scholarly journals Social Capital and the Reciprocal Nature of Family Relationships: The Perspective of Individuals With Mild Intellectual Disability

2020 ◽  
Vol 125 (3) ◽  
pp. 170-185
Author(s):  
Sanne A. H. Giesbers ◽  
Alexander H. C. Hendriks ◽  
Richard P. Hastings ◽  
Andrew Jahoda ◽  
Tess Tournier ◽  
...  
Keyword(s):  
Social Capital ◽  
Intellectual Disability ◽  
Significant Role ◽  
Family Relationships ◽  
Emotional Support ◽  
Nuclear Family ◽  
Family Members ◽  
Future Research ◽  
Mild Intellectual Disability ◽  
Family Connection

Abstract Even though family plays a significant role in the lives of people with intellectual disability, little research has included their own views about their families. This study examined how 138 people with mild intellectual disability describe their family group, with a focus on the reciprocal nature of the emotional support in relationships with family members. Participants reported “significant” family members beyond the nuclear family, and parents were seen as the main provider of support. Only half of participants had a support relationship with siblings and just 13% of participants reported partners. About 30% of support was reciprocal, and reciprocity varied greatly with the types of family connection (e.g., siblings, peers). Implications for future research as well as practice are discussed.

scholarly journals EFFECT OF ADVERSE CHILDHOOD EXPERIENCES ON DAILY SUPPORT TO FAMILY AND EMOTIONAL WELL-BEING IN ADULTHOOD

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S235-S235
Author(s):  
Jooyoung Kong ◽  
Yin Liu ◽  
David Almeida
Keyword(s):  
Negative Affect ◽  
Family Relationships ◽  
Emotional Support ◽  
Adverse Childhood Experiences ◽  
Family Members ◽  
Well Being ◽  
National Study ◽  
Childhood Experiences ◽  
Adverse Childhood ◽  
The Impact

Abstract Extensive evidence suggests that adverse childhood experiences (ACEs) can lead to negative health effects across a lifetime. This study examines the impact of ACEs on the frequency of providing daily support (i.e., unpaid assistance, emotional support, and disability-related assistance) to family members and the moderating effects of ACEs in the association between providing daily support to family and daily negative affect. Using the National Study of Daily Experiences II, we analyzed a total of 14,912 daily interviews from 2,022 respondents aged 56 on average. Key results showed that a greater number of ACEs were associated with providing more frequent emotional support to family. We also found the significant interaction effect that adults with more ACEs showed greater negative affect on the days when they provided assistance to family members with disabilities. The findings underscore the long-term negative impact of ACEs on daily well-being in the context of family relationships.

Unit Manager's Role with Family Members of Clients in Complex Continuing Care Settings: An Untold Story

2005 ◽  
Vol 24 (2) ◽  
pp. 127-137
Author(s):  
Sepali Guruge ◽  
Katherine McGilton ◽  
Linda Yetman ◽  
Heather Campbell ◽  
Ruby Librado ◽  
...  
Keyword(s):  
Family Relationships ◽  
Family Members ◽  
Future Research ◽  
Continuing Care ◽  
Theory Approach ◽  
Term Care ◽  
Factors Affecting ◽  
Closing The Loop

ABSTRACTMost literature on staff-family relationships has come from studies of long-term care settings, has focused mainly on the families' perspectives on factors affecting their relationships with staff, and has included scant findings from the staff's perspective. No studies that examined staff-family relationships in complex continuing care (CCC) environments from the perspective of staff were found in the literature. A qualitative study that draws on a grounded theory approach was conducted to explore staff-family relationships in CCC, and the findings presented in this article illuminate the unit manager's role. Data were collected through in-depth interviews with nine unit managers and a follow-up focus group with five unit managers who work in three CCC facilities. Three categories reflecting the unit manager's role with family members of clients in CCC settings were derived: establishing supportive entry; building and preserving relationships; and closing the loop. Implications of the findings for practice and future research are presented.

scholarly journals The communicative process of resilience for marginalized family members

2016 ◽  
Vol 35 (3) ◽  
pp. 307-328 ◽  
Author(s):  
Elizabeth Dorrance Hall
Keyword(s):  
Lived Experience ◽  
Communication Networks ◽  
Family Relationships ◽  
Family Members ◽  
Future Research ◽  
Negative Experiences ◽  
Black Sheep ◽  
Family Counselors ◽  
The Family ◽  
To Come

This study aims to understand how people living at the edge of their familial group as marginalized members (i.e., “black sheep”) enact resilience. Inductive analysis of interviews with 30 marginalized family members uncovered five resilience strategies marginalized family members engage in to come to terms with their position in the family, repair family relationships, and/or create a new sense of normalcy: (a) seeking support from communication networks, (b) creating and negotiating boundaries, (c) (re)building while recognizing negative experiences, (d) downplaying the lived experience of marginalization, and (e) living authentically despite disapproval. This research extends the resilience framework by exploring situated resilience strategies engaged in by marginalized family members. Practical implications for marginalized family members, their families, and family counselors are discussed along with avenues for future research examining the marginalization of diverse employees.

Images of relationships and emotions: A theoretically informed grounded theory approach to storybooks with youth characters with intellectual disability

2021 ◽  
pp. 174462952098778
Author(s):  
Monica Reichenberg
Keyword(s):  
Social Capital ◽  
Grounded Theory ◽  
Intellectual Disability ◽  
Romantic Relationships ◽  
Family Relationships ◽  
Strong Relationship ◽  
Theory Approach ◽  
Sense Of Security ◽  
The Family ◽  
Grounded Theory Approach

This study aims to understand how Swedish storybooks targeting youth portray, the relationships (social capital) and emotions of characters with intellectual disability. A collection of 37 storybooks were analysed using grounded theory. The results suggest that romantic relationships dominate in the storybooks. In the portrayal of romantic relationships, sexuality had a prominent role for the characters with intellectual disability. Work relationships were portrayed as fulfilling and joyful, and family relationships as plentiful and secure. The characters with intellectual disability felt secure at home, almost as a safe haven. Romantic relationships were described as exciting and filled with curiosity. At work, the characters with intellectual disability felt joy and a sense of belonging, and the family invoked a sense of security. Negative emotions had a less prominent role in the stories. The study concludes a strong relationship between social capital and emotions in the storybooks.

A Synthesis of Reading Comprehension Interventions for Persons With Mild Intellectual Disability

2019 ◽  
Vol 89 (4) ◽  
pp. 612-651
Author(s):  
Alexandra Shelton ◽  
Jade Wexler ◽  
Rebecca D. Silverman ◽  
Laura M. Stapleton
Keyword(s):  
Reading Comprehension ◽  
Intellectual Disability ◽  
Single Case ◽  
Strategy Instruction ◽  
Future Research ◽  
Single Case Design ◽  
Mild Intellectual Disability ◽  
Design Studies ◽  
Positive Effects ◽  
Rigorous Research

The inclusion of individuals with intellectual disability (ID) in typical settings is increasing. To promote success in these settings, educators must support the reading comprehension of individuals with ID. Therefore, we conducted a synthesis of the extant research on reading comprehension interventions for individuals in the largest category of ID—mild ID—in Grades 4 through 12 and postsecondary programs. We review the methodological and intervention features of eight group-design studies and six single-case design studies published between January 2001 and December 2018. Findings from the 14 studies revealed inconsistent effects of single-component and multicomponent interventions on expository and narrative reading comprehension. However, medium to large positive effects were typically found from interventions using peer-mediated instruction and explicit strategy instruction. More rigorous research investigating the effects of reading comprehension interventions for individuals with mild ID using standardized measures is warranted. Practical implications and recommendations for future research are discussed.

Family and Moral Development

2020 ◽  
pp. 459-481
Author(s):  
Laura M. Padilla-Walker ◽  
Madison K. Memmott-Elison
Keyword(s):  
Moral Development ◽  
Family Relationships ◽  
Moral Identity ◽  
Extended Family ◽  
Family Members ◽  
Past Research ◽  
Moral Emotions ◽  
Future Research ◽  
And Behaviors ◽  
Moral Outcomes

This chapter draws on a myriad of theoretical backgrounds and past research as a comprehensive foundation for discussion that focuses on how family members (e.g., parents, siblings, extended family) are important in the socialization of diverse aspects of moral development (e.g., emotions, cognitions, behaviors) and how these moral outcomes in turn influence family relationships. The majority of research focuses on how parents, especially mothers, influence the development of morality, whereas a paucity of research exists that analyzes the influence of siblings and extended family on moral development. Some areas of moral development are better developed (e.g., moral emotions and behaviors) and others remain relatively less explored (e.g., moral identity). At the conclusion of the chapter, avenues for future research are discussed.

scholarly journals Cooperation among Ugandan farmers: cultivating social capital

2017 ◽  
Vol 20 (5) ◽  
pp. 673-688 ◽  
Author(s):  
J.L. Morrow ◽  
Richard Patrick Joyce ◽  
William J. McMahon ◽  
Antonio M. DeMaia ◽  
S. Caleb McVicker ◽  
...  
Keyword(s):  
Social Capital ◽  
Emotional Support ◽  
Resource Sharing ◽  
Economic Benefits ◽  
Two Dimensions ◽  
Social Benefits ◽  
Future Research ◽  
Agricultural Cooperative ◽  
Cooperative Development ◽  
Willingness To Cooperate

A survey was administered to 183 Ugandan farmers in August 2014 to assess the factors that influence their willingness to become members of a proposed new agricultural cooperative. In particular, we were interested in a better understanding of how farmers viewed the social benefits associated with cooperation. These social benefits have the potential to become valuable sources of social capital. Four valid and reliable measures of social benefits were identified. Social benefits that farmers may use to get by (bonding networks) had two dimensions: emotional support and social support. Social benefits that farmers may use to get ahead (bridging networks) also had two dimensions: tangible and intangible resource sharing. The desire to gain these social benefits from cooperation (except for emotional support) emerged as strong predictors of farmers’ willingness to cooperate in a proposed new agricultural cooperative. Surprisingly, the expected economic benefits of cooperation did not have a significant effect on willingness to cooperate. Implications and suggestions for future research and cooperative development and management are also discussed.

scholarly journals Experiences of family members of patients with colostomies and expectations about professional intervention

2014 ◽  
Vol 22 (2) ◽  
pp. 241-247 ◽  
Author(s):  
Augusto Ferreira-Umpiérrez ◽  
Zoraida Fort-Fort
Keyword(s):  
Family Relationships ◽  
Nuclear Family ◽  
Family Members ◽  
Phenomenological Approach ◽  
Health Care Team ◽  
Way Of Life ◽  
Family Ties ◽  
New Family ◽  
The Social ◽  
Professional Intervention

OBJECTIVE: the objective was to understand the experience of a group of family members of patients with colostomies, revealing their expectations regarding the intervention of health professionals.METHOD: qualitative research, with the social phenomenological approach of Alfred Schütz, conducted in Montevideo in 2012; twelve family members of patients with colostomies participated, from an ostomy service of a health institution.RESULTS: the following categories were identified: family ties, trust in the health care team, the nurse as the articulator of the process, the desire to humanize care, and adaptation to new family life.CONCLUSIONS: knowing the experience and expectations of the families of colostomy patients was achieved, emphasizing the previous family relationships to build upon them, and the trust in the health team, emphasizing the nurse as articulator of the process. Expectations focused on the desire for humanized care, enhancing adaptation of the nuclear family to the new way of life, restoring and enhancing its strengths, and collaborating in overcoming its weaknesses.

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