Patient Therapeutic Education (PTE) in the rehabilitation process of stroke patients: improving self management and fostering transition from hospital to community

2015 ◽  
Author(s):  
Mariangela Taricco
Keyword(s):  
Therapeutic Education ◽  
Self Management ◽  
Stroke Patients ◽  
Rehabilitation Process ◽  
Patient Therapeutic Education

scholarly journals Development and Local Contextualization of Mobile Health Messages for Enhancing Disease Management Among Community-Dwelling Stroke Patients in Rural China: Multimethod Study

10.2196/15758 ◽  
2019 ◽  
Vol 7 (12) ◽  
pp. e15758
Author(s):  
Enying Gong ◽  
Wanbing Gu ◽  
Erdan Luo ◽  
Liwei Tan ◽  
Julian Donovan ◽  
...  
Keyword(s):  
Pilot Study ◽  
Secondary Prevention ◽  
Mobile Phone ◽  
Rural China ◽  
Text Messages ◽  
Community Dwelling ◽  
Self Management ◽  
Stroke Patients ◽  
Dispatching Algorithm ◽  
Depth Interviews

Background Rural China has experienced an increasing health burden because of stroke. Stroke patients in rural communities have relatively poor awareness of and adherence to evidence-based secondary prevention and self-management of stroke. Mobile technology represents an innovative way to influence patient behaviors and improve their self-management. Objective This study is part of the System-Integrated Technology-Enabled Model of Care (the SINEMA trial) to improve the health of stroke patients in resource-poor settings in China. This study aimed to develop and pilot-test a mobile phone message–based package, as a component of the SINEMA intervention. Methods The SINEMA trial was conducted in Nanhe County, Hebei Province, China. A total of 4 villages were selected for pretrial contextual research and pilot study. The 5 stages for developing the mobile phone messages were as follows: (1) conducting literature review on existing message banks and analyzing the characteristics of these banks; (2) interviewing stroke patients and caregivers to identify their needs; (3) drafting message contents and designing dispatching algorithms for a 3-month pilot testing; (4) collecting feedback from pilot participants through questionnaire survey and in-depth interviews on facilitators and barriers related to their acceptance and understanding of messages; and (5) finalizing the message-based intervention based on participants’ feedback for the SINEMA trial. Results On the basis of 5 existing message banks screened out of 120 papers and patients’ needs identified from 32 in-depth interviews among stroke patients and caregivers, we developed a message bank containing 224 messages for a pilot study among 54 community-dwelling stroke patients from 4 villages. Of 54 participants, 51 (response rate: 94.4%) completed the feedback survey after receiving daily messages for 3 months. Participants’ mean age was 68 years (SD 9.2), and about half had never been to school. We observed a higher proportion of participants who were in favor of voice messages (23/42, 54%) than text messages (14/40, 35%). Among participants who received voice messages (n=43) and text messages (n=40), 41 and 30, respectively, self-reported a full or partial understanding of the contents, and 39 (39/43, 91%) and 32 (32/40, 80%), respectively, rated the messages as helpful. Analyses of the 32 interviews further revealed that voice messages containing simple and single-theme content, in plain language, with a repeated structure, a slow playback speed, and recorded in local dialect, were preferred by rural stroke patients. In addition, the dispatching algorithm and tools may also influence the acceptance of message-based interventions. Conclusions By applying multiple methodologies and conducting a pilot study, we designed and fine-tuned a voice message–based intervention package for promoting secondary prevention among community-dwelling stroke patients in rural China. Design of the content and dispatching algorithm should engage both experts and end users and adequately consider the needs and preferences of recipients.

Frustrated and invisible--younger stroke patients' experiences of the rehabilitation process

2003 ◽  
Vol 25 (15) ◽  
pp. 867-874 ◽  
Author(s):  
JENNY RÖDING ◽  
BRITTA LINDSTRÖM ◽  
JAN MALM ◽  
ANN ÖHMAN
Keyword(s):  
Stroke Patients ◽  
Rehabilitation Process

Gaucher disease: Lived experience of patients in the context of a French national patient therapeutic education program

2015 ◽  
Vol 114 (2) ◽  
pp. S28-S29
Author(s):  
Fabrice Camou ◽  
Arnaud Alessandrin ◽  
Eva Toussaint ◽  
Fabienne Eyquard ◽  
Martine Bonnouvrier ◽  
...  
Keyword(s):  
Lived Experience ◽  
Education Program ◽  
Gaucher Disease ◽  
Therapeutic Education ◽  
National Patient ◽  
Patient Therapeutic Education

scholarly journals Process evaluation of the Restore4stroke Self-Management intervention ‘Plan Ahead!’: a stroke-specific self-management intervention

2016 ◽  
Vol 30 (12) ◽  
pp. 1175-1185 ◽  
Author(s):  
Nienke S Tielemans ◽  
Vera PM Schepers ◽  
Johanna MA Visser-Meily ◽  
Jolanda CM van Haastregt ◽  
Wendy JM van Veen ◽  
...  
Keyword(s):  
Peer Support ◽  
Mixed Method ◽  
Qualitative Data ◽  
Action Planning ◽  
Self Management ◽  
Planning Tool ◽  
Stroke Patients ◽  
Management Intervention ◽  
Management Interventions ◽  
Intervention Plan

Objective: To investigate whether the self-management intervention was implemented as intended. Additionally, we studied involvement in and satisfaction with the intervention among patients, their partners and therapists. Design: Mixed method, prospective study. Setting: Outpatient facilities of hospitals/rehabilitation centres. Participants: Stroke patients, their partners and therapists from the experimental arm of the Restore4Stroke Self-Management study. Intervention: ‘Plan Ahead!’ is a 10-week self-management intervention for stroke patients and partners, consisting of seven two-hour group sessions. Proactive action planning, education and peer support are main elements of this intervention. Main measures: Session logs, questionnaires for therapists, patients and their partners, and focus groups. Data analysis: Qualitative data were analysed with thematic analysis supplemented by quasi-statistics. Quantitative data were reported as descriptive statistics. Results: The study sample consisted of 53 patients and 26 partners taking part in the intervention, and all therapists delivering the intervention ( N = 19). At least three-quarters of the intervention sessions were attended by 33 patients and 24 partners. On a scale from 1 to 10, patients, partners and therapists rated the intervention with mean scores of 7.5 (SD1.6), 7.8 (SD.7) and 7.4 (SD.7), respectively. Peer support was the most frequently appreciated element for participants and therapists. The proactive action planning tool was adequately applied in 76 of the 96 sessions. Conclusion: Although the target audience was reached and both participants and therapists were satisfied with the intervention, the proactive action planning tool that distinguishes the current intervention from existing stroke-specific self-management interventions was only partly implemented according to protocol.

scholarly journals The influence of dance-based activities on recovery and improvement of motor functions in post-stroke patients: A systematic review

2019 ◽  
Vol 9 (2) ◽  
pp. 57-67
Author(s):  
Jelena Nikolić ◽  
Fadilj Eminović ◽  
Ljiljana Šimpraga ◽  
Angelka Pešterac-Kujundžić
Keyword(s):  
Motor Skills ◽  
Causes Of Death ◽  
Rehabilitation Program ◽  
Clinical Syndrome ◽  
Stroke Patients ◽  
Research Papers ◽  
Motor Functions ◽  
Rehabilitation Process ◽  
Post Stroke ◽  
Motor Abilities

Stroke is a clinical syndrome, and one of the leading causes of death and disability, occurring under the influence of a large number of risk factors. The symptoms of a stroke are in correlation with the size, time and location of the lesion. Rehabilitation, which involves the application of conventional and supplementary methods, relates to the assessment of the ability, the level of damage of the affected functions, and an adequately designed rehabilitation program. The use of dance, as a rehabilitation procedure in post-stroke patients, requires listening and active participation of an individual with a specific motor reaction to the stimulus. The primary aim of this article is to demonstrate the importance and effects of the application of dance in the rehabilitation process in post-stroke patients, with a special emphasis on the process of improving motor skills and functions. In accordance with the set criteria and purpose of study, scientific research papers were collected and analysed from the PubMed/MEDLINE, Science Direct and Oxford Academic databases, all published in the period between 2010 and 2019, and all indicating the importance of the application of dance when treating post-stroke conditions. The obtained results suggest that dance, which is basically a sports-recreational activity, when applied for therapeutic purposes in persons after stroke, contributes to the development and recovery of motor abilities, balance, mobility, endurance, coordination, motor skills, stance, walking and precision. Also, dancing is of great importance for the improvement of the functioning of the whole organism, which directly or indirectly affects the recovery of motor functions and the overall welfare of an individual.

scholarly journals From the experience of planning a life with diabetes to the mechanisms of the management of illness

2019 ◽  
Vol 29 (Supplement_4) ◽  
Author(s):  
M M Mathilde ◽  
W A André ◽  
K N P Paul
Keyword(s):  
Quality Of Life ◽  
Improve Patient Care ◽  
Lessons Learned ◽  
The Body ◽  
Therapeutic Education ◽  
Self Management ◽  
Diabetic Patients ◽  
Sources Of Information ◽  
Forms Of Knowledge

Abstract Background In the context of chronic diseases, it is now recognized that experiences of planning a new life with diabetes are very informative, and are a source of knowledge that can be used to improve patient care and quality of life. However, the professionals in health and the patients’ therapeutic education are still struggling to translate this knowledge into their practices or to make use of it, as long as its forms remain largely unknown and it is not known how to identify these. Objective: The study aims to identify these knowledges and to report on how it is produced, based on an analysis of the experiences of diabetic patients in Yaoundé, Cameroon. Methods The study combines a phenomenographic approach aiming at ethnographing the form and contents of lessons learned from life experiences with diabetes; and an operation of reflexive ethnography centered on the patient, apprehending the process of elaboration or production of these teachings. It includes six diabetics selected from the typical sampling method. The data collected were analysed using paradoxical analysis and interpreted in a pragmatic perspective. Results The results reveal various mechanisms of self-management of the disease and stigma, developed by patients, such as: identity recomposition; valorization of treatment by promoting its benefits to others; control of information about one’s illness oscillating between concealment and disclosure; therapeutic adjustments according to the life situations or interactions; rearrangement of individual and family habits; listening and decoding of the language of illness, body and the effects of food on the body; learning of conceptualized knowledge about diabetes and nutrition through various sources of information. Conclusions the study suggests that these mechanisms should be considered as relevant forms of knowledge; and the should be used to improve both preventive, therapeutic and educational practices and the quality of life of the diabetics. Key messages The mechanisms of self-management of diabetes and stigma develop by diabetics trough their experience of planning a new life with diabetes should be considered as relevant forms of knowledge. These mechanisms should be used by health professionnals and patients’ education professionals to improve their practices and the quality of life of diabetics.

scholarly journals CPC-049 Evaluation of a Standardised Therapeutic Education Training Session For Hypertensive Stroke Patients

2013 ◽  
Vol 20 (Suppl 1) ◽  
pp. A183.1-A183
Author(s):  
C Vallet ◽  
H Beaussier ◽  
M Bruandet ◽  
M Zuber ◽  
Y Bezie ◽  
...  
Keyword(s):  
Training Session ◽  
Therapeutic Education ◽  
Stroke Patients ◽  
Education Training
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