scholarly journals Community-based support for children who are next-of-kin for a parent experiencing illness or disability – a scoping review

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Anne Kjersti Myhrene Steffenak ◽  
Agneta Anderzén-Carlsson ◽  
Elin Opheim ◽  
Tuva Sandsdalen
Keyword(s):  
Community Health ◽  
Social Services ◽  
Peer Support ◽  
Scoping Review ◽  
Psychosocial Support ◽  
Current Knowledge ◽  
Research Question ◽  
Community Health Services ◽  
Next Of Kin ◽  
Health And Social Services

Abstract Introduction Children who are next-of-kin, for a parent who experience illness or disability, need support. In Norway, guidelines, routines and structured approaches in the community health services are lacking regarding involving children in the care of a parent and for services when supporting children as next-of-kin. Additionally, no existing international review has focused on support from community health and social services for children who are next-of-kin to a parent regardless of the specific illness or disability. Aims This scoping review examined the current knowledge regarding the types of community health and social services support to children 0 to 17 years old living with a parent experiencing illness or disability. The review also identified children’s support preferences and needs. Methods The scoping review involved five stages; identifying research question; identifying relevant articles; selecting articles; charting the data and finally, collating, summarizing and reporting the results. Results Articles which included community health and social services interventions and children’s preferences or needs for support were included. The foci of interventions included preventive education, peer support, psychosocial support, and interventions focusing on family communication and recovery planning. Articles focusing on children’s preferences or need for support described their wish to be recognized as a next-of-kin, having someone to talk to and professional and peer support. Conclusion The review highlighted the importance of children receiving support according to their preferences. It is important to elicit children’s voices, to ensure community health and social services are developed for and tailored to this population.

scholarly journals Peer support workers in co-production and co-creation in public mental health and addiction services: Protocol for a scoping review

PLoS ONE ◽  
2021 ◽  
Vol 16 (3) ◽  
pp. e0248558
Author(s):  
Kristina Bakke Aakerblom ◽  
Ottar Ness
Keyword(s):  
Mental Health ◽  
Social Services ◽  
Peer Support ◽  
Scoping Review ◽  
Lived Experiences ◽  
Mental Health Problems ◽  
Research Question ◽  
Public Mental Health ◽  
Service Users ◽  
Addiction Services

Worldwide, there is a growing interest to employ people with lived experiences in health and social services. Particularly in mental health and addiction services, individuals with lived experience of mental health problems enter the workplace as peer support workers (PSW´s). Their aim in the services is to bring in the perspective of service users in interactive processes at the micro and macro levels. The services´ ability to exploit the knowledge from PSW´s lived experiences will influence both the content and quality of the services, its effectiveness and its capacity to innovate and change. The concepts of co-production and co-creation are used to describe these interactive processes in the services in the literature. While co-production is aimed at improving individual services, co-creation seeks to develop service systems. This scoping review aims to provide an overview of the research status of PSW´s different involvement, in co-production and co-creation, in public mental health and addiction services. Studies describing PSW´s involvement in co-production and co-creation will be contrasted and compared. Knowledge about PSW´s involvement in co-production and co-creation is vital for understanding and further developing these interactive processes with PSW´s. The studies reviewed will describe PSW´s different types of involvement in co-production and co-creation in public mental health and addiction services or across organizational and institutional boundaries. The research question is: How are peer support workers involved in co-production and co-creation in public mental health and addiction services, and what are the described outcomes? Literature searches are conducted in Medline, PsycINFO, Embase, Oria, WorldCat, Google Scholar, Scopus, Academic Search Elite, Cinahl, and Web of Science, from the inception of each database to January 4, 2021. Expected results are that PSW´s are often described as a frontline worker who spends most of their working hours in a joint effort to co-produce with service users. Fewer studies describe PSW´s involved in interactive processes to re-design or transform public services systems. It is anticipated that this scoping review will increase the knowledge of the services’ abilities to exploit PSW´s expertise and inform policy and research.

scholarly journals Strategies for involving patients and the public in scaling-up initiatives in health and social services: protocol for a scoping review and Delphi survey

2021 ◽  
Vol 10 (1) ◽  
Author(s):  
Ali Ben Charif ◽  
◽  
Karine V. Plourde ◽  
Sabrina Guay-Bélanger ◽  
Hervé Tchala Vignon Zomahoun ◽  
...  
Keyword(s):  
Social Services ◽  
Scoping Review ◽  
Delphi Study ◽  
Public Involvement ◽  
Scale Up ◽  
Scaling Up ◽  
Delphi Survey ◽  
The Public ◽  
Health And Social Services ◽  
Scoping Reviews

Abstract Background The scale-up of evidence-based innovations is required to reduce waste and inequities in health and social services (HSS). However, it often tends to be a top-down process initiated by policy makers, and the values of the intended beneficiaries are forgotten. Involving multiple stakeholders including patients and the public in the scaling-up process is thus essential but highly complex. We propose to identify relevant strategies for meaningfully and equitably involving patients and the public in the science and practice of scaling up in HSS. Methods We will adapt our overall method from the RAND/UCLA Appropriateness Method. Following this, we will perform a two-prong study design (knowledge synthesis and Delphi study) grounded in an integrated knowledge translation approach. This approach involves extensive participation of a network of stakeholders interested in patient and public involvement (PPI) in scaling up and a multidisciplinary steering committee. We will conduct a systematic scoping review following the methodology recommended in the Joanna Briggs Institute Reviewers Manual. We will use the following eligibility criteria: (1) participants—any stakeholder involved in creating or testing a strategy for PPI; (2) intervention—any PPI strategy proposed for scaling-up initiatives; (3) comparator—no restriction; (4) outcomes: any process or outcome metrics related to PPI; and (5) setting—HSS. We will search electronic databases (e.g., Medline, Web of Science, Sociological Abstract) from inception onwards, hand search relevant websites, screen the reference lists of included records, and consult experts in the field. Two reviewers will independently select and extract eligible studies. We will summarize data quantitatively and qualitatively and report results using the PRISMA extension for Scoping Reviews (PRISMA-ScR) checklist. We will conduct an online Delphi survey to achieve consensus on the relevant strategies for PPI in scaling-up initiatives in HSS. Participants will include stakeholders from low-, middle-, and high-income countries. We anticipate that three rounds will allow an acceptable degree of agreement on research priorities. Discussion Our findings will advance understanding of how to meaningfully and equitably involve patients and the public in scaling-up initiatives for sustainable HSS. Systematic review registration We registered this protocol with the Open Science Framework on August 19, 2020 (https://osf.io/zqpx7/).

scholarly journals Patient experience surveys for children’s community health services: A scoping review

2021 ◽  
pp. 136749352110058
Author(s):  
Helen J Nelson ◽  
Catherine Pienaar ◽  
Anne M Williams ◽  
Ailsa Munns ◽  
Katie McKenzie ◽  
...  
Keyword(s):  
Health Care ◽  
Health Services ◽  
Community Health ◽  
Patient Experience ◽  
Scoping Review ◽  
Emotional Support ◽  
Community Health Services ◽  
Experience Of Care ◽  
Healthcare Experience

Patient experience surveys have a user focus and measure the quality of person-centered health care for hospital inpatients and consumers of community health services, providing a governance process to evaluate the quality of care and to action improvement. Experience of care has been described as effective communication, respect and dignity, and emotional support. Measurement criteria for these domains are not standardized, leading to inconsistent reporting of patient experience. The objective of this scoping review was to synthesize evidence for measuring experience of care in children’s community health services using the Joanna Briggs Institute framework for scoping review method. Three parent-reported surveys met the inclusion criteria, and 50 survey items were assessed by expert reviewers for fit to domains of healthcare experience. Conceptual domains of parent experience in children’s community health services included respect and dignity, effective communication, and emotional support. A gap was identified, in that few items in identified surveys measured emotional support. This contribution will promote consistent reporting of healthcare experience, informing policy and practice for person-centered health care.

scholarly journals Factors contributing to practitioner choice when declining involvement in legally available care: A scoping protocol

BMJ Open ◽  
2018 ◽  
Vol 8 (8) ◽  
pp. e023901
Author(s):  
Janine Brown ◽  
Donna Goodridge ◽  
Lilian Thorpe ◽  
Mary Chipanshi
Keyword(s):  
Scoping Review ◽  
English Language ◽  
Current Knowledge ◽  
Contextual Information ◽  
Research Question ◽  
Grey Literature ◽  
Professional Networks ◽  
Medical Treatments ◽  
Team Members ◽  
Meta Analyses

IntroductionAs legislation addressing medical treatments continues to evolve, there are several circumstances (eg, abortion, assisted dying) in which health practitioners may choose to not provide legally available care options. It is not always clear what underlies practitioner choice, as some research has suggested non-participation in care provision is not always due to an ethical abstention but may represent other factors. This results in tension between a practitioner’s right to refrain from practices deemed morally objectionable by the practitioner, and the care recipient’s right to access legally available treatments. The aim of this systematic scoping review is to identify the current knowledge regarding all the factors influencing practitioner’s choices when declining involvement in legally available healthcare options.Methods and analysisArksey and O’Malley’s scoping framework in concert with Levacet al’s enhancements will guide the systematic scoping review methodological processes. English language documents from 1 January 1998 to current will be sought using Medline, CINAHL, JSTOR, EMBASE, ProQuest Dissertations and Theses Global, PsychINFO and Sociological Abstracts. MeSH headings, keywords and synonyms will be adjusted using an iterative search process. Theses and dissertations will be included in the search protocol; however, other grey literature will be accessed only as required. Two research team members will screen the abstracts and full articles against inclusion criteria. Article information will be extracted via a data collection tool and undergo thematic analysis. Descriptive summary (visual summary and study contextual information) and a presentation of analytical themes will align findings back to the research question.Ethics and disseminationEthics approval is not required. The Preferred Reporting Items for Systematic Reviews and Meta-Analyses checklist will be used to support transparency and guide translation of findings. Findings will be disseminated through professional networks, in peer-reviewed journals and conferences via abstract and presentation.

scholarly journals The use of music for children and adolescents living with rare diseases in the healthcare setting: a scoping review study protocol

2021 ◽  
Vol 4 ◽  
pp. 52
Author(s):  
Simona Karpaviciute ◽  
Alison Sweeney ◽  
Aimee O‘Neill ◽  
Sandra McNulty ◽  
Thilo Kroll ◽  
...  
Keyword(s):  
Music Therapy ◽  
Rare Diseases ◽  
Scoping Review ◽  
Current Knowledge ◽  
Research Question ◽  
Healthcare Setting ◽  
Well Being ◽  
Positive Effects ◽  
Wide Range ◽  
Scoping Reviews

Background: Interest in the application of music in the health, social care and community contexts is growing worldwide. There is an emerging body of literature about the positive effects of music on the well-being and social relationships of children and adult populations. Music has also been found to promote social interaction, communication skills, and social-emotional behaviours of children with medically complex care needs. Despite significant advancements in the area, to the authors’ knowledge, this is the first scoping review to investigate the evidence for using music therapy and music-based interventions for children living with rare diseases in the healthcare setting. Therefore, the purpose of this study is to conduct a scoping review of the literature to map out the existing studies about the use of music therapy and music-based interventions with children who have rare diseases in the healthcare setting. This review will also identify gaps in current knowledge and use of these interventions. Method: This study follows the Joanna Briggs Institute’s methodology for scoping reviews, utilising Arksey and O’Malley’s six-stage scoping review framework: 1) identifying the research question; 2) identifying relevant studies; 3) study selection; 4) charting the data; 5) collating, summarising and reporting results; and 6) consulting with relevant stakeholders step. A comprehensive search will be conducted in CINAHL Complete; MEDLINE Complete; Psychology and Behavioral Sciences Collection; and PubMed Central databases. A search strategy with selected inclusion and exclusion criteria will be used to reveal a wide range of evidence. This study will include quantitative, qualitative and mixed research methods studies published in English from 2010 to 2020.

scholarly journals PELAYANAN KESEHATAN BERBASIS KOMUNITAS BAGI MASYARAKAT KURANG MAMPU: SEBUAH STUDI DI RSUD CENGKARENG

Sosio Informa ◽  
2014 ◽  
Vol 19 (1) ◽  
Author(s):  
Nursehan Sugiharto
Keyword(s):  
Health Services ◽  
Community Health ◽  
Public Housing ◽  
Social Services ◽  
Community Health Services ◽  
Provincial Government ◽  
Quality Health ◽  
Basic Services ◽  
Quality Health Services

Health services is one of the basic services that are needed by the community. Health services as a part  of social services must also related to the economy. Efforts are made to provide quality health services is certainly not free of costs. Therefore, Jakarta Provincial Government allocated 530 billion rupiahs for health services for Underprivileged and working with 40 hospitals in Jakarta, including Cengkareng Hospital. Excellence Cengkareng Hospital location that is located very close to public housing, becoming its own benefits to the surrounding community, and this can make Cengkareng Hospital as a communitybased hospital.Keywords: health services, underprivileged, cengkareng hospital, community-base hospitalPelayanan kesehatan merupakan salah satu layanan dasar yang sangat diperlukan oleh masyarakat. Pelayanan kesehatan sebagai salah satu bagian dari pelayanan sosial tentunya terkait juga dengan ekonomi. Upaya yang dilakukan dalammemberikan pelayanan kesehatan berkualitas tentunya tak lepas dari biaya-biaya. Oleh karena itu, Pemerintah Provinsi DKI Jakarta mengalokasikan dana sebesar 530 milyar rupiah untuk pelayanan kesehatan bagi masyarakat yang tidak mampu dan bekerja sama dengan 40 rumah sakit di DKI Jakarta termasuk RSUD Cengkareng. Keunggulan lokasi RSUD Cengkareng yang letaknya berada sangat dekat dengan pemukiman umum, menjadi manfaat tersendiri bagi masyarakat sekitar, dan hal ini bisa menjadikan RSUD Cengkareng sebagai rumah sakit berbasis komunitas.Kata Kunci: pelayanan kesehatan, masyarakat tidak mampu, rsud cengkareng, rumah sakit berbasis komunitas. 

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