scholarly journals Adaptation to Precarious Prosperity: Is it Resignation?

2018 ◽  
Vol 44 (3) ◽  
pp. 423-442
Author(s):  
Rebekka Sieber
Keyword(s):  
Quality Of Life ◽  
Social Experiences ◽  
Qualitative Design ◽  
Societal Level ◽  
Changes Over Time ◽  
Over Time

Abstract This article aims at understanding how adaptation occurs in precarious prosperity. It investigates quality of life in Switzerland using a longitudinal qualitative design. The results show that processes of adaptation tend to be similar according to relevant social experiences and that adaptation does not mean complete resignation. Furthermore, the reasoning of adapting people changes over time. This shows an internalization of the perceived norm not being satisfied. Adaptation thus contributes to the reproduction of inequalities on a societal level.

Value of caregiver ratings in evaluating the quality of life of patients with cancer.

1997 ◽  
Vol 15 (3) ◽  
pp. 1206-1217 ◽  
Author(s):  
K C Sneeuw ◽  
N K Aaronson ◽  
M A Sprangers ◽  
S B Detmar ◽  
L D Wever ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Cancer Patients ◽  
Informal Caregivers ◽  
Self Report ◽  
Sources Of Information ◽  
Individual Patient Level ◽  
Populations At Risk ◽  
Changes Over Time ◽  
Over Time

PURPOSE To evaluate the usefulness of caregiver ratings of cancer patients' quality of life (QL), we examined the following: (1) the comparability of responses to a brief standardized QL questionnaire provided by patients, physicians, and informal caregivers; and (2) the relative validity of these ratings. METHODS The study sample included cancer patients receiving chemotherapy, their treating physicians, and significant others involved closely in the (informal) care of the patients. During an early phase of treatment and 3 months later, patients and caregivers completed independently the COOP/WONCA charts, covering seven QL domains. At baseline, all sources of information were available for 295 of 320 participating patients (92%). Complete follow-up data were obtained for 189 patient-caregiver triads. RESULTS Comparison of mean scores on the COOP/WONCA charts revealed close agreement between patient and caregiver ratings. At the individual patient level, exact or global agreement was observed in the majority of cases (73% to 91%). Corrected for chance agreement, moderate intraclass correlations (ICC) were noted (0.32 to 0.72). Patient, physician, and informal caregiver COOP/WONCA scores were all responsive to changes over time in specific QL domains, but differed in their relative performance. Relative to the patients, the physicians were more efficient in detecting changes over time in physical fitness and overall health, but less so in relation to social function and pain. CONCLUSION For studies among patient populations at risk of deteriorating self-report capabilities, physicians and informal caregivers can be useful as alternative or complementary sources of information on cancer patients' QL.

OS09.4.A Health-related quality of life in low-grade glioma survivors 26 years after diagnosis

2021 ◽  
Vol 23 (Supplement_2) ◽  
pp. ii12-ii12
Author(s):  
F W Boele ◽  
J C Reijneveld ◽  
P C de Witt Hamer ◽  
H F van Thuijl ◽  
P Wesseling ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Low Grade ◽  
Group Level ◽  
Related Quality ◽  
Health Related ◽  
Changes Over Time ◽  
Over Time

Abstract BACKGROUND Many patients with low-grade gliomas (LGGs) continue to survive for many years, yet little is known about patients’ health-related quality of life (HRQOL) in long-term survivorship. We previously investigated HRQOL in LGG patients diagnosed on average 6 years prior to assessment (T1, N=195) with a follow-up in stable patients on average 12 years after diagnosis (T2, N=65). We present a final follow-up of LGG survivors (T3), now decades after diagnosis. MATERIAL AND METHODS We invited patients who participated in our previous assessment (N=65), regardless of disease status. Patients completed questionnaires to assess HRQOL, fatigue, and depressive symptoms: Short Form-36 Health Survey (SF-36), European Organisation for Research and Treatment of Cancer Quality of Life Questionnaire-Brain Tumour Module (EORTC BN20), Checklist Individual Strength (CIS), and the Center for Epidemiological Studies Depression Scale (CES-D). Changes over time (T1-T2-T3) on group level and participant level were assessed. RESULTS Of the 65 patients, 18 (27.7%) were deceased, 3 (4.6%) experienced tumour progression to WHO III, 7 (10.8%) declined, and 3 (4.6%) could not be contacted. Thirty-four patients (52.3%) participated. Of these, 2 had missing HRQOL data, with 32 patients included in analysis. Survivors were M=52.0 (sd=11.3) years old and diagnosed M=26.2 (sd=3.7, range 19–35) years prior. On group level, a statistically significant (but not clinically relevant) improvement in mental health (p=0.049), and a clinically relevant (but not statistically significant) decline in emotional role functioning was found. No other group-level changes over time in HRQOL were found. Minimal detectable change in HRQOL scale scores over time was observed in individual participants (28.1% only improvement; 25.0% only decline; 21.9% both improvement and decline) with 25.0% remaining completely stable. At T3, 25.0% of survivors scored above the cut-off for high risk of clinical depression (≥16 CES-D), and 53.1% of survivors classed as severely fatigued (≥35 CIS). CONCLUSION In this cohort of LGG survivors, assessed decades after diagnosis and treatment, HRQOL does not appear to be greatly impacted during survivorship. However, depressive symptoms and fatigue remain relatively common. Findings can help inform patients, their families, and clinicians and can serve as a benchmark for treatment trials evaluating interventions that can have very long-term effects.

The Evolution of a Movement

1989 ◽  
Vol 9 (4) ◽  
pp. 401-405 ◽  
Author(s):  
Frank M. Andrews
Keyword(s):  
Quality Of Life ◽  
Social Indicators ◽  
Social Policies ◽  
The Social ◽  
Wide Range ◽  
New Knowledge ◽  
Social Indicators Movement ◽  
Changes Over Time ◽  
Over Time

The Social Indicators Movement which emerged in the late 1960s was motivated by a broad and appealing idea. It is important to monitor changes over time in a wide range of quality of life, both for a population as a whole and for its significant subgroups, because such information, when combined with other data, can generate new knowledge about how to increase quality of life through more effective social policies.

Association between symptoms and quality of life in patients with schizophrenia: A pooled analysis of changes over time

2011 ◽  
Vol 133 (1-3) ◽  
pp. 17-21 ◽  
Author(s):  
Stefan Priebe ◽  
Rosemarie McCabe ◽  
Ulrich Junghan ◽  
Thomas Kallert ◽  
Mirella Ruggeri ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Pooled Analysis ◽  
Changes Over Time ◽  
Over Time

Changes over time in quality of life of school-aged children born extremely preterm: 1991–2005

2021 ◽  
pp. fetalneonatal-2020-320582 ◽  
Author(s):  
Stacey Peart ◽  
Jeanie Ling Yoong Cheong ◽  
Gehan Roberts ◽  
Noni Davis ◽  
Peter J Anderson ◽  
...  
Keyword(s):  
Quality Of Life ◽  
School Aged Children ◽  
Cohort Differences ◽  
Extremely Preterm ◽  
Related Quality ◽  
Health Related ◽  
Mean Differences ◽  
Changes Over Time ◽  
Over Time

ObjectiveTo compare health-related quality of life (HRQOL) at 8 years in children born extremely preterm (EP) with contemporaneous term-born controls over three epochs: 1991–92, 1997 and 2005.DesignProspective recruitment of geographic cohorts across three distinct eras. Utilities were calculated from the parent-completed Health Utilities Index (HUI), version 2 (1991–92 and 1997 cohorts) and version 3 (2005 cohort). Differences in utilities >0.05 are clinically important.SettingThe state of Victoria, Australia.Patients475 EP (<28 weeks’ gestation) and 570 term controls.Main outcome measuresUtilities of children born EP compared with term controls within each era, and paired differences between an EP and matched controls compared across eras.ResultsOverall, 86% of survivors had utility data at 8 years of age; 475 EP and 570 controls. In all eras, parent-reported utilities were lower for children born EP compared with controls (difference in medians (95% CIs); 1991–92, −0.053 (–0.071 to –0.035); 1997, –0.053 (−0.072 to –0.034); 2005, –0.082 (−0.097 to –0.068)). Mean differences (MD) between EP children and matched controls within each era were lower in the 2005 cohort compared with both the 1991–92 cohort (MD −0.054, 95% CI −0.097 to –0.010) and the 1997 cohort (MD −0.053, 95% CI −0.097 to –0.009).ConclusionChildren born EP in the postsurfactant era have clinically important reductions in parent-reported HRQOL compared with controls, which may be worsening over time.

Changes over time in older dialysis patients' self-assessed quality of life

1993 ◽  
Vol 3 (3) ◽  
pp. 145-150 ◽  
Author(s):  
Nancy G. Kutner ◽  
Brooke Fielding ◽  
Donna Brogan
Keyword(s):  
Quality Of Life ◽  
Dialysis Patients ◽  
Changes Over Time ◽  
Over Time

Health-related quality of life in outpatients with schizophrenia: what determines changes over time and how to measure them

2017 ◽  
Vol 27 ◽  
pp. S909-S910
Author(s):  
C. Domenech ◽  
C. Altamura ◽  
C. Bernasconi ◽  
R. Corral ◽  
H. Elkis ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related ◽  
Changes Over Time ◽  
Over Time
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