scholarly journals Cross-cultural adaptation and validation of the caregiver contribution to self-care of chronic illness inventory in China: a cross-sectional study

BMJ Open ◽  
2021 ◽  
Vol 11 (9) ◽  
pp. e048875
Author(s):  
Dan Dan Chen ◽  
Hui Zhang ◽  
Nianqi Cui ◽  
Leiwen Tang ◽  
Jing Shao ◽  
...  
Keyword(s):  
Factor Analysis ◽  
Chronic Disease ◽  
Chronic Illness ◽  
Content Validity ◽  
Self Care ◽  
Cross Cultural ◽  
The Self ◽  
Fit Indices ◽  
Validity Index ◽  
Cross Sectional

ObjectiveCaregiver contribution (CC) is important for the self-care behaviors of chronic disease individuals, as it could enhance patient outcomes. Therefore, it is necessary to assess this CC by using a good validity and reliability instrument. The Caregiver Contribution to Self-Care Chronic Illness Inventory (CC-SC-CII) was designed to assess CC to self-care behaviors of patients with chronic illness in Italy. However, it was unclear whether this tool had sound psychometrics properties in the context of Chinese culture. Therefore, we performed the cross-cultural adaption of the CC-SC-CII and we tested its psychometric properties among Chinese caregivers of patients with chronic disease.DesignA cross-sectional observational design.SettingsParticipants were recruited from communities and institutions in Pingdingshan, Henan Province, China.Participants301 caregivers of care recipients with chronic disease completed the Chinese version of the CC-SC-CII (C-CC-SC-CII).Primary and secondary outcome measuresThe content validity index of items (I-CVI), the scale content validity index-average (S-CVI/Ave), exploratory factor analysis, confirmatory factor analysis (CFA), internal consistency and item analysis were tested.ResultsThe range of I-CVI was between 0.833 and 1.00, and the score of S-CVI was 0.991. In CFA, the C-CC to self-care monitoring scale had satisfactory fit indices. However, the C-CC to self-care maintenance and management scales had unsupported fit indices. The reliability coefficients of C-CC-SC-CII were 0.792, 0.880 and 0.870 for its three scales. Item-total correlations were all over 0.590. Test–retest reliability showed that the range of intraclass correlation coefficients was from 0.728 to 0.783.ConclusionThe C-CC-SC-CII has sound psychometrics characteristics and is a culturally appropriate and reliable instrument for assessing CC to the self-care behaviours of patients with chronic disease in China.

Scale of Assessment of Self-Care Behaviors with Arteriovenous Fistula in Hemodialysis: A Psychometric Study in Brazil

2021 ◽  
pp. 105477382198980
Author(s):  
Marta Nunes Lira ◽  
Clemente Neves Sousa ◽  
Maria Carolina Medeiros Wanderley ◽  
Natália Ramos Costa Pessoa ◽  
Kelly Cristiane Rocha Lemos ◽  
...  
Keyword(s):  
Factor Analysis ◽  
Psychometric Properties ◽  
Arteriovenous Fistula ◽  
Content Validity ◽  
Self Care ◽  
The Self ◽  
Expert Committee ◽  
Cronbach’S Alpha ◽  
Cronbach's Alpha ◽  
Confirmatory Factor

The purpose of this study was to evaluate the psychometric properties of the Brazilian Scale for the Assessment of Self-Care Behaviors with Arteriovenous Fistula in Hemodialysis. Cross-sectional validation study, followed the recommendation provided by Sousa and Rojjanasrirat. Content validity, explanatory and confirmatory factor analyses used to check validity and Cronbach’s alpha was the reliability measure. Three hundred hemodialysis patients with arteriovenous fistula were included in the study. The expert committee assessed the content validity. Exploratory factor analysis confirmed the same two-factor structure found for the original scale, explaining 60.10% of the variance. Such solution was checked by confirmatory factor analysis with Cronbach’s alpha equal to 0.920, 0.810, and 0.884 for the overall scale, the self-care in management of signs and symptoms and the self-care in prevention of complications subscales respectively. The scale has good psychometric properties to assess self-care behaviors and can be used with Brazilian patients on hemodialysis with arteriovenous fistula.

Self-Care of African Immigrant Adults with Chronic Illness

2021 ◽  
pp. 105477382110561
Author(s):  
Onome Henry Osokpo ◽  
Lisa M. Lewis ◽  
Uchechukwu Ikeaba ◽  
Jesse Chittams ◽  
Frances K. Barg ◽  
...  
Keyword(s):  
Chronic Illness ◽  
Self Efficacy ◽  
Self Care ◽  
African Immigrants ◽  
Cross Sectional Study ◽  
The Self ◽  
Cross Sectional ◽  
Income Adequacy ◽  
The Us ◽  
Scale Scores

This cross-sectional study aims to describe the self-care of adult African immigrants in the US with chronic illness and explore the relationship between acculturation and self-care. A total of 88 African immigrants with chronic illness were enrolled. Self-care was measured with the Self Care of Chronic Illness Inventory v3 and the Self-Care Self-Efficacy scale. Scores are standardized 0 to 100 with scores >70 considered adequate. Acculturation was measured using a modified standardized acculturation instrument and predefined acculturation proxies. The self-care scores showed adequate self-care, with the mean scores of 78.6, 77.9, and 75.6 for self-care maintenance, monitoring, and management. Self-care self-efficacy mean score was 81.3. Acculturation was not significantly associated with self-care. Self-care self-efficacy was a strong determinant of self-care maintenance ( p < .0001), monitoring ( p < .0001), and management ( p < .0001). The perception of inadequate income was a significant determinant of poor self-care management ( p = .03). Self-care self-efficacy and perceived income adequacy were better determinants of self-care than acculturation.

scholarly journals Cross-cultural assessment of the Self-Care of Chronic Illness Inventory: A psychometric evaluation

2019 ◽  
pp. 103422 ◽  
Author(s):  
Maddalena De Maria ◽  
Maria Matarese ◽  
Anna Strömberg ◽  
Davide Ausili ◽  
Ercole Vellone ◽  
...  
Keyword(s):  
Chronic Illness ◽  
Self Care ◽  
Psychometric Evaluation ◽  
Cross Cultural ◽  
The Self ◽  
Cultural Assessment

scholarly journals Development and Testing of an Instrument to Measure Contextual Factors Influencing Self-Care Decisions Among Adults with Chronic Illness

2021 ◽  
Author(s):  
Shayleigh Dickson Page ◽  
Christopher Lee ◽  
Subhash Aryal ◽  
Kenneth Freedland ◽  
Anna Stromberg ◽  
...  
Keyword(s):  
Decision Making ◽  
Chronic Illness ◽  
Content Validity ◽  
Contextual Factors ◽  
Self Care ◽  
Psychometric Testing ◽  
The Self ◽  
Self Report ◽  
Cognitive Interviews ◽  
Naturalistic Decision Making

Abstract Background: Adults with chronic illness frequently experience bothersome symptoms (e.g., pain). Decisions about how to manage these symptoms are complex and influenced by factors related to the patient, their illness, and their environment. The naturalistic decision-making framework describes decision-making when conditions are dynamically evolving, and the decision maker is uncertain because the situation is ambiguous and missing information. The contextual factors influencing decisions include time stress, the perception of high stakes, and input from other individuals, which may facilitate or complicate the decision about the self-care of symptoms. There is no valid instrument to measure these contextual factors. The purpose of this study was to develop and test a self-report instrument measuring the contextual factors that influence self-care decisions about symptoms. Methods: Items were drafted from the literature and refined with patient input. Content validity of the instrument was evaluated using a Delphi survey of expert clinicians and researchers, and cognitive interviews with adults with chronic illness. Psychometric testing included exploratory factor analysis to test dimensionality, item response theory-based approaches for item recalibration, confirmatory factor analysis to generate factor determinacy scores, and evaluation of construct validity. Results: The content validity of the Self-Care Decisions Scale is excellent with all items achieving a content validity index of greater than 0.78 in the Delphi survey of experts (n=12). Adults with chronic illness (n=5) endorsed the relevance, comprehensiveness, and comprehensibility of the instrument during cognitive interviews. Initial psychometric testing (n=431) revealed a 6-factor multidimensional structure that was further refined for precision, and high multidimensional reliability. In construct validity testing, there were modest associations with some scales of the Melbourne Decision Making Questionnaire and the Self-Care of Chronic Illness Inventory. Conclusion: The Self-Care Decisions Scale is a 27-item self-report instrument that measures the extent to which contextual factors influence decisions about symptoms of chronic illness with six scales reflecting naturalistic decision making (external, urgency, uncertainty, cognitive/affective, waiting/cue competition, and concealment). The scale can support research that aims to better understand how adults with chronic illness make decisions in response to symptoms. Additional testing of the instrument is needed to evaluate clinical utility.

Development of the Breast Cancer Related Lymphedema Self-Care Scale

2020 ◽  
pp. 105477382094798
Author(s):  
Zeynep Deveci ◽  
Özgül Karayurt ◽  
Ozlem Bilik ◽  
Sibel Eyigör
Keyword(s):  
Breast Cancer ◽  
Factor Analysis ◽  
Content Validity ◽  
Self Care ◽  
Fit Indices ◽  
Cronbach’S Alpha ◽  
Confirmatory Factor Analyses ◽  
Cronbach's Alpha ◽  
Confirmatory Factor ◽  
Breast Cancer Related Lymphedema

The purpose of study was to develop the Breast Cancer Related Lymphedema Self-Care Scale to evaluate the self-care practices of women with breast cancer-related lymphedema (BRCL); and to examine the psycholinguistic and psychometric characteristics of this scale. The item pool of the scale was created based on the literature in this descriptive study. Content validity, explanatory and confirmatory factor analyses used in evaluation of the validity; and item analyzes, the Cronbach’s Alpha and Split Half analyzes were made for reliability in the study. The content validity index was found to be above 0.80. In the Explanatory Factor Analysis, a four-factor structure was obtained. In Confirmatory Factor Analysis, fit indices were found to be acceptable. Cronbach’s Alpha coefficients of the sub-dimensions of the scale varied between 0.62 and 0.86. It was determined the Breast Cancer Related Lymphedema Self-Care Scale was a valid and reliable scale for women with BRCL.

scholarly journals Self-care experiences of Indonesian adults with chronic disease living in Montreal

2020 ◽  
Vol 30 (Supplement_5) ◽  
Author(s):  
N A Lukman ◽  
A Leibing ◽  
L Merry
Keyword(s):  
Chronic Disease ◽  
Chronic Illness ◽  
Influencing Factors ◽  
Healthcare Professionals ◽  
Self Care ◽  
The Self ◽  
Structured Interviews ◽  
Literacy Support ◽  
Adult Men ◽  
Different Sources

Abstract Background Self-care (i.e., the actions towards monitoring and managing chronic illness and maintaining health) is an essential aspect of chronic disease management. These experiences are shaped by culture and values, health literacy, support from others and access to care. We conducted a study to explore the chronic illness self-care experiences and various influencing factors among a minority immigrant group, Indonesians, living in Montreal, Canada. Methods We used a qualitative descriptive approach. Eight adult men and women living with various chronic illnesses were recruited. Data were collected via semi-structured interviews and thematically analyzed. Results Three broad themes were identified: What's helpful, Challenges and responses, and Expectations. What's helpful captured different sources of supports of that helped the participants manage and monitor their illness and feel well and healthy. Challenges and responses highlighted the key challenges that participants have faced while living with a chronic illness, and how they have adapted (or not) and responded to these. Expectations include participants' disappointments towards their own self-care and/or support from family, the community and healthcare professionals, and describes what participants wished was different about their situation. The multiple views and nuances of their experiences as well as the various influencing factors of pre- and post-migration were interwoven within the description of each theme. Conclusions The self-care experiences of Indonesians living in Montreal shaped by different sources that helpful, challenges they faced and their responses as well as their disappointments and wishes for their own self-care. Key messages The self-care experiences of Indonesians living in Montreal are vary and shaped by different factors and sources. Healthcare professionals should engage more and consider the helpful sources for them, their challenges and the responses, their disappointments and hopes shaping their self-care experiences.

Turkish Adaptation of Diabetic Foot Ulcer Scale–Short Form

2020 ◽  
Vol 19 (3) ◽  
pp. 269-274 ◽  
Author(s):  
İsmail Toygar ◽  
Sadık Hançerlioğlu ◽  
Selden Gül ◽  
Tülün Utku ◽  
Ilgın Yıldırım Şimşir ◽  
...  
Keyword(s):  
Factor Analysis ◽  
Diabetic Foot ◽  
Content Validity ◽  
Short Form ◽  
University Hospital ◽  
Validity And Reliability ◽  
Turkish Version ◽  
Patient Identification ◽  
Validity Index ◽  
Content Validity Index

The purpose of this study was to evaluate the validity and reliability of the Turkish version of the Diabetic Foot Scale–Short Form (DFS-SF). The study was cross-sectional and conducted between January and October 2019 in a diabetic foot council of a university hospital. A total of 194 diabetic foot patients participated in the study. A Patient Identification Form and DFS-SF were used for data collection. Forward and backward translations were used in language validity. Expert opinions were obtained to determine the Content Validity Index. To determine construct validity, exploratory factor analysis and confirmatory factor analysis were used. Cronbach’s α internal consistency coefficient, item-scale correlation, and test-retest reliability were used to evaluate reliability. It was found that Content Validity Index was 0.97 (0.86-1.00), the factor loading of scale varied from 0.378 to 0.982, Cronbach’s α value varied from 0.81 to 0.94, and item-total correlations were between 0.30 and 0.75. The Turkish version of the DFS-SF was found valid and reliable to measure the quality of life of diabetic foot patients.

scholarly journals Chinesisation, adaptation and validation of the Chelsea Critical Care Physical Assessment Tool in critically ill patients: a cross-sectional observational study

BMJ Open ◽  
2021 ◽  
Vol 11 (4) ◽  
pp. e045550
Author(s):  
Zhigang Zhang ◽  
Guoqiang Wang ◽  
Yuchen Wu ◽  
Jin Guo ◽  
Nannan Ding ◽  
...  
Keyword(s):  
Critical Care ◽  
Observational Study ◽  
Critically Ill ◽  
Content Validity ◽  
Assessment Tool ◽  
Western China ◽  
Validity Index ◽  
Cross Sectional ◽  
Physical Assessment ◽  
Content Validity Index

PurposeTo translate and adapt the Chelsea Critical Care Physical Assessment Tool (CPAx) into Chinese version (‘CPAx-Chi’), test the reliability and validity of CPAx-Chi, and verify the cut-off point for the diagnosis of intensive care unit-acquired weakness (ICU-AW).Study designCross-sectional observational study.MethodsForward and back translation, cross-cultural adaptation and pretesting of CPAx into CPAx-Chi were based on the Brislin model. Participants were recruited from the general ICU of five third-grade class-A hospitals in western China. Two hundred critically ill adult patients (median age: 53 years; 64% men) with duration of ICU stay ≥48 hours and Glasgow Coma Scale ≥11 were included in this study. Two researchers simultaneously and independently assessed eligible patients using the Medical Research Council Muscle Score (MRC-Score) and CPAx-Chi.ResultsThe content validity index of items was 0.889. The content validity index of scale was 0.955. Taking the MRC-Score scale as standard, the criterion validity of CPAx-Chi was r=0.758 (p<0.001) for researcher A, and r=0.65 (p<0.001) for researcher B. Cronbach’s α was 0.939. The inter-rater reliability was 0.902 (p<0.001). The area under the receiver operating characteristic curves of CPAx-Chi for diagnosing ICU-AW based on MRC-Score ≤48 were 0.899 (95% CI 0.862 to 1.025) and 0.874 (95% CI 0.824 to 0.925) for researcher B. The best cut-off point for CPAx-Chi for the diagnosis of ICU-AW was 31.5. The sensitivity was 87% and specificity was 77% for researcher A, whereas it was 0.621, 31.5, 75% and 87% for researcher B, respectively. The consistency was high when taking CPAx-Chi ≤31 and MRC-Score ≤48 as the cut-off points for the diagnosis of ICU-AW. Cohen’s kappa=0.845 (p=0.02) in researcher A and 0.839 (p=0.04) for researcher B.ConclusionsCPAx-Chi demonstrated content validity, criterion-related validity and reliability. CPAx-Chi showed the best accuracy in assessment of patients at risk of ICU-AW with good sensitivity and specificity at a recommended cut-off of 31.

scholarly journals Transcultural Adaptation and Theoretical Models of Validation of the Spanish Version of the Self-Care of Heart Failure Index Version 6.2 (SCHFI v.6.2)

2021 ◽  
Vol 18 (2) ◽  
pp. 569
Author(s):  
Raúl Juárez-Vela ◽  
Angela Durante ◽  
Rosa Antonio-Oriola ◽  
Vicente Gea-Caballero ◽  
Michał Czapla ◽  
...  
Keyword(s):  
Heart Failure ◽  
Factor Analysis ◽  
Psychometric Properties ◽  
Exploratory Factor Analysis ◽  
Self Care ◽  
Public Health Problem ◽  
The Self ◽  
Spanish Version ◽  
Factorial Validity ◽  
Failure Index

Background: Heart failure (HF) is a major and growing public health problem worldwide. Across the world, heart failure is associated with high mortality, high hospitalization rates, and poor quality of life. Self-care is defined as a naturalistic decision-making process involving the choice of behaviors that maintain physiologic stability, the response to symptoms when they occur, and the ability to follow the treatment regimen and control symptoms. One instrument used to measure self-care is the Self Care of Heart Failure Index. Aim: The purpose of this study was to test the psychometric properties of the Spanish version of the Self Care of Heart Failure Index v.6.2 (SCHFI v.6.2). Methodology: Before testing its psychometric properties, the SCHFI v.6.2 was translated and adapted from its original English version into Spanish. Subsequently, we tested the instrument’s psychometric properties on a sample of 203 participants with HF. Descriptive statistics were used to analyze the sociodemographic and clinical variables, and to describe item responses. We tested the factorial validity of the SCHFI v.6.2 using confirmatory and exploratory factor analysis. Results: Confirmatory factor analysis (CFA) was performed using the our pre-existing models which resulted with poor fit indices. Thus, we performed exploratory factor analysis (EFA) on each of the SCHFI v.6.2 scales. Conclusion: The Spanish version of the SCHFI v.6.2. has good characteristics of factorial validity and can be used in clinical practice and research to measure self-care in patients with HF.

scholarly journals Psychometric evaluation and cultural adaptation of the Spanish version of the “Scale for End-of Life Caregiving Appraisal”

2018 ◽  
Vol 17 (03) ◽  
pp. 314-321
Author(s):  
José Manuel Hernández-Padilla ◽  
Matías Correa-Casado ◽  
José Granero-Molina ◽  
Alda Elena Cortés-Rodríguez ◽  
Tamara María Matarín-Jiménez ◽  
...  
Keyword(s):  
Factor Analysis ◽  
Construct Validity ◽  
End Of Life ◽  
Exploratory Factor Analysis ◽  
Content Validity ◽  
Criterion Validity ◽  
Spanish Version ◽  
Validity Index ◽  
Content Validity Index ◽  
The Impact

AbstractObjectiveTo translate, culturally adapt, and psychometrically evaluate the Spanish version of the “Scale for End-of Life Caregiving Appraisal” (SEOLCAS).MethodObservational cross-sectional study. Convenience sample of 201 informal end-of-life caregivers recruited in a southern Spanish hospital. The reliability of the questionnaire was assessed through its internal consistency (Cronbach's α) and temporal stability (Pearson's correlation coefficient [r] between test-retest). The content validity index of the items and the scale was calculated. Criterion validity was explored through performing a linear regression analysis to evaluate the SEOLCAS’ predictive validity. Exploratory factor analysis was used to examine its construct validity.ResultsThe SEOLCAS’ reliability was very high (Cronbach's α = 0.92). Its content validity was excellent (all items’ content validity index = 0.8–1; scale's validity index = 0.88). Evidence of the SEOLCAS’ criterion validity showed that the participants’ scores on the SEOLCAS explained approximately 79.3% of the between-subject variation of their results on the Zarit Burden Interview. Exploratory factor analysis provided evidence of the SEOLCAS’ construct validity. This analysis revealed that two factors (“internal contingencies” and “external contingencies”) explained 53.77% of the total variance found and reflected the stoic Hispanic attitude toward adversity.Significance of resultsThe Spanish version of the SEOLCAS has shown to be an easily applicable, valid, reliable, and culturally appropriate tool to measure the impact of end-of-life care provision on Hispanic informal caregivers. This tool offers healthcare professionals the opportunity to easily explore Hispanic informal end-of-life caregivers’ experiences and discover the type of support they may need (instrumental or emotional) even when there are communicational and organizational constraints.

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