (CI) = 0.872–0.942; Mental Health Composite (MHC) – ICC = 0.875, CI = 0.814–0.916) and between the two MSQoL-29 (PHC – ICC = 0.970, CI = 0.955–0.980; MHC – ICC = 0.937, CI = 0.904–0.958). On Bland–Altman plots, the MSQoL-29 scores of 95% of participants during two visits were within the limits of agreement (LOAs). Time taken to complete MSQoL-29 was 7.2 ± 2.9 minutes and MSQoL-54 was 19.79 ± 5.4 minutes ( p = 0.0001). Conclusion: MSQoL-29 has good test–retest reliability in English-speaking population and was quicker to complete.

scholarly journals Características, control de la enfermedad y calidad de vida de los pacientes asignados al ‹‹Programa de Atención al Niño Asmático›› de un centro de atención primaria.

Pediatría ◽  
2020 ◽  
Vol 53 (2) ◽  
pp. 49-55
Author(s):  
Sara María Barbed Ferrández ◽  
María Isabel Moneo Hernández ◽  
Juan José Lasarte Velillas ◽  
Andrés Ruiz Pardo
Keyword(s):  
Quality Of Life ◽  
Asthma Control ◽  
Life Questionnaire ◽  
Asthma Control Questionnaire ◽  
Paediatric Asthma ◽  
Quality Of Life Questionnaire ◽  
Calidad De Vida

Objetivos: Evaluar las características clínicas, el grado de control de la enfermedad y calidad de vida de cuidadores de pacientes y pacientes asignados al «Programa de Atención al Niño Asmático» en un centro de atención primaria. Métodos: Estudio descriptivo observacional, con recolección prospectiva de datos procedentes de 3 cuestionarios estandarizados, entregados al paciente o cuidadores: Asthma Control Questionnaire(ACQ)TM, Paediatric Asthma Quality of Life Questionnaire(PAQLQ)TM y Paediatric Asthma Caregivers Quality of Life Questionnaire(PACQLQ)TM y recolección retrospectiva de datos procedentes de la historia clínica.  La muestra proviene del “Programa de Atención al Niño Asmático” de un centro de salud. Resultados: El 40% de los pacientes presentaban antecedente materno o paterno de asma y el 80% antecedente personal de dermatitis atópica, rinitis alérgica o alergia alimentaria. La media de los resultados de las escalas fue de ACQTM: 0.87 +/- 1.06 puntos (rango 0 – 3.6). Media de resultado PAQLQTM: 6.08 +/- 0.77 (rango 5 – 7).  Media de PACQLQTM: 5.48 +/- 1.06 (rango 3 – 7). En pacientes con ACQTM <0.5 puntos, la media de puntuación en PACQLQTM fue de: 6.30 +/- 0.83. En pacientes con ACQTM >1 fue de: 4.66 +/- 0.72. Conclusiones: La presencia de atopia personal y el antecedente familiar de asma es el factor de riesgo más relacionado con el desarrollo de asma en nuestro estudio. El grado de control de asma en la muestra es mejorable, relacionándose un peor control de la enfermedad con peor puntuación en la escala de calidad de vida, siendo necesario implementar medidas de mejora en el ámbito educativo, clínico y asistencial.

scholarly journals The Psychometric Properties of the Persian Migraine-Specific Quality of Life Questionnaire Version 2.1 in Episodic and Chronic Migraines

2013 ◽  
Vol 2013 ◽  
pp. 1-6 ◽  
Author(s):  
Alireza Zandifar ◽  
Samaneh Sadat Masjedi ◽  
Faraidoon Haghdoost ◽  
Fatemeh Asgari ◽  
Navid Manouchehri ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Psychometric Properties ◽  
Intraclass Correlation ◽  
Correlation Coefficients ◽  
Episodic Migraine ◽  
Life Questionnaire ◽  
Intraclass Correlation Coefficients ◽  
Questionnaire Version ◽  
The Difference

Background. Migraine-specific quality of life (MSQ) is a valid and reliable questionnaire. Linguistic validation of Persian MSQ questionnaire, analysis of psychometric properties between chronic and episodic migraine patients, and capability of MSQ to differentiate between chronic and episodic migraines were the aims of this study.Method. Participants were selected from four different neurology clinics that were diagnosed as chronic or episodic migraine patients. Baseline data included information from MSQ v. 2.1, MIGSEV, SF-36, and symptoms questionnaire. At the third week from the baseline, participants filled out MSQ and MIGSEV. Internal consistency (Cronbach alpha) and test-retest reproducibility (intraclass correlation coefficients) were used to assess reliability. Convergent and discriminant validities were also assessed.Results. A total of 106 participants were enrolled. Internal consistencies of MSQ among all patients, chronic and episodic migraines, were 0.92, 0.91, and 0.92, respectively. Test-retest correlation of MSQ dimensions between visits 1 and 2 varied from 0.41 to 0.50. Convergent, item discriminant, and discriminant validities were approved. In all visits MSQ scores were lower in chronic migraine than episodic migraine; however, the difference was not statistically significant.Conclusion. Persian translation of MSQ is consistent with original version of MSQ in terms of psychometric properties in both chronic and episodic migraine patients.

scholarly journals Relation of Asthma Control with Quality of Life among a Sample of Egyptian Asthmatic School Children

2019 ◽  
Vol 7 (17) ◽  
pp. 2780-2785
Author(s):  
Hala G. Elnady ◽  
Lobna S. Sherif ◽  
Rania N. Sabry ◽  
Dina Abu Zeid ◽  
Hanan Atta ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Asthma Control ◽  
Asthma Severity ◽  
Physical Symptoms ◽  
Life Questionnaire ◽  
Asthma Control Questionnaire ◽  
Asthmatic Children ◽  
Asthmatic Patients ◽  
Egyptian Children

BACKGROUND: Asthma is considered a chronic health illness that not only resulted in physical symptoms but also emotional effects. It is; therefore, so important to assess the quality of life of asthmatic patients besides their level of disease control. AIM: To determine the correlation of asthma control with the health-related quality of life (HRQOL) of asthmatic children in Egypt. METHODS: One hundred and twenty-eight asthmatic Egyptian children were enrolled in the study. They were subjected to asthma severity grading, asthma control questionnaire (ACQ) and pediatric asthma quality of life questionnaire (PAQLQ). Studied cases were taken from 6 primary and preparatory schools, Giza governorate. RESULTS: The mean child control score was significantly higher in not well-controlled asthmatics compared to well-controlled asthmatics (p < 0.005). The not well controlled asthmatic children showed significantly lower activity limitation score, symptoms score, and overall asthmatic score compared to controlled asthmatic children (p < 0.05). The severity of asthma shows significant positive correlation with symptoms score, emotional function score and overall asthmatic score (p < 0.05). CONCLUSION: The quality of life for the asthmatic children is strongly correlated with the level of asthma control and severity.

scholarly journals Agreement Between Proxy-Rated and Self-Reported Quality of Life for Persons With Dementia

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 262-262
Author(s):  
Mariko Sakka ◽  
Ayumi Igarashi ◽  
Chie Fukui ◽  
Maiko Noguchi-Watanabe ◽  
Asa Inagaki ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Intraclass Correlation ◽  
Correlation Coefficients ◽  
The Self ◽  
Self Report ◽  
Intraclass Correlation Coefficients ◽  
Proxy Rating ◽  
Self Reports ◽  
Two Measures

Abstract While quality of life (QOL) is an important endpoint of homecare for persons with dementia (PWD), PWDs often have difficulty in articulating their QOL by themselves. Instead proxy-rating is often used. However, evidence is still scarce regarding to what extent proxy-ratings reflect actual QOL of PWDs. We examined the association between self-report QOL by PWDs and proxy-rated QOL. We conducted a questionnaire survey to PWDs who were 75 years and older, their family, and homecare nurse in charge of the PWD. Two measures were used: 1) a newly developed, 4-item self-report for QOL of PWDs, and 2) a standardized, 6-item proxy-rating dementia QOL scale. In the self-report, the PWD were asked about their daily mood or satisfaction in life in brief, easy-to-understand sentences. The self-reports and proxy-ratings were compared using intraclass correlation coefficients (ICC). Data from 382 PWDs, 248 family caregivers and 124 nurses were used. The mean age of PWD was 85.9 years and 60.5% were female. The proxy-rating by nurses were more strongly associated with self-reports, compared to the association between family proxy rating and self-reports (r = 0.351, p &lt; .001; r = 0.236, p &lt; .001, respectively). Proxy ratings by spouses and biological children were significantly associated with self-report (r = 0.257, p =.004; r =. 204, p = .006, respectively), while rating by children-in-law were not (r = 0.217, p = .160). Proxy-ratings may not be an appropriate substitute for self-report. Homecare nurses may evaluate the QOL of PWD better than their family caregiver.

scholarly journals Is ventilation heterogeneity related to asthma control?

2016 ◽  
Vol 48 (2) ◽  
pp. 370-379 ◽  
Author(s):  
Sarah Svenningsen ◽  
Parameswaran Nair ◽  
Fumin Guo ◽  
David G. McCormack ◽  
Grace Parraga
Keyword(s):  
Quality Of Life ◽  
Asthma Control ◽  
Forced Expiratory Volume ◽  
Life Questionnaire ◽  
Strongly Correlated ◽  
Asthma Control Questionnaire ◽  
Asthma Patients ◽  
Ventilation Heterogeneity ◽  
Magnetic Resonance Imaging Mri

In asthma patients, magnetic resonance imaging (MRI) and the lung clearance index (LCI) have revealed persistent ventilation heterogeneity, although its relationship to asthma control is not well understood. Therefore, our goal was to explore the relationship of MRI ventilation defects and the LCI with asthma control and quality of life in patients with severe, poorly controlled asthma.18 patients with severe, poorly controlled asthma (mean±sd 46±12 years, six males/12 females) provided written informed consent to an ethics board approved protocol, and underwent spirometry, LCI and 3He MRI during a single 2-h visit. Asthma control and quality of life were evaluated using the Asthma Control Questionnaire (ACQ) and Asthma Quality of Life Questionnaire (AQLQ). Ventilation heterogeneity was quantified using the LCI and 3He MRI ventilation defect percent (VDP).All participants reported poorly controlled disease (mean±sd ACQ score=2.3±0.9) and highly heterogeneous ventilation (mean±sd VDP=12±11% and LCI=10.5±3.0). While VDP and LCI were strongly correlated (r=0.86, p<0.0001), in a multivariate model that included forced expiratory volume in 1 s, VDP and LCI, VDP was the only independent predictor of asthma control (R2=0.38, p=0.01). There was also a significantly worse VDP, but not LCI in asthma patients with an ACQ score >2 (p=0.04) and AQLQ score <5 (p=0.04), and a trend towards worse VDP (p=0.053), but not LCI in asthma patients reporting ≥1 exacerbation in the past 6 months.In patients with poorly controlled, severe asthma MRI ventilation, but not LCI was significantly worse in those with worse ACQ and AQLQ.

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