scholarly journals Anxiety and Fear During the Covid-19 Pandemic: A Web-Based Survey of Thyroid Cancer Survivors

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. A836-A836
Author(s):  
Claire E Graves ◽  
Neha Goyal ◽  
Anna Levin ◽  
Miriam A Nuno ◽  
Jina Kim ◽  
...  
Keyword(s):  
Thyroid Cancer ◽  
Cancer Survivors ◽  
Rank Correlation ◽  
Measurement Information ◽  
Web Based ◽  
Spearman’S Rank Correlation ◽  
Signed Rank ◽  
Younger Age ◽  
Patient Reported ◽  
Doctor's Office

Abstract Background: The coronavirus (COVID-19) pandemic has led to rapid changes in our society and healthcare system. Cancer patients and survivors may be disproportionately affected by these changes, including decreased access to healthcare, increased infection risk, and economic challenges. We sought to determine the effects of the pandemic on thyroid cancer survivors’ quality of life. Methods: An anonymous web-based survey was administered in collaboration with ThyCa: Thyroid Cancer Survivors’ Association, consisting of questions about (1) demographics, (2) thyroid cancer clinical characteristics, (3) attitudes toward and impact of COVID-19, and (4) the Patient-Reported Outcomes Measurement Information System (PROMIS) 29-item profile. The survey was linked on the ThyCa homepage. PROMIS measures were scored using item response theory models with a T-score metric relative to U.S. reference data via the HealthMeasures Scoring Service (https://www.healthmeasures.net). T-scores were analyzed using Mann-Whitney U, Wilcoxon signed-rank, Kruskal-Wallis, and Spearman’s rank correlation tests. Results: From 5/6/2020 - 10/8/2020, 505 participants accessed the survey, and all completed surveys by U.S.-based thyroid cancer survivors were analyzed (n=378, 75%). Mean age was 53 years, 89% were female, 90% were white, 74% had papillary thyroid cancer, 97% had surgery, and 70% received radioactive iodine. The vast majority agreed or strongly agreed (83%) that their lives were very different during COVID-19, as was the way they interacted with their doctors (79%). Less than half (43%) agreed or strongly agreed that they were satisfied with the amount of information from their doctor’s office regarding COVID-19 changes. Compared to previously-published PROMIS data for this population, T-scores were significantly higher in the domain of anxiety/fear (57.8 vs. 56.5, p<0.01) and lower for ability to participate in social roles and activities (46.2 vs. 48.1, p<0.01). Younger age was weakly correlated with greater anxiety/fear (Spearman’s rho=-0.38, p<0.01), and greater anxiety/fear was associated with pending treatment (p<0.01), lower cancer stage (p=0.01), and female sex (p=0.02). Conclusions: During the COVID-19 pandemic, thyroid cancer survivors reported increased anxiety/fear and decreased social participation. In our efforts to care for patients both physically and mentally as the pandemic continues, we must better understand their fears and concerns and improve communication about potential changes to their care.

scholarly journals The Influence of Psychological Factors on the Michigan Hand Questionnaire

Hand ◽  
2016 ◽  
Vol 12 (2) ◽  
pp. 197-201 ◽  
Author(s):  
Yekyoo Oh ◽  
Tessa Drijkoningen ◽  
Mariano E. Menendez ◽  
Femke M. A. P. Claessen ◽  
David Ring
Keyword(s):  
Upper Extremity ◽  
Emotional Health ◽  
Pain Catastrophizing ◽  
Pain Interference ◽  
Measurement Information ◽  
Web Based ◽  
Psychological Measures ◽  
Symptoms Of Depression ◽  
Patient Reported ◽  
Multivariable Regression

Background: Psychosocial factors help account for the gap between impairment and disability. This study examines the relationship between the Michigan Hand Questionnaire (MHQ) and commonly used psychological measures in patients with upper extremity illness. Methods: A cohort of 135 new or follow-up patients presenting to an urban academic hospital–based hand surgeon were invited to complete a web-based version of the MHQ, Abbreviated Pain Catastrophizing Scale (PCS), and two Patient-Reported Outcomes Measurement Information System (PROMIS)-based questionnaires: Pain Interference and Depression. Bivariate and multivariable analyses measured the correlation of these psychological measures with MHQ. Results: Accounting for potential confounding factors in multivariable regression, upper extremity disability as rated by the MHQ was independently associated with PROMIS Depression, PROMIS Pain Interference, visit type, and working status. The model accounted for 37% of the variability in MHQ scores, with PROMIS Pain Interference having the most influence. Conclusion: Among the non-pathophysiological factors that contribute to patient-to-patient variation in MHQ scores, the measure of less effective coping strategies and symptoms of depression were most influential. Our data add to the evidence of the pivotal role of emotional health in upper extremity symptoms and limitations and the importance of psychosocial considerations in the care of hand illness.

Patient-reported outcomes after Silastic replacement of the trapezium for osteoarthritis

2011 ◽  
Vol 37 (3) ◽  
pp. 263-268 ◽  
Author(s):  
N. G. Burke ◽  
J. Walsh ◽  
C. J. Moran ◽  
G. Cousins ◽  
D. Molony ◽  
...  
Keyword(s):  
Rank Correlation ◽  
Dominant Hand ◽  
Work Related ◽  
Spearman’S Rank Correlation ◽  
Trapeziometacarpal Osteoarthritis ◽  
Patient Reported ◽  
Outcome Scores ◽  
And Function ◽  
Mean Time

This retrospective study evaluated 69 Swanson trapezium replacements performed between 1990 and 2009 for trapeziometacarpal osteoarthritis in 58 patients. Pain and function were assessed using the Michigan Hand Questionnaire and the Disability of the Arm, Shoulder and Hand questionnaire. Patients had a mean age of 62 years at the time of surgery, with a mean time of 7.7 years (range 9 months to 19 years) from surgery to follow-up interview. There was no association between outcome scores and the length of follow-up, suggesting that the results are maintained over time (Spearman’s rank correlation test < ±0.2). Scores for activities of daily living and work-related activities were higher when surgery was on the dominant hand ( p < 0.05). Silicone trapezium replacement remains a good option for patients with painful trapeziometacarpal osteoarthritis that has not responded to nonoperative management.

scholarly journals Comparison of a Web-Based Dietary Assessment Tool with Software for the Evaluation of Dietary Records / Primerjava Spletne Aplikacije in Računalniškega Programa Za Ovrednotenje Prehranskih Dnevnikov

2015 ◽  
Vol 54 (2) ◽  
pp. 91-97 ◽  
Author(s):  
Evgen Benedik ◽  
Barbara Koroušić Seljak ◽  
Maša Hribar ◽  
Irena Rogelj ◽  
Borut Bratanič ◽  
...  
Keyword(s):  
Pregnant Women ◽  
Assessment Tool ◽  
Dietary Assessment ◽  
Rank Correlation ◽  
Statistical Correlation ◽  
Web Based ◽  
Software Application ◽  
Open Platform ◽  
Spearman’S Rank Correlation ◽  
Dietary Records

Abstract Background. Dietary assessment in clinical practice is performed by means of computer support, either in the form of a web-based tool or software. The aim of the paper is to present the results of the comparison of a Slovenian web-based tool with German software for the evaluation of four-day weighted paper-andpencil- based dietary records (paper-DRs) in pregnant women. Methods. A volunteer group of pregnant women (n=63) completed paper-DRs. These records were entered by an experienced research dietitian into a web-based application (Open Platform for Clinical Nutrition, OPEN, http://opkp.si/en, Ljubljana, Slovenia) and software application (Prodi 5.7 Expert plus, Nutri- Science, Stuttgart, Germany, 2011). The results for calculated energy intake, as well as 45 macro- and micronutrient intakes, were statistically compared by using the non-parametric Spearman’s rank correlation coefficient. The cut-off for Spearman’s rho was set at >0.600. Results. 12 nutritional parameters (energy, carbohydrates, fat, protein, water, potassium, calcium, phosphorus, dietary fiber, vitamin C, folic acid, and stearic acid) were in high correlation (>0.800), 18 in moderate (0.600-0.799), 11 in weak correlation (0.400-0.599), while 5 (arachidonic acid, niacin, alphalinolenic acid, fluoride, total sugars) did not show any statistical correlation. Conclusion. Comparison of the results of the evaluation of dietary records using a web-based dietary assessment tool with those using software shows that there is a high correlation for energy and macronutrient content.

scholarly journals AO Patient Outcomes Center: Design, Implementation, and Evaluation of a Software Application for the Collection of Patient-Reported Outcome Measures in Orthopedic Outpatient Clinics (Preprint)

2018 ◽  
Author(s):  
Nan E Rothrock ◽  
Michael Bass ◽  
Andrea Blumenthal ◽  
Richard C Gershon ◽  
Beate Hanson ◽  
...  
Keyword(s):  
Patient Outcomes ◽  
User Satisfaction ◽  
Patient Reported Outcomes ◽  
Clinical Care ◽  
Patient Reported Outcome ◽  
Ease Of Use ◽  
Measurement Information ◽  
Web Based ◽  
Software Application ◽  
Patient Reported

BACKGROUND Patient-reported outcomes are increasingly utilized in routine orthopedic clinical care. Computer adaptive tests (CATs) from the Patient-Reported Outcomes Measurement Information System (PROMIS) offer a brief and precise assessment that is well suited for collection within busy clinical environments. However, software apps that support the administration and scoring of CATs, provide immediate access to patient-reported outcome (PRO) scores, and minimize clinician burden are not widely available. OBJECTIVE Our objective was to design, implement, and test the feasibility and usability of a Web-based system for collecting CATs in orthopedic clinics. METHODS AO Patient Outcomes Center (AOPOC) was subjected to 2 rounds of testing. Alpha testing was conducted in 3 orthopedic clinics to evaluate ease of use and feasibility of integration in clinics. Patients completed an assessment of PROMIS CATs and a usability survey. Clinicians participated in a brief semistructured interview. Beta-phase testing evaluated system performance through load testing and usability of the updated version of AOPOC. In both rounds of testing, user satisfaction, bugs, change requests, and performance of PROMIS CATs were captured. RESULTS Patient feedback supported the ease of use in completing an assessment in AOPOC. Across both phases of testing, clinicians rated AOPOC as easy to use but noted difficulties in integrating a Web-based software application within their clinics. PROMIS CATs performed well; the default assessment of 2 CATs was completed quickly (mean 9.5 items) with a satisfactory range of measurement. CONCLUSION AOPOC was demonstrated to be an easy-to-learn and easy-to-use software application for patients and clinicians that can be integrated into orthopedic clinical care. The workflow disruption in integrating any type of PRO collection must be addressed if patients’ voices are to be better integrated in clinical care.

scholarly journals Self-relation of persons with different attitudes to the physical “I” in terms of students of different sexes

2021 ◽  
Vol 27 (2) ◽  
pp. 88-96
Author(s):  
Vera N. Kleva ◽  
Valentina S. Chernyavskaya
Keyword(s):  
Rank Correlation ◽  
Young Men ◽  
Female Students ◽  
Rank Test ◽  
External Appearance ◽  
Psychological Counselling ◽  
Spearman’S Rank Correlation ◽  
Spearman’S Rank Correlation Coefficient ◽  
Signed Rank ◽  
Signed Rank Test

The article substantiates the factors of self-attitude of persons with different attitudes to the physical “Iˮ. The study involved 80 people – students of economic and psychological fields of training, 52 girls and 28 boys. The average age is 19.7 years. Existence of differences in the self-attitude of young men and girls to their physical “Iˮ is proved – young men are more positive about their physical “Iˮ, are characterised by a higher level of self-attitude, than girls. It is proved that the indicators of self-attitude and attitude to one's physical self are closely interrelated in female students. The study was conducted using theoretical analysis, as well as methods – the test questionnaire “Self-relationsˮ by Vladimir Stolin and Sergey Panteleyev; the methodology “Self-relation to the image of the physical Selfˮ by Anna Cherkashina; the questionnaire “Evaluative content interpretation of the components of the external appearance by Vera Labunskaya and Yelena Belugina; as well as the method of associative experiment. Statistical methods of data processing – nonparametric measures (Mann-Whitney U test, Wilcoxon signed-rank test, Spearman's rank correlation coefficient) – were used. The results showed that women's attitudes about themselves are based on attitudes about their physical “Self” (face, body, clothing, physical appearance). The results of the study can be used in psychological counselling for people with different attitudes towards the physical “Self”.

scholarly journals Core Set of Patient-Reported Outcomes for Myelodysplastic Syndromes - EUMDS Delphi Study in Patients and Hematologists

2021 ◽  
Author(s):  
Igor Stojkov ◽  
Annette Conrads-Frank ◽  
Ursula G Rochau ◽  
Karin A Koinig ◽  
Marjan Arvandi ◽  
...  
Keyword(s):  
Myelodysplastic Syndromes ◽  
Delphi Study ◽  
Health Care Services ◽  
Patient Reported Outcomes ◽  
Rank Correlation ◽  
Daily Practice ◽  
P Value ◽  
Spearman’S Rank Correlation ◽  
Core Set ◽  
Patient Reported

Patient-reported outcomes (PROs) are relevant and valuable endpoints in the care of patients with myelodysplastic syndromes (MDS). However, a consensus-based selection of PROs for MDS, derived by both patients and hematologists, is lacking. We aimed to develop a core set of PROs for patients with MDS as part of the prospective European LeukemiaNet MDS (EUMDS) Registry. Following international guidelines, candidate PROs were identified from a comprehensive literature search in MDS studies. Overall, 40 PROs were selected and evaluated in a two-round Delphi survey by 40 patients with MDS and 38 hematologists in the first, and 38 and 32 in the second round, respectively. Based on an agreement scale and predefined inclusion criteria, both patients and hematologists selected "general quality of life" as a core PRO. Hematologists also selected "transfusion-dependency burden" and "ability to work/activities of daily living" as core PROs. The second Delphi round increased PRO rating agreements. Statistically significant rating differences between patients and hematologists were observed for 28 PROs (Mann-Whitney U test; p-value &lt;0.05) in the first round and for 19 PROs in the second round, with "disease knowledge" and "confidence in health care services" rated notably higher by patients. The overall mean PRO ratings correlation between the two groups was moderate (Spearman's rank correlation coefficient=0.5; p-value &lt;0.05). This first consensus on a core set of PROs jointly developed by patients and hematologists forms the basis for patient-centered care in daily practice and clinical research.

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