scholarly journals Development of the Self-Care Non-adherence Risk Assessment Scale for Patients with Chronic Illness

2021 ◽  
Vol 32 (4) ◽  
pp. 415
Author(s):  
Mirae Jo ◽  
Heeyoung Oh
2021 ◽  
pp. 105477382110561
Author(s):  
Onome Henry Osokpo ◽  
Lisa M. Lewis ◽  
Uchechukwu Ikeaba ◽  
Jesse Chittams ◽  
Frances K. Barg ◽  
...  

This cross-sectional study aims to describe the self-care of adult African immigrants in the US with chronic illness and explore the relationship between acculturation and self-care. A total of 88 African immigrants with chronic illness were enrolled. Self-care was measured with the Self Care of Chronic Illness Inventory v3 and the Self-Care Self-Efficacy scale. Scores are standardized 0 to 100 with scores >70 considered adequate. Acculturation was measured using a modified standardized acculturation instrument and predefined acculturation proxies. The self-care scores showed adequate self-care, with the mean scores of 78.6, 77.9, and 75.6 for self-care maintenance, monitoring, and management. Self-care self-efficacy mean score was 81.3. Acculturation was not significantly associated with self-care. Self-care self-efficacy was a strong determinant of self-care maintenance ( p < .0001), monitoring ( p < .0001), and management ( p < .0001). The perception of inadequate income was a significant determinant of poor self-care management ( p = .03). Self-care self-efficacy and perceived income adequacy were better determinants of self-care than acculturation.


Author(s):  
Maddalena De Maria ◽  
Maria Matarese ◽  
Anna Strömberg ◽  
Davide Ausili ◽  
Ercole Vellone ◽  
...  

BMJ Open ◽  
2021 ◽  
Vol 11 (9) ◽  
pp. e048875
Author(s):  
Dan Dan Chen ◽  
Hui Zhang ◽  
Nianqi Cui ◽  
Leiwen Tang ◽  
Jing Shao ◽  
...  

ObjectiveCaregiver contribution (CC) is important for the self-care behaviors of chronic disease individuals, as it could enhance patient outcomes. Therefore, it is necessary to assess this CC by using a good validity and reliability instrument. The Caregiver Contribution to Self-Care Chronic Illness Inventory (CC-SC-CII) was designed to assess CC to self-care behaviors of patients with chronic illness in Italy. However, it was unclear whether this tool had sound psychometrics properties in the context of Chinese culture. Therefore, we performed the cross-cultural adaption of the CC-SC-CII and we tested its psychometric properties among Chinese caregivers of patients with chronic disease.DesignA cross-sectional observational design.SettingsParticipants were recruited from communities and institutions in Pingdingshan, Henan Province, China.Participants301 caregivers of care recipients with chronic disease completed the Chinese version of the CC-SC-CII (C-CC-SC-CII).Primary and secondary outcome measuresThe content validity index of items (I-CVI), the scale content validity index-average (S-CVI/Ave), exploratory factor analysis, confirmatory factor analysis (CFA), internal consistency and item analysis were tested.ResultsThe range of I-CVI was between 0.833 and 1.00, and the score of S-CVI was 0.991. In CFA, the C-CC to self-care monitoring scale had satisfactory fit indices. However, the C-CC to self-care maintenance and management scales had unsupported fit indices. The reliability coefficients of C-CC-SC-CII were 0.792, 0.880 and 0.870 for its three scales. Item-total correlations were all over 0.590. Test–retest reliability showed that the range of intraclass correlation coefficients was from 0.728 to 0.783.ConclusionThe C-CC-SC-CII has sound psychometrics characteristics and is a culturally appropriate and reliable instrument for assessing CC to the self-care behaviours of patients with chronic disease in China.


Rev Rene ◽  
2017 ◽  
Vol 18 (2) ◽  
pp. 148 ◽  
Author(s):  
Sherida Karanini Paz de Oliveira ◽  
Francisca Elisângela Teixeira de Lima

2018 ◽  
Vol 74 (10) ◽  
pp. 2465-2476 ◽  
Author(s):  
Barbara Riegel ◽  
Claudio Barbaranelli ◽  
Kristen A. Sethares ◽  
Marguerite Daus ◽  
Debra K. Moser ◽  
...  

2021 ◽  
Author(s):  
Shayleigh Dickson Page ◽  
Christopher Lee ◽  
Subhash Aryal ◽  
Kenneth Freedland ◽  
Anna Stromberg ◽  
...  

Abstract Background: Adults with chronic illness frequently experience bothersome symptoms (e.g., pain). Decisions about how to manage these symptoms are complex and influenced by factors related to the patient, their illness, and their environment. The naturalistic decision-making framework describes decision-making when conditions are dynamically evolving, and the decision maker is uncertain because the situation is ambiguous and missing information. The contextual factors influencing decisions include time stress, the perception of high stakes, and input from other individuals, which may facilitate or complicate the decision about the self-care of symptoms. There is no valid instrument to measure these contextual factors. The purpose of this study was to develop and test a self-report instrument measuring the contextual factors that influence self-care decisions about symptoms. Methods: Items were drafted from the literature and refined with patient input. Content validity of the instrument was evaluated using a Delphi survey of expert clinicians and researchers, and cognitive interviews with adults with chronic illness. Psychometric testing included exploratory factor analysis to test dimensionality, item response theory-based approaches for item recalibration, confirmatory factor analysis to generate factor determinacy scores, and evaluation of construct validity. Results: The content validity of the Self-Care Decisions Scale is excellent with all items achieving a content validity index of greater than 0.78 in the Delphi survey of experts (n=12). Adults with chronic illness (n=5) endorsed the relevance, comprehensiveness, and comprehensibility of the instrument during cognitive interviews. Initial psychometric testing (n=431) revealed a 6-factor multidimensional structure that was further refined for precision, and high multidimensional reliability. In construct validity testing, there were modest associations with some scales of the Melbourne Decision Making Questionnaire and the Self-Care of Chronic Illness Inventory. Conclusion: The Self-Care Decisions Scale is a 27-item self-report instrument that measures the extent to which contextual factors influence decisions about symptoms of chronic illness with six scales reflecting naturalistic decision making (external, urgency, uncertainty, cognitive/affective, waiting/cue competition, and concealment). The scale can support research that aims to better understand how adults with chronic illness make decisions in response to symptoms. Additional testing of the instrument is needed to evaluate clinical utility.


2020 ◽  
Vol 30 (Supplement_5) ◽  
Author(s):  
N A Lukman ◽  
A Leibing ◽  
L Merry

Abstract Background Self-care (i.e., the actions towards monitoring and managing chronic illness and maintaining health) is an essential aspect of chronic disease management. These experiences are shaped by culture and values, health literacy, support from others and access to care. We conducted a study to explore the chronic illness self-care experiences and various influencing factors among a minority immigrant group, Indonesians, living in Montreal, Canada. Methods We used a qualitative descriptive approach. Eight adult men and women living with various chronic illnesses were recruited. Data were collected via semi-structured interviews and thematically analyzed. Results Three broad themes were identified: What's helpful, Challenges and responses, and Expectations. What's helpful captured different sources of supports of that helped the participants manage and monitor their illness and feel well and healthy. Challenges and responses highlighted the key challenges that participants have faced while living with a chronic illness, and how they have adapted (or not) and responded to these. Expectations include participants' disappointments towards their own self-care and/or support from family, the community and healthcare professionals, and describes what participants wished was different about their situation. The multiple views and nuances of their experiences as well as the various influencing factors of pre- and post-migration were interwoven within the description of each theme. Conclusions The self-care experiences of Indonesians living in Montreal shaped by different sources that helpful, challenges they faced and their responses as well as their disappointments and wishes for their own self-care. Key messages The self-care experiences of Indonesians living in Montreal are vary and shaped by different factors and sources. Healthcare professionals should engage more and consider the helpful sources for them, their challenges and the responses, their disappointments and hopes shaping their self-care experiences.


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