scholarly journals QUALITY OF LIFE EVALUATION FOR HIV-INFECTED PATIENTS WITH EYE DISEASES

Author(s):  
Иванова ◽  
Inessa Ivanova ◽  
Черкес ◽  
Nikolay Cherkes

The importance and the need to establish standards for the quality of life for HIV-infected patients with eye diseases were proved. The scheme of follow-up of ophthalmic patients with HIV infection was created; it allows identifying the relationship between the organ of vision and quality of life of infected patients. An algorithm of examination of patients with a combination of HIV infection and ophthalmological pathology was developed. It is proved that with the growth of the severity of internal organ involvement in HIV-infected patients a decrease in quality of life occurs pro rata, par-ticularly in patients in 3–4th stages of HIV infection associated with atrophy of the optic nerve, uveitis, retinitis. It was established that on the background of an effective anti-viral and vascular therapy of HIV-infected patients there is a positive dynamics of vision in patients with retinal angiopathies.


Author(s):  
Petri K. M. Purola ◽  
Janika E. Nättinen ◽  
Matti U. I. Ojamo ◽  
Seppo V. P. Koskinen ◽  
Harri A. Rissanen ◽  
...  

Abstract Purpose To study the prevalence and incidence of the most common eye diseases and their relation to health-related quality of life (HRQoL), depression, psychological distress, and visual impairment in the aging population of Finland. Methods Our study was based on two nationwide health surveys conducted in 2000 and 2011. Eye disease status data were obtained from 7379 and 5710 individuals aged 30 + years, of whom 4620 partook in both time points. Both surveys included identical indicators of HRQoL (EuroQol-5 Dimension [EQ-5D], 15D), depression (Beck Depression Inventory [BDI]), psychological distress (General Health Questionnaire-12 [GHQ-12]), visual acuity, and self-reported eye diseases. We assessed the impact of known eye diseases on these factors, adjusted for age, gender, and co-morbidities. Results Prevalence of self-reported eye diseases was 3.1/2.7% for glaucoma, 8.1/11.4% for cataract, and 3.4/3.8% for retinal degeneration in 2000 and 2011, and the average incidence between 2000 and 2011 was 22, 109, and 35 /year/10,000 individuals, respectively. These eye diseases were associated with a significant decrease in EQ-5D and 15D index scores in both time points. BDI and GHQ-12 scores were also worsened, with some variation between different eye diseases. Impaired vision was, however, the strongest determinant of declined HRQoL. During the 11-year follow-up the effect of eye diseases on HRQoL and mental health diminished. Conclusion Declined HRQoL associated with eye diseases is more related to impaired vision than the awareness of the disease itself, and this declining effect diminished during the follow-up. Therefore, information directed to the public on the risks and prevention of blindness can and should be strengthened to prevent the deleterious effects of visual impairment.



2021 ◽  
pp. 002076402110102
Author(s):  
Ruth Abraham ◽  
Marja Leonhadt ◽  
Lars Lien ◽  
Ingrid Hansen ◽  
Edvard Hauff ◽  
...  

Background: Women are more vulnerable to mental health problems than men after migration, but little is known about the influence of religiosity/spirituality on their quality of life. The purpose of this study was to explore religiosity/spirituality, in relationships with various domains of quality of life, among female Eritrean refugees staying in Norwegian asylum centres. Method: A questionnaire assessing sociodemographic characteristics was used together with the World Health OrganizationQuality of Life – Spirituality, Religiosity and Personal Beliefs (WHOQOL-SRPB) questionnaire, which assesses religiosity/spirituality and domains of quality of life. A total of 63 adult female Eritrean refugees who had been granted asylum but were still living in asylum reception centres located in southern and central Norway participated. Results: Religiosity/spirituality was independently associated with psychological quality of life ( B = 0.367, p < .001), level of independence ( B = 0.184, p = .028), social quality of life ( B = 0.500, p = .003), environmental quality of life ( B = 0.323, p < .001) and overall quality of life ( B = 0.213, p < .001), but not with physical quality of life ( B = 0.056, p = .679). There were no significant differences between religious affiliations on religiosity/spirituality or quality of life measures. Conclusion: Consistent with previous research, this study highlights the correlation between religiosity/spirituality and overall quality of life. We recommend a longitudinal follow-up study of similar populations, after they are resettled and integrated into their host countries, to understand the associations between quality of life and religiosity/spirituality over time.



2018 ◽  
Author(s):  
Julián Olalla ◽  
Jose María García de Lomas ◽  
Efrén Márquez ◽  
Francisco Jesús González ◽  
Alfonso Del Arco ◽  
...  

BACKGROUND New technologies can promote knowledge of HIV infection among patients suffering from this disease. Older patients with HIV infection represent an increasingly large group that could benefit from the use of specific apps. OBJECTIVE The aim of the study was to observe the acceptability and use of a mobile app on HIV infection in patients at least 60 years old and offer them the possibility of anonymously establishing contact with their peers. METHODS A series of clinical and psychosocial parameters were studied in 30 HIV-infected patients of over 60 years. The patients must be at least 60 years old, with a follow-up in the outpatient clinic for at least 1 year and without pathologies that limit his or her life expectancy to less than a year. They must know how to read and write. To be part of the group assigned to the app, they had to have their own smartphone and confirm that they were connected to the internet from that device. Overall, 15 of them were randomized to use an app and 15 were in the control group. All tests were repeated after 6 months. RESULTS The median age of patients was 66.5 years. Among them, 29 patients had an undetectable viral load at baseline. The median number of comorbid diseases was 2. Overall, 11 of them lived with their partners and 19 lived alone. They spent an average of 5 hours a day sitting down, and 56% (17/30) of them referred high physical activity. They scored 4 out of 5 for general quality of life perception. Moreover, 80% (24/30) presented high adherence to their treatment, and the average number of concomitant medications was 5. In the 6-min walking test, they covered a distance of 400 meters, and 3 of them desaturated during the test. The 15 patients made frequent use of the app, with 2407 sessions and an average of 7 min and 56 seconds time of use with a total of 13,143 screen views. During the 6 months of the trial, 3 non-AIDS events took place. There were no significant modifications to body mass index, blood pressure measurements, lipid profile, or immuno-virology information data. There were no differences in the questionnaire scores for perception of quality of life, confessed physical activity, or antiretroviral treatment (ART) and non-ART treatment adherence. CONCLUSIONS Significant differences between studied parameters were not objectified in these patients, possibly because this trial has significant limitations, such as a small sample size and only a brief follow-up period. However, patients did use the app frequently, making this a possible intervention to be proposed in future subsequent studies.



BMJ Open ◽  
2019 ◽  
Vol 9 (6) ◽  
pp. e027051 ◽  
Author(s):  
Ya-Ke Lu ◽  
Ya-Mei Qiao ◽  
Xiao Liang ◽  
Wu Yao ◽  
Zhen Yan ◽  
...  

ObjectiveTo investigate the reciprocal relationship between psychosocial work stress and quality of life (QoL) and to examine whether the relationship can be moderated by gender or education.DesignLongitudinal, population-based study.SettingThe Survey of Health, Ageing and Retirement in Europe (SHARE).ParticipantsThe study population was derived from the SHARE, and there were 2006 participants with good QoL at baseline, 1109 with high job control and 1072 with high job reward, respectively, who were followed up for 2 years to detect incidence of poor QoL, low job control and low job reward.Main outcome measuresLogistic regression models were employed to explore the reciprocal relationship between psychological work stress and QoL. Stratification analyses by gender and education were performed.ResultsParticipants with low reward (OR=1.53, 95% CI 1.26 to 1.88) and low control (OR=1.40, 95% CI 1.14 to 1.71) at baseline were at higher risk of poor QoL over the 2-year follow-up. The combination of low reward and low control further increased the risk (OR=1.90, 95% CI 1.46 to 2.48). Stratified analyses revealed that these associations were more pronounced among those who had high levels of education. Further, individuals with poor QoL were at significantly higher risk of having low reward (OR=2.14, 95% CI 1.55 to 2.96) but not low control (OR=1.33, 95% CI0.98 to 1.79) at the 2-year follow-up, especially among those who had medium levels of education. No gender differences were found.ConclusionsThere is a reciprocal relationship between psychological work stress and poor QoL. Education may play an important role in the relationship.



Stroke ◽  
2020 ◽  
Vol 51 (Suppl_1) ◽  
Author(s):  
Brianne Darcy ◽  
Lauren Rashford ◽  
Elizabeth Lundin ◽  
Ryan Medas ◽  
Stephen T Shultz ◽  
...  

Introduction: In stroke survivors, variables associated with lower quality of life (QOL) include hemiplegia, lower functional status, degree of walking ability, speed of gait, and overall walking dysfunction. The iStride TM Gait Solution, a home-use gait treatment device, has been shown to improve gait speed and other functional parameters in stroke survivors. This analysis discusses the relationship found between gait speed parameters and self-reported QOL after treatment with the iStride TM Gait Solution. Methods: Nineteen subjects were treated with the iStride TM device in their home environment for a targeted 12 sessions over four weeks. QOL was measured using the Stroke Specific Quality of Life Scale (SS-QOL) and gait speed was measured using the 10 Meter Walk Test (10MWT) at comfortable pace. Outcome measures were assessed at baseline and one-week post-treatment. Results: Results showed a statistically significant improvement from baseline to one-week follow-up for 10MWT (p=0.0001) and SS-QOL (p=0.007). The relationship between these variables appeared to be more dependent on the % improvement of gait speed and the ending gait speed being above the mean baseline speed (0.575 m/s) than the absolute improvement in gait speed. For example, subjects starting below the mean gait speed improved 23 points (14.8%) on SS-QOL (gait speed improvement = 0.22m/s) compared to 11.7 points (8%) on SS-QOL (gait speed improvement = 0.33 m/s). In addition, subjects that improved from the home ambulator category to limited community ambulator improved an average of 15.3 points (10.2%) on SS-QOL while subjects improving from limited community ambulator to full community ambulator improved only 4.8 points (4.6%) SS-QOL, despite a 0.16 m/s larger gait speed improvement. Conclusions: The results of this analysis indicate that larger gains in QOL may be achieved by focusing on patients reaching a gait speed above approximately 0.575 m/s. Our findings also support the importance of helping home ambulator stroke survivors achieve limited community ambulator status. These findings may guide clinicians who desire to improve the QOL of their patients to select effective treatment methods targeting gait speed improvement.



2014 ◽  
Vol 11 (2) ◽  
pp. 88-92 ◽  
Author(s):  
Juan Fullá ◽  
Rodolfo Rosenfeld ◽  
Catherine Sanchez ◽  
Felipe Oyanedel ◽  
Rodrigo Valenzuela ◽  
...  


2020 ◽  
Vol 15 (1) ◽  
Author(s):  
Juan M. Rodríguez-Roiz ◽  
Sergi Sastre-Solsona ◽  
Dragos Popescu ◽  
Jordi Montañana-Burillo ◽  
Andres Combalia-Aleu


2014 ◽  
Vol 61 (1) ◽  
pp. 29-34 ◽  
Author(s):  
Jovan Hadzi-Djokic ◽  
Bogomir Milojevic ◽  
Tomislav Pejcic ◽  
Miodrag Acimovic ◽  
Vladimir Stamenkovic ◽  
...  

The Mainz pouch II is a well tolerated form of continent urinary diversion in terms of morbidity, protection of the upper urinary tract and continence rate, even in patients aged >65 years. Mainz pouch II was described by Fisch and Hohenfellner in 1991. They viewed the simplicity and reproducibility of the operation as one of its major advantages. A good continence rates between 93%-100% after this procedure has been shown in previous studies. The longer follow up will show whether these high rates of continence can be maintained with increasing age. The Mainz Pouch II serves as a satisfying continent urinary diversion for both sexes in selected patients in terms of quality of life. Evaluation of overall quality of life in patients with Mainz pouch II urinary derivation has given encouraging results. Compliance and cooperation of the patients, together with preoperative tests for anal competence, are mandatory to avoid complications. The Mainz group reported that the overall complication rate was low and comparable with other techniques of continent urinary diversion. During the past years modifications of the original technique have been described. These represent an increasing interest in the procedure. Today, the techniques of low-pressure and reservoirs have completely replaced classical ureterosigmoidostomy. In this review article the main focus is aimed at history, complications, continence and quality of life of patients with Mainz pouch II.



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