scholarly journals A formative study exploring perceptions of physical activity and physical activity monitoring among children and young people with cystic fibrosis and health care professionals

2018 ◽  
Vol 18 (1) ◽  
Author(s):  
James Shelley ◽  
Stuart J Fairclough ◽  
Zoe R Knowles ◽  
Kevin W Southern ◽  
Pamela McCormack ◽  
...  
Keyword(s):  
Physical Activity ◽  
Health Care ◽  
Cystic Fibrosis ◽  
Young People ◽  
Health Care Professionals ◽  
Activity Monitoring ◽  
Children And Young People ◽  
Physical Activity Monitoring

scholarly journals Proactive responses to aggressive behaviours in out-of-home care

2010 ◽  
Vol 35 (1) ◽  
pp. 31-38
Author(s):  
Stephen Larmar ◽  
Julie Clark
Keyword(s):  
Health Care ◽  
Young People ◽  
Home Care ◽  
Health Care Professionals ◽  
Children And Young People ◽  
The Third ◽  
Out Of Home Care ◽  
Practical Support ◽  
Aggressive Behaviours ◽  
Challenging Behaviours

Children and young people placed in out-of-home care often present with a range of complex and challenging behaviours that place significant stress on carers and other individuals involved in the placement process. The need for practical support, including the facilitation of knowledge sharing opportunities to better support carers and other health care professionals in assisting children and young people in out-of-home care, is of particular importance within the Australian context. This paper is the third in a series of four papers exploring a range of challenging behaviours that may be evidenced in children and young people placed in out-of-home care. The paper focuses on aggressive behaviours in children and adolescents and outlines a working framework to assist carers in responding appropriately to aggressive responses within the out-of-home care context.

scholarly journals Mapping the current psychology provision for children and young people with juvenile dermatomyositis

2021 ◽  
Vol 5 (3) ◽  
Author(s):  
Polly Livermore ◽  
Faith Gibson ◽  
Kathleen Mulligan ◽  
Lucy R Wedderburn ◽  
Liza J McCann ◽  
...  
Keyword(s):  
Health Care ◽  
Young People ◽  
Health Care Professionals ◽  
Juvenile Dermatomyositis ◽  
Children And Young People ◽  
Autoimmune Condition ◽  
Rheumatic Conditions ◽  
Psychosocial Implications ◽  
Current Psychological ◽  
The Uk

Abstract Objectives Juvenile Dermatomyositis (JDM) is a rare, chronic autoimmune condition of childhood, with known psychosocial implications. In this study, we sought to establish current psychological support for children and young people across the UK with rheumatic conditions, with a specific focus on those with JDM. Methods Electronic surveys were distributed to the 15 centres that belong to the JDM Research Group in the UK, collecting responses from health-care professionals in the fields of medicine, nursing and psychology. Results One hundred per cent of professionals from medicine and nursing replied from all 15 centres. Of these, 7 (47%) did not have a named psychologist as part of their rheumatology team, despite the majority [13 (87%)] having >200 paediatric rheumatology patients. Of the remaining centres, hospital psychology provision varied considerably. When rating their service, only 3 (8%) of 40 professionals scored their service as five (where one is poor and five is excellent); there were wide discrepancies in these scores. Many challenges were discussed, including limited psychology provision, lack of time and difficulties in offering support across large geographical areas. Conclusion Many of the challenges discussed are applicable to other centres worldwide. Suggestions have been proposed that might help to improve the situation for children and young people with rheumatic conditions, including JDM. Based on these findings, we suggest that rheumatology teams maximize use of these data to advocate and work toward more comprehensive psychology provision and support in their individual centres.

scholarly journals ‘Snakes & Ladders’: factors influencing access to appropriate care for children and young people with suspected juvenile idiopathic arthritis – a qualitative study

2021 ◽  
Vol 19 (1) ◽  
Author(s):  
Tim Rapley ◽  
Carl May ◽  
Nicola Smith ◽  
Helen E. Foster
Keyword(s):  
Health Care ◽  
Juvenile Idiopathic Arthritis ◽  
Young People ◽  
Health Professionals ◽  
Health Care Professionals ◽  
Paediatric Rheumatology ◽  
Health Practitioner ◽  
Children And Young People ◽  
Appropriate Care ◽  
Initial Symptoms

Abstract Background Many children and young people with juvenile idiopathic arthritis (JIA) experience delay in diagnosis and access to right care. The reasons for delay are multi-factorial and influenced by patient and family, clinician and organisational factors. Our aim was to explore the experiences of care, from initial symptoms to initial referral to paediatric rheumatology. Methods We analysed one-to-one and joint qualitative interviews with families of children with JIA (n = 36) presenting to a regional paediatric rheumatology service in the UK. We interviewed 51 family members (including mothers, fathers, patients, grandmothers and an aunt) and 10 health professionals (including orthopaedic surgeons, paediatricians, paediatric immunologist, General Practitioner and nurse) and a teacher involved in the care pathway of these JIA patients. Interviews were audio-recorded and analysed according to the standard procedures of rigorous qualitative analysis - coding, constant comparison, memoing and deviant case analysis. Results The median age of the children was 6 years old (range 1–17), with a spread of JIA subtypes. The median reported time to first PRh MDT visit from symptom onset was 22 weeks (range 4-364 weeks). Three key factors emerged in the pathways to appropriate care: (i) the persistence of symptoms (e.g. ‘change’ such as limp or avoidance of previously enjoyed activities); (ii) the persistence of parents help-seeking actions (e.g. repeat visits to primary and hospital care with concern that their child is not ‘normal’; iii) the experience and skills of health professionals resulting in different trajectories (e.g. no-real-concern-at-this-point or further-investigation-is-required). JIA was more likely to be considered amongst health practitioner if they had prior experiences of a child with JIA (moreso with a ‘protracted pathway’) or exposure to paediatric rheumatology in their training. Conversely JIA was more likely to be overlooked if the child had comorbidity such as learning disability or a chronic illness. Conclusions Care pathways are often ‘turbulent’ prior to a diagnosis of JIA with physical and emotional distress for families. There is need for greater awareness about JIA amongst health care professionals and observations of change (from family and non-health care professionals such as teachers) are key to trigger referral for paediatric rheumatology opinion.

scholarly journals Access and participation: What factors influence the provision and utilisation of health care services by children with learning disabilities?

2017 ◽  
Vol 41 (S1) ◽  
pp. S452-S452
Author(s):  
A. Rebowska
Keyword(s):  
Health Care ◽  
Learning Disabilities ◽  
Young People ◽  
Intellectual Disabilities ◽  
Health Care Services ◽  
Healthcare Services ◽  
Children And Young People ◽  
Care Services ◽  
Healthcare Needs ◽  
Wide Range

AimsThe aim of this literature review is to explore the range of factors that influence the degree of access to health care services by children and young people with learning disabilities.BackgroundChildren with learning disabilities are at increased risk of a wide range of health conditions comparing with their peers. However, recent reports by UK government as well as independent charities working with children and young people with learning disabilities demonstrated that they are at risk of poor health outcomes as a result of barriers preventing them from accessing most appropriate services.MethodsComprehensive searches were conducted in six databases. Articles were also obtained through review of references, a search of the grey literature, and contacting experts in the field. The inclusion criteria were for studies evaluating access to healthcare services, identification and communication of health needs, organisational aspects impacting on access and utilisation, staff attitudes where they impacted on access, barriers, discrimination in patients with intellectual disabilities age 0–18. The literature search identified a sample of 36 papers. The marked heterogeneity of studies excluded conducting a meta-analysis.ResultsBarriers to access included problems with identification of healthcare needs by carers and healthcare professionals, communication difficulties, the inadequacy of facilities, geographical and physical barriers, organisational factors such as inflexible appointment times, attitudes and poor knowledge base of healthcare staff.ConclusionThe factors identified can serve as a guide for managers and clinicians aiming to improve access to their healthcare services for children and young people with intellectual disabilities.Disclosure of interestThe authors have not supplied their declaration of competing interest.

'Place2Be: advancing mental health care in schools' Catherine Roche

2021 ◽  
Keyword(s):  
Mental Health ◽  
Health Care ◽  
Young People ◽  
Public Mental Health ◽  
Chief Executive ◽  
Health Needs ◽  
Memorial Lecture ◽  
Mental Health Needs ◽  
Children And Young People ◽  
Recorded Lecture

Catherine Roche, Chief Executive, Place2Be, recorded on 16 June 2017 at 'The Jack Tizard Memorial Lecture and Conference; Public mental health for children and young people: addressing mental health needs in schools and communities'. ACAMH members can now receive a CPD certificate for watching this recorded lecture.

Sign in / Sign up

Export Citation Format

Share Document