The role of community practitioners in supporting children and families when a parent has a life threatening illness

2013 ◽  
Vol 1 (2) ◽  
pp. 123-123
Author(s):  
Annie Jenkins
Keyword(s):  
Children And Families ◽  
Life Threatening Illness ◽  
Life Threatening

Holding Secrets While Living With Life-Threatening Illness: Normalizing Patients’ Decisions to Reveal or Conceal

2019 ◽  
Vol 30 (5) ◽  
pp. 655-665 ◽  
Author(s):  
Anne Bruce ◽  
Rosanne Beuthin ◽  
Laurene Sheilds ◽  
Anita Molzahn ◽  
Kara Schick-Makaroff
Keyword(s):  
Health Care Providers ◽  
Narrative Analysis ◽  
Social Practice ◽  
Narrative Approach ◽  
Care Providers ◽  
Life Threatening Illness ◽  
Health And Illness ◽  
Life Threatening ◽  
Normative Practice

Communicating openly and directly about illness comes easily for some patients, whereas for others fear of disclosure keeps them silent. In this article, we discuss findings about the role of keeping secrets regarding health and illness. These findings were part of a larger project on how people with life-threatening illnesses re-story their lives. A narrative approach drawing on Frank’s dialogical narrative analysis and Riesman’s inductive approach was used. Interviews were conducted with 32 participants from three populations: chronic kidney disease, HIV/AIDS, and cancer. Findings include case exemplars which suggest keeping secrets is a social practice that acts along continuums of connecting–isolating, protecting–harming, and empowering–imprisoning. Keeping secrets about illness is a normative practice that is negotiated with each encounter. Findings call health-care providers to rethink the role of secrets for patients by considering patient privilege, a person’s right to take the lead in revealing or concealing their health and illness experience.

scholarly journals ANGI — Anorexia Nervosa Genetics Initiative

2020 ◽  
Vol 23 (2) ◽  
pp. 135-136
Author(s):  
Cynthia Bulik ◽  
Martin Kennedy ◽  
Tracey Wade
Keyword(s):  
Anorexia Nervosa ◽  
Genetic Variants ◽  
Large Scale ◽  
Genome Wide Association Study ◽  
Genetic Correlations ◽  
Genome Wide Association ◽  
Life Threatening Illness ◽  
Genome Wide ◽  
Life Threatening

AbstractIdentification of genetic variants associated with eating disorders is underway. The Anorexia Nervosa Genetics Initiative, an initiative of the Klarman Family Foundation, has contributed to advancing the field, yielding a large-scale genome-wide association study published in Nature Genetics. Eight genetic variants significantly associated with anorexia nervosa were identified, along with patterns of genetic correlations that suggest both psychiatric and metabolic origins of this serious and life-threatening illness. This article details the role of Professor Nick Martin in contributing to this important collaboration.

Role of Dance Therapy in Coping with Life Threatening Illness

2008 ◽  
Author(s):  
Eleanor M. DiPalma ◽  
Martha Hines ◽  
Marcia B. Leventhal ◽  
Iris Rifkin-Gainer
Keyword(s):  
Dance Therapy ◽  
Life Threatening Illness ◽  
Life Threatening

scholarly journals 175 A Dyadic Approach to Life-Threatening Illness in Older Adults and their Spouse Carers

2019 ◽  
Vol 48 (Supplement_3) ◽  
pp. iii1-iii16
Author(s):  
Karen Lyons ◽  
Christopher Lee
Keyword(s):  
Mental Health ◽  
Heart Failure ◽  
Lung Cancer ◽  
Older Adults ◽  
Depressive Symptoms ◽  
Relationship Quality ◽  
Older Adult ◽  
Life Threatening Illness ◽  
Life Threatening

Abstract Background Little research focuses on the older adult with life-threatening illness and their carer simultaneously, nor the role of the interpersonal and familial context around them. The purpose of this study was to identify factors associated with poor mental health and lack of shared appraisal of symptoms. Methods Multilevel modeling was used to examine cross-sectional data from 135 older adult-spouse carer dyads with life-threatening illness (59 with congestive heart failure and 76 with lung cancer). This was a secondary analysis of quantitative data from two studies. Data were gathered using established measures of symptoms (dyspnoea, fatigue, pain), depression, concealment, relationship quality and family support with in-person interviews conducted separately for older adults and their carers. Diagnosis and stage of disease were gathered from clinical records. Results Older adults with heart failure reported significantly more depressive symptoms than older adults with lung cancer, whereas spouses caring for someone with heart failure reported significantly less depressive symptoms than those caring for someone with lung cancer. Greater levels of spouse depressive symptoms were significantly associated with less shared appraisal of the older adult’s fatigue and pain interference, controlling for the quality of the relationship between them. Finally, risk factors for higher depressive symptoms of older adults included higher levels of concealing symptoms and worries from their spouse, advanced stage of disease, reporting low relationship quality and low levels of support from family. Risk factors for higher depressive symptoms of spouse carers included being younger and reporting low support from family. Conclusion Findings highlight the importance of taking a dyadic approach to life-threatening illness in older adults and the role of interpersonal and familial variables on the mental health of both members. Interventions to support and strengthen relationships and communication and address depressive symptoms of both members of the dyad are warranted.

scholarly journals Pre-existing medical conditions associated with Vibrio vulnificus septicaemia

2013 ◽  
Vol 142 (4) ◽  
pp. 878-881 ◽  
Author(s):  
M. P. MENON ◽  
P. A. YU ◽  
M. IWAMOTO ◽  
J. PAINTER
Keyword(s):  
Liver Disease ◽  
Vibrio Vulnificus ◽  
Severe Disease ◽  
Relative Importance ◽  
Medical Conditions ◽  
Life Threatening Illness ◽  
Serious Infection ◽  
Contaminated Food ◽  
Life Threatening

SUMMARYVibrio vulnificus (Vv) can result in severe disease. Although pre-existing liver disease is a recognized risk factor for serious infection, the relative importance of other comorbidities has not been fully assessed. We analysed reports of Vv infections submitted to CDC from January 1988 to September 2006 in order to assess the role of pre-existing conditions contributing to severe outcomes. A total of 1212 patients with Vv infection were reported. Only patients with liver disease [adjusted odds ratio (aOR) 5·1)] were more likely to become septic when exposure was due to contaminated food. Patients with liver disease (aOR 4·1), a haematological disease (aOR 3·2), or malignancy (aOR 3·2) were more likely to become septic when infection was acquired via a non-foodborne exposure. As such, patients with these pre-existing medical conditions should be advised of the risk of life-threatening illness after eating undercooked contaminated seafood or exposing broken skin to warm seawater.

Clinical-Medical Issues for the Health Professional Who is Also a Leukemic

1974 ◽  
Vol 5 (2) ◽  
pp. 135-141
Author(s):  
Douglas E. Wax
Keyword(s):  
Health Professional ◽  
Psychological Issues ◽  
Loss Of Self ◽  
Medical Issues ◽  
Life Threatening Illness ◽  
Acute Distress ◽  
Starting Point ◽  
Life Threatening ◽  
Immediate Experience

The health professional is in a unique but often awkward role when he falls victim to life-threatening illness and becomes a patient. Used to the role of caretaker, he experiences an abrupt reversal of role with consequent sequelae involving depression, loss of self-esteem, and the continual operation of defenses designed to protect himself in a period of acute distress. The author uses his own immediate experience as the starting point for a discussion of these and allied psychological issues concerning patient care in general.

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