scholarly journals Cultural adaptation and psychometric evaluation of the Chinese version of the nurse-specific end-of-life professional caregiver survey: a cross-sectional study

2021 ◽  
Vol 20 (1) ◽  
Author(s):  
Zhijie Zou ◽  
Jinbing Bai ◽  
Yaohua Gu ◽  
Qihua Zou ◽  
Canhua Xiao ◽  
...  

Abstract Background Nurses’ palliative and hospice care-specific education is associated with the quality of palliative and hospice care that influences health outcomes of patients with life-limiting illnesses and their caregivers. However, China lacks measures available to assess nurses’ educational needs in palliative and hospice care. The End-of-Life Professional Caregiver Survey (EPCS) is a psychometrically reliable self-reporting scale to measure multidisciplinary professionals’ palliative and hospice care educational needs. This study was performed to explore the psychometric properties of the Chinese version of the EPCS (EPCS-C) among Chinese nurses. Methods We translated and culturally adapted the EPCS into Chinese based on Beaton and colleagues’ instrument adaptation process. A cross-sectional study design was used. We recruited 312 nurses from 1482 nurses in a tertiary hospital in central China using convenience sampling to complete the study. Participants completed the EPCS-C and a demographic questionnaire. Exploratory and confirmatory factor analysis was carried out to test and verify the construct validity of the nurse-specific EPCS-C. Cronbach’s alpha coefficient was used to appraise the reliability of the nurse-specific EPCS-C. Results A three-factor structure of EPCS-C was determined, including cultural, ethical, and national values; patient- and family-centered communication; and effective care delivery. The exploratory factor analysis explained 70.82% of the total variances. The 3-factor solution of the nurse-specific EPCS-C had a satisfactory model fit: χ2 = 537.96, χ2/df = 2.96, CFI = 0.94, RMSEA = 0.079, IFI = 0.94, and GFI = 0.86. Cronbach’s alpha coefficient of the overall questionnaire was 0.96. Conclusions The nurse-specific EPCS-C showed satisfactory reliability and validity to assess nurses’ palliative and hospice care educational need. Further research is required to verify the reliability and validity of the EPCS-C in a larger sample, especially the criterion-related validity.

2021 ◽  
Author(s):  
Rei Oshiro ◽  
Takafumi Soejima ◽  
Sachiko Kita ◽  
Kayla Benson ◽  
Satoshi Kibi ◽  
...  

Abstract Background The 10-item short form of the Posttraumatic Growth Inventory (PTGI-SF) has been utilized worldwide. However, there is no Japanese version. Furthermore, the PTGI-SF does not capture a broader category of existential spiritual growth that has been incorporated in the more recent Expanded version of the PTG Inventory (PTGI-X). Thus, we developed a Japanese version of the Short Form (PTGI-X-SF-J), which reflects more diverse perspectives on existential and spiritual growth. Methods A cross-sectional study using questionnaires was conducted in Japan. The first sample consisted of 408 university students, and the second sample comprised 284 university students. Exploratory factor analysis was performed using data from the first sample. Confirmatory factor analysis was conducted, and reliability and validity were confirmed using the second sample. Results The PTGI-X-SF-J is composed of 10 items including two items from each of the five subscales of the PTGI-X, similar to the original version of the PTGI-SF, and this model fits the data well. Items concerning existential/spiritual change in the PTGI-X-SF-J were “I feel more connected with all of existence” and “I have a greater sense of harmony with the world,” which were not included in the original PTGI-SF. The score of the PTGI-X-SF-J was significantly correlated with the scores of the Core Beliefs Inventory and the Event Related Rumination Inventory-Deliberate; however, no correlation was observed with the scores of the PTSD Checklist for DSM-5. Conclusions We developed the PTGI-X-SF-J using 10 items to measure PTG among people whose first language is Japanese and confirmed its factor structure, reliability, and validity. The PTGI-X-SF-J is useful for assessing PTG more efficiently and accurately as it considers more diverse spiritual/existential experiences of personal growth and reduces physical and psychological burdens due to its brevity.


BMJ Open ◽  
2021 ◽  
Vol 11 (1) ◽  
pp. e042432
Author(s):  
Fenghua Lai ◽  
Ling Pei ◽  
Shufan Yue ◽  
Xiaopei Cao ◽  
Haipeng Xiao ◽  
...  

ObjectiveMedical overutilisation and underutilisation affect optimal healthcare. The Medical Maximizer-Minimizer Scale (MMS) was developed to assess individual medical maximising and minimising tendencies. Despite significant improvement in the healthcare system over the past four decades, no psychometric scales to examine treatment maximising and minimising preferences are available in China. This study aimed to translate the MMS into Chinese and examine its reliability and validity in a Chinese population.DesignThis cross-sectional study was conducted in December 2019 through an online survey panel.MethodsThe MMS was translated into a Chinese version (CN-MMS) using a forward–backward translation procedure. Next, a random online survey of the general population in China was conducted. Exploratory factor analysis (EFA) and confirmatory factor analysis were performed to examine the underlying factor structure of the CN-MMS. The internal consistency reliability of the scale was determined using Cronbach’s α coefficient and corrected item-total correlation. A multivariate linear regression analysis was used to examine associations between medical maximising and minimising preferences and demographic variables in the Chinese population.ResultsThis study included 984 participants aged 18–80 years. The CN-MMS retained 10 items, and the EFA supported a two-factor structure. The model fit for this two-factor structure of the CN-MMS was acceptable with χ2/df=3.7, comparative fit index=0.958, goodness-of-fit index=0.951, Tucker-Lewis Index=0.944 and root mean square error of approximation=0.074. The scale had a Cronbach’s α coefficient of 0.864, corrected item-total correlation of 0.451–0.667, and test–retest reliability of 0.815. Significant predictors of CN-MMS total score were nationality and household monthly income.ConclusionsThe CN-MMS showed satisfactory psychometric properties. Therefore, it can be used to investigate the individual medical maximising and minimising tendencies among the general Chinese population.


2021 ◽  
pp. 082585972110507
Author(s):  
Panagiotis Pentaris ◽  
Panayiota Christodoulou

Background: Culture and religion influence lived experience and particularly dying and grieving. Research has largely focused on exploring culturally and religiously sensitive practices, but not necessarily in palliative and hospice care or across nations. Acquired knowledge from the more advanced end-of-life care systems (eg the UK) tends to be generalized to other contexts where its cultural appropriation is not tested. Aim: This study explored the different qualities, among hospice and palliative professionals in Cyprus, describing cultural competence, cultural humility, and religious literacy. Design: A cross-sectional study of 41 palliative and hospice professionals in Cyprus, with the use of a 5-point Likert style questionnaire ( a = 0.898). Setting: The study took place in Cyprus and participants were recruited from across palliative and hospice care organizations, including the only hospice in Cyprus, Cyprus Association of Cancer Patients and Friends (PASYKAF), and the Cyprus Anti-Cancer Society (CACS). Results: This study found that there are four main qualities that lead to effective culturally and religiously sensitive practice—informed decision-making, respect, adaptability, and nonjudgmental practice. Conclusions: Future education and training of professionals can consider these findings to appropriate approaches in practice that fit the Cypriot end-of-life care context more effectively.


2021 ◽  
Author(s):  
Xiaohui Zhang ◽  
Dong Wang ◽  
Mengqi Yao ◽  
Rudan Wan ◽  
Bagen Liao

Abstract Background: There is an increasing concern about the impact of bracing on the quality of life (QoL) of patients with adolescent idiopathic scoliosis (AIS). However, up to now, few multidimensional questionnaires on this impact are available in China. This cross-sectional study aimed to evaluate the reliability and validity of the Chinese version of Brace Questionnaire (C-BrQ).Methods: The BrQ was translated from Greek into Chinese with proper cross-cultural adaptation.An observational, cross-sectional study in Chinese patients with AIS was conducted to measure the temporal stability of C-BrQ using the intraclass correlation coefficient (ICC). The effects of ceiling and floor were evaluated and the reliability was verified by examining the internal consistency. The C-BrQ domains were compared with the domains in C-SRS-22 using Pearson's correlation coefficient to assess the concurrent validity.Results: A total of 208 patients were included in the study. The results of test-retest reliability for each dimension of C-BrQ were desirable. The floor or ceiling effects were not demonstrated in the C-BrQ and C-SRS-22. Satisfactory internal consistency was found in all the C-BrQ domains. Most C-BrQ and C-SRS-22 domains showed satisfactory correlation coefficients, except when vitality and school activity in C-BrQ were compared with self-image, mental health and management satisfaction in C-SRS -22, respectively.Conclusion: C-BrQ is reliable in evaluating the QoL of AIS patients receiving brace treatment.Trial registration: This study protocol was registered with the Chinese Clinical Trial Registry (Registration number: ChiCTR1800018310).


BMJ Open ◽  
2020 ◽  
Vol 10 (11) ◽  
pp. e037282
Author(s):  
Rieko Mutai ◽  
Yoshifumi Sugiyama ◽  
Shuhei Yoshida ◽  
Ryoko Horiguchi ◽  
Takamasa Watanabe ◽  
...  

ObjectivesThe primary objective of this study was to develop the Japanese version of the Patient Centred Assessment Method (PCAM) and its user guide. The secondary objective was to examine the validity and reliability in the primary care setting.DesignCross-sectional study.SettingThree family physician teaching clinics located in urban residential areas in Tokyo, Japan.ParticipantsPatients who were aged 20 years or older, and who had an appointment with physicians at the three participating clinics.Main outcome measuresPatient complexity measured by PCAM and complexity/burden level measured by a Visual Analogue Scale (VAS).ResultsAlthough confirmatory factor analysis using a model described in a previous study revealed that the indices did not meet the criteria for good fit, exploratory factor analysis revealed a new three-factor structure of ‘Personal well-being,’ ‘Social interaction’ and ‘Needs for care/service.’ Cronbach’s alpha of PCAM was 0.86. Spearman’s rank correlation coefficients between PCAM scores and VAS scores were 0.51 for complexity (p<0.001) and 0.41 for burden (p<0.001). There were 42 patients (14.3% of total patients) with PCAM scores greater than its mean of 16.5 but with complexity VAS scores less than its mean of 20.8.ConclusionsThe Japanese version of PCAM and its user guide were developed through Japanese translation and cultural adaptation by cognitive debriefing. PCAM is a valid and reliable tool to assess patient complexity in the primary care settings in Japan. Additionally, although the correlation between total PCAM scores and complexity/burden as assessed by VAS was moderate, PCAM can more precisely identify patient complexity than skilled physician’s intuition.


2019 ◽  
Vol 16 (1) ◽  
pp. 75-81 ◽  
Author(s):  
Yoshinori Fuseya ◽  
Shigeo Muro ◽  
Susumu Sato ◽  
Atsuyasu Sato ◽  
Kazuya Tanimura ◽  
...  

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