scholarly journals A systematic review of parents’ experiences of raising a child with type 1 diabetes

2021 ◽  
Vol 21 (1) ◽  
pp. 43-58
Author(s):  
Saffron Simpson ◽  
Paul Hanna ◽  
Christina J Jones
Keyword(s):  
Mental Health ◽  
Type 1 Diabetes ◽  
Psychological Impact ◽  
Future Research ◽  
Health Issues ◽  
Parental Experience ◽  
Study Characteristics ◽  
Change Of Life ◽  
Parents Experiences

Background: There are currently 1.1 million young people estimated to have type 1 diabetes (T1D) across the world. A diagnosis of T1D impacts not only the children’s lives but also those of the parents.Aim: To understand the experiences of parents raising a child with T1D.Methods: For inclusion, studies had to report qualitative data on parents' experiences of raising a child with a diagnosis of T1D. Parents included mothers, fathers or any other primary caregivers. Eleven databases were systematically searched for relevant articles. Studies were quality assessed and study characteristics extracted. The data were thematically synthesised.Results: Thirty-two studies met the inclusion criteria. Thematic synthesis yielded two analytical themes: ‘adjusting to a new reality’ and ‘navigating appropriate T1D support’. The five descriptive themes that contributed to these were ‘distressing diagnostic experience’, ‘change of life routine’, ‘enablers and barriers to support from others’, ‘reconstruction of family dynamics’ and ‘psychological impact over time’.Conclusions: Difficulties parents encounter in support received from school and healthcare professionals are highlighted. Parents’ mental health needs should be attended to throughout T1D clinic appointments. Future research should explore fathers' experiences, as well as characteristics (such as employment status, education, relationship status and underlying mental health issues) which may affect parental experience, given the paucity of existing evidence.

scholarly journals Parents’ experiences of caring for a young child with type 1 diabetes: a systematic review and synthesis of qualitative evidence

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
B. Kimbell ◽  
J. Lawton ◽  
C. Boughton ◽  
R. Hovorka ◽  
D. Rankin
Keyword(s):  
Type 1 Diabetes ◽  
Management Practices ◽  
Diabetes Management ◽  
Sociodemographic Factors ◽  
Future Research ◽  
Perceived Need ◽  
Qualitative Evidence ◽  
Practical Support ◽  
Parents Experiences

Abstract Aims To synthesise the qualitative evidence on parents’ experiences of caring for a child aged ≤8 years with type 1 diabetes to identify: the challenges they encounter; their views about support received; ways in which support could be improved; and, directions for future research. Methods We searched Medline, EMBASE, CINAHL, PsycINFO and Web of Science databases to identify qualitative studies reporting parents’ views and experiences of caring for a child with type 1 diabetes aged ≤8 years. Key analytical themes were identified using thematic synthesis. Results Fourteen studies were included. The synthesis resulted in the generation of two overarching themes. Monopolisation of life describes the all-encompassing impact diabetes could have on parents due to the constant worry they experienced and the perceived need for vigilance. It describes how parents’ caring responsibilities could affect their wellbeing, relationships and finances, and how a lack of trusted sources of childcare and a desire to enable a ‘normal’ childhood constrained personal choices and activities. However, use of diabetes technologies could lessen some of these burdens. Experiences of professional and informal support describes how encounters with healthcare professionals, while generally perceived as helpful, could lead to frustration and anxiety, and how connecting with other parents caring for a child with type 1 diabetes provided valued emotional and practical support. Conclusions This synthesis outlines the challenges parents encounter, their views about support received and ways in which support might be improved. It also highlights significant limitations in the current literature and points to important areas for future research, including how sociodemographic factors and use of newer diabetes technologies influence parents’ diabetes management practices and experiences. PROSPERO: https://www.crd.york.ac.uk/prospero/display_record.php?ID=CRD42019128710

Mental Health Issues in Adolescents and Young Adults With Type 1 Diabetes

2012 ◽  
Vol 52 (1) ◽  
pp. 10-15 ◽  
Author(s):  
Carrie M. Bernstein ◽  
Melissa S. Stockwell ◽  
Mary Pat Gallagher ◽  
Susan L. Rosenthal ◽  
Karen Soren
Keyword(s):  
Mental Health ◽  
Type 1 Diabetes ◽  
Young Adults ◽  
Adolescents And Young Adults ◽  
Health Issues ◽  
Mental Health Issues

Habit and Routine Interventions with Emerging Adults with Diabetes: An Integrative Review

2021 ◽  
pp. 019394592110322
Author(s):  
Kathleen M. Hanna ◽  
Jed R. Hansen ◽  
Kim A. Harp ◽  
Kelly J. Betts ◽  
Diane Brage Hudson ◽  
...  
Keyword(s):  
Type 1 Diabetes ◽  
Health Outcomes ◽  
Emerging Adults ◽  
Text Messaging ◽  
Integrative Review ◽  
Self Management ◽  
Future Research ◽  
Medical Librarian

Although theoretical and empirical writings on habits and routines are a promising body of science to guide interventions, little is known about such interventions among emerging adults with type 1 diabetes. Thus, an integrative review was conducted to describe interventions in relation to habits and routines, their influence on outcomes, and users’ perspectives. A medical librarian conducted a search. Teams screened titles, abstracts, and articles based upon predefined criteria. Evidence from the final 11 articles was synthesized. A minority of investigators explicitly articulated habits and routines theoretical underpinnings as part of the interventions. However, text messaging or feedback via technology used in other interventions could be implicitly linked to habits and routines. For the most part, these interventions positively influenced diabetes self-management-related behaviors and health outcomes. In general, the interventions were perceived positively by users. Future research is advocated using habit and routine theoretical underpinnings to guide interventions.

scholarly journals Anxiety, depression, and glycemic control during Covid-19 pandemic in youths with type 1 diabetes

2021 ◽  
Vol 0 (0) ◽  
Author(s):  
Maria Cusinato ◽  
Mariangela Martino ◽  
Alex Sartori ◽  
Claudia Gabrielli ◽  
Laura Tassara ◽  
...  
Keyword(s):  
Type 1 Diabetes ◽  
Glycemic Control ◽  
Psychological Impact ◽  
Glucose Monitoring ◽  
Severe Hypoglycemia ◽  
Well Being ◽  
Glucose Variability ◽  
Threshold Score ◽  
The Impact

Abstract Objectives Our study aims to assess the impact of lockdown during the coronavirus disease 2019 pandemic on glycemic control and psychological well-being in youths with type 1 diabetes. Methods We compared glycemic metrics during lockdown with the same period of 2019. The psychological impact was evaluated with the Test of Anxiety and Depression. Results We analyzed metrics of 117 adolescents (87% on Multiple Daily Injections and 100% were flash glucose monitoring/continuous glucose monitoring users). During the lockdown, we observed an increase of the percentage of time in range (TIR) (p<0.001), with a significant reduction of time in moderate (p=0.002), and severe hypoglycemia (p=0.001), as well as the percentage of time in hyperglycemia (p<0.001). Glucose variability did not differ (p=0.863). The glucose management indicator was lower (p=0.001). 7% of youths reached the threshold-score (≥115) for anxiety and 16% for depression. A higher score was associated with lower TIR [p=0.028, p=0.012]. Conclusions Glycemic control improved during the first lockdown period with respect to the previous year. Symptoms of depression and anxiety were associated with worse glycemic control; future researches are necessary to establish if this improvement is transient and if psychological difficulties will increase during the prolonged pandemic situation.

scholarly journals Mental Health in Women Living With HIV: The Unique and Unmet Needs

2021 ◽  
Vol 20 ◽  
pp. 232595822098566
Author(s):  
Elizabeth M. Waldron ◽  
Inger Burnett-Zeigler ◽  
Victoria Wee ◽  
Yiukee Warren Ng ◽  
Linda J. Koenig ◽  
...  
Keyword(s):  
Mental Health ◽  
Mental Health Treatment ◽  
Behavioral Therapy ◽  
Well Being ◽  
Future Research ◽  
Health Issues ◽  
Women Living With Hiv ◽  
Mental Health Issues ◽  
Hiv Management ◽  
Living With Hiv

Women living with HIV (WLWH) experience depression, anxiety, and posttraumatic stress symptoms at higher rates than their male counterparts and more often than HIV-unaffected women. These mental health issues affect not only the well-being and quality of life of WLWH, but have implications for HIV management and transmission prevention. Despite these ramifications, WLWH are under-treated for mental health concerns and they are underrepresented in the mental health treatment literature. In this review, we illustrate the unique mental health issues faced by WLWH such as a high prevalence of physical and sexual abuse histories, caregiving stress, and elevated internalized stigma as well as myriad barriers to care. We examine the feasibility and outcomes of mental health interventions that have been tested in WLWH including cognitive behavioral therapy, mindfulness-based interventions, and supportive counseling. Future research is required to address individual and systemic barriers to mental health care for WLWH.

547-P: Worry and Mental Health in Young Adults with Type 1 Diabetes during the COVID-19 Pandemic

Diabetes ◽  
2021 ◽  
Vol 70 (Supplement 1) ◽  
pp. 547-P
Author(s):  
PERSIS V. COMMISSARIAT ◽  
DANIELLE ST. PIERRE ◽  
ANNA SABINO ◽  
SARA LEE ◽  
JENNIFER SAYLOR
Keyword(s):  
Mental Health ◽  
Type 1 Diabetes ◽  
Young Adults

scholarly journals Loss and assimilation: Lived experiences of Brexit for British nationals living in Luxembourg

2020 ◽  
Author(s):  
Stephanie Maria Knight ◽  
Dean Fido ◽  
Henry William Lennon ◽  
Craig A. Harper
Keyword(s):  
Mental Health ◽  
Lived Experiences ◽  
Psychological Impact ◽  
Health Issues ◽  
Structured Interviews ◽  
Critical Realist ◽  
Political Upheaval ◽  
Health Practitioners ◽  
The Uk ◽  
Political Realities

Inconsistent political realities are associated with mental health issues such as hopelessness, anxiety, and depression. The psychological impact of Brexit is clearly an important and timely issue, but hitherto has been understudied. This study uses a critical realist approach to qualitatively explore the lived experiences of British Citizens living in Luxembourg during the Brexit era. The study carried out semi-structured interviews with 8 British nationals aged 18-65. An experientially-focused Thematic Analysis was conducted, exploring two main themes: Loss (with psychological and broader social implications) and Integration (contrasting the mover's community with the receiving community). This study demonstrates the psychological impact of Brexit and highlights the urgency for future researchers and mental health practitioners alike – both in the UK and overseas – to consider the human consequences associated with political upheaval. Open access materials for this project can be viewed here: https://osf.io/38rg7/?view_only=b8c04dfc3fe5474f9aff4897e370b3e6.

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